Guest guest Posted February 20, 2000 Report Share Posted February 20, 2000 Hi, Kate - Ear tubes are a relatively easy surgery. Rosie had her first set put in at 10 months and just had one put in her right ear last month. The surgery itself only lasts a few minutes, and the anesthesiologist will barely put her under. It helps if the ENT is familiar with achondroplasia, as the ear canals can be very small and are sometimes bent funny. Rosie went home after the first set in about 2 hours. They will probably make you wait until is awake enough to drink some juice or something and hold it down without barfing. Be forewarned: she may become agitated as she comes out of the anesthesia. This just lasted a short while with Rosie, until she became fully orientated. Ask if they can provide a rocker for you in the recovery room to hold her. For aftercare, Advil or Tylenol is usually strong enough for any discomfort. Rosie hardly noticed the first set at all. This last surgery was a combination of tonsils, adenoids, tubes and laser revision of the upper airway. It was her throat that she kept complaining of, rather than her ears. The first ENT had me put a couple of types of antibiotic drops in Rosie's ears for a few days. Dr. Flaum at Cedars-Sinai did this last surgery, and just said leave her ears alone, so I guess each doctor has his or her own preference. Also, it is definitely worth the money (about $40 - $50) to have custom earmolds made for bathing, shampooing, swimming etc. I tried the cotton balls rolled in Vaseline and the store-bought ear plugs, but they aren't as easy to use. I hope this helps. . . . Pam Graham Ear Tubes >From: katbil65@... > >Hi everyone, I've been out of touch lately, i was wondering if anyone >would mind giving me their thought's and opinion's on ear tube's. My >little is getting them done on the 29th, >She has alot of fluid in the ear's, not too many infection's. So i sure >would appreciate any word's of wisdom, for anyone who doesn't know us >she has Achondroplasia and she is 16 month's old. >Thankyou now and later. >Kate.S > > >------------------------------------------------------------------------ >WANT FREE MAGAZINES? >Sample over 500 magazines in 30 categories-- all for FREE at >FreeShop.com, your source for thousands of free and trial offers! >1/1610/4/_/77518/_/951056031/ >------------------------------------------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2000 Report Share Posted February 20, 2000 Ear Tubes > > >>From: katbil65@... >> >>Hi everyone, I've been out of touch lately, i was wondering if anyone >>would mind giving me their thought's and opinion's on ear tube's. My >>little is getting them done on the 29th, >>She has alot of fluid in the ear's, not too many infection's. So i sure >>would appreciate any word's of wisdom, for anyone who doesn't know us >>she has Achondroplasia and she is 16 month's old. >>Thankyou now and later. >>Kate.S >> >> >>------------------------------------------------------------------------ >>WANT FREE MAGAZINES? >>Sample over 500 magazines in 30 categories-- all for FREE at >>FreeShop.com, your source for thousands of free and trial offers! >>1/1610/4/_/77518/_/951056031/ >>------------------------------------------------------------------------ >> >> >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2002 Report Share Posted April 3, 2002 Sandi, I am so thrilled for that everything went well and my hopes and prayers he has a speedy recovery and you take care! Marlo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2002 Report Share Posted April 3, 2002 Glad it went well for today! Great news! pattie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2002 Report Share Posted April 3, 2002 Glad it went well for today! Great news! pattie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2002 Report Share Posted April 3, 2002 At last! A " good " hospital visit! Glad to hear everything went so well. Hope he does better with the tubes. Ray, mother to Tabitha (age 6), Autumn, age 4 (IgG def., asthma, chronic sinusitis, and allergies), and Duncan (10 months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2002 Report Share Posted April 3, 2002 Sandi, Congratulations on a great day at the hospital with !!! It is really so nice when things go that way! Were you at a Children's Hospital, out of curiosity? I wish all your trips from now on could be so smooth! , mom of (3) Hypogammaglobulinemia on IVIG every 3 weeks and (7.75) _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 In a message dated 7/3/02 6:40:06 AM Central Daylight Time, buttrfly@... writes: > Shanna, I hope finds some relief from the infections with the ear > tubes. Do you have a date for the procedure yet? > > It's probably going to be the 25th or 26th of July! I hope he has relief too...I have to look at it that it's going to make a difference for him especially w/all the other trouble he has. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 In a message dated 7/19/2002 12:11:32 AM Central Daylight Time, writes: << sounds great for stephanie, valerie, as for the swimming nathan is on his 7th set of tubes, and just being in the water wont hurt, he refuses to wear his ear plugs most of the time, but many swim with only getting just a tiny amount of water in them. maybe see aobut swim ear drops to hlep prevent infections if needed. as long as she isnt under the water lots, one can even take a bath or shower and whas their hair and it wont hurt the tubes, no where near enough water---at least that is what our oto tells us. shawna. >> Just one note of caution. I wouldn't use any over the counter ear drops with a kid with a tube or perforation without checking with the dr. My understanding of these drops is they are not meant to go past the ear drum. Karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 good point karyn, we always have a suppply of ear drops from nathan's oto just for his swimming ear infections. shawna. --- KVanRyzin@... wrote: > In a message dated 7/19/2002 12:11:32 AM Central > Daylight Time, > writes: > > << > sounds great for stephanie, valerie, as for the > swimming nathan is on his 7th set of tubes, and > just > being in the water wont hurt, he refuses to wear > his > ear plugs most of the time, but many swim with only > getting just a tiny amount of water in them. maybe > see > aobut swim ear drops to hlep prevent infections if > needed. as long as she isnt under the water lots, > one > can even take a bath or shower and whas their hair > and > it wont hurt the tubes, no where near enough > water---at least that is what our oto tells us. > shawna. >> > > Just one note of caution. I wouldn't use any over > the counter ear drops with > a kid with a tube or perforation without checking > with the dr. My > understanding of these drops is they are not meant > to go past the ear drum. > > Karyn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 I thought this was and interesting answer on the need for water precautions with ear tubes http://www.drgreene.com/21_497.html Most parents of children who have had PE tubes placed are happy with the results. They report fewer ear infections since when infections do occur, and less worrying about whether their children have ear infections or not. For many parents, the most vexing issue is the need for water precautions. Neither making their children wear ear plugs nor limiting water exposure is very fun. For years otolaryngologists (ear, nose, and throat doctors) have cautioned against allowing water in an ear that has an open tube in the eardrum. Recently, some have begun to suggest that swimming precautions are unnecessary -- that water does not get through the tiny tubes into the middle ear. Over the last few years there has been a flurry of articles arguing both points of view. Your quandary is the same one that faces experts. Last month an excellent study was published in the Archives of Otolaryngology and Head and Neck Surgery that may finally end this controversy. The investigators followed 399 children with PE tubes. They were divided into four groups at the beginning of the study. Children in the first group were encouraged to swim without precautions. Those in Group 2 received antibiotic ear drops each night after they had been in the water. Those in group 3 wore molded ear plugs whenever they were in the water. Children in all three of these groups were instructed against diving and swimming more than 6 feet beneath the surface (since water under pressure presumably enters the middle ear through the tubes more readily). The fourth group consisted of confirmed non-swimmers. All parents were warned not to allow soapy water to enter the ear during bathing (since the lower surface tension of soapy water could allow it to penetrate the tubes more easily. Also, soapy water could be more irritating to the middle ear if it gains entrance). Children in the three groups of swimmers experienced no intergroup difference in the incidence either of ear infections or of draining ears regardless of plugs or ear drops. There was also no difference found between the swimmers and the non-swimmers. Conclusion -- relax and follow your doctor's advice. Let your son enjoy swimming. Forget ear plugs. If your son turns out to be one of the unfortunate few who gets frequent ear infections in the summer months even after tubes, you might want to try water precautions on the chance that he is particularly sensitive to water exposure. Perhaps sometime soon, someone will do a study about whether diving, underwater swimming, and soapy bathwater precautions are all really necessary. In the meantime, better safe than sorry. Half way down his page is a long article about ear tubes - a bit dull and techncial at times but may be interesting http://www.myotonicdystrophy.com/Otitis%20Media.