Has NV created a paradigm shift?

[Guest guest]

Let me know if you come up with something...Cale is going to some evals

within the next couple of weeks and I'm so nervous b/c I KNOW that he still

needs therapy, but he's come really far from where we started, with the help

of NV!

Also, , how long does it take to see speech regression, once taken off

of NV?

Thanks!

-Brittany

In a message dated 9/24/2010 3:22:44 P.M. Eastern Daylight Time,

kiddietalk@... writes:

I got the following email from who's son surged from 10 to 21 month

old level in speech on NV -and below is that is the message I sent out

yesterday from about her 5 and a half year old not being qualified for

services any longer either because he's doing so well. We need help from

the SLPs and MDs in this group who have patients, clients, or children on NV

to be able to write something up that explains the brain responds to

multiple stimuli and just because these children have surges on NV doesn't mean

they do not require services to further help them. The goal is to get these

children up to speed and whether a random professional doesn't believe NV

(or fish oils -same issues but never this extreme) created the surge. We

know it's from the NV. If you are able to help by writing up case studies of

your clients on NV who STILL need therapy - and why it's so important ..that

parents can share to help maintain services please share.

Hi ,

So, the news is good, but not as good as you might expect. Jack is doing

great! He is talking in 3-6 word sentences now (He is 32 months old now.) He

is able to say almost any word spontaneously now. I feel as though he is

catching up but is not there yet because he will say three fluid words then

pause where a pause is not needed and then a 4 word related phrase. " Horsee

eat hay...in big red barn.) He is using adjectives and verbs. We worked

hard on " ing " verb endings. He can say " man riding big red bike. " or other

phrases like that. He has made tremendous progress considering he could only

say maybe 5 words total in January of this year! I do attribute a lot of

that to the Nutriiveda. (I believe he started Nutriiveda in late January or

earl y February.)

EI has reduced his speech from twice to once weekly since his last

evaluation in August. I was not real happy with that but not much I could do.

Our

private speech therapist as well as the EI therapist put him at around the

24 month mark for his speech (although I think it is a little better now.)

Unfortunately our private speech therapist had to take a full time school

job so he hasn't been able to see her anymore and we can't find another

private therapist around here with good credentials and references. He is

having his speech therapy at a local hospital once a week now. I am not pleased

with the speech therapist there either. Jack has not taken to her very well

and they make us sit in a pretty confined room (which is hard to ask of

ANY two year old boy. SHe has also not done anything except play with him.

I have been there for all but one session and I don't see her using any

technique at all much less any specifically designed for Apraxia. She even

told my husband that she thought Jack's speech was that of a typical 3 year

old and that if she had evaluated him, then he would not be receiving

services at all! NICE...probably why she is just playing with him and not

working/drilling him to advance speech. So, I am in the midst of working with

his

Service Coordinator to get us either back on the waiting list or working

with a different speech therapist. It is frustrating.

Jack is still receiving 1 - 1 and 1/2 scoops a day. The good news is that

when Jack has been off of the Nutriiveda for 2-3-4 days, I no longer see

any regression! That is the great news! I am thinking about bumping him up to

2 scoops a day. I agree with you in your thinking that there is some sort

of repair going on. Jack isn't totally there yet, but considering where he

came from, and the fact that he won't be three until January, I am very

happy with his progress! I think I will probably always keep him on at least

one scoop for general health purposes. He is a very good eater and he LOVES

fruits and vegetables so I know he is getting all of nutrients he needs,

but it can't hurt I figure!

Well, thanks again for all of the support and guidance! For monthers like

me and most of the others in the group, we would be lost without the group

and people like you! Thanks again for all of your help!

Talk to you soon,

and

Of course you can share with the group. I am also worried because this new

speech therapist says she is pretty sure he doesn't have Apraxia. It ticks

me off because she said that after seeing him for less than an hour. I

told her we have two other speech therapists and more importantly a doctor in

Chicago that have diagnosed him with Apraxia. I guess she thinks she knows

more than they do...which really worries me. It makes me wonder if she

really even knows what it is much less how to provide therapy for it. I

honestly feel like I give him more therapy than she does.

