Re: Re: Introduction - daughter with Apraxia

[Guest guest]

Thanks so much ! does not have any other diagnoses. Her

early start teachers think she has some sensory and feeding issues. The

team at Stanford did not think so but they only spent a few hours with

her. We are inclined to agree with the early start teachers. I do not

think her sensory or feeding issues are very severe and she is getting

help for them in her early start class and at home. Basically the

behavioral and developmental people at Stanford told us that we need to

focus on what the goal is for - which is to talk. They said

they did not see any other issues and any time we used treating other

things was taking away from " speech time. " I see where they are coming

from but I also think she has some other stuff going on that is not as

obvious or severe as her speech issue.

Thanks for all the links, I am still working through them. What makes

me so hopeful for is that she is very verbal. She " talks " a

bunch and loves to imitate. This was not always the case. Even 3

months ago she was mostly silent and never would repeat what you said.

At 15 months she could not imitate any physical movement or sound. I

think early start and the fish oils have helped her tremendously. Now

she jabbers away all day but it is largely unintelligable or she changes

how she pronounces words. I mention this so people who have children

who are silent know that there is hope. She didn't even point until she

was 18 months and now has a wonderful point and poke.

Someone was asking about videos. ADORES Signing Time and we

credit this for teaching her so many signs. It also had the unexpected

benefit of teacher her sight words. She can now read about 30 words

when seeing them in any context. Today she was looking at a book and

said " up " and sure enough she was pointing to the word up. So we can't

say enough good things about the series.

I was mistaken about the amount of NV we were giving her. I put each

days dosage in a ziploc bag and I didn't think we were doing too bad.

Well this evening I put the remaining NV back in the scoop expecting

that at least half of it had been used. Nope. We are using 1/3 of a

scoop. So frustrating! This may take a few weeks but I am determined

to stick with it because I think good things will happen.

Thanks again for the great site and group!

Vicky

On 9/9/2010 6:01 PM, kiddietalk wrote:

>

> Hi Vicky and welcome!

>

> Does have any other symptoms or diagnosis other than verbal

> apraxia? Most of the children with apraxia have some sort of " soft

> signs " such as mild low tone, motor planning deficit or sensory issue

> in the body as well. You want to know if these things are issues at

> all early on so you can secure appropriate Early Intervention through

> the state as well. Starting in a few months you'll already also be

> planning the IEP if needed which is for 3 and up. But for sure if

> she's at 25 months already saying 80 words and already doing 2 word

> sentences that's very cool and sounds like she either is already

> responding to whatever therapies traditional and nutritional you are

> doing -or isn't presenting very severe

> http://www.cherab.org/information/latetalkerhandout.html

>

> I also just sent this out the other day to another new member

> who has a 21 month old diagnosed with apraxia as well

> http://www.facebook.com/topic.php?uid=115029735601 & topic=7329

> <http://www.facebook.com/topic.php?uid=115029735601 & topic=7329>

>

> It just makes me so happy when I read messages like yours from new

> parents of little ones who are so on it seeking help. is SO

> fortunate!!!! Here's hoping that by the time she starts kindergarten

> everyone wonders if the apraxia diagnosis was a misdiagnosis and she's

> talking up a storm! Again welcome and let us know if you have other

> questions!

>

> Oh and PS..did you see the serving suggestion page?

> http://pursuitofresearch.org/serving_suggestions.html

>

> =====

>