NV -to be aware for those of us who feed our children healthy

[Guest guest]

OK so many too healthy?!! Throw some Gatorade in there?!

Today I had to take Tanner to the pediatrician because he said when he was

laying down or sitting and stood up too quick he felt dizzy. The following if I

didn't hear and see this myself I would never believe it...but Tanner got a

prescription for....Gatorade!!! Tanner as I have pointed out here numerous time

has gone through tremendous growth spurts since being on NV from 5 foot 7 to 6

foot since mid October -the pediatrician more than once commented on it and even

joked " what are you feeding him?! " He is now so far off the charts in height at

6 foot tall just turned 14 that on the height and weight chart his height is way

in the outer space area. Anyway they did all kinds of tests and Tanner is " very

healthy " and I was assured that this is a very normal stage for tall kids, who

go through tremendous growth spurts- and they said that extra sodium will help

this. It has to do with the blood not being able to rush up all the way to the

head quick enough. So before he gets up he needs to stretch a bit, drink water,

and try to get up slower for now. I was told this stage can last a few months.

Here's the part why I say for those of us that feed our children healthy.

Typically we only have juice, milks and water in our home. My kids don't drink

soda or power drinks -well for either once in a blue moon. We don't even keep

iced tea or lemonade in our home.

NV has zero sodium, Tanner eats very healthy -no processed overly salty foods,

we don't keep potato chips in the house etc...so he really isn't getting much

sodium in his diet. So just a thought since I know like Tanner many of you have

children going through tremendous growth spurts on NV -keep sodium level in

mind.

I have to say that Tanner was thrilled with the prescription we got because not

only did I have to buy 2 cases of Gatorade for him so he can have one or two a

day -but they wrote asking that he be allowed to drink water or Gatorade

whenever he wants in school. It was the funniest email ever I just sent to his

teacher!

=====

[Guest guest]

Thank you, for sharing that info. I am sure Tanner is going to love this

" medicine " , <VBG>.

>

> OK so many too healthy?!! Throw some Gatorade in there?!

>

> Today I had to take Tanner to the pediatrician because he said when he was

laying down or sitting and stood up too quick he felt dizzy. The following if I

didn't hear and see this myself I would never believe it...but Tanner got a

prescription for....Gatorade!!! Tanner as I have pointed out here numerous time

has gone through tremendous growth spurts since being on NV from 5 foot 7 to 6

foot since mid October -the pediatrician more than once commented on it and even

joked " what are you feeding him?! " He is now so far off the charts in height at

6 foot tall just turned 14 that on the height and weight chart his height is way

in the outer space area. Anyway they did all kinds of tests and Tanner is " very

healthy " and I was assured that this is a very normal stage for tall kids, who

go through tremendous growth spurts- and they said that extra sodium will help

this. It has to do with the blood not being able to rush up all the way to the

head quick enough. So before he gets up he needs to stretch a bit, drink water,

and try to get up slower for now. I was told this stage can last a few months.

>

> Here's the part why I say for those of us that feed our children healthy.

Typically we only have juice, milks and water in our home. My kids don't drink

soda or power drinks -well for either once in a blue moon. We don't even keep

iced tea or lemonade in our home.

>

> NV has zero sodium, Tanner eats very healthy -no processed overly salty foods,

we don't keep potato chips in the house etc...so he really isn't getting much

sodium in his diet. So just a thought since I know like Tanner many of you have

children going through tremendous growth spurts on NV -keep sodium level in

mind.

>

> I have to say that Tanner was thrilled with the prescription we got because

not only did I have to buy 2 cases of Gatorade for him so he can have one or two

a day -but they wrote asking that he be allowed to drink water or Gatorade

whenever he wants in school. It was the funniest email ever I just sent to his

teacher!