I think you are right about the paradigm shift. I am glad Jack is doing so

well, but I definitely think he still needs therapy. It is so frustrating.

I wish the " people " who made these dicisions could walk a week in our

shoes or better yet, a week in our children's shoes. It is sickening and

disheartening. When they dropped Jack's services from 2 X per week to 1

( " because

he was improving, " ) I said, so rather than keeping him at twice a week and

getting him completely caught up by Kindergarten, let's decrease his

services just enough to keep him behind all the way through school. I was

irrate

to put it mildly. I know you know the frustration all too well.

Past messages:

Subject: RE: [childrensapraxiane t] Do any of you use Nutriiveda for your

little ones (under 3)?

Hello ,

Our 24 month old has been on NV for just over a week now. We have seen

some

tremendous increases in his speech. He is attempting many more words and

is now

" singing " along to some songs. I was very worried about trying this with

my son

at first as well. I did have it approved by his Pediatrician and plan to

take it

to his Pediatric Neurologist on March 1st. I do have my degree in science

and

have asked many other scientists where I work what their thoughts were

about the

product. No one thought there would be any problems. I also tried the

product

before I gave it to my son. I started him with 1/3 of a scoop twice a day

for a

few days and then increased to 1/2 a scoop twice a day. I am thinking about

waiting another week and then stopping the NV to see if there is any

regression.

Again, our son's only additional supplements are the ProEPA and ProEFA. I

will

keep you posted on any additional improvements!

Hello,

Yes, we just started our 25month old son on NutriiVeda on February 1st. I

did

have it approved by his Pediatrician before I started him on it. He takes

½ of

a scoop in the morning and ½ of a scoop with dinner. I have already seen

some

good results! He has just begun with two word sentences (approximations)

which

he had never done before. I was waiting to post until after he had been on

it

for a few weeks, but we are so excited about the progress he has made in

just 4

and ½ days! (As a side note...Our son is also on the ProEFA and ProEPA

but he

has never been on any other supplements [other than a Flintstones vitamin])

I hope this helps.

IL

RE: [ ] 25month old son on NutriiVeda update

Hello Everyone,

I wanted to give you all an update on my 25 month old son Diagnosed with

CAS.

My son started on the NN fish oils when he was 20 months old with a small

surge

in soft vowel production. (He previously had no words and made very few

sound

other than grunting and pointing.) He also started Speech therapy with a

private speech therapist once a week at that time (because EI did not have

a

speech therapist available and still doesn't.) He began using " B, " " M, "

and " P "

consonants with soft vowels at around 23months but he had no words and was

not

mimicking any sounds. At 24 months he did start to pick up some animal

sound

approximations " ba and moo " and was able to say " moe " for more. We had his

6

month re-evaluation (through EI) in the middle of January. They evaluated

his

expressive language to be at 12 months and increased his therapy to twice a

week. (He has no other delays.) He does have some hypotonia in his lower

lip

and tongue.

After careful consideration and the " OK " from his pediatrician, I started

our

24 and ½ month old son on Nutriiveda on February 1st. It has been two

weeks and

we have seen him go from 1-2 word approximations to well over 50 word

approximations! He will try to mimic anything I ask him too. He even has

some

two word approximations: " la oo " for love you! He can make all consonant

sounds now except for " j, t, d, and s. " I did not tell his speech therapist

when I started him and she could not believe the difference! She said he

was

mimicking and trying any word she asked! I can now get him to mimic whole

sentences: I will say one word at a time and he will repeat it. He will

say " I

- wan - moe - ruck - pees " for I want more truck please. He has many more

spontaneous approximations as well. He can even say some words

spontaneously

and perfectly: " pop, happy, me, my, mama, baby, go, up, yeah, wee, uh-oh "

and I

am sure there are a few more that I am not thinking of right now. He will

even

sing along with his new CD aimed at children with CAS " Drills on Wheels! "

So it

has been about a month now since he was evaluated to be 12 months

expressively

and I took him to Chicago to see a Developmental Pediatrician (to get a

formal

diagnoses) on Friday. There was a speech therapist, a developmental

therapist,

an occupational therapist, a child psychiatrist, and the Pediatrician in

the

room for his evaluation. They determined that his expressive speech is now

at a

21 month level! That means he went from a 12 month level to a 21 month

level in

less than a month (and two weeks on the Nutriiveda!) We were amazed and so

was

the group that evaluated him! I did bring a label and some of our group's

information to let them know about the Nutriiveda, but they pretty much

dismissed that it could be the Nutriiveda. They told us to keep doing

" whatever "

we were doing. I believe differently of course!

