Re: still confused - need help

[Guest guest]

Hi There,

When our daughter was about 2 and half and not talking , we started schling

appoints, and tried to make them around the same time so that ALL the

reports where current, and we did hearing test with an ENT, then we went to

a Speech Pathologist and he was the one who diagnosed our daughter with

Childhood Apraxia of speech and because she sounded nasally we saw a second

speech pathologist who is specialized and could diagnose either VPI or PNF,

its PNF. so then i took copies of these reports to her school for her

yearly IEP meeting to discuss with the therapists and teachers who provide

her services at her school, to better guide her learning plan for school. We

obtained a high risk pediatrician, who told us to see neuro- devopemental, I

was told that neuro-developemental and neurology where to separate things,

at least at Seattle children's they are. Speech pathologist who diagnosed

the apraxia referred us to a speech clinic that was age appropriate for our

daughter, so she gets services at school and services at the clinic afters

chool, some children with apraixia have motor skill issues so when we went

for an eval at the clinic for speech we also did one for occupational so she

also has OT every week to help with those issues. I hope this info helps and

good luck on your journey, if you have any questions just shoot me an

email:)

and Christian parents of le-FA

From:

[mailto: ] On Behalf Of modelmomnyc

Sent: Tuesday, August 24, 2010 6:11 PM

Subject: [ ] still confused - need help

I have only been in the group a week or so, and have been reading a lot and

I am still a bit confused. I took my 26 month old daughter, Madelyn back to

the neurologist today hoping to exclude or confirm apraxia. The neuro is

concerned that she isn't speaking and wanted to do a repeat MRI, eeg, and a

hearing study. She had them when she was 11 months when she was diagnosed

with hypotonia and global delays. I said no to the tests, but asked about

apraxia. He said she does have apraxia, but saw her for 10 minutes, and it

seemed to be based on her lack of words (she has 2 unclear ones) and her

efforts to speak where the words came out jumbled up.

I'm not sure where to go from here. Madelyn needs more therapy whether she

has apraxia or not, but I was looking for a diagnosis (if she has it) to arm

myself with at my next IFSP meeting. I am not clear as to whether she got

the diagnosis or not.

My next step is a developmental pediatrician, which her current peds have

insisted she doesn't need. Does anyone have any recommendations (or people I

shouldn't see) in the NYC/Long Island area?

Thanks,

[Guest guest]

i don't have answers , just a question.....

why on earth would the peds say a developmental ped isn't needed?  I found mine

to be a great resource of information and she also wrote a darn good report

for the school.  She was the only one to come up with practical advice and

suggestions on what we should do next.

i just hate when doctors give up on kids, and to me, thats what the peds are

doing when they say something isnt necessary. 

you do what you feel is right and strongly tell them this is the next step you

are taking, with or without them.

sorry i don't have answers, but doctors really tick me off sometimes with their

so called advice.

________________________________

From: modelmomnyc <elee1222@...>

Sent: Tue, August 24, 2010 9:10:31 PM

Subject: [ ] still confused - need help

 

I have only been in the group a week or so, and have been reading a lot and I am

still a bit confused. I took my 26 month old daughter, Madelyn back to the

neurologist today hoping to exclude or confirm apraxia. The neuro is concerned

that she isn't speaking and wanted to do a repeat MRI, eeg, and a hearing study.

She had them when she was 11 months when she was diagnosed with hypotonia and

global delays. I said no to the tests, but asked about apraxia. He said she does

have apraxia, but saw her for 10 minutes, and it seemed to be based on her lack

of words (she has 2 unclear ones) and her efforts to speak where the words came

out jumbled up.

I'm not sure where to go from here. Madelyn needs more therapy whether she has

apraxia or not, but I was looking for a diagnosis (if she has it) to arm myself

with at my next IFSP meeting. I am not clear as to whether she got the diagnosis

or not.