>

> =====

>

[Guest guest]

- very interesting about Tanner - Josh is experiencing the same thing!  I

called his neurodoc 2 weeks ago, fearing it was a different kind of epileptic

seizure or something.  Doc asked how often it happened and when I said pretty

much every time he gets up from laying down or too quickly from sitting, he said

it sounded more orthostatic (blood pressure).  Doc thought perhaps vasovagel

syncope or episodes (I have vasovagel syncope - don't know why I didn't make

the connection!!!) - and, yes, treatment for vasovagel is more liquid - could be

gatorade, juice, plain old water, but increase liquids by almost 3-4 more cups

per day, and increase salt (so if using gatorade, that already has sodium in it

- I'd not add more salt to the diet then, if using just water or juice, then

increase sodium but really not a whole lot).  Like you, I don't use much salt

(if any, depending on the dish) in cooking (I do add a dash or two to my

servings once a dish is

plated simply because of my own vasovagel issues but our sodium intake is very,

very, very low!), I have two bags of incredibly stale tortilla chips from a

party at the beginning of the year (I keep them there to remind me not to eat

them! LOL!), Josh doesn't eat potato chips or anything like that, and I get the

sodium free peanut butter for him.  He does eat crackers, which, depending on

the brand, can have quite a bit of sodium (so I watch what I get in those as

well).  So, since talking to the doc, I've started adding a few more dashes of

salt in cooking, and I let Josh have a few more of the crackers throughout the

day.  In the last two weeks since talking to the doc, the episodes are almost

non-existent.  (I am going to check with the doc, though, to see if Josh's

epilepsy meds can cause orthostatic responses and maybe that's what brought this

on - but if Tanner is experiencing it, maybe it simply is the too low

sodium!).  Josh also appears to

have grown about 3-4 inches since starting on the NV - at the start, the top of

his head was at my chin, and now it's at my eyes (very scientific measuring

devices!LOL!).

 

Also - when Josh (and Tanner?) gets up, particularly from laying down, I have

him tense and stretch his legs, then his arms - another treatment for vasovagel

- it causes the blood to pump throughout the body so the blood pressure doesn't

take a dive, causing the dizziness.

 

Vasovagel or orthostatic episodes are caused when a person has been sitting or

laying for awhile and the blood pools at the lowest point(s) in the body.  A

normal person, the brain and heart work together to say, simply, pump you dummy

and the blood flows normally, the person doesn't get dizzy.  Those of us with

vasovagel or orthostatic response, the heart and brain are not necessarily

talking to each other at the right time - the message doesn't get to the team

efficiently to get the blood flowing and you get dizzy.  Lots of people

experience it to varying degrees.  With me, the more serious episodes (syncope)

follow a very stereotypical pattern and the pattern can last for 5 or 10 minutes

- the pattern, for me, is more often a stress reaction - if I

see/hear/experience something startling or stressful or traumatic, my blood

pressure rises quickly then drops like a rock, I get a terrible stomach ache,

then I get ringing in my ears, and then a

tunnel vision kind of thing along with vertigo - if I don't lay down I will

pass out (the passing out/laying down during passing out stabilizes/drops the

blood pressure back to normal) - just laying down when I know a serious episode

is coming on stabilizes the blood pressure quickly - then I have to drink lots

and lots of water or juice or gatorade and I don't pass out.  Some people have

vasovagel/orthostatic responses when, sorry, pooping due to the pressure on the

vasovagel nerve during the process.  I knew someone who would pass out every

time he went to the bathroom - that was fun.

 

An example - when I was walking the Avon Breast Cancer walk several years ago,

there were 4 women walking in front of me - we were about 1/4 mile from a rest

stop - it was hot, people were easily dehydrating, etc.  One of the 4 simply

keeled over, flat out passed out.  I asked if they needed help and they said

they had already called for medics on their cell, they were putting cloths with

water on her, so I kept walking.  As I walked, my stomach was getting yuckier

and yuckier, the ringing in my ears was starting - I knew what was coming and I

had to get to the rest area where I knew there was a medical tent.  I was

downing the water I was carrying (I carried several bottles with me) and I think

that's what saved me.  I got to the medical tent and told the doc there what

had happened and, oh yes, I had just been diagnosed with vasovagel syncope.  He

looked at me and said, " Are you nuts?  Vasovagel, you are out of here, you are

not finishing the

walk. "   He then put 8 bottles of water in front of me and said, " drink all of

these as quickly as you can. "   Holey moley did I need the portajohn after

that!  But it brought the blood pressure down and I was fine.  I did get a

ride to the end of the day's walk, but I insisted on finishing the walk the next

day (final day) - luckily a friend I was doing the walk with walked slower with

me and she sort of kept an eye on me.