I can't say that there have been many other noticeable changes in my son,

but

he has never had any behavioral problems and he has always been very

social. I

do think he focuses a little better during his speech therapy sessions but

other

than that, I haven't noticed any other changes. (As if the speech wasn't

enough!)

So, thank you for bringing this wonderful product to our group and I

hope

that all of you see as many great changes in your children as we have seen

in

the last few weeks!

Sincerely,

IL

~~~~~~~~~~~~~~~~~~~~~~~~~~

=====

Geng

President CHERAB Foundation

Communication Help, Education, Research, Apraxia Base

_http://www.cherab.org_ (http://www.cherab.org/)

_http://www.pursuitofresearch.org_ (http://www.pursuitofresearch.org/)

_http://www.apraxia.org_ (http://www.apraxia.org/)

_http://twitter.com/TheLateTalker_ (http://twitter.com/TheLateTalker)

772-335-5135

" Help give our cherubs a smile and a voice "

>

> Below is an update from who's sons go to Kent University.

has sent me the evaluation which credits " therapy and nutriiveda " for

her son going from severe to mild apraxia in 3 months (!!!) I recall

telling me both boys shot up in height too- but I'm sure there are

many

things that aren't in here -but what she does have is amazing. Please read

the following because both boys had a different reaction. One was the

typical right away dramatic -the other not so much. Fortunately as and

her other son both were experiencing positive results she kept her older

apraxic son on it for health reasons...and then she learned of the higher

dosages I have Tanner on (and I've since changed the dosages here

_http://pursuitofresearch.org/faq.html#dosage_

(http://pursuitofresearch.org/faq.html#dosage) and then with just a HALF A

SCOOP more...dramatic surge. We know it's

dosage dependent. I just can't wait till this stuff is validated. And I do

hope all can figure out creative ways to get this into their child in a

fun way -we have some suggestions here

_http://pursuitofresearch.org/serving_suggestions.html_

(http://pursuitofresearch.org/serving_suggestions.html)

including Liralen's butter idea for cinnamon toast!)

>

> Here's 's update that she asked me to share here too!

>

> Nutriiveda Update

> ...

> From:

> michelle brown <merl_44107@...>

>

>

>

> ,

>

> Just wanted to write to let you know how the boys are doing on

Nutriiveda. We started at the beginning of April. I remember when I first got

it/tasted it and thought I would never get the boys to drink it. We started

mixing it with DariFree chocolate and gradually we have grown accustomed to

drinking it mixed only with water. I have continued to monitor their hydration.

When it is really hot or humid, I have them drink Smart Water for

electrolytes. I always have them drink a glass of water before they drink the

Nutriiveda mix.

>

> Both my 5 and 7 year old were on 2 heaping scoops split between morning

and afternoon. My 5 year old took off right away. When we started

Nutriiveda, I was still translating for unfamiliar listeners and sometimes for

family (provided I new what he was saying). Within about a month and 1/2, I was

only rarely translating. During this time, he made a 20 point gain on The

Goldman Fristoe Test of Articulation, going from a standard score of 69 to a

standard score of 89 in one day shy of a month between the two tests. He

also made gains in behavior, no longer jumping through martial arts. In

July, we took him to his Neurologist who diagnosed him with mild-moderate

Apraxia, extending to limbs. An improvement from his former severe Apraxia

diagnosis. He continues to make progress in speech, song singing, motor skills,

and just maturity in general. One other thing I want to point out is that

Ben's SLP has cards that she used and prior to Nutriiveda Ben would tire out

after 5 cards and that was with encouragement. They were even thinking of

shortening Ben's sessions since he would get so tired. After being on

Nutriiveda for 3 weeks Ben started going through all 25 cards -and all on his

own!! No more fatigue. The one problem now since Nutriiveda is that according

to his school and based on Ben's current ability he doesn't qualify for

any services at all.

>

> Changing his Nordic Naturals ratio from 2:1 to 1:1 for attention has