My next step is a developmental pediatrician, which her current peds have

insisted she doesn't need. Does anyone have any recommendations (or people I

shouldn't see) in the NYC/Long Island area?

Thanks,

[Guest guest]

Most doctors will recommend a very good hearing test to eliminate that as a

cause for speech delays. thats one that would be good to do. A lot of parents

either see a Ped Neurologist or Dev Ped...so that may be why the Pediatrician

doesnt think you need the Dev Ped since you've already seen the Ped Neuro. I can

give you names in Westchester if you need some. An MRI might be a good idea, EEG

are normally for kids having seizures?

Maureen

[Guest guest]

Thanks for your reply, Christian. She has had the basic hearing test, and there

is nothing to suggest she has any hearing difficulty. The neuro wanted to do a

specific test (I forget the name) where they attach probes to her head and put

something in her ear. She would be sedated. I think it is a bit extreme when

nothing suggests a hearing problem. I really just need a diagnosis to get her

more services from E.I. I've already set up an ammended IFSP meeting, and I

might visit a private SLP to diagnose her so I have something concrete for the

meeting.

Thanks,

>

> Hi There,

>

>

>

> When our daughter was about 2 and half and not talking , we started schling

> appoints, and tried to make them around the same time so that ALL the

> reports where current, and we did hearing test with an ENT, then we went to

> a Speech Pathologist and he was the one who diagnosed our daughter with

> Childhood Apraxia of speech and because she sounded nasally we saw a second

> speech pathologist who is specialized and could diagnose either VPI or PNF,

> its PNF. so then i took copies of these reports to her school for her

> yearly IEP meeting to discuss with the therapists and teachers who provide

> her services at her school, to better guide her learning plan for school. We

> obtained a high risk pediatrician, who told us to see neuro- devopemental, I

> was told that neuro-developemental and neurology where to separate things,

> at least at Seattle children's they are. Speech pathologist who diagnosed

> the apraxia referred us to a speech clinic that was age appropriate for our

> daughter, so she gets services at school and services at the clinic afters

> chool, some children with apraixia have motor skill issues so when we went

> for an eval at the clinic for speech we also did one for occupational so she

> also has OT every week to help with those issues. I hope this info helps and

> good luck on your journey, if you have any questions just shoot me an

> email:)

>

> and Christian parents of le-FA

>

>

>

> From:

> [mailto: ] On Behalf Of modelmomnyc

> Sent: Tuesday, August 24, 2010 6:11 PM

>

> Subject: [ ] still confused - need help

>

>

>

>

>

> I have only been in the group a week or so, and have been reading a lot and

> I am still a bit confused. I took my 26 month old daughter, Madelyn back to

> the neurologist today hoping to exclude or confirm apraxia. The neuro is

> concerned that she isn't speaking and wanted to do a repeat MRI, eeg, and a

> hearing study. She had them when she was 11 months when she was diagnosed

> with hypotonia and global delays. I said no to the tests, but asked about

> apraxia. He said she does have apraxia, but saw her for 10 minutes, and it

> seemed to be based on her lack of words (she has 2 unclear ones) and her

> efforts to speak where the words came out jumbled up.

>

> I'm not sure where to go from here. Madelyn needs more therapy whether she

> has apraxia or not, but I was looking for a diagnosis (if she has it) to arm

> myself with at my next IFSP meeting. I am not clear as to whether she got

> the diagnosis or not.

>

> My next step is a developmental pediatrician, which her current peds have

> insisted she doesn't need. Does anyone have any recommendations (or people I

> shouldn't see) in the NYC/Long Island area?

>

> Thanks,

>

>

>

>

>

>

>

[Guest guest]

I totally agree, and my confidence in peds is continually shrinking. Our peds

have dismissed my concerns from the beginning, chalking Madelyn's delays up to

prematurity, all kids are different, etc. They said that we didn't need to see a

genetist. We went to a hypotonia clinic and met with a geneticist anyway. We

found out that both my daughters and I have a connective tissue disorder. It

explained a lot for me, so I am glad we went.

