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HI Judy:

I'm not sure exactly what this is an acronym for. It sounds like similar

meetings I have had with the State Depts. of Education and Health about

services for Steve so he can succeed in school re: his 504. I doubt it is

Canadian as Noelle is in NY.

s Law has information on IDEA and 504 - legislation which protects

our kids from discrimination and helps to level the playing field for them

at school. It is imperative to understand these laws and how they are put

into operation in the public school system when our children are classified

IDEA or 504. Other moms who are advocates have helped me considerably with

this.

Good luck, take care, aloha, kathy (H)

kathyh@...

At 09:27 PM 06/01/2000 -0400, you wrote:

>

>What is a CSE? Is that Canadian? And what is the nature of the book

>'s Law?

>

>Judy

>

>larkspurmr@... wrote:

>>

>> Hi Kathy,

>> Thank you for your words of encouragement. I am determined to go even

>> if my

>> son doesn't. I will not give up trying to get him to change his

>> mind. I

>> don't know why he is so resistant. I'm thinking maybe it's because he

>> thinks

>> it is cutting into his summer " free time " or now that he is so much

>> better

>> OCD wise, it seems as though he doesn't want to linger on the

>> subject....is

>> it denial or is this normal?? I can't figure it out yet. His doctor,

>> Lee

>> Fitzgibbons, has encouraged him to go because she will be there and

>> will be

>> running a children/teens group and she thought he would be

>> inspirational to

>> some of the children because of how much progress he has made and how

>> his

>> life has changed. Maybe that's it...I don't know at this point. I'm

>> just

>> trying to get him through the end of the school year right now and out

>> of his

>> freshman year. We had our CSE meeting last Friday and it lasted 3

>> hours but

>> we came out getting what we asked for. The two things that helped

>> most were

>> a great book titled slaw and meeting with an advocate before the

>> CSE to

>> make sure I was within my rights legally to ask for the supports my

>> son

>> needed.

>> That's one hurdle down, one to go and then I can start planning for

>> the

>> conference in August. I'm looking forward to meeting you there too.

>> Noelle

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cse= committee for special education

certain rules apply as to who must be part of the committee, but I believe

these are different for each state-- NY requires child's teacher, or teachers

if there are special services, a representative from the school, usually the

principal, but not necessarily, a parent, a parent member (this is a parent

of a special needs child who has supposedly had some training, and is

supposedly there to represent parent viewpoint and help to understand)

chairperson of special services and school psychologist.

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  • 9 years later...

Hi - my son Yehonatan is 5 years old and has apraxia. Now that we are

transitioning from CPSE to CSE we are having problems getting Yoni the needed

therapy. To get more than twice a week for 30 minute sessions (not promised one

on one either) speech therapy I would need to have research papers that show

that children with apraxia regress without 5 times a week therapy which is what

I would like to see Yoni continue to get. I know that on the weeks that my son

does not have his regular sessions I do see regression - he so needs every

minute of therapy possible. Has anyone had any experience trying to get their

county to provide services our children NEED and than received them? Also does

anyone know of research done that specifically show that children with apraxia

need PROMPT? I feel at a loss and truly want to be my childs best advocate -

Thank you so much for any information provided!

Chavy

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If anyone lives in Nassau County and is having difficulty getting prompt or

speech services, please contact me. I have a colleague who handles advocacy

issues in my area.  She is a SLP and is a huge help.

 

Lori Melnitsky, MA CCC-SLP

Executive Director, All Island Speech Therapy

The Center For Stuttering Therapy & Communication Disorders

STUTTERING SPECIALIST

PROMPT CERTIFIED

Founder- Long Island Stuttering Connection Practice Groups

516-776-0184

Plainview, NY 11803

****You can now access my blog directly at:

www.allislandspeech.com 

 

 

" Nobody can make you feel inferior without your permission " -Eleonor Roosevelt

 

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