Re: seizure meds question

[Guest guest]

Our son has partial complex seizures (focal epilepsy). We have been using

Topomax for a few years now with no obvious problems. Neuro was going to

switch us to Depakote a year or so ago, but we decided to stay with Topo.

From:

[mailto: ] On Behalf Of jeannne buesser

Sent: Monday, September 27, 2010 7:44 AM

ApraxiaNetworkOfBergenCountyegroups;

Subject: [ ] seizure meds question

From: Shirghio, Bernadette [mailto:Bernadette.Shirghio@...

<mailto:Bernadette.Shirghio%40pfizer.com> ]

All

On Friday, my daughter had 4 seizures (focal). We had it planned to deliver

a video to the neurologist on Friday so he can see the head tics, so

unfortunately/fortunately the timing was right. Well, they turned out to be

atonic seizures and not head tics. We are removing diamox and catapres

altogether (slowly) and he is introducing Depakote with the Keppra already

on her daily regimen. I read up on atonic seizures and it says medicines

are a hit or miss. Does anyone have any success stories with atonic

seizures?

Bernadette

[Guest guest]

Hi, my daughter has generalized seizures (epilepsy) for 5 yrs. now, was on

depakote for 2 yrs. but we had a lot of problems with her platelet levels and

she had to be taken off because they were too low.Now she is on Keppra and it is

controlling her seizures at this point.In January her neuro. is thinking of

taking her off the seizure meds. after we do an EEG.She is currently taking

Nutriiveda with much success and I am confident that this is making an impact on

her non-seizure activity especially since my son has now been taken off his

seizure med. Tegretol after 9 years. He had grand mal seizures. but after being

on the Nutriiveda for 4 months we had an EEG done and it was normal, my son has

never had a normal EEG since Birth!! It has been 1 month with no meds. for him

and all is well.If you would like to contact me with any questions about

Nutriiveda feel free. It is an all natural product, all from whole foods,

gluten free, soy free, np preservatives, endorsed by the chopra center and has

been approved by many mds. of parents in this group for use by the kids in this

group, the success rate is huge. Give me a call ~~Dawn Falley 631-447-0615

>

> From: Shirghio, Bernadette [mailto:Bernadette.Shirghio@...]

> All

>

> On Friday, my daughter had 4 seizures (focal). We had it planned to deliver

> a video to the neurologist on Friday so he can see the head tics, so

> unfortunately/fortunately the timing was right. Well, they turned out to be

> atonic seizures and not head tics. We are removing diamox and catapres

> altogether (slowly) and he is introducing Depakote with the Keppra already

> on her daily regimen. I read up on atonic seizures and it says medicines

> are a hit or miss. Does anyone have any success stories with atonic

> seizures?

>

>

>

> Bernadette

>

>

>

>

>

>

[Guest guest]

Hi Jeanne,

I'm not sure how to email you through the group. I sent a message not too long

ago asking how you and the boys are making out? I hope all is well. You all are

in my prayers.

Sent from my Palm Pixi on AT & amp;T

> >

> > From: Shirghio, Bernadette [mailto:Bernadette.Shirghio@]

> > All

> >

> > On Friday, my daughter had 4 seizures (focal). We had it planned to deliver

> > a video to the neurologist on Friday so he can see the head tics, so

> > unfortunately/fortunately the timing was right. Well, they turned out to be

> > atonic seizures and not head tics. We are removing diamox and catapres

> > altogether (slowly) and he is introducing Depakote with the Keppra already

> > on her daily regimen. I read up on atonic seizures and it says medicines

> > are a hit or miss. Does anyone have any success stories with atonic

> > seizures?

> >

> >

> >

> > Bernadette

> >

> >

> >

> >

> >

> >