They said a dev. ped was for autism or downs syndrome, not just delays. We're

going to go anyway. The peds have been fine for my other kids, but they never

had special issues.

>

> i don't have answers , just a question.....

> why on earth would the peds say a developmental ped isn't needed?  I found

mine

> to be a great resource of information and she also wrote a darn good report

> for the school.  She was the only one to come up with practical advice and

> suggestions on what we should do next.

> i just hate when doctors give up on kids, and to me, thats what the peds are

> doing when they say something isnt necessary. 

>

>

> you do what you feel is right and strongly tell them this is the next step you

> are taking, with or without them.

>

> sorry i don't have answers, but doctors really tick me off sometimes with

their

> so called advice.

>

>

>

>

> ________________________________

> From: modelmomnyc <elee1222@...>

>

> Sent: Tue, August 24, 2010 9:10:31 PM

> Subject: [ ] still confused - need help

>

>  

> I have only been in the group a week or so, and have been reading a lot and I

am

> still a bit confused. I took my 26 month old daughter, Madelyn back to the

> neurologist today hoping to exclude or confirm apraxia. The neuro is concerned

> that she isn't speaking and wanted to do a repeat MRI, eeg, and a hearing

study.

> She had them when she was 11 months when she was diagnosed with hypotonia and

> global delays. I said no to the tests, but asked about apraxia. He said she

does

> have apraxia, but saw her for 10 minutes, and it seemed to be based on her

lack

> of words (she has 2 unclear ones) and her efforts to speak where the words

came

> out jumbled up.

>

> I'm not sure where to go from here. Madelyn needs more therapy whether she has

> apraxia or not, but I was looking for a diagnosis (if she has it) to arm

myself

> with at my next IFSP meeting. I am not clear as to whether she got the

diagnosis

> or not.

>

>

> My next step is a developmental pediatrician, which her current peds have

> insisted she doesn't need. Does anyone have any recommendations (or people I

> shouldn't see) in the NYC/Long Island area?

>

>

> Thanks,

>

>

>

>

>

>

>

>

[Guest guest]

Madelyn already had a full work-up with an MRI, eeg, bloodwork etc a year ago.

That will serve as her baseline if she experiences a regression. She is

continuing to progress in every area (even speech) so I am not concerned about a

stroke or seizure.

I think the doctor is just a little test happy.

>

> Most doctors will recommend a very good hearing test to eliminate that as a

cause for speech delays. thats one that would be good to do. A lot of parents

either see a Ped Neurologist or Dev Ped...so that may be why the Pediatrician

doesnt think you need the Dev Ped since you've already seen the Ped Neuro. I can

give you names in Westchester if you need some. An MRI might be a good idea, EEG

are normally for kids having seizures?

>

> Maureen

>

[Guest guest]

We live in Indiana and get 5 sessions a week through E.I. I know it isn't

common, but we requested and had it approved. We get speech 3x, OT 1x and

developmental therapy 1x.

In a message dated 8/26/2010 11:55:31 A.M. Eastern Daylight Time,

mosense@... writes:

I'm still in contact with my daughters EI PT..TG for Facebook! She's still

working with the same agency..I'm sending her a message to find out if NY

has a max per week for EI. we'll see. I thought they told me six years ago

that they generally offered 2x per week for each and to get more than

that--even 3x per week would have been a struggle. Like I said- 2x per week for

each therapy for a baby was enough for me with naps, being pregnant and

getting her older brohter to prek a couple days a week was enough, not to

mention food shopping once in a while. we tried to do some therapy during nap

times or just before and it was hardly worth it. How someone could manage 7x

per week is beyond me--is that thru EI or adding private therapy?

