Re: Another newbie with questions ;-)

[Guest guest]

Hi Meredith,

We live in Garner,NC. Just south of the triangle area. My little boy will be 4

in December and was diagnosed with severe verbal apraxia along with moderate

oral apraxia,and sensory problems. We started EI when we moved to the Raleigh

area in May 08. He really didn't have any words at 21 months either and is just

really starting to make progress. He is now starting to put a few 2 words

togethers. Ex.  go bye, Daddy car. He just now can say a version of his

sister's

names. At 18 m he had about 10 words and then dropped them. He quit using mama,

nac for snack,go ,etc. He now has those back plus quite a few others but for the

most part has to be prompted to speak. We started the Nordic Natural EFA  fish

oil in July of this year and added the EPA in September. I have seen dramatic

changes in his speech,motor planning,gross and fine motor skills since we added

the fish oils. I am now thinking about adding the NV supplement but I am waiting

for an appt with Raleigh Neurology(DR. Wooten). Mason now attends the prek at

our elementary school and r/c speech 3 times a week there. Right now only 2 are

1 on 1. We have 1 private speech,1 private ot and r/c 1  PT in the school.Let

me

know if I can help with anything.

________________________________

From: Meredith <ncbelle78@...>

Sent: Thu, September 30, 2010 12:50:30 PM

Subject: [ ] Another newbie with questions ;-)

 

Hi all - I know you get lots of newbie questions but hopefully you are up for

one more ;-)

My 21 month old son Callum possibly has verbal apraxia - while I do wish we had

a definitive diagnosis, I understand that it's a bit early to know for sure if

this is the cause of his speech issues.

We did the EI eval at 18 months - he was found to have receptive skills at 21-24

months but expressive skills at 6-9 months (with some emerging skills at 15

months). Based on that, we qualified for services and have been doing ST twice a

week for the past month. He has no motor issues (is ahead in motor skills) and

never has had feeding issues that I know can go along with apraxia (so I guess

no oral apraxia).

Now at 21 months we still have no words and very few sounds - most everything is

some variation of " da. " He went through a period of doing " bbb " and " mmm " sounds

months ago but dropped them as he went to the next sound. We've had a few random

words here and there (mostly weird things like turkey or applesauce and I swear

he called me Meredith one day - but never mama) - all have either been one time

occurrences or were only used a few times before disappearing. He does have

sounds for yes and no (ugh-ugh and uh-huh) and uses lots of gestures and grunts

to make his wishes known. He has never babbled in the sense of making lots of

different sounds and is pretty quiet around other kids/people. He also will not

imitate any sounds although he does mimic all sorts of other things we do! He

gets this sort of embarrassed grin if you ask him to imitate something - almost

like he knows he can't.

I'm mostly wondering if there are others who are or were in this position -

waiting for a diagnosis - or if Callum's story sounds like any of your

childrens. I've been reading as much as I can on apraxia since both the SLP who

evaluated him for EI and our current SLP feel it is a possibility (just read the

Late Talker). I'm interested in the different therapy techniques like Kaufman,

but what do you do when there are no sounds/words to work with?? Of course we

keep trying to encourage him to imitate or generate any sounds but I feel like

it's sort of a shot in the dark at this point - or rather that we are stuck

until there are sounds to build on.

Also, if anyone happens to be in the Triangle area of NC, let me know!

Any advice would be much appreciated!

Thanks,

Meredith

[Guest guest]

Hi, I'm not in NC I'm in New York , but have you considered trying the

Nutriiveda or NV as it is referred to in this group. It is all natural,

preservative, gluten,soy free protein drink. Alot of the kids in this group are

on it for the therapeutic purposes with much success. Both of my kids are on it,

they both have apraxia and autism but I have to say that whatever new words my

son says, he does not " lose " them like he used to. If you would like to call me

my # is 631-447-0615. Dawn Falley Look back at some of the messages from

[Guest guest]

Hi Meredith! I am in the currently very wet Triangle! We had very similar

experiences when our little guy was the same age. Please contact me via email

if you want to discuss. Thanks!

>

> Hi all - I know you get lots of newbie questions but hopefully you are up for

one more ;-)

>

> My 21 month old son Callum possibly has verbal apraxia - while I do wish we

had a definitive diagnosis, I understand that it's a bit early to know for sure

if this is the cause of his speech issues.