helped also. I realized that two heaping scoops is basically 3 level scoops,

so he gets 1 level scoop in the morning and 2 level scoops in the afternoon.

>

> My 7 year old has very mild Apraxia and since we waited a year to start

kindergarten, he was already doing well. He needed to work on his 'R' sound

and on integrating his moro reflex. I figured that he would change quickly

on the Nutriiveda. We maybe saw some changes, but nothing like Ben. I was

on it also and felt clearer thinking and more even emotionally. Because Ben

and I were experiencing changes, we kept on it, knowing that it was

at least good for him. After realizing how much you had Tanner on and how

much older/bigger was than Ben, I moved him up to 3 level and 1/2

scoops/day. Very quickly we started seeing changes. is on a traveling

soccer team. Suddenly, he was kicking the soccer ball for goals from a

distance and HARD. He was able to throw the football FAR and kick it FAR.

People

were noticing. Even older kicks were talking about his throw. He was already

athletic, but it has definitely had a push since starting the new amount

less than a month ago. School started a little before and he is reading

really well in first grade. He wasn't behind before, but it does seem a little

easier for him to visualize the words and then remember them/generalize

them in the future. Two weeks ago, his speech teacher said that he was finally

able to make the 'r' sound in some positions that day. 'R' his the one

sound he was unable to make.

>

> My 5 year old has severe asthma and so we have started the Buteyko

Breathing Technique, which emphasizes lips closed and proper resting tongue

placement so that you take smaller breaths through the nose. We have already

had a cold that only lasted a week without using his fast acting inhaler. As

his health becomes more consistent, I'm sure Ben will have even greater

progress. I have also heard that the proper tongue placement on the the roof

of the mouth helps a lot with articulation.

>

> I finally feel like between the Nutriiveda and Nordic Naturals and

breathing properly, we have found the key to actually allowing Ben to heal on a

permanent basis. There is nothing more enjoyable than to see him begin to

lead the stress free/fun life that childhood should be. Thanks for letting

us know about it.

>

> Sincerely,

>

> ~~~~~~~~~~~~~~~~~~~end of fw

> _http://pursuitofresearch.org/testimonials.html_

(http://pursuitofresearch.org/testimonials.html)

>

> =====

>

[Guest guest]

I got the following email from who's son surged from 10 to 21 month old

level in speech on NV -and below is that is the message I sent out yesterday

from about her 5 and a half year old not being qualified for services

any longer either because he's doing so well. We need help from the SLPs and

MDs in this group who have patients, clients, or children on NV to be able to

write something up that explains the brain responds to multiple stimuli and just

because these children have surges on NV doesn't mean they do not require

services to further help them. The goal is to get these children up to speed

and whether a random professional doesn't believe NV (or fish oils -same issues

but never this extreme) created the surge. We know it's from the NV. If you

are able to help by writing up case studies of your clients on NV who STILL need

therapy - and why it's so important ..that parents can share to help maintain

services please share.

Hi ,

So, the news is good, but not as good as you might expect. Jack is doing great!

He is talking in 3-6 word sentences now (He is 32 months old now.) He is able

to say almost any word spontaneously now. I feel as though he is catching up

but is not there yet because he will say three fluid words then pause where a

pause is not needed and then a 4 word related phrase. " Horsee eat hay...in big

red barn.) He is using adjectives and verbs. We worked hard on " ing " verb

endings. He can say " man riding big red bike. " or other phrases like that. He

has made tremendous progress considering he could only say maybe 5 words total

in January of this year! I do attribute a lot of that to the Nutriiveda. (I

believe he started Nutriiveda in late January or earl y February.)

EI has reduced his speech from twice to once weekly since his last evaluation

