what would you do?

[Guest guest]

I was asked a question the other day,if they found a pill 'cure' for ASD tommorrow, would you give it to your child?,or would you rather have the Aspie Child?I said i would'nt give him the cure,as i love the Aspie child!Have gotten used to him by now!

I was just wondering what anyone else would do,If they found a 'cure' for Autism.

Love,

Fi x

Be true to yourself, it's the only person worth doing it for........... Janis Joplin.

“The only thing necessary for evil to triumph, is for good men to do nothing'' Edmund Burke (supposedly.)

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[Guest guest]

I don't think it's a question of what I'd want, but rather of what my son would want, and what would make it easiest for him to function. At the moment, his  AS features are making him depressed out of his gourd, and I think if there were a magic pill that would cure autism witihout too many side effects, I'd give it to him in the blink of an eye. Autism isn't WHO he is, it's an annoying group of symptoms that sometimes hold him back from what he migiht otherwise be doing. JMHOLizOn Aug 31, 2007, at 3:20 PM, Fiona daly wrote:I was asked a question the other day,if they found a pill 'cure' for ASD tommorrow, would you give it to your child?,or would you rather have the Aspie Child?I said iwould'nt give him the cure,as i love the Aspie child!Have gotten used to him by now!I was just wondering what anyone else would do,If  they found a 'cure' for Autism.Love,Fi x

[Guest guest]

You bet I would give it to him. 1st. I would slip it in his drink. Because if you were to ask him, he wouldn't want to change. 2nd. I would do it simply to make life easier for him. He'd still be himself.....the Aspergers would just be gone. Too many people wouldn't make him nervous and axious anymore. New situations wouldn't make him anxious and angry and tense, which, in turn, makes others not want to be near him. He'd want to perhaps try some things with friends. He'd hopefully "feel" what it's like to be a part of something. I'd want that for him. He wouldn't experience a fear of things to the extent that he does now.....maybe. *** I don't know. I'm sad right now for saying that I'd "do" the pill. BUt,,,,,,,,,,if it would simply make the AS traits go away.....I'd have to do it. I'd probably miss

all of the conversations about all of his games and computer stuff that he is so excited about that he honestly can't stop talking about it. I'd definitely miss his "singing"/"humming"/sounds" that he makes when he's really into something. Here I go,,,,,,sad again. ** We are the way we all are because of our good parts/bad parts/good times/bad times/struggles and everything else. If we take something not-so-great away,,,,,,,,,are we still ourselves? Many comedians and brilliant people have been thought to have had or have been dx'd with ADHD/Aspergers/Autism/bipolar,,,,etc. Would any of them have taken the pill if had the chance? Yikes....this is a really hard question. I'm anxious to hear from the ones here with aspergers. RobinFiona daly <fiona659@...> wrote: I was asked a question the other day,if they found a pill 'cure' for ASD tommorrow, would you give it to your child?,or would you rather have the Aspie Child?I said i would'nt give him the cure,as i love the Aspie child!Have gotten used to him by now! I was just wondering what anyone else would do,If they found a 'cure' for Autism. Love, Fi x Be true to yourself, it's the only person worth doing it

for........... Janis Joplin. “The only thing necessary for evil to triumph, is for good men to do nothing'' Edmund Burke (supposedly.) Visit my Myspace page: http://www.myspace.com/fiarena Get Pimped! FREE emoticons and customisation from Windows Live - Pimp My Live!

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[Guest guest]

Amen to that one!!!! RobinLiz Bohn <lbohn@...> wrote: I don't think it's a question of what I'd want, but rather of what my son would want, and what would make it easiest for him to function. At the moment, his AS features are making him depressed out of his gourd, and I think if there were a magic pill that would cure autism witihout too many side effects, I'd give it to him in the blink of an eye. Autism isn't WHO he is, it's an annoying group of symptoms that sometimes hold him back from what he migiht otherwise be

doing. JMHO Liz On Aug 31, 2007, at 3:20 PM, Fiona daly wrote: I was asked a question the other day,if they found a pill 'cure' for ASD tommorrow, would you give it

to your child?,or would you rather have the Aspie Child?I said iwould'nt give him the cure,as i love the Aspie child!Have gotten used to him by now! I was just wondering what anyone else would do,If they found a 'cure' for Autism. Love, Fi x

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[Guest guest]

COuldn't have said it any better than you Liz!! I love my quirky

little boy but if there was something that could " cure " him of the

symptoms that are making him depressed and feeling worthless when he

comes home from school.. then I would give it to him in a heartbeat!

