Guest guest Posted December 21, 2009 Report Share Posted December 21, 2009 I am hoping to pass it onto friends who are interested. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2009 Report Share Posted December 22, 2009 I have a copy of Dr. ' manuscript describing apraxia as a metabolic syndrome and their improvement on fish oil. Dr. is a lead scientist at Children's Hospital, Oakland and one of her sons has apraxia. She compiled data on 187 apraxic children about 2 years ago, mostly from this group. I'll send you a copy. Not sure if it's in the 'links/files' section of this group anymore. I looked recently and couldn't find it. If anyone else is interested, let me know. Below is the Results section of her manuscript. Debra in CA RESULTS Data were analyzed on 187 children with VA (age range 2-15 years; median age 4 years). A common clinical phenotype of male predominance (148/187, 79%), sensory issues (=49%), low muscle tone (=32%), ASD (=27%), coordination diffi culties (=24%), food allergy (=14%), and GI symptoms (=13%) emerged. Not all families reported the presence or absence of these symptoms, so the prevalence of comorbidity in our VA cohort is likely underestimated. A total of 181 families (97%) reported dramatic improvements in a number of areas including speech, imitation, coordination, eye contact, behavior, sensory issues, development of pain sensation, and GERD symptoms. No serious adverse events were reported; however, 22 families described a similar pattern of transient atypical behavior that included increased moodiness, temper tantrums, hyperactivity, and crying that generally lasted between 1 to 3 weeks before subsiding. This was usually accompanied by notable improvements in speech, babbling, imitation, and/or coordination. One family reported nosebleeds. Five families reported no improvement, and 1 family reported worsening aggressive and irritable behavior that was unacceptable, and the supplements were stopped within a week. Five of the 6 nonresponders carried a dual diagnosis of VA and ASD. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2009 Report Share Posted December 22, 2009 Don't know if this is what you are looking for - here is a message Message #50766 that I had archived from this group... > > I am hoping to pass it onto friends who are interested. Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2009 Report Share Posted December 23, 2009 Thanks! I got it! > > > > I am hoping to pass it onto friends who are interested. Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.