 

Vasovagel, or orthostatic episodes, are no fun and, if you actually pass out,

the fall could cause harm or injury.  But, from what I've been told, it, in and

of itself, is not a serious, serious condition and easily treated.  You just

need to be aware of it and prepared.  I keep a case of bottled water in my car

in case there are episodes while I'm driving - my episodes, as I said, are

stereotypical and I normally have enough time if they come on while driving to

pull to the side, push my seat back all the way, stabilize the blood pressure,

and then get water into me.  And, even with all the stuff I've been dealing

with over the last couple of years, knock on wood, I haven't had a single

vasovagel episode.

 

Also, Josh has said that when these episodes happen, he " sees a blue light " (I

would imagine the tunnel vision or foggy vision) and he gets " wobbly eyes " (I

would imagine the dizziness).  Now I'm trying to get him to differentiate

between the " blue light/wobbly eye " vasovagel/orthostatic episodes, the " brain

hiccups " (epileptic seizures which are very much being controlled with the meds

and perhaps the NV), the sensory overloads (when he just goes down on the floor

or ground if there is too much sensory stuff going on and he is overwhelmed),

and the psychogenic non-epileptic seizures (which are anxiety driven) - we have

an interesting and exciting life!  ;-o!!

 

Good luck to you and Tanner!

 

Sherry and Josh

From: jm28261 <jm28261@...>

Subject: [ ] Re: NV -to be aware for those of us who feed our

children healthy

Date: Thursday, September 9, 2010, 4:08 PM

 

Thank you, for sharing that info. I am sure Tanner is going to love this

" medicine " , <VBG>.

>

> OK so many too healthy?!! Throw some Gatorade in there?!

>

> Today I had to take Tanner to the pediatrician because he said when he was

laying down or sitting and stood up too quick he felt dizzy. The following if I

didn't hear and see this myself I would never believe it...but Tanner got a

prescription for....Gatorade!!! Tanner as I have pointed out here numerous time

has gone through tremendous growth spurts since being on NV from 5 foot 7 to 6

foot since mid October -the pediatrician more than once commented on it and even

joked " what are you feeding him?! " He is now so far off the charts in height at

6 foot tall just turned 14 that on the height and weight chart his height is way

in the outer space area. Anyway they did all kinds of tests and Tanner is " very

healthy " and I was assured that this is a very normal stage for tall kids, who

go through tremendous growth spurts- and they said that extra sodium will help

this. It has to do with the blood not being able to rush up all the way to the

head quick

enough. So before he gets up he needs to stretch a bit, drink water, and try to

get up slower for now. I was told this stage can last a few months.

>

> Here's the part why I say for those of us that feed our children healthy.

Typically we only have juice, milks and water in our home. My kids don't drink

soda or power drinks -well for either once in a blue moon. We don't even keep

iced tea or lemonade in our home.

>

> NV has zero sodium, Tanner eats very healthy -no processed overly salty foods,

we don't keep potato chips in the house etc...so he really isn't getting much

sodium in his diet. So just a thought since I know like Tanner many of you have

children going through tremendous growth spurts on NV -keep sodium level in

mind.

>

> I have to say that Tanner was thrilled with the prescription we got because

not only did I have to buy 2 cases of Gatorade for him so he can have one or two

a day -but they wrote asking that he be allowed to drink water or Gatorade

whenever he wants in school. It was the funniest email ever I just sent to his

teacher!

>

> =====

>

[Guest guest]

Thats great . my 12 year old would love to know I needed to write such an

email! way to go Tanner!

> >

> > OK so many too healthy?!! Throw some Gatorade in there?!

