Never posted before - Nutriiveda - UK trial

[Guest guest]

Hi,

I have been a reader and watcher of this forum I am based in the UK. My son is

4.5 years old and he has ASD, DCD, Hypotonia abd Sensory Integration problems.

Since starting him on a biomedical program i.e. GF/CF diet, probiotics and MB12

injections his health has improved tremendously, he used to suffer with eczema

and asthma, with severe hair loss. He would not respond to his name and just

sit in the corner with a bus.

We started the biomedical in October 2007 he was excatly 2 years old and then

ABA in January 2008. He has really made great progress, we added fish oils at

the back end of 2008 and although still non-verbal he started to become much

more aware of his environment. Since the beginning of this year he no longer

seems like he has ASD he seems more like Apraxia. He tries to make speech sounds

something her never used to do although his range is very limited. We have also

started working with a private SLP who is great and using a combination of talk

tools, Kaufman and Nuffield strategies tailoring his targets according to his

difficulties.

So, I have been devouring all the stories about Nutriiveda and shared this

information with our DAN Dr who thinks it sounds good. She has analysed the

ingredients as we may need to remove some on the supplements we currently

provide. So I need 2 pieces of information before we start:

1. Our son is 18kg/39.7 pounds - so what quantities of NV should I give and how

often. I have seen that it should not be a problem in terms of his GF/CF diet.

2. Where can I buy it as we are based in the UK.

We are really excited, as so far although in comparison to typical kids he is

behind; the last 2 years we have seen terrific progress although he continues to

need OT and SLP support. Also, in academic areas he is on par or ahead of his

peers. So, if we can get the verbal communication he would be doing great. He

currently uses signs and we have trialled 2 communication aids lightwriter and

proloquo to go which he has been very proficient with. Look forward to your

response.

[Guest guest]

Congratulations Claudette! It sounds like you found yourself an incredible

partner to work with to help your child -and the proof is in the pudding as your

son is improving -awesome!!!

About your son -most of the children about your age and weight are using 2 full

or even heaping scoops of nutriiveda or NV a day. Some working with DAN or

other doctors or nutritionists are going a bit higher with those dosages after

starting and seeing even greater surges and that's probably fine as it's 100

percent water soluble. See info here on dosages etc.

http://pursuitofresearch.org/faq.html Information for the professional

http://pursuitofresearch.org/NutriiVeda_Information.pdf Serving suggestions

http://pursuitofresearch.org/serving_suggestions.html

And this is the theory page as to perhaps reasons why it's " working "

http://pursuitofresearch.org/science.html

There are a few others from the UK ordering and we are trying to figure out the

best and cheapest way to get it there as the manufacturer is not " open " there

yet. Autoship is not available nor is the cheap shipping that the manufacturer

offers available yet but it is planned to be at some point. Right now you can

order it through the international order form from our group

https://nutraeasy.com/pursuit/order_pursuit_intl.html and I'll quote you with

the costs per USPS shipping which has been the cheapest so far prior to

processing anything. If you want me to put you in touch with other parents from

the UK -please let me know! Here's just one from our apraxia.org fb page

http://www.facebook.com/topic.php?uid=115029735601 & topic=14811 but there are

quite a few. I am so open to any ways to ship that would be best for those of

you in countries that can't get shipping from the manufacturer yet which again

is cheaper than USPS (!!) In Singapore, Zarifah and others has something called

VPost which is awesome where we have the company ship for her to Vpost in the US

and then they ship to her in Singapore and she's getting it out to families in

Singapore and Malaysia.

Hope that helps for now and again let me know if you wish me to put you in touch

with other families from the UK! I have parents who have children with various

diagnosis (autism, apraxia, seizures) of all different ages- and good results-

which it must be because the shipping is about the same cost as a canister!!

(but as some have said -totally worth it because it's working) So again your

order form page would be https://nutraeasy.com/pursuit/order_pursuit_intl.html

and I would send you a price quote depending upon what you wanted. The

canisters (or tubs as you guys call them) are 1.9 pounds each.

Let me know!

=====

[Guest guest]

,

Thanks for such a prompt and positive response - sometimes when you are doing

these things you feel that you are doing it alone especially as in the US you

seem to have much more proactive support system from health and education

services.

Anyway, we are going to review the information - it's 40mins past midnight in

the UK so we need to go to bed and then discuss it with our DAN on Monday.

Particularly as last night we started chelation stage of the Biomed so it feels

like everything is happening at once and I am conscious that we have always up

until now, introduced one thing at a time so we can be clear what is and isn't

working.

The details of the mum in the UK you have provided I have been in touch with

already, and we have been talking for the last few days. It would be great to

be put in touch wth other families as well.

Finally, I will be in touch mid-week to let you know what we will do in terms of

shipping.

Thanks for your support and I am so glad I have found this group.

Claudette#

From: kiddietalk@...

Date: Sat, 17 Jul 2010 22:45:35 +0000

Subject: [ ] Re: Never posted before - Nutriiveda - UK trial

Congratulations Claudette! It sounds like you found yourself an incredible

partner to work with to help your child -and the proof is in the pudding as your

son is improving -awesome!!!