in August. I was not real happy with that but not much I could do. Our private

speech therapist as well as the EI therapist put him at around the 24 month mark

for his speech (although I think it is a little better now.) Unfortunately our

private speech therapist had to take a full time school job so he hasn't been

able to see her anymore and we can't find another private therapist around here

with good credentials and references. He is having his speech therapy at a

local hospital once a week now. I am not pleased with the speech therapist there

either. Jack has not taken to her very well and they make us sit in a pretty

confined room (which is hard to ask of ANY two year old boy. SHe has also

not done anything except play with him. I have been there for all but one

session and I don't see her using any technique at all much less any

specifically designed for Apraxia. She even told my husband that she thought

Jack's speech was that of a typical 3 year old and that if she had evaluated

him, then he would not be receiving services at all! NICE...probably why she is

just playing with him and not working/drilling him to advance speech. So, I am

in the midst of working with his Service Coordinator to get us either back on

the waiting list or working with a different speech therapist. It is

frustrating.

Jack is still receiving 1 - 1 and 1/2 scoops a day. The good news is that when

Jack has been off of the Nutriiveda for 2-3-4 days, I no longer see any

regression! That is the great news! I am thinking about bumping him up to 2

scoops a day. I agree with you in your thinking that there is some sort of

repair going on. Jack isn't totally there yet, but considering where he came

from, and the fact that he won't be three until January, I am very happy with

his progress! I think I will probably always keep him on at least one scoop

for general health purposes. He is a very good eater and he LOVES fruits and

vegetables so I know he is getting all of nutrients he needs, but it can't hurt

I figure!

Well, thanks again for all of the support and guidance! For monthers like me

and most of the others in the group, we would be lost without the group and

people like you! Thanks again for all of your help!

Talk to you soon,

and

Of course you can share with the group. I am also worried because this new

speech therapist says she is pretty sure he doesn't have Apraxia. It ticks me

off because she said that after seeing him for less than an hour. I told her we

have two other speech therapists and more importantly a doctor in Chicago that

have diagnosed him with Apraxia. I guess she thinks she knows more than they

do...which really worries me. It makes me wonder if she really even knows what

it is much less how to provide therapy for it. I honestly feel like I give him

more therapy than she does.

I think you are right about the paradigm shift. I am glad Jack is doing so

well, but I definitely think he still needs therapy. It is so frustrating. I

wish the " people " who made these dicisions could walk a week in our shoes or

better yet, a week in our children's shoes. It is sickening and disheartening.

When they dropped Jack's services from 2 X per week to 1 ( " because he was

improving, " ) I said, so rather than keeping him at twice a week and getting him

completely caught up by Kindergarten, let's decrease his services just enough to

keep him behind all the way through school. I was irrate to put it mildly. I

know you know the frustration all too well.

Past messages:

Subject: RE: [childrensapraxiane t] Do any of you use Nutriiveda for your

little ones (under 3)?

Hello ,

Our 24 month old has been on NV for just over a week now. We have seen some

tremendous increases in his speech. He is attempting many more words and is now

" singing " along to some songs. I was very worried about trying this with my son

at first as well. I did have it approved by his Pediatrician and plan to take it

to his Pediatric Neurologist on March 1st. I do have my degree in science and

have asked many other scientists where I work what their thoughts were about the

product. No one thought there would be any problems. I also tried the product

before I gave it to my son. I started him with 1/3 of a scoop twice a day for a

few days and then increased to 1/2 a scoop twice a day. I am thinking about