>

> We did the EI eval at 18 months - he was found to have receptive skills at

21-24 months but expressive skills at 6-9 months (with some emerging skills at

15 months). Based on that, we qualified for services and have been doing ST

twice a week for the past month. He has no motor issues (is ahead in motor

skills) and never has had feeding issues that I know can go along with apraxia

(so I guess no oral apraxia).

>

> Now at 21 months we still have no words and very few sounds - most everything

is some variation of " da. " He went through a period of doing " bbb " and " mmm "

sounds months ago but dropped them as he went to the next sound. We've had a few

random words here and there (mostly weird things like turkey or applesauce and I

swear he called me Meredith one day - but never mama) - all have either been one

time occurrences or were only used a few times before disappearing. He does have

sounds for yes and no (ugh-ugh and uh-huh) and uses lots of gestures and grunts

to make his wishes known. He has never babbled in the sense of making lots of

different sounds and is pretty quiet around other kids/people. He also will not

imitate any sounds although he does mimic all sorts of other things we do! He

gets this sort of embarrassed grin if you ask him to imitate something - almost

like he knows he can't.

>

> I'm mostly wondering if there are others who are or were in this position -

waiting for a diagnosis - or if Callum's story sounds like any of your

childrens. I've been reading as much as I can on apraxia since both the SLP who

evaluated him for EI and our current SLP feel it is a possibility (just read the

Late Talker). I'm interested in the different therapy techniques like Kaufman,

but what do you do when there are no sounds/words to work with?? Of course we

keep trying to encourage him to imitate or generate any sounds but I feel like

it's sort of a shot in the dark at this point - or rather that we are stuck

until there are sounds to build on.

>

> Also, if anyone happens to be in the Triangle area of NC, let me know!

>

> Any advice would be much appreciated!

>

> Thanks,

> Meredith

>

[Guest guest]

Hi ! We're in Apex, so hi neighbor! Quick question for you...how long

(minutes) are his sessions? We have found that it was easier to get increased

1-on-1 speech when we first went from 2- 30 minute sessions to 3-20 minute

sessions. I was good with the change since he really wasn't sitting through the

whole 30 minutes and repition was far more important than length. Then, the

next IEP, we moved it to 3 - 30 minute sessions since they found he was sitting

through them, and getting more done. For whatever reason, they're normally more

flexible with the minutes than with the sessions here. HTH!

From: mcmmmingle@...

Date: Thu, 30 Sep 2010 11:21:35 -0700

Subject: Re: [ ] Another newbie with questions ;-)

Hi Meredith,

We live in Garner,NC. Just south of the triangle area. My little boy will be 4

in December and was diagnosed with severe verbal apraxia along with moderate

oral apraxia,and sensory problems. We started EI when we moved to the Raleigh

area in May 08. He really didn't have any words at 21 months either and is just

really starting to make progress. He is now starting to put a few 2 words

togethers. Ex. go bye, Daddy car. He just now can say a version of his sister's

names. At 18 m he had about 10 words and then dropped them. He quit using mama,

nac for snack,go ,etc. He now has those back plus quite a few others but for the

most part has to be prompted to speak. We started the Nordic Natural EFA fish

oil in July of this year and added the EPA in September. I have seen dramatic

changes in his speech,motor planning,gross and fine motor skills since we added

the fish oils. I am now thinking about adding the NV supplement but I am waiting

for an appt with Raleigh Neurology(DR. Wooten). Mason now attends the prek at

our elementary school and r/c speech 3 times a week there. Right now only 2 are

1 on 1. We have 1 private speech,1 private ot and r/c 1 PT in the school.Let me

know if I can help with anything.

________________________________

From: Meredith <ncbelle78@...>

Sent: Thu, September 30, 2010 12:50:30 PM

Subject: [ ] Another newbie with questions ;-)

Hi all - I know you get lots of newbie questions but hopefully you are up for

one more ;-)

My 21 month old son Callum possibly has verbal apraxia - while I do wish we had

a definitive diagnosis, I understand that it's a bit early to know for sure if

this is the cause of his speech issues.

We did the EI eval at 18 months - he was found to have receptive skills at 21-24

months but expressive skills at 6-9 months (with some emerging skills at 15

months). Based on that, we qualified for services and have been doing ST twice a

week for the past month. He has no motor issues (is ahead in motor skills) and

never has had feeding issues that I know can go along with apraxia (so I guess

no oral apraxia).