[Guest guest]

My daughter had many ABR's when she was born. that might be what he was talking

about. It measures the brains response to sounds, not just the ears. We did them

all at Westchester Med Center. Also an SLP in NY cant diagnose Apraxia, only a

medical doctor--so going to another SLP outside EI may not help EI at all.I only

needed dx when we went from EI to the school district-their evals were enough to

get her the max sessions that EI would provide. Which therapy are you looking to

increase in EI? Its very difficult to fit in more than 2x a week with EI and

still having a life! you also mentioned she's making progress in all areas, and

an increase in sessions always depended on notes and recommendations from a

doctor, not another therapist, or from the evaluations of the EI therapists. But

with evals, they can also decrease based on results--so thats the chance we

take.

Maureen

Auditory Brainstem Response Evaluation

What is an Auditory Brainstem Response Evaluation (ABR)?

An Auditory Brainstem Response Evaluation (ABR) is a type of test, usually

performed for infants and young children, that evaluates how well sounds travel

along the hearing nerve pathways from the ear to the brainstem. There are two

main types of hearing loss:

Conductive hearing loss -- problems transmitting sound from the outer ear (where

sound is collected) to the inner ear. This type of hearing loss can often

reverse itself as children grow older.

Sensorineural hearing loss -- problems with the nerves connecting the inner ear

to the brain. In the inner ear, tiny hairs on the cochlea act as a neural

pathway, transmitting through the inner ear. Usually, problems with these hairs

on the cochlea are responsible for sensorineural hearing loss. It is usually

permanent and present at birth.

>

> Thanks for your reply, Christian. She has had the basic hearing test, and

there is nothing to suggest she has any hearing difficulty. The neuro wanted to

do a specific test (I forget the name) where they attach probes to her head and

put something in her ear. She would be sedated. I think it is a bit extreme when

nothing suggests a hearing problem. I really just need a diagnosis to get her

more services from E.I. I've already set up an ammended IFSP meeting, and I

might visit a private SLP to diagnose her so I have something concrete for the

meeting.

> Thanks,

>

>

[Guest guest]

Hi Maureen,

It sounds like the test he was referring to. I read the doctor's notes and it

says something like BARR? It is very hard to read, but definitely looks like it

starts with a BA. He said she would be sedated for the test. I am confused about

the diagnosis requirement. I was told that I needed a doctor's diagnosis or a

diagnosis from an SLP, but not the one she is currently working with. If she can

get a diagnosis from an E.I. SLP, then why not a private SLP? She is progressing

in all areas, but has maintained a 5-6 month physical delay for a while. It was

my understanding that with apraxia, kids benefit from intensive therapy. To work

on oral motor, feeding, language, speech production, and a host of other things

in 60 minutes a week is impossible. I would like a Prompt therapist added to her

speech therapy.

Our day already revolves around therapy (7 sessions per week), and it is a

sacrifice I'm willing to make if it will help her be able to communicate with

us. One year ago, Madelyn wouldn't bear any weight on her legs. Now she is

walking and running. I think therapy is awesome, and we have an amazing group of

therapists working with her.

She used to be silent, and since starting speech therapy, she has become a lot

more verbal and says 2 words. It makes such a difference, I want to get as many

sessions as I can for her. 10 years from now, it won't matter that we had so

many people in and out of our house, because she'll be talking and running and

playing in ways not possible without therapy.

Thanks for the info!

From: mosense

Sent: Thursday, August 26, 2010 8:37 AM

Subject: [ ] Re: still confused - need help

My daughter had many ABR's when she was born. that might be what he was talking

about. It measures the brains response to sounds, not just the ears. We did them

all at Westchester Med Center. Also an SLP in NY cant diagnose Apraxia, only a

medical doctor--so going to another SLP outside EI may not help EI at all.I only

needed dx when we went from EI to the school district-their evals were enough to

get her the max sessions that EI would provide. Which therapy are you looking to

increase in EI? Its very difficult to fit in more than 2x a week with EI and

still having a life! you also mentioned she's making progress in all areas, and

an increase in sessions always depended on notes and recommendations from a

doctor, not another therapist, or from the evaluations of the EI therapists. But

with evals, they can also decrease based on results--so thats the chance we

take.