waiting another week and then stopping the NV to see if there is any regression.

Again, our son's only additional supplements are the ProEPA and ProEFA. I will

keep you posted on any additional improvements!

Hello,

Yes, we just started our 25month old son on NutriiVeda on February 1st. I did

have it approved by his Pediatrician before I started him on it. He takes ½ of

a scoop in the morning and ½ of a scoop with dinner. I have already seen some

good results! He has just begun with two word sentences (approximations) which

he had never done before. I was waiting to post until after he had been on it

for a few weeks, but we are so excited about the progress he has made in just 4

and ½ days! (As a side note...Our son is also on the ProEFA and ProEPA but he

has never been on any other supplements [other than a Flintstones vitamin])

I hope this helps.

IL

RE: [ ] 25month old son on NutriiVeda update

Hello Everyone,

I wanted to give you all an update on my 25 month old son Diagnosed with CAS.

My son started on the NN fish oils when he was 20 months old with a small surge

in soft vowel production. (He previously had no words and made very few sound

other than grunting and pointing.) He also started Speech therapy with a

private speech therapist once a week at that time (because EI did not have a

speech therapist available and still doesn't.) He began using " B, " " M, " and " P "

consonants with soft vowels at around 23months but he had no words and was not

mimicking any sounds. At 24 months he did start to pick up some animal sound

approximations " ba and moo " and was able to say " moe " for more. We had his 6

month re-evaluation (through EI) in the middle of January. They evaluated his

expressive language to be at 12 months and increased his therapy to twice a

week. (He has no other delays.) He does have some hypotonia in his lower lip

and tongue.

After careful consideration and the " OK " from his pediatrician, I started our

24 and ½ month old son on Nutriiveda on February 1st. It has been two weeks and

we have seen him go from 1-2 word approximations to well over 50 word

approximations! He will try to mimic anything I ask him too. He even has some

two word approximations: " la oo " for love you! He can make all consonant

sounds now except for " j, t, d, and s. " I did not tell his speech therapist

when I started him and she could not believe the difference! She said he was

mimicking and trying any word she asked! I can now get him to mimic whole

sentences: I will say one word at a time and he will repeat it. He will say " I

- wan - moe - ruck - pees " for I want more truck please. He has many more

spontaneous approximations as well. He can even say some words spontaneously

and perfectly: " pop, happy, me, my, mama, baby, go, up, yeah, wee, uh-oh " and I

am sure there are a few more that I am not thinking of right now. He will even

sing along with his new CD aimed at children with CAS " Drills on Wheels! " So it

has been about a month now since he was evaluated to be 12 months expressively

and I took him to Chicago to see a Developmental Pediatrician (to get a formal

diagnoses) on Friday. There was a speech therapist, a developmental therapist,

an occupational therapist, a child psychiatrist, and the Pediatrician in the

room for his evaluation. They determined that his expressive speech is now at a

21 month level! That means he went from a 12 month level to a 21 month level in

less than a month (and two weeks on the Nutriiveda!) We were amazed and so was

the group that evaluated him! I did bring a label and some of our group's

information to let them know about the Nutriiveda, but they pretty much

dismissed that it could be the Nutriiveda. They told us to keep doing " whatever "

we were doing. I believe differently of course!

I can't say that there have been many other noticeable changes in my son, but

he has never had any behavioral problems and he has always been very social. I

do think he focuses a little better during his speech therapy sessions but other

than that, I haven't noticed any other changes. (As if the speech wasn't

enough!)

So, thank you for bringing this wonderful product to our group and I hope

that all of you see as many great changes in your children as we have seen in

the last few weeks!

Sincerely,

IL