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 Thanks Phil...good info.. Have a good day... Sincerely, Renonda (mom of ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 Phil -- Great info (as usual). Thanks. Candy > I thought this was and interesting answer on the need for water precautions with ear tubes > > http://www.drgreene.com/21_497.html > > Most parents of children who have had PE tubes placed are happy with the results. They report fewer ear infections since when infections do occur, and less worrying about whether their children have ear infections or not. > For many parents, the most vexing issue is the need for water precautions. Neither making their children wear ear plugs nor limiting water exposure is very fun. For years otolaryngologists (ear, nose, and throat doctors) have cautioned against allowing water in an ear that has an open tube in the eardrum. Recently, some have begun to suggest that swimming precautions are unnecessary -- that water does not get through the tiny tubes into the middle ear. Over the last few years there has been a flurry of articles arguing both points of view. Your quandary is the same one that faces experts. > > Last month an excellent study was published in the Archives of Otolaryngology and Head and Neck Surgery that may finally end this controversy. The investigators followed 399 children with PE tubes. They were divided into four groups at the beginning of the study. Children in the first group were encouraged to swim without precautions. Those in Group 2 received antibiotic ear drops each night after they had been in the water. Those in group 3 wore molded ear plugs whenever they were in the water. Children in all three of these groups were instructed against diving and swimming more than 6 feet beneath the surface (since water under pressure presumably enters the middle ear through the tubes more readily). The fourth group consisted of confirmed non-swimmers. All parents were warned not to allow soapy water to enter the ear during bathing (since the lower surface tension of soapy water could allow it to penetrate the tubes more easily. Also, soapy water could be more irritating to the middle ear if it gains entrance). > > Children in the three groups of swimmers experienced no intergroup difference in the incidence either of ear infections or of draining ears regardless of plugs or ear drops. There was also no difference found between the swimmers and the non-swimmers. > > Conclusion -- relax and follow your doctor's advice. Let your son enjoy swimming. Forget ear plugs. If your son turns out to be one of the unfortunate few who gets frequent ear infections in the summer months even after tubes, you might want to try water precautions on the chance that he is particularly sensitive to water exposure. > > Perhaps sometime soon, someone will do a study about whether diving, underwater swimming, and soapy bathwater precautions are all really necessary. In the meantime, better safe than sorry. > > > > Half way down his page is a long article about ear tubes - a bit dull and techncial at times but may be interesting > http://www.myotonicdystrophy.com/Otitis%20Media.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 Curtis, I think you are right, we have many views and what works for some, doesnt for others. When we have all of this info, it is easier to make decisions on what is best for us or our children...This is truly a wonderful group... sincerely, Renonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 Hi, , Phil's article was good but it was only one doctor's opinion. As you saw, he (the author) said to listen to your doctor so he is bowing out of any responsibility. I have had about 3 sets of tubes put in because some fall out; so they aren't really " permanent. " However, I can't get water in my ears because in the instances that I did, my ears became infected. When I go to the doctor with an infection, the first think my doctor asks me is if I got water in my ears. I grew up in Hawaii where I was a total beach kid. I also became a competitive swimmer for awhile but because of all the water I got in my ears throughout my childhood, I have problems now as an adult. I would err on the side of caution. This is why I love this group. We have lot's of information and a lot of sides of view. curtis ear tubes > Hi everyone, > > The doctor is going to put permanent ear tubes in my son, 's ears on > Friday to help with his eustation tube dysfunction. There is a lot of fluid > in each ear. He has a hearing prothesis (due to