Guest guest Posted October 3, 2010 Report Share Posted October 3, 2010 Hi everyone, I started my 4 yr old daughter Evangeligue on NV 2 weeks ago today. She is getting 2 scoops per day mixed with water put through her feeding tube. So far I have not seen any surges or changes. I am keeping a daily diary and am very eager to see some results. I have a few questions: 1. On average how long did it take you notice any differences in your kids? 2. Have there been any kids where NV just did not work for them? thanks all Sam On 2010-09-26, at 9:25 PM, kiddietalk wrote: > I've run this group for over a decade now and the success rate no matter how severe the child is when first diagnosed is extremely high for those parents in this group. It doesn't appear that those stats yet reflect to those children who have parents that don't know how to advocate and secure appropriate services and placement. In addition in this group we have for the past decade recommended in addition to traditional speech and occupational therapy to explore multisensory and alternative therap ies. Have you read The Late Talker book? > > Also over the years most in this group use fish oils (the essential fatty acids) and more recently we are having even more dramatic and quicker surges with NV (essential amino acids and essential nutrients from whole foods) > > My apraxic son Tanner was diagnosed severe profound apraxic at 2 years 10 months. He also was diagnosed with oral apraxia, dysarthria, sensory integration dysfunction, hypotonia and motor planning deficits as well throughout his body. He required speech, occupational and physical therapy. No matter how much therapy he had his progress was painfully slow until I discovered fish oils which helped him tremendously throughout most of his life. My