~~~~~~~~~~~~~~~~~~~~~~~~~~

=====

[Guest guest]

>

> I got the following email from who's son surged from 10 to 21 month old

level in speech on NV -and below is that is the message I sent out yesterday

from about her 5 and a half year old not being qualified for services

any longer either because he's doing so well. We need help from the SLPs and

MDs in this group who have patients, clients, or children on NV to be able to

write something up that explains the brain responds to multiple stimuli and just

because these children have surges on NV doesn't mean they do not require

services to further help them. The goal is to get these children up to speed

and whether a random professional doesn't believe NV (or fish oils -same issues

but never this extreme) created the surge. We know it's from the NV. If you

are able to help by writing up case studies of your clients on NV who STILL need

therapy - and why it's so important ..that parents can share to help maintain

services please share.

>

> Hi ,

>

> So, the news is good, but not as good as you might expect. Jack is doing

great! He is talking in 3-6 word sentences now (He is 32 months old now.) He

is able to say almost any word spontaneously now. I feel as though he is

catching up but is not there yet because he will say three fluid words then

pause where a pause is not needed and then a 4 word related phrase. " Horsee eat

hay...in big red barn.) He is using adjectives and verbs. We worked hard on

" ing " verb endings. He can say " man riding big red bike. " or other phrases like

that. He has made tremendous progress considering he could only say maybe 5

words total in January of this year! I do attribute a lot of that to the

Nutriiveda. (I believe he started Nutriiveda in late January or earl y

February.)

> EI has reduced his speech from twice to once weekly since his last

evaluation in August. I was not real happy with that but not much I could do.

Our private speech therapist as well as the EI therapist put him at around the

24 month mark for his speech (although I think it is a little better now.)

Unfortunately our private speech therapist had to take a full time school job so

he hasn't been able to see her anymore and we can't find another private

therapist around here with good credentials and references. He is having his

speech therapy at a local hospital once a week now. I am not pleased with the

speech therapist there either. Jack has not taken to her very well and they

make us sit in a pretty confined room (which is hard to ask of ANY two year old

boy. SHe has also not done anything except play with him. I have been

there for all but one session and I don't see her using any technique at all

much less any specifically designed for Apraxia. She even told my husband that

she thought Jack's speech was that of a typical 3 year old and that if she had

evaluated him, then he would not be receiving services at all! NICE...probably

why she is just playing with him and not working/drilling him to advance speech.

So, I am in the midst of working with his Service Coordinator to get us either

back on the waiting list or working with a different speech therapist. It is

frustrating.

>

> Jack is still receiving 1 - 1 and 1/2 scoops a day. The good news is that

when Jack has been off of the Nutriiveda for 2-3-4 days, I no longer see any

regression! That is the great news! I am thinking about bumping him up to 2

scoops a day. I agree with you in your thinking that there is some sort of

repair going on. Jack isn't totally there yet, but considering where he came

from, and the fact that he won't be three until January, I am very happy with

his progress! I think I will probably always keep him on at least one scoop

for general health purposes. He is a very good eater and he LOVES fruits and

vegetables so I know he is getting all of nutrients he needs, but it can't hurt

I figure!

> Well, thanks again for all of the support and guidance! For monthers like

me and most of the others in the group, we would be lost without the group and

people like you! Thanks again for all of your help!

>

> Talk to you soon,

>

>

> and

>

> Of course you can share with the group. I am also worried because this new

speech therapist says she is pretty sure he doesn't have Apraxia. It ticks me

off because she said that after seeing him for less than an hour. I told her we

have two other speech therapists and more importantly a doctor in Chicago that

have diagnosed him with Apraxia. I guess she thinks she knows more than they

do...which really worries me. It makes me wonder if she really even knows what

it is much less how to provide therapy for it. I honestly feel like I give him

more therapy than she does.

> I think you are right about the paradigm shift. I am glad Jack is doing so

well, but I definitely think he still needs therapy. It is so frustrating. I

wish the " people " who made these dicisions could walk a week in our shoes or

better yet, a week in our children's shoes. It is sickening and disheartening.

When they dropped Jack's services from 2 X per week to 1 ( " because he was

improving, " ) I said, so rather than keeping him at twice a week and getting him

completely caught up by Kindergarten, let's decrease his services just enough to

keep him behind all the way through school. I was irrate to put it mildly. I

know you know the frustration all too well.

>

>

> Past messages:

> Subject: RE: [childrensapraxiane t] Do any of you use Nutriiveda for your

>

> little ones (under 3)?

>

> Hello ,

>

> Our 24 month old has been on NV for just over a week now. We have seen some

> tremendous increases in his speech. He is attempting many more words and is

now

> " singing " along to some songs. I was very worried about trying this with my

son

> at first as well. I did have it approved by his Pediatrician and plan to take

it

> to his Pediatric Neurologist on March 1st. I do have my degree in science and

> have asked many other scientists where I work what their thoughts were about

the

> product. No one thought there would be any problems. I also tried the product

> before I gave it to my son. I started him with 1/3 of a scoop twice a day for

a

> few days and then increased to 1/2 a scoop twice a day. I am thinking about

> waiting another week and then stopping the NV to see if there is any

regression.