Now at 21 months we still have no words and very few sounds - most everything is

some variation of " da. " He went through a period of doing " bbb " and " mmm " sounds

months ago but dropped them as he went to the next sound. We've had a few random

words here and there (mostly weird things like turkey or applesauce and I swear

he called me Meredith one day - but never mama) - all have either been one time

occurrences or were only used a few times before disappearing. He does have

sounds for yes and no (ugh-ugh and uh-huh) and uses lots of gestures and grunts

to make his wishes known. He has never babbled in the sense of making lots of

different sounds and is pretty quiet around other kids/people. He also will not

imitate any sounds although he does mimic all sorts of other things we do! He

gets this sort of embarrassed grin if you ask him to imitate something - almost

like he knows he can't.

I'm mostly wondering if there are others who are or were in this position -

waiting for a diagnosis - or if Callum's story sounds like any of your

childrens. I've been reading as much as I can on apraxia since both the SLP who

evaluated him for EI and our current SLP feel it is a possibility (just read the

Late Talker). I'm interested in the different therapy techniques like Kaufman,

but what do you do when there are no sounds/words to work with?? Of course we

keep trying to encourage him to imitate or generate any sounds but I feel like

it's sort of a shot in the dark at this point - or rather that we are stuck

until there are sounds to build on.

Also, if anyone happens to be in the Triangle area of NC, let me know!

Any advice would be much appreciated!

Thanks,

Meredith

[Guest guest]

 We have 30 minute sesions. I may check into the 20 minutes. Thanks for the

advice. How old his your son?

________________________________

From: michelle yates <michelle_yates@...>

Sent: Thu, September 30, 2010 4:46:15 PM

Subject: RE: [ ] Another newbie with questions ;-)

 

Hi ! We're in Apex, so hi neighbor! Quick question for you...how long

(minutes) are his sessions? We have found that it was easier to get increased

1-on-1 speech when we first went from 2- 30 minute sessions to 3-20 minute

sessions. I was good with the change since he really wasn't sitting through the

whole 30 minutes and repition was far more important than length. Then, the next

IEP, we moved it to 3 - 30 minute sessions since they found he was sitting

through them, and getting more done. For whatever reason, they're normally more

flexible with the minutes than with the sessions here. HTH!

From: mcmmmingle@...

Date: Thu, 30 Sep 2010 11:21:35 -0700

Subject: Re: [ ] Another newbie with questions ;-)

Hi Meredith,

We live in Garner,NC. Just south of the triangle area. My little boy will be 4

in December and was diagnosed with severe verbal apraxia along with moderate

oral apraxia,and sensory problems. We started EI when we moved to the Raleigh

area in May 08. He really didn't have any words at 21 months either and is just

really starting to make progress. He is now starting to put a few 2 words

togethers. Ex. go bye, Daddy car. He just now can say a version of his sister's

names. At 18 m he had about 10 words and then dropped them. He quit using mama,

nac for snack,go ,etc. He now has those back plus quite a few others but for the

most part has to be prompted to speak. We started the Nordic Natural EFA fish

oil in July of this year and added the EPA in September. I have seen dramatic

changes in his speech,motor planning,gross and fine motor skills since we added

the fish oils. I am now thinking about adding the NV supplement but I am waiting

for an appt with Raleigh Neurology(DR. Wooten). Mason now attends the prek at

our elementary school and r/c speech 3 times a week there. Right now only 2 are

1 on 1. We have 1 private speech,1 private ot and r/c 1 PT in the school.Let me

know if I can help with anything.

________________________________

From: Meredith <ncbelle78@...>

Sent: Thu, September 30, 2010 12:50:30 PM

Subject: [ ] Another newbie with questions ;-)

Hi all - I know you get lots of newbie questions but hopefully you are up for

one more ;-)

My 21 month old son Callum possibly has verbal apraxia - while I do wish we had

a definitive diagnosis, I understand that it's a bit early to know for sure if

this is the cause of his speech issues.

We did the EI eval at 18 months - he was found to have receptive skills at 21-24

months but expressive skills at 6-9 months (with some emerging skills at 15

months). Based on that, we qualified for services and have been doing ST twice a

week for the past month. He has no motor issues (is ahead in motor skills) and

never has had feeding issues that I know can go along with apraxia (so I guess

no oral apraxia).