> >

> > Today I had to take Tanner to the pediatrician because he said when he was

laying down or sitting and stood up too quick he felt dizzy. The following if I

didn't hear and see this myself I would never believe it...but Tanner got a

prescription for....Gatorade!!! Tanner as I have pointed out here numerous time

has gone through tremendous growth spurts since being on NV from 5 foot 7 to 6

foot since mid October -the pediatrician more than once commented on it and even

joked " what are you feeding him?! " He is now so far off the charts in height at

6 foot tall just turned 14 that on the height and weight chart his height is way

in the outer space area. Anyway they did all kinds of tests and Tanner is " very

healthy " and I was assured that this is a very normal stage for tall kids, who

go through tremendous growth spurts- and they said that extra sodium will help

this. It has to do with the blood not being able to rush up all the way to the

head quick enough. So before he gets up he needs to stretch a bit, drink water,

and try to get up slower for now. I was told this stage can last a few months.

> >

> > Here's the part why I say for those of us that feed our children healthy.

Typically we only have juice, milks and water in our home. My kids don't drink

soda or power drinks -well for either once in a blue moon. We don't even keep

iced tea or lemonade in our home.

> >

> > NV has zero sodium, Tanner eats very healthy -no processed overly salty

foods, we don't keep potato chips in the house etc...so he really isn't getting

much sodium in his diet. So just a thought since I know like Tanner many of you

have children going through tremendous growth spurts on NV -keep sodium level in

mind.

> >

> > I have to say that Tanner was thrilled with the prescription we got because

not only did I have to buy 2 cases of Gatorade for him so he can have one or two

a day -but they wrote asking that he be allowed to drink water or Gatorade

whenever he wants in school. It was the funniest email ever I just sent to his

teacher!

> >

> > =====

> >

[Guest guest]

No Tanner wasn't given the diagnosis of vasovagal syncope- from what I read (I

have below) that would be the diagnosis if he actually fainted -which he never

did. But unless I'm wrong it does sound like the dizzy feeling is a sign of

syncope -even without the vasovagal part...but I don't know as again we didn't

get any diagnosis other than " this is very normal during growth spurts in tall

adolescents " . But even the vasovagal syncope diagnosis from what I read is

normal in adolescence during growth spurts.

They checked Tanner's blood pressure in a number of positions. From sitting to

standing and from laying down to standing. He doesn't have anything wrong with

his blood pressure -it did whatever it's supposed to do. They also did some

tests with the lights off and with his eyes, motor planning tests, heart and

reflex tests. He was normal on all. And again I was told Tanner is very

healthy.

Tanner's doctors were pretty laid back about it and said this is a very normal

stage for tall children who are going through growth spurts. There were two

pediatricians I spoke to about Tanner- and both said the same thing. The one

doctor, Tanner's main pediatrician joked around that's one of the good things

about being short is he never had to deal with this. The other doctor said that

in some cases he's seen where children go through this stage it's worse and the

children fall down, and due to that they then have to treat it in a more

aggressive way -even sending the child to a cardiologist in rare instances. But

the only " prescription " for Tanner is Gatorade, to drink extra water, to stretch

before getting up. And they said this stage will last 6 to 8 months.

But again Tanner's growth spurt is quite unusual. From mid October to now he's

grown 5 inches -so about a half an inch a month if you looked at the entire time

-but for sure he just shot up again so the spurt could be an inch a month two

months in a row.

Tanner's teacher of course agreed to allow Tanner to bring his Gatorade to class

but we have to hide it in a dark water bottle so the other kids don't know as

Gatorade is not allowed for anyone else. So yes Tanner is thrilled. I noticed

a difference in his this morning already. He wasn't dizzy and seemed more alert

first thing. Not that Tanner's lethargic anymore during the day but typically I

guess due to this he's been slow moving in the AM.