> Again, our son's only additional supplements are the ProEPA and ProEFA. I will

> keep you posted on any additional improvements!

>

>

>

> Hello,

>

> Yes, we just started our 25month old son on NutriiVeda on February 1st. I did

> have it approved by his Pediatrician before I started him on it. He takes ½

of

> a scoop in the morning and ½ of a scoop with dinner. I have already seen some

> good results! He has just begun with two word sentences (approximations) which

> he had never done before. I was waiting to post until after he had been on it

> for a few weeks, but we are so excited about the progress he has made in just

4

> and ½ days! (As a side note...Our son is also on the ProEFA and ProEPA but he

> has never been on any other supplements [other than a Flintstones vitamin])

>

> I hope this helps.

>

>

>

> IL

>

> RE: [ ] 25month old son on NutriiVeda update

>

>

> Hello Everyone,

> I wanted to give you all an update on my 25 month old son Diagnosed with CAS.

> My son started on the NN fish oils when he was 20 months old with a small

surge

> in soft vowel production. (He previously had no words and made very few sound

> other than grunting and pointing.) He also started Speech therapy with a

> private speech therapist once a week at that time (because EI did not have a

> speech therapist available and still doesn't.) He began using " B, " " M, " and

" P "

> consonants with soft vowels at around 23months but he had no words and was not

> mimicking any sounds. At 24 months he did start to pick up some animal sound

> approximations " ba and moo " and was able to say " moe " for more. We had his 6

> month re-evaluation (through EI) in the middle of January. They evaluated his

> expressive language to be at 12 months and increased his therapy to twice a

> week. (He has no other delays.) He does have some hypotonia in his lower lip

> and tongue.

> After careful consideration and the " OK " from his pediatrician, I started our

> 24 and ½ month old son on Nutriiveda on February 1st. It has been two weeks

and

> we have seen him go from 1-2 word approximations to well over 50 word

> approximations! He will try to mimic anything I ask him too. He even has some

> two word approximations: " la oo " for love you! He can make all consonant

> sounds now except for " j, t, d, and s. " I did not tell his speech therapist

> when I started him and she could not believe the difference! She said he was

> mimicking and trying any word she asked! I can now get him to mimic whole

> sentences: I will say one word at a time and he will repeat it. He will say " I

> - wan - moe - ruck - pees " for I want more truck please. He has many more

> spontaneous approximations as well. He can even say some words spontaneously

> and perfectly: " pop, happy, me, my, mama, baby, go, up, yeah, wee, uh-oh " and

I

> am sure there are a few more that I am not thinking of right now. He will even

> sing along with his new CD aimed at children with CAS " Drills on Wheels! " So

it

> has been about a month now since he was evaluated to be 12 months expressively

> and I took him to Chicago to see a Developmental Pediatrician (to get a formal

> diagnoses) on Friday. There was a speech therapist, a developmental therapist,

> an occupational therapist, a child psychiatrist, and the Pediatrician in the

> room for his evaluation. They determined that his expressive speech is now at

a

> 21 month level! That means he went from a 12 month level to a 21 month level

in

> less than a month (and two weeks on the Nutriiveda!) We were amazed and so was

> the group that evaluated him! I did bring a label and some of our group's

> information to let them know about the Nutriiveda, but they pretty much

> dismissed that it could be the Nutriiveda. They told us to keep doing

" whatever "

> we were doing. I believe differently of course!

> I can't say that there have been many other noticeable changes in my son, but

> he has never had any behavioral problems and he has always been very social. I

> do think he focuses a little better during his speech therapy sessions but

other

> than that, I haven't noticed any other changes. (As if the speech wasn't

> enough!)

>

> So, thank you for bringing this wonderful product to our group and I hope

> that all of you see as many great changes in your children as we have seen in

> the last few weeks!

>

> Sincerely,

>

> IL

> ~~~~~~~~~~~~~~~~~~~~~~~~~~

>

> =====

>