outcomes?

[Guest guest]

One other question: no one I speak with will commit to an outcome. What happens

to these children? My son is 2.7, has about 80 words, can put two words

together, but can't make very basic words such as " mom, " or " cat. " I'd love to

hear from parents of older children. Thanks!

[Guest guest]

As it turns out, my other SLP at my office was apraxic when she was younger. If

she hadn't told me, I never would have known. So the expectation for improvement

is great but may vary some depending on the child.

Warmest wishes,

Barbara A , M.S.,CCC-SLP

President,

Help Me Speak, LLC

www.helpmespeak.com

2500 Wallington Way

Suite 103

Marriottsville, MD 21104

410-442-9791

Ask me about NutriiVeda!

On Sep 26, 2010, at 6:02 PM, " lanceethan0123 " <lanceethan0123@...> wrote:

> One other question: no one I speak with will commit to an outcome. What

happens to these children? My son is 2.7, has about 80 words, can put two words

together, but can't make very basic words such as " mom, " or " cat. " I'd love to

hear from parents of older children. Thanks!

>

>

[Guest guest]

I've run this group for over a decade now and the success rate no matter how

severe the child is when first diagnosed is extremely high for those parents in

this group. It doesn't appear that those stats yet reflect to those children

who have parents that don't know how to advocate and secure appropriate services

and placement. In addition in this group we have for the past decade

recommended in addition to traditional speech and occupational therapy to

explore multisensory and alternative therapies. Have you read The Late Talker

book?

Also over the years most in this group use fish oils (the essential fatty acids)

and more recently we are having even more dramatic and quicker surges with NV

(essential amino acids and essential nutrients from whole foods)

My apraxic son Tanner was diagnosed severe profound apraxic at 2 years 10

months. He also was diagnosed with oral apraxia, dysarthria, sensory

integration dysfunction, hypotonia and motor planning deficits as well

throughout his body. He required speech, occupational and physical therapy. No

matter how much therapy he had his progress was painfully slow until I

discovered fish oils which helped him tremendously throughout most of his life.

My son Tanner has been mainstreamed since kindergarten and is a good kid.

Outside of a product called Pharma Omega Speak which has mega vitamin e in it

that created MASSIVE regressions in my poor son which lasted for months- the

rest has been awesome -but it wasn't until NV that Tanner went from having any

apraxia quirks to well above normal in various areas (see

http://pursuitofresearch.org/pursuit.html as much of what is there first started

with Tanner but many others today are seeing the same)

So to answer your question...from what I have seen more so than the severity of

the initial diagnosis, prognosis for verbal disabled children depends greatly on

the involvement of the parents -and being your are here...your child is one of

the lucky ones!

There honestly is so much hope!! And please please if you have not yet -read

The Late Talker for basic advocacy and other info to learn how to secure

appropriate therapy -and please look into fish oils and NV!!!

=====

[Guest guest]

At the last CASANA meeting in July, one of the speakers stated that over 99% of

kids that are apraxic do just fine as adults. the less than 1% usually are kids

that are apraxic and have other major disabilities that are concurrent with the

apraxia.

[Guest guest]

Just landed in NJ where I am for my Aunt Leona's funeral tomorrow -but HAD to

answer this!! While I agree that with appropriate placement and therapies-

traditional and alternative whatever is needed -the success rate in this group

over the past decade is extremely for mainstream school and life, please check

the boards at other groups -or where parents come with questions about their

essentially non verbal teen who was just diagnosed with apraxia.

Prognosis is high...but for those who have parents such as those in this group

that are out there advocating. In general I don't mean to profile but this

group over the years typically is not low income -and those are the children

with apraxia who have parents that don't have the time nor money to advocate and

in more cases depend solely on the school for what is appropriate. Even I -who

co wrote the book The Late Talker had to fight like nuts for services that I

should have have had to fight for. Was told that individual therapy was not

" possible " and in some cases as this repeats all over the US- it appears to be a

game where the squeaky wheel parent gets the grease for that particular child.

But to say all with apraxia 99 percent? Was there something else said as to how

that high?

If not giving clarification that stat would be with appropriate and probably

intensive as well as appropriate therapy and placement- then I find that stat to

be both offensive and irresponsible coming from a professional to the numerous

apraxic individuals out there who because of lack of awareness and advocacy have

not received the services they need to have the chance to " do just fine " as

adults -and who need help today. This is not a let's get all the square pegs to

fit into the square hole situation. There is still even so little awareness or

research on why we even have this huge group of a previously rare disorder for

someone to come up with a stat that basically would tell the average person

" well then why care about apraxia?! "

I'm sure there was more to the statement -but if not- then what this

professional was saying is that having apraxia is no different than having a

developmental delay in speech! And you don't even have to have a degree to know

that is insane advice that you'd get from a cashier at a supermarket -or a well

meaning relative -not a professional. Prognosis is high with appropriate

placement and therapies -on it's own apraxia does not go away on it's own...and

again...it's not a childhood condition- like stuttering it's a motor planning

disorder one can learn to overcome.

Or...does this professional know about NV and what we are seeing now?!!! I mean

we do appear to have a paradigm shift with that as we have kids going on NV and

then surging to normal and above- and perhaps 99 percent of not just apraxia

but apraxia and other conditions as well will be fine going ahead once all know

about it. - I put the two studies up here which in my eyes prove that diet does

cure!! http://www.facebook.com/topic.php?uid=115029735601 & topic=15272

=====

[Guest guest]

Hi-

I was at this conference as well and have their book of handouts from each

class. Do you remember which class this was said in? I must not have been in

that one. I am surprised to hear this- and would like to review that speaker's

handouts!

[ ] Re: outcomes?

At the last CASANA meeting in July, one of the speakers stated that over 99% of

kids that are apraxic do just fine as adults. the less than 1% usually are kids

that are apraxic and have other major disabilities that are concurrent with the

apraxia.

[Guest guest]

I've never met a single therapist or doctor who will predict the future for you!

Not in Early Intervention, not in prek and not in K-12.

Every child is different. God forbid what they " predict " does not come true?

What would they do with every parent who came back and said..but,this is what

YOU told me would happen, why didnt it??

At 2.7 years, my daughter was communicating mostly by sign. I tried to ask the

same questions but they will not answer them. She mastered her walking at

2.5-3yrs old. They also told me kids with multiple disabilities,like my

daughter, often master one major milestone at a time. She finally got the

walking and had a way to communicate to get by at home and school. She didnt get

her Apraxia dx till she was just over 4yrs old. Before that, it was mostly

oral-motor stuff. Once she turned 5yrs old, something changed. I dont know if it

was her maturity level or the therapy she was receiving at school. But all of a

sudden, a burst of words! She had not said two words together. She also said

Dada before mama, but so do most babies. They told me that D often comes before

M in speech development! my husband was ecstatic. Than finally, mama came! I

have movies of her saying it because I was so happy to finally hear it.

Does your child have other disabilities? It will come, just continue therapy and

make sure he has a way to communicate until the words come! Dont ask the doctors

to predict the future? Would you want that responsibility on you? I wouldn't!

Maureen

>

> One other question: no one I speak with will commit to an outcome. What

happens to these children? My son is 2.7, has about 80 words, can put two words

together, but can't make very basic words such as " mom, " or " cat. " I'd love to

hear from parents of older children. Thanks!

>