Just so he could have that ONE friend he so much desires right now!!

Jackie

On Aug 31, 2007, at 2:40 PM, Liz Bohn wrote:

> I don't think it's a question of what I'd want, but rather of what my

> son would want, and what would make it easiest for him to function. At

> the moment, his  AS features are making him depressed out of his

> gourd, and I think if there were a magic pill that would cure autism

> witihout too many side effects, I'd give it to him in the blink of an

> eye. Autism isn't WHO he is, it's an annoying group of symptoms that

> sometimes hold him back from what he migiht otherwise be doing. JMHO

>

> Liz

>

> On Aug 31, 2007, at 3:20 PM, Fiona daly wrote:

>

>>

>>

>> I was asked a question the other day,if they found a pill 'cure' for

>> ASD tommorrow, would you give it to your child?,or would you rather

>> have the Aspie Child?I said iwould'nt give him the cure,as i love the

>> Aspie child!Have gotten used to him by now!

>>

>> I was just wondering what anyone else would do,If  they found a

>> 'cure' for Autism.

>>

>> Love,

>>

>> Fi x

[Guest guest]

I would give my daughter the cure.

[Guest guest]

I'm with you on that. My 5 yr old daughter's extreme interest in

machines is mostly focused on cars, oil changes, brake pads, etc.

right now. I found some of her drawings today of Brake Max with the

building and the words " Brake Max " written on them, and also

recalled her guess at the spelling of antifreeze (she wrote

anafreze). She likes to pull words out of the air that people have

said so that she can try to spell them on paper.

Then I thought about a child I saw on a recent visit out east to see

my family who never spoke a word, never showed any interest in

anything other than her thumb, and generally stared, and I am

thankful for my Emma's " different-ness " . She has these flashes of

brilliance that my husband and I are extremely proud of. Sometimes

when I walk into the room and she has built an ornate, perfectly

symmetrical block castle, it takes my breath away. I don't want to

change her. If I can help her to relate to others and help others to

see her strengths and value, then I will be happy.

> >

> > I asked one of my sons about this and his reply was " no, I

wouldn't

> want to be a simpleton. " My reply is probably yes, even though I

love

> them and their quirks. It is going to be difficult for them for the

> rest of their lives because of aspergers, depression , OCD and

> bipolar...and I would like for life to be easier on them or JOHN Q

> PUBLIC becomes really educated and there is alot more help out there

> then there is now. just my opinion... Toni

> > ( ) Re:What would you do?

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> >

> >

> >

> > I was asked a question the other day,if they found a pill 'cure'

> for ASD tommorrow, would you give it to your child?,or would you

> rather have the Aspie Child?I said i would'nt give him the cure,as i

> love the Aspie child!Have gotten used to him by now!

> >

> > I was just wondering what anyone else would do,If they found a

> 'cure' for Autism.

> >

> > Love,

> >

> > Fi x

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> >

> > Be true to yourself, it's the only person worth doing it

> for........... Janis Joplin.

> >

> > " The only thing necessary for evil to triumph, is for good men

to

> do nothing'' Edmund Burke (supposedly.)

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> > Visit my Myspace page:

> > http://www.myspace.com/fiarena

> >

> >

> >

> >

> >

> >

> --------------------------------------------------------------------

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> Pimp My Live!

> >

>

[Guest guest]

Oh you said that nicely. I always hate this thread because people never understand what I mean. But this is exactly how I feel too. My kid isn't autism. I would get rid of autism in a second if I could and let my kid really shine without the disability holding him back. So many people attribute their child's intelligence or interest in (whatever) or any number of personality traits to autism - as if that is why they have those features. I think that gets way out of control and autism gets all this credit - as if it's a good thing. People don't even consider that their child is that way because he is and autism merely limits and controls how he/she is able to handle the daily world.

RoxannaAutism Happens

Re: ( ) Re:What would you do?

I don't think it's a question of what I'd want, but rather of what my son would want, and what would make it easiest for him to function. At the moment, his AS features are making him depressed out of his gourd, and I think if there were a magic pill that would cure autism witihout too many side effects, I'd give it to him in the blink of an eye. Autism isn't WHO he is, it's an annoying group of symptoms that sometimes hold him back from what he migiht otherwise be doing. JMHO

Liz

On Aug 31, 2007, at 3:20 PM, Fiona daly wrote:

I was asked a question the other day,if they found a pill 'cure' for ASD tommorrow, would you give it to your child?,or would you rather have the Aspie Child?I said iwould'nt give him the cure,as i love the Aspie child!Have gotten used to him by now!