cholesteatoma) in the right > ear and retracted ear drums in both ears. > > Anyone else had this procedure?? If so, does it work well and how does it > affect your lifestyle (swimming, showering, etc.) > > Also, what are the known risks of doing this? > > Many thanks, > > > Behr, Realtor > ERA Oakcrest Realty, Inc. > 2045 Valley Avenue > Winchester, VA 22601 > Voice Mail 540-450-1268 > Fax 540-662-1175 > Home 540-662-7111 > mail to: behr@... > Licensed in VA > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 Wow ... I have asked my ENT many times if there was such a thing as permanent tubes. He said no. Are they really permanent? Is there really such a thing? Thanks ear tubes Hi everyone,The doctor is going to put permanent ear tubes in my son, 's ears onFriday to help with his eustation tube dysfunction. There is a lot of fluidin each ear. He has a hearing prothesis (due to cholesteatoma) in the rightear and retracted ear drums in both ears.Anyone else had this procedure?? If so, does it work well and how does itaffect your lifestyle (swimming, showering, etc.)Also, what are the known risks of doing this?Many thanks, Behr, RealtorERA Oakcrest Realty, Inc.2045 Valley AvenueWinchester, VA 22601Voice Mail 540-450-1268Fax 540-662-1175Home 540-662-7111mail to: behr@...Licensed in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2003 Report Share Posted June 8, 2003 In a message dated 6/8/03 12:26:26 PM Central Daylight Time, writes: > I have a question for all the parents with kids that have tubes. Ben loves > to swim and goes underwater also. Recently he has wanted to stop wearing > ear plugs and his ear bandit. Most of the time too the plugs just fall out in > the water anyway. > What have you heard about kids swimming with tubes? Do they get most ear > infections or have problems since they have tubes? Any help would be > appreciated. > Thanks, > M. > > , has tubes-has off and on for the last 3 years. He has never worn ear plugs-not in shower, bath or pool. He doesn't generally put his head under a lot in the pool but definitely goes under at the end of the water slide LOL!!!! He has never gotten an infection. Come to think of it no infection even the summer he put his head under daily in our germ ridden back yard wading pool. Karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2003 Report Share Posted June 8, 2003 In > What have you heard about kids swimming with tubes? Do they get most ear > >infections or have problems since they have tubes? Any help would be > >appreciated. . The ENT who put 's tubes in told us that he never has parents use ear plugs or keep their kids out of the water. Before he came to MN he worked in Hawiaii. said that there was no way those kids wouldn't be in the water there anyway so he never had parents fight trying to keep the out. LOL At that time he just perscibed and antibiotic ear drop to use after swimming or washing hair, mary has a hole in one ear drum still and we don't do anything to avoid getting water in her ear......in fact she did alot of swimming through her school this year and never did get an infection. (now I do live near Roch. MN and she now sees a ENT at Mayo, he says keep ears dry and avoid getting water in them..........I just ignore this. lol, tho I havn't told him that, hehe) Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2003 Report Share Posted June 8, 2003 Dido on my part also,, has several pair and we shampooed as usual , swam as usual, if your worried put cotton balls in soaked with vaseline helps in tub. But 's tubes came out around a year , so they did stay in long enough and now dr says no more for now--yeah... NEttie619 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2003 Report Share Posted June 8, 2003 In a message dated 6/8/03 8:33:11 PM Central Daylight Time, shippd@... writes: > . 's ear tube > experience has been unsucessful and the doctor will decide Tuesday if new > ear surgery is needed to replace the old tubes. > what do you mean by unsuccesful david? do they fall out to soon? or don't they keep the fluid from building up? Just wondering, I've never really heard of them not doing what they're supposed to do. Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2003 Report Share Posted June 8, 2003 Hi The doctors told us no water in the ears whatsoever but it is impossible with and probably with most other kids too. 