Now at 21 months we still have no words and very few sounds - most everything is

some variation of " da. " He went through a period of doing " bbb " and " mmm " sounds

months ago but dropped them as he went to the next sound. We've had a few random

words here and there (mostly weird things like turkey or applesauce and I swear

he called me Meredith one day - but never mama) - all have either been one time

occurrences or were only used a few times before disappearing. He does have

sounds for yes and no (ugh-ugh and uh-huh) and uses lots of gestures and grunts

to make his wishes known. He has never babbled in the sense of making lots of

different sounds and is pretty quiet around other kids/people. He also will not

imitate any sounds although he does mimic all sorts of other things we do! He

gets this sort of embarrassed grin if you ask him to imitate something - almost

like he knows he can't.

I'm mostly wondering if there are others who are or were in this position -

waiting for a diagnosis - or if Callum's story sounds like any of your

childrens. I've been reading as much as I can on apraxia since both the SLP who

evaluated him for EI and our current SLP feel it is a possibility (just read the

Late Talker). I'm interested in the different therapy techniques like Kaufman,

but what do you do when there are no sounds/words to work with?? Of course we

keep trying to encourage him to imitate or generate any sounds but I feel like

it's sort of a shot in the dark at this point - or rather that we are stuck

until there are sounds to build on.

Also, if anyone happens to be in the Triangle area of NC, let me know!

Any advice would be much appreciated!

Thanks,

Meredith

[Guest guest]

Hi Meredith,

My 22 month old son was recently dx with verbal apraxia and I just wrote a long

post about our journey in the thread called " New here " to , if you're

interested in our experience.

You say you're waiting for a diagnosis. My question to you is: does your speech

therapist have extensive experience evaluating toddlers with apraxia? If not,

they may not know what to look for - that was our experience with EE. After 5

mos of regular speech therapy with no progress, I took matters into my own hands

and saw an SLP specifically with lots of experience dealing with toddlers w/

apraxia (and evaluating them). I figured I had nothing to lose but finding out

that my son didn't have it (when in fact, actually my instincts were right and

he does)...

Good luck and let me know if you have any questions.

-

>

> Hi all - I know you get lots of newbie questions but hopefully you are up for

one more ;-)

>

> My 21 month old son Callum possibly has verbal apraxia - while I do wish we

had a definitive diagnosis, I understand that it's a bit early to know for sure

if this is the cause of his speech issues.

>

> We did the EI eval at 18 months - he was found to have receptive skills at

21-24 months but expressive skills at 6-9 months (with some emerging skills at

15 months). Based on that, we qualified for services and have been doing ST

twice a week for the past month. He has no motor issues (is ahead in motor

skills) and never has had feeding issues that I know can go along with apraxia

(so I guess no oral apraxia).

>

> Now at 21 months we still have no words and very few sounds - most everything

is some variation of " da. " He went through a period of doing " bbb " and " mmm "

sounds months ago but dropped them as he went to the next sound. We've had a

few random words here and there (mostly weird things like turkey or applesauce

and I swear he called me Meredith one day - but never mama) - all have either

been one time occurrences or were only used a few times before disappearing. He

does have sounds for yes and no (ugh-ugh and uh-huh) and uses lots of gestures

and grunts to make his wishes known. He has never babbled in the sense of

making lots of different sounds and is pretty quiet around other kids/people.

He also will not imitate any sounds although he does mimic all sorts of other

things we do! He gets this sort of embarrassed grin if you ask him to imitate

something - almost like he knows he can't.

>

> I'm mostly wondering if there are others who are or were in this position -

waiting for a diagnosis - or if Callum's story sounds like any of your

childrens. I've been reading as much as I can on apraxia since both the SLP who

evaluated him for EI and our current SLP feel it is a possibility (just read the

Late Talker). I'm interested in the different therapy techniques like Kaufman,

but what do you do when there are no sounds/words to work with?? Of course we

keep trying to encourage him to imitate or generate any sounds but I feel like

it's sort of a shot in the dark at this point - or rather that we are stuck

until there are sounds to build on.

>

> Also, if anyone happens to be in the Triangle area of NC, let me know!

>

> Any advice would be much appreciated!

>

> Thanks,

> Meredith

>

[Guest guest]

He just turned 5 the beginning of September. We're now in the process of

transitioning him out of the pre-k class and into just itenerate speech!!!! (He

missed the kindergarden cut-off by a week). We started the process of testing

at 18-20 months as he had a few sounds, but no words, he began CDSA at 2, WCPSS

half-day pre-k at 3. We started the fish oils last October, and have had

wonderful results, but on a slightly different doseage than commonly recommended

here. We also began treatment with an awesome cranio sacral therapist this

summer that has definitely made quite the difference as well.