More on the condition you stated from what I found online:

First one is a book reference:

Syncope: mechanisms and management

By Blair P. Grubb, Olshansky

" In general, younger patients –adolescents in particular –tend to have more

classic presentations, whereas atypical presentations are more frequent in older

parents. In adolescents, there is often a history of rapid growth spurt in the

period just preceding the first synopal episode. It is not uncommon for these

tendencies to run in families. Often, even frequent and severe synopal spells

that begin in adolescence will spontaneously abate by the time the patient

reaches his or her mid twenties. "

" Sometimes teenagers will experience more episodes of syncope during a growth

spurt and some teenage girls experience syncope more readily during their

menses. About 25% of teenagers who experience syncope were breath-holders as

toddlers.

Studies have shown that fainting occurs in 3 - 37% of the population. It is

estimated that one in five individuals will have experienced a syncope episode

before adulthood. "

http://www.healthykids.ca/secure/articles/whenteenfaint.html

" Vasovagal syncope may occur at any age but is most frequent in preteens and

teens, particularly during a growth spurt. It arises as a disturbance in blood

flow to the brain, starving it of needed oxygen and glucose resulting in a

" rolling blackout " affecting vision, hearing, and balance in that order. These

episodes seem to occur more often during recovery from exercise, after rising

from bed or sitting, more often in the bathroom or kitchen, and may just occur

randomly. "

http:// www.mykidsheart.com/educational.htm

Is Josh also growing like someone sprinkled MiracleGro on him since being on NV?

Did you take Josh to the doc to have his blood pressure and any other testing

done? Again the Gatorade for us seems to do the trick- so hope it works for

Josh as well! Again -who would have ever known it was possible that we could be

feeding " too " healthy! ha!

OK so have to put this new finding up on the Pursuit site too where people can

see it. I mean who'd know that sudden growth spurts like this mean more fluid

and Gatorade -I didn't! Do you think two pages? I can put it here

http://pursuitofresearch.org/pursuit.html next to the growth spurt surge and of

course the FAQ page http://pursuitofresearch.org/faq.html Anywhere else on the

site?

And by the way this is just why I shared what I did about Tanner -just in case

others going through the dramatic growth spurts are going through the same

thing. I'm so happy I was able to share this to help Josh -and for those of you

reading....buy some Gatorade!!! (hey I know someone that has been mixing

Gatorade with the vanilla because they like the taste that way. I don't think I

ever shared it because I didn't think Gatorade was healthy. Like I said God has

a sense of humor!!!

=====

[Guest guest]

No, neurodoc said to try the increased liquids/sodium and see what happens

before running Josh into the office - we go in a couple more weeks anyhow.  So,

we'll see whether this is simply growth, vasovagel, meds reaction, whatever,

when we go see the doc.  Josh's primary care doc didn't seem at all concerned

either - just one more thing to add to the list!  Yes, God surely does have a

sense of humor!

 

Sherry and Josh

From: kiddietalk <kiddietalk@...>

Subject: [ ] Re: NV -to be aware for those of us who feed our

children healthy

Date: Thursday, September 9, 2010, 7:29 PM

 

No Tanner wasn't given the diagnosis of vasovagal syncope- from what I read (I

have below) that would be the diagnosis if he actually fainted -which he never

did. But unless I'm wrong it does sound like the dizzy feeling is a sign of

syncope -even without the vasovagal part...but I don't know as again we didn't

get any diagnosis other than " this is very normal during growth spurts in tall

adolescents " . But even the vasovagal syncope diagnosis from what I read is

normal in adolescence during growth spurts.

They checked Tanner's blood pressure in a number of positions. From sitting to

standing and from laying down to standing. He doesn't have anything wrong with

his blood pressure -it did whatever it's supposed to do. They also did some

tests with the lights off and with his eyes, motor planning tests, heart and

reflex tests. He was normal on all. And again I was told Tanner is very healthy.

Tanner's doctors were pretty laid back about it and said this is a very normal

stage for tall children who are going through growth spurts. There were two

pediatricians I spoke to about Tanner- and both said the same thing. The one

doctor, Tanner's main pediatrician joked around that's one of the good things

about being short is he never had to deal with this. The other doctor said that

in some cases he's seen where children go through this stage it's worse and the

children fall down, and due to that they then have to treat it in a more

aggressive way -even sending the child to a cardiologist in rare instances. But

the only " prescription " for Tanner is Gatorade, to drink extra water, to stretch

before getting up. And they said this stage will last 6 to 8 months.