Maureen

Auditory Brainstem Response Evaluation

What is an Auditory Brainstem Response Evaluation (ABR)?

An Auditory Brainstem Response Evaluation (ABR) is a type of test, usually

performed for infants and young children, that evaluates how well sounds travel

along the hearing nerve pathways from the ear to the brainstem. There are two

main types of hearing loss:

Conductive hearing loss -- problems transmitting sound from the outer ear (where

sound is collected) to the inner ear. This type of hearing loss can often

reverse itself as children grow older.

Sensorineural hearing loss -- problems with the nerves connecting the inner ear

to the brain. In the inner ear, tiny hairs on the cochlea act as a neural

pathway, transmitting through the inner ear. Usually, problems with these hairs

on the cochlea are responsible for sensorineural hearing loss. It is usually

permanent and present at birth.

>

> Thanks for your reply, Christian. She has had the basic hearing test, and

there is nothing to suggest she has any hearing difficulty. The neuro wanted to

do a specific test (I forget the name) where they attach probes to her head and

put something in her ear. She would be sedated. I think it is a bit extreme when

nothing suggests a hearing problem. I really just need a diagnosis to get her

more services from E.I. I've already set up an ammended IFSP meeting, and I

might visit a private SLP to diagnose her so I have something concrete for the

meeting.

> Thanks,

>

>

[Guest guest]

Its an ABR or BAER Test.

Auditory Brainstem Response (ABR) or Brainstem Auditory Evoked Response (BAER)

This test consists of sounds that are presented to a child's ears through

earphones. Small electrodes are taped to the child's head and a computer

analyzes responses. The infant or child must be completely still and is often

sedated for this test unless asleep. Testing usually takes less than one hour.

This is an expensive and highly specialized test requiring an experienced

professional.

I also did 7 sessions a week with my daughter. EI does have a max of 2 per week

PT OT SP and Special Ed.my daughter is 9yo. She also had a dx of CP, and didnt

walk till 2.5yrs old. She made very little speech progress during EI which is

why she got her Apraxia dx at 4yo while in prek. What I meant was it was

difficult to coordinate her already very busy therapy schedule with any therapy

we wanted to add, not that I had no desire to make the sacrifice for her. I

never needed to go to an outside therapist during EI, she had no problem

qualifying for the max number of sessions at the time. A doctors diagnosis was

needed more when we transitioned to the school district at 3yo. They always told

me that dx are not really needed during EI since what they provide is based on

their evaluations.

I hope you get what you need, I was also pregnant for most of the time she was

in EI and just going food shopping and dealing with a 3yo was a struggle, but we

got thru it for her! She's now going into 4th grade, self-contained class and

still struggles with her Apraxia challenges and her walking challenges. But she

loves her two brothers and they would not have her any other way.

>

> Hi Maureen,

> It sounds like the test he was referring to. I read the doctor's notes and it

says something like BARR? It is very hard to read, but definitely looks like it

starts with a BA. He said she would be sedated for the test. I am confused about

the diagnosis requirement. I was told that I needed a doctor's diagnosis or a

diagnosis from an SLP, but not the one she is currently working with. If she can

get a diagnosis from an E.I. SLP, then why not a private SLP? She is progressing

in all areas, but has maintained a 5-6 month physical delay for a while. It was

my understanding that with apraxia, kids benefit from intensive therapy. To work

on oral motor, feeding, language, speech production, and a host of other things

in 60 minutes a week is impossible. I would like a Prompt therapist added to her

speech therapy.

> Our day already revolves around therapy (7 sessions per week), and it is a

sacrifice I'm willing to make if it will help her be able to communicate with

us. One year ago, Madelyn wouldn't bear any weight on her legs. Now she is

walking and running. I think therapy is awesome, and we have an amazing group of

therapists working with her.