I was just wondering what anyone else would do,If they found a 'cure' for Autism.

Love,

Fi x

[Guest guest]

My son is not diagnosed with apraxia, but he is speech delayed. He was denied

therapy with EI b/c his receptive language was above average and they counted

the sign language I taught him as words when they evaluated him. At that time

he had about 10 words, over 100 signs and was 30 months. I put him on fish oil

and three days later he started talking and learned about 10 words a day for a

month or so. The last month he's been putting those words together into

sentences of 3-6 words. But about three weeks ago, he got really excited and

wanted to share something with my family over christmas and his unintelligible

babble came back. Even on fish oil he would still say un un un for the lost

words and syllables, but when he was trying to share this story to the whole

family I felt like I was back to before the fish oil. Since then sometimes he

just takes off babbling and I'm missing so much because it doesn't make sense.

and sometimes at night before going to sleep he starts talking in this made up

language. I'm so glad he's not a twin. Also his words have been changing. He

used to say train and plane and now they both are crane. Home became hone, milk

became mok. i don't know if this is normal language learning or something to

watch.

My mom works in a private school and one of the teacher's wives is a Speech

pathologist. She's offered to meet us and evaluate my son, but they are in the

middle of an adoption and have been in and out of the country and we haven't met

yet. We live in a town with a university that offers speech as training for the

students, but your child will only have the same therapist for the semester, as

far as I can understand. His ped, thinks he needs to be in speech and says to

wait until he's three (2 months) and re-evaluate through the school.

Should I ask EI to re-evaluate now that he has some words?

Should I wait for the other speech pathologist to see him?

Should I wait until he's three and go through the school? on this one I'm not

comfortable sending him to preschool, I would like the therapy to be parent

involved.

Should I go through the university?

Our family is very tight financially, we have no insurance and medical bills

from an accident my son had a year ago, so there is no way we can pay for

private therapy. I do as much as I can, learning letters and their sounds,

practicing consonant/vowel blends, learning to blow out a candle, making games

with touching the different areas of the lips with the tongue. I just don't know

what's within the range of normal and what to watch out for

Liralen

[Guest guest]

Its my 8yr old that has Apraxia. My youngest son, who is almost five was in the

same situation. He did qualify for EI services since he didnt have many

words--he was almost 24 mos when we started EI and was testing at below 18mos

old. We had services in-home till he was 29mos old. thats when he tested at

28mos so he was discharged, which was fine with me! I had sooooo many therapists

in my house 6-8x per week when my 8yr old was in EI, that I just wanted them

out! What the therapist from EI told me was to wait till his 3rd birthday and

have him tested again. He said that the SD standards are tougher and there's a

good chance he'd qualify. He has a Feb bday so I waited till the following Sept

when he started preschool and my older two were in school. Because of the

stricter testing and the standards for Articulation--he qualified with no

problem. He received 2x week Individual for 3-4 mos and was

discharged--again--fine with me!

I'm sure there is a certain amount of time before you could ask EI to re-test

him (6mos?) and since you have said he has even more words than when he was

denied--he probably wont qualify again. I'd suggest waiting till he turns 3yr

old and have him tested by your school. Also preschool services are

education-based, EI is family based--so they normally dont want parents in the

room for therapy. parent involvement is getting your homework to do in between

sessions, but not the same as sitting in your living room for EI when you're

there for the whole session. What I did with my son is bring him to therapy 2x a

week and hang out in the lobby reading the paper or a magazine in quiet for

45minutes--which was a welcome break from being at home!

Maybe thats why the Ped said to wail till he's 3yrs--knowing the testing

standards are higher and more likely he'd qualify than going thru the hassles of

EI.

>

> My son is not diagnosed with apraxia, but he is speech delayed. > >.

>

> Should I ask EI to re-evaluate now that he has some words?

> Should I wait for the other speech pathologist to see him?

> Should I wait until he's three and go through the school? on this one I'm not

comfortable sending him to preschool, I would like the therapy to be parent

involved.

> Should I go through the university?

>

>

[Guest guest]

Check with the university...most will do a free evaluation. Then take the

evaluation back to the EI, and ask for services. If the private SLP would be

back sooner than you can get into the univeristy, go that route. Here in NC, I

have 3 universities in the Triangle area that have speech therapy clincs. On

average, it takes about a month to get the inital eval, and then therapy starts

a couple of weeks after that, if needed. Although the students assist in the

sessions, there is always one main SLP there, and unless you change times/dates,

that generally doesn't change. Double check with your university to see if they

have a similar set-up. As far as the school items go, my school system allows

us to come to as many sessions as we want, although they are all at the school.