But again Tanner's growth spurt is quite unusual. From mid October to now he's

grown 5 inches -so about a half an inch a month if you looked at the entire time

-but for sure he just shot up again so the spurt could be an inch a month two

months in a row.

Tanner's teacher of course agreed to allow Tanner to bring his Gatorade to class

but we have to hide it in a dark water bottle so the other kids don't know as

Gatorade is not allowed for anyone else. So yes Tanner is thrilled. I noticed a

difference in his this morning already. He wasn't dizzy and seemed more alert

first thing. Not that Tanner's lethargic anymore during the day but typically I

guess due to this he's been slow moving in the AM.

More on the condition you stated from what I found online:

First one is a book reference:

Syncope: mechanisms and management

By Blair P. Grubb, Olshansky

" In general, younger patients –adolescents in particular –tend to have more

classic presentations, whereas atypical presentations are more frequent in older

parents. In adolescents, there is often a history of rapid growth spurt in the

period just preceding the first synopal episode. It is not uncommon for these

tendencies to run in families. Often, even frequent and severe synopal spells

that begin in adolescence will spontaneously abate by the time the patient

reaches his or her mid twenties. "

" Sometimes teenagers will experience more episodes of syncope during a growth

spurt and some teenage girls experience syncope more readily during their

menses. About 25% of teenagers who experience syncope were breath-holders as

toddlers.

Studies have shown that fainting occurs in 3 - 37% of the population. It is

estimated that one in five individuals will have experienced a syncope episode

before adulthood. "

http://www.healthykids.ca/secure/articles/whenteenfaint.html

" Vasovagal syncope may occur at any age but is most frequent in preteens and

teens, particularly during a growth spurt. It arises as a disturbance in blood

flow to the brain, starving it of needed oxygen and glucose resulting in a

" rolling blackout " affecting vision, hearing, and balance in that order. These

episodes seem to occur more often during recovery from exercise, after rising

from bed or sitting, more often in the bathroom or kitchen, and may just occur

randomly. "

http:// www.mykidsheart.com/educational.htm

Is Josh also growing like someone sprinkled MiracleGro on him since being on NV?

Did you take Josh to the doc to have his blood pressure and any other testing

done? Again the Gatorade for us seems to do the trick- so hope it works for Josh

as well! Again -who would have ever known it was possible that we could be

feeding " too " healthy! ha!

OK so have to put this new finding up on the Pursuit site too where people can

see it. I mean who'd know that sudden growth spurts like this mean more fluid

and Gatorade -I didn't! Do you think two pages? I can put it here

http://pursuitofresearch.org/pursuit.html next to the growth spurt surge and of

course the FAQ page http://pursuitofresearch.org/faq.html Anywhere else on the

site?

And by the way this is just why I shared what I did about Tanner -just in case

others going through the dramatic growth spurts are going through the same

thing. I'm so happy I was able to share this to help Josh -and for those of you

reading....buy some Gatorade!!! (hey I know someone that has been mixing

Gatorade with the vanilla because they like the taste that way. I don't think I

ever shared it because I didn't think Gatorade was healthy. Like I said God has

a sense of humor!!!

=====

[Guest guest]

I'm telling you Maureen I myself wouldn't believe it unless I saw it with my own

eyes- a " prescription " from his pediatrician direct to his teacher to please

allow him to drink Gatorade in class...who knows maybe it's a Florida thing

since didn't the guy who invented Gatorade- didn't he work for the Miami

Dolphins? Oh no that wasn't it just checked quick it was UF football -actually

kind of interesting story behind it

http://www.research.ufl.edu/publications/explore/v08n1/gatorade.html

Hey put your 12 YO on the NV too and he probably will get that wish!! (after of

course you're all done with the surgery for the little angel -and again prayers

to all going perfect!)

Call me if you need anything and yes will update all here from your fb page! And

PS -make sure they give you the free hand and arm massage when you get that

manicure- it's the bestest part!!!

=====