> She used to be silent, and since starting speech therapy, she has become a lot

more verbal and says 2 words. It makes such a difference, I want to get as many

sessions as I can for her. 10 years from now, it won't matter that we had so

many people in and out of our house, because she'll be talking and running and

playing in ways not possible without therapy.

>

> Thanks for the info!

>

>

>

[Guest guest]

Yes, that is the test. Maybe we'll see how she progresses in a few months and

then take it from there. Is that what they use to test newborns in the nursery?

I didn't mean to imply that you didn't sacrifice for your child. I appologize if

it came across that way. I have had people ask why we do so much therapy and

didn't we want to have a normal life, etc. I just meant that it was all worth

it. Again, I'm sorry that it wasn't clear. I wasn't aware of a max number of

sessions. Is it different in each county? I have a friend who fought hard (6

years ago) and her son ended up with 10 ST, 7 OT, and 7 PT per week, plus a

special instructor. He was undiagnosed at the time and she had to go in there

prepared for battle. We now have 3 PT, 2 OT, and 2 ST. We've always had 1 OT and

she wasn't making much progress, and they upped it to 2, and she has done much

better.

Sounds like your daughter has made great progress! It is encouraging to hear for

those of us who are just starting out down this road.

From: mosense

Sent: Thursday, August 26, 2010 10:37 AM

Subject: [ ] Re: still confused - need help

Its an ABR or BAER Test.

Auditory Brainstem Response (ABR) or Brainstem Auditory Evoked Response (BAER)

This test consists of sounds that are presented to a child's ears through

earphones. Small electrodes are taped to the child's head and a computer

analyzes responses. The infant or child must be completely still and is often

sedated for this test unless asleep. Testing usually takes less than one hour.

This is an expensive and highly specialized test requiring an experienced

professional.

I also did 7 sessions a week with my daughter. EI does have a max of 2 per week

PT OT SP and Special Ed.my daughter is 9yo. She also had a dx of CP, and didnt

walk till 2.5yrs old. She made very little speech progress during EI which is

why she got her Apraxia dx at 4yo while in prek. What I meant was it was

difficult to coordinate her already very busy therapy schedule with any therapy

we wanted to add, not that I had no desire to make the sacrifice for her. I

never needed to go to an outside therapist during EI, she had no problem

qualifying for the max number of sessions at the time. A doctors diagnosis was

needed more when we transitioned to the school district at 3yo. They always told

me that dx are not really needed during EI since what they provide is based on

their evaluations.

I hope you get what you need, I was also pregnant for most of the time she was

in EI and just going food shopping and dealing with a 3yo was a struggle, but we

got thru it for her! She's now going into 4th grade, self-contained class and

still struggles with her Apraxia challenges and her walking challenges. But she

loves her two brothers and they would not have her any other way.

>

> Hi Maureen,

> It sounds like the test he was referring to. I read the doctor's notes and it

says something like BARR? It is very hard to read, but definitely looks like it

starts with a BA. He said she would be sedated for the test. I am confused about

the diagnosis requirement. I was told that I needed a doctor's diagnosis or a

diagnosis from an SLP, but not the one she is currently working with. If she can

get a diagnosis from an E.I. SLP, then why not a private SLP? She is progressing

in all areas, but has maintained a 5-6 month physical delay for a while. It was

my understanding that with apraxia, kids benefit from intensive therapy. To work

on oral motor, feeding, language, speech production, and a host of other things

in 60 minutes a week is impossible. I would like a Prompt therapist added to her

speech therapy.

> Our day already revolves around therapy (7 sessions per week), and it is a

sacrifice I'm willing to make if it will help her be able to communicate with

us. One year ago, Madelyn wouldn't bear any weight on her legs. Now she is

walking and running. I think therapy is awesome, and we have an amazing group of

therapists working with her.