's ear tube experience has been unsucessful and the doctor will decide Tuesday if new ear surgery is needed to replace the old tubes. Dad to , Kristi, and (all three Down syndrome) and (Cri du chat) Husband to C. Re: ear tubes > In a message dated 6/8/03 12:26:26 PM Central Daylight Time, > writes: > > > > I have a question for all the parents with kids that have tubes. Ben loves > > to swim and goes underwater also. Recently he has wanted to stop wearing > > ear plugs and his ear bandit. Most of the time too the plugs just fall out in > > the water anyway. > > What have you heard about kids swimming with tubes? Do they get most ear > > infections or have problems since they have tubes? Any help would be > > appreciated. > > Thanks, > > M. > > > > > , > has tubes-has off and on for the last 3 years. He has never worn ear > plugs-not in shower, bath or pool. He doesn't generally put his head under a lot > in the pool but definitely goes under at the end of the water slide LOL!!!! > He has never gotten an infection. Come to think of it no infection even the > summer he put his head under daily in our germ ridden back yard wading pool. > > Karyn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2003 Report Share Posted June 23, 2003 Hi, Sorry, I didn't see the first post.... I tend to zip through them due to time....and miss some. Ear tubes.....yes..common with ds. My son has had 2 sets. Also had Cranial manipulations which worked but weren't covered by insurance. My nephew had no ear infections..but they found that he had had fluid built up for so long that it caused hearing loss and speech issues.....and he's doesn't have ds. I would say,,,go ahead and get a 2nd opinion, but don't be surprised if this Dr. says the same thing. Being proactive and preventing hearing loss is not a bad thing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2003 Report Share Posted June 23, 2003 In a message dated 6/23/2003 8:54:56 AM Central Standard Time, prple00@... writes: > My husband and I are looking into getting a second opinion. Have any of > your > children had tube put in their ears? Have any of your children just have > fluid and not any ear infections? How reliable are hearing test? Please > email > back with similar issues and/or advice. Liam's had three sets of ear tubes & I'm anticipating a fourth in the near future. Regardless of how many infections kids have or don't have, the fluid in his ears will hurt his ability to hear which will effect speech development and learning in general. Don't be offended by the comment about kids with DS, because very often they have smaller than normal ear canals and eustacian tubes. I love his ENT because he's had a lot of experience with kids with DS and is more aggressive about making sure their hearing is all it can be. Liam had his first set of tubes at 16 months. They change in his hearing was amazing. He started babbling and signing more. He even participated in songs more. I don't think hearing tests at Owen's age would be very accurate. We have trouble getting an accurate one with Liam, but at this stage behavioral issues factor in. Kathy, Liam's mom (5) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2003 Report Share Posted June 23, 2003 My son has had three sets of ear tubes, starting at a little over age 1. The first two sets failed to work or came out within 3 to 6 months. But we had an HMO at the time, and they didn't really have pediatric specialists. When our insurance policy changed, we went to the top pediatric ENT in our area. He also put in a set of tubes, but they were a different type, and they lasted nearly three years before one of them had to be removed. So, I would get that second opinion, but I would also seek out an ENT that specializes in children. Bev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2003 Report Share Posted June 23, 2003 My daughter has never had ear tubes, never had an infection that we know of and hasn't had fluid build up that any doctors have told us about... just the tiny ear canals that can be associated with Down syndrome.... other then that nothing else as of 3 years of age ear tubes Hello everyone, I sent an email last week and I haven't received one response! Please email me with advice. Owen 14 months old went for his 3rd hearing test last week. The doctor said this was the first time he found fluid in his ears and wanted to put tubes in his ears. My husband and I were shocked that he would automatically say this. Owen has never had an ear infection (that we know of). The doctors said because of his condition (meaning ds) that it is common to have tubes put in the ears. I found this to be offensive. I believe that every child is different and there are children with ds that I know that have never had ear tubes. My husband and I are looking into getting a second opinion. Have any of your children had tube put in their ears? Have any of your children just have fluid and not any ear infections? How reliable are hearing test? Please email back with similar issues and/or advice. Thanks a bunch, Tonya, Mom to Owen 14 months Quote Link to comment Share on other sites More sharing options...
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