We have constant interaction with the school SLP, so that everyone is working on

the same goals at the same time, and what works/doesn't work in helping him with

different sounds. Hope the helps, and good luck!

From: liralendoncov@...

Date: Tue, 26 Jan 2010 15:38:19 +0000

Subject: [ ] what would you do?

My son is not diagnosed with apraxia, but he is speech delayed. He was denied

therapy with EI b/c his receptive language was above average and they counted

the sign language I taught him as words when they evaluated him. At that time he

had about 10 words, over 100 signs and was 30 months. I put him on fish oil and

three days later he started talking and learned about 10 words a day for a month

or so. The last month he's been putting those words together into sentences of

3-6 words. But about three weeks ago, he got really excited and wanted to share

something with my family over christmas and his unintelligible babble came back.

Even on fish oil he would still say un un un for the lost words and syllables,

but when he was trying to share this story to the whole family I felt like I was

back to before the fish oil. Since then sometimes he just takes off babbling and

I'm missing so much because it doesn't make sense. and sometimes at night before

going to sleep he starts talking in this made up language. I'm so glad he's not

a twin. Also his words have been changing. He used to say train and plane and

now they both are crane. Home became hone, milk became mok. i don't know if this

is normal language learning or something to watch.

My mom works in a private school and one of the teacher's wives is a Speech

pathologist. She's offered to meet us and evaluate my son, but they are in the

middle of an adoption and have been in and out of the country and we haven't met

yet. We live in a town with a university that offers speech as training for the

students, but your child will only have the same therapist for the semester, as

far as I can understand. His ped, thinks he needs to be in speech and says to

wait until he's three (2 months) and re-evaluate through the school.

Should I ask EI to re-evaluate now that he has some words?

Should I wait for the other speech pathologist to see him?

Should I wait until he's three and go through the school? on this one I'm not

comfortable sending him to preschool, I would like the therapy to be parent

involved.

Should I go through the university?

Our family is very tight financially, we have no insurance and medical bills

from an accident my son had a year ago, so there is no way we can pay for

private therapy. I do as much as I can, learning letters and their sounds,

practicing consonant/vowel blends, learning to blow out a candle, making games

with touching the different areas of the lips with the tongue. I just don't know

what's within the range of normal and what to watch out for

Liralen

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[Guest guest]

Liralen, It sounds like you are doing great things at home - keep them up! Have

you read The Late Talker? Highly recommend it. I would ask EI to re-eval, but

even if they don't (or do and he doesn't qualify for them) he might still

qualify for services under the prek umbrella (as a child gets older more

language is expected of them, so it's easier for some of our kiddos to qualify.

My son, for example, had great receptive language when he was eval'd at 21 mos,

but expressive was about 5 words - they did not include signs that he knew. Now

that he's 5, his vocab is huge, speech is going great, still times when we say

" what? " , but we can understand most of what is being said (that's not to say

that everyone understands him, but family mostly, knowing the context helps ).

My son also has been receiving summer ST through EI and then through the school

district. I tried private ST - it was expensive - our insurance doesn't cover

it and we didn't like the SLP. So we worked very hard w/ Garret at home.

School speech can be offered as a " walk-in " service - in other words you do not

have to send him to the prek class, for him to get speech. The SLP will set up

a time and you bring him to her/him. They may want you to enroll him, but you

do NOT have to. That's what we did his first year of " pre-k " . My son was

enrolled in a private 2 day 2 1/2 hrs week program which was plenty for him when

he was 3, he went to ST at our elem school, not his prek. Now that he is 5

(just turned) he is in the school's prek (full day M-TH) and receives ST 2x a

week.

I would try the university, yes the therapist would change with each semester,

but you may also find someone willing to do some home instruction for some extra

cash. Definitely worth checking into, good luck, Bonnie

[Guest guest]

sorry forget to mention that you should contact your school district now and let

them know that your son will be turning 3 soon and you have some concerns about

his language and ask for an evaluation. I would also send this request in

writing to their special ed director/prek sped director. You could ask EI if

they will do any of this for you, but I would contact the school myself either

way. Keep any/all documentation! If your child qualifies they need to provide

services at his 3rd bday (if he currently is receiving services).

Bonnie