> She used to be silent, and since starting speech therapy, she has become a lot

more verbal and says 2 words. It makes such a difference, I want to get as many

sessions as I can for her. 10 years from now, it won't matter that we had so

many people in and out of our house, because she'll be talking and running and

playing in ways not possible without therapy.

>

> Thanks for the info!

>

>

>

[Guest guest]

I'm still in contact with my daughters EI PT..TG for Facebook! She's still

working with the same agency..I'm sending her a message to find out if NY has a

max per week for EI. we'll see. I thought they told me six years ago that they

generally offered 2x per week for each and to get more than that--even 3x per

week would have been a struggle. Like I said- 2x per week for each therapy for a

baby was enough for me with naps, being pregnant and getting her older brohter

to prek a couple days a week was enough, not to mention food shopping once in a

while. we tried to do some therapy during nap times or just before and it was

hardly worth it. How someone could manage 7x per week is beyond me--is that

thru EI or adding private therapy?

[Guest guest]

Thanks for checking. I don't know how she handled so much therapy, and it was

all through EI. When he entered CPSE, he got dual placement. He was in a

preschool and had home therapy. At the beginning he was undiagnosed. He was

later diagnosed with autism. I had to fight to get Maddi 3 PT, but they approved

it, and she started walking soon after the increase. No coincidence there.

Sent via BlackBerry from T-Mobile

[ ] Re: still confused - need help

I'm still in contact with my daughters EI PT..TG for Facebook! She's still

working with the same agency..I'm sending her a message to find out if NY has a

max per week for EI. we'll see. I thought they told me six years ago that they

generally offered 2x per week for each and to get more than that--even 3x per

week would have been a struggle. Like I said- 2x per week for each therapy for a

baby was enough for me with naps, being pregnant and getting her older brohter

to prek a couple days a week was enough, not to mention food shopping once in a

while. we tried to do some therapy during nap times or just before and it was

hardly worth it. How someone could manage 7x per week is beyond me--is that

thru EI or adding private therapy?

[Guest guest]

The issue seemed to be with the max allowed per therapy, not total, like PT OT

or Speech. we had 7 sessions a week in total, but here in NY, they told me the

max per therapy was 2 and some very involved kids got 3x week of either.

>

> We live in Indiana and get 5 sessions a week through E.I. I know it isn't

> common, but we requested and had it approved. We get speech 3x, OT 1x and

> developmental therapy 1x.

>

>

>

[Guest guest]

My friend just wrote back. She's been in NY EI for many years. She was the SLP

for two of my children.

My experience is that two session per week is generally recommended. I have seen

children 3x a week. Generally there needs to be a clear and conise justification

as to how services 3x would benefit the child. Hope this helps.

[Guest guest]

Thanks again for the info, Maureen. I guess we'll see if 2 words discernable

only to us at 26 months and evidence of a disorder is sufficient. I am also

asking for Prompt therapy, not just more sessions. I would like to add Prompt to

her existing therapy, even if only once per week. I will be going in prepared

with facts about apraxia as well as a day in the life of Maddi. They will have a

true picture of how frustrating it is for everyone not being able to understand

her. Hopefully it helps. We were getting one OT per week, but once it was

understood that she couldn't even hold a crayon to make a mark on the paper, the

EIOD gave us one more session, and we were asking for more speech at the time,

not OT. And, now that she gets 2 OT, she can scribble. I'm not sure yet if the

neuro will put the diagnosis on paper until I have the tests, so we're still

waiting on that.

If you have any tips on getting what she needs at the meeting - I'm all ears.

From: mosense

Sent: Thursday, August 26, 2010 8:57 PM

Subject: [ ] Re: still confused - need help

My friend just wrote back. She's been in NY EI for many years. She was the SLP

for two of my children.

My experience is that two session per week is generally recommended. I have seen

children 3x a week. Generally there needs to be a clear and conise justification

as to how services 3x would benefit the child. Hope this helps.