From: mcmmmingle@...

Date: Thu, 30 Sep 2010 18:21:54 -0700

Subject: Re: [ ] Another newbie with questions ;-)

We have 30 minute sesions. I may check into the 20 minutes. Thanks for the

advice. How old his your son?

________________________________

From: michelle yates <michelle_yates@...>

Sent: Thu, September 30, 2010 4:46:15 PM

Subject: RE: [ ] Another newbie with questions ;-)

Hi ! We're in Apex, so hi neighbor! Quick question for you...how long

(minutes) are his sessions? We have found that it was easier to get increased

1-on-1 speech when we first went from 2- 30 minute sessions to 3-20 minute

sessions. I was good with the change since he really wasn't sitting through the

whole 30 minutes and repition was far more important than length. Then, the next

IEP, we moved it to 3 - 30 minute sessions since they found he was sitting

through them, and getting more done. For whatever reason, they're normally more

flexible with the minutes than with the sessions here. HTH!

From: mcmmmingle@...

Date: Thu, 30 Sep 2010 11:21:35 -0700

Subject: Re: [ ] Another newbie with questions ;-)

Hi Meredith,

We live in Garner,NC. Just south of the triangle area. My little boy will be 4

in December and was diagnosed with severe verbal apraxia along with moderate

oral apraxia,and sensory problems. We started EI when we moved to the Raleigh

area in May 08. He really didn't have any words at 21 months either and is just

really starting to make progress. He is now starting to put a few 2 words

togethers. Ex. go bye, Daddy car. He just now can say a version of his sister's

names. At 18 m he had about 10 words and then dropped them. He quit using mama,

nac for snack,go ,etc. He now has those back plus quite a few others but for the

most part has to be prompted to speak. We started the Nordic Natural EFA fish

oil in July of this year and added the EPA in September. I have seen dramatic

changes in his speech,motor planning,gross and fine motor skills since we added

the fish oils. I am now thinking about adding the NV supplement but I am waiting

for an appt with Raleigh Neurology(DR. Wooten). Mason now attends the prek at

our elementary school and r/c speech 3 times a week there. Right now only 2 are

1 on 1. We have 1 private speech,1 private ot and r/c 1 PT in the school.Let me

know if I can help with anything.

________________________________

From: Meredith <ncbelle78@...>

Sent: Thu, September 30, 2010 12:50:30 PM

Subject: [ ] Another newbie with questions ;-)

Hi all - I know you get lots of newbie questions but hopefully you are up for

one more ;-)

My 21 month old son Callum possibly has verbal apraxia - while I do wish we had

a definitive diagnosis, I understand that it's a bit early to know for sure if

this is the cause of his speech issues.

We did the EI eval at 18 months - he was found to have receptive skills at 21-24

months but expressive skills at 6-9 months (with some emerging skills at 15

months). Based on that, we qualified for services and have been doing ST twice a

week for the past month. He has no motor issues (is ahead in motor skills) and

never has had feeding issues that I know can go along with apraxia (so I guess

no oral apraxia).

Now at 21 months we still have no words and very few sounds - most everything is

some variation of " da. " He went through a period of doing " bbb " and " mmm " sounds

months ago but dropped them as he went to the next sound. We've had a few random

words here and there (mostly weird things like turkey or applesauce and I swear

he called me Meredith one day - but never mama) - all have either been one time

occurrences or were only used a few times before disappearing. He does have

sounds for yes and no (ugh-ugh and uh-huh) and uses lots of gestures and grunts

to make his wishes known. He has never babbled in the sense of making lots of

different sounds and is pretty quiet around other kids/people. He also will not

imitate any sounds although he does mimic all sorts of other things we do! He

gets this sort of embarrassed grin if you ask him to imitate something - almost

like he knows he can't.

I'm mostly wondering if there are others who are or were in this position -

waiting for a diagnosis - or if Callum's story sounds like any of your

childrens. I've been reading as much as I can on apraxia since both the SLP who

evaluated him for EI and our current SLP feel it is a possibility (just read the

Late Talker). I'm interested in the different therapy techniques like Kaufman,

but what do you do when there are no sounds/words to work with?? Of course we

keep trying to encourage him to imitate or generate any sounds but I feel like

it's sort of a shot in the dark at this point - or rather that we are stuck

until there are sounds to build on.

Also, if anyone happens to be in the Triangle area of NC, let me know!

Any advice would be much appreciated!

Thanks,

Meredith