About your son -most of the children about your age and weight are using 2 full

or even heaping scoops of nutriiveda or NV a day. Some working with DAN or other

doctors or nutritionists are going a bit higher with those dosages after

starting and seeing even greater surges and that's probably fine as it's 100

percent water soluble. See info here on dosages etc.

http://pursuitofresearch.org/faq.html Information for the professional

http://pursuitofresearch.org/NutriiVeda_Information.pdf Serving suggestions

http://pursuitofresearch.org/serving_suggestions.html

And this is the theory page as to perhaps reasons why it's " working "

http://pursuitofresearch.org/science.html

There are a few others from the UK ordering and we are trying to figure out the

best and cheapest way to get it there as the manufacturer is not " open " there

yet. Autoship is not available nor is the cheap shipping that the manufacturer

offers available yet but it is planned to be at some point. Right now you can

order it through the international order form from our group

https://nutraeasy.com/pursuit/order_pursuit_intl.html and I'll quote you with

the costs per USPS shipping which has been the cheapest so far prior to

processing anything. If you want me to put you in touch with other parents from

the UK -please let me know! Here's just one from our apraxia.org fb page

http://www.facebook.com/topic.php?uid=115029735601 & topic=14811 but there are

quite a few. I am so open to any ways to ship that would be best for those of

you in countries that can't get shipping from the manufacturer yet which again

is cheaper than USPS (!!) In Singapore, Zarifah and others has something called

VPost which is awesome where we have the company ship for her to Vpost in the US

and then they ship to her in Singapore and she's getting it out to families in

Singapore and Malaysia.

Hope that helps for now and again let me know if you wish me to put you in touch

with other families from the UK! I have parents who have children with various

diagnosis (autism, apraxia, seizures) of all different ages- and good results-

which it must be because the shipping is about the same cost as a canister!!

(but as some have said -totally worth it because it's working) So again your

order form page would be https://nutraeasy.com/pursuit/order_pursuit_intl.html

and I would send you a price quote depending upon what you wanted. The canisters

(or tubs as you guys call them) are 1.9 pounds each.

Let me know!

=====

[Guest guest]

RE: [ ] Re: Never posted before - Nutriiveda - UK trial

,

Thanks for such a prompt and positive response - sometimes when you are doing

these things you feel that you are doing it alone especially as in the US you

seem to have much more proactive support system from health and education

services.

Anyway, we are going to review the information - it's 40mins past midnight in

the UK so we need to go to bed and then discuss it with our DAN on Monday.

Particularly as last night we started chelation stage of the Biomed so it feels

like everything is happening at once and I am conscious that we have always up

until now, introduced one thing at a time so we can be clear what is and isn't

working.

The details of the mum in the UK you have provided I have been in touch with

already, and we have been talking for the last few days. It would be great to

be put in touch wth other families as well.

Finally, I will be in touch mid-week to let you know what we will do in terms of

shipping.

Thanks for your support and I am so glad I have found this group.

Claudette#

From: kiddietalk@...

Date: Sat, 17 Jul 2010 22:45:35 +0000

Subject: [ ] Re: Never posted before - Nutriiveda - UK trial

Congratulations Claudette! It sounds like you found yourself an incredible

partner to work with to help your child -and the proof is in the pudding as your

son is improving -awesome!!!

About your son -most of the children about your age and weight are using 2 full

or even heaping scoops of nutriiveda or NV a day. Some working with DAN or other

doctors or nutritionists are going a bit higher with those dosages after

starting and seeing even greater surges and that's probably fine as it's 100

percent water soluble. See info here on dosages etc.

http://pursuitofresearch.org/faq.html Information for the professional

http://pursuitofresearch.org/NutriiVeda_Information.pdf Serving suggestions

http://pursuitofresearch.org/serving_suggestions.html

And this is the theory page as to perhaps reasons why it's " working "

http://pursuitofresearch.org/science.html

There are a few others from the UK ordering and we are trying to figure out the

best and cheapest way to get it there as the manufacturer is not " open " there

yet. Autoship is not available nor is the cheap shipping that the manufacturer

offers available yet but it is planned to be at some point. Right now you can

order it through the international order form from our group

https://nutraeasy.com/pursuit/order_pursuit_intl.html and I'll quote you with

the costs per USPS shipping which has been the cheapest so far prior to

processing anything. If you want me to put you in touch with other parents from

the UK -please let me know! Here's just one from our apraxia.org fb page

http://www.facebook.com/topic.php?uid=115029735601 & topic=14811 but there are

quite a few. I am so open to any ways to ship that would be best for those of

you in countries that can't get shipping from the manufacturer yet which again

is cheaper than USPS (!!) In Singapore, Zarifah and others has something called

VPost which is awesome where we have the company ship for her to Vpost in the US

and then they ship to her in Singapore and she's getting it out to families in

Singapore and Malaysia.

Hope that helps for now and again let me know if you wish me to put you in touch

with other families from the UK! I have parents who have children with various

diagnosis (autism, apraxia, seizures) of all different ages- and good results-

which it must be because the shipping is about the same cost as a canister!!

(but as some have said -totally worth it because it's working) So again your

order form page would be https://nutraeasy.com/pursuit/order_pursuit_intl.html

and I would send you a price quote depending upon what you wanted. The canisters

(or tubs as you guys call them) are 1.9 pounds each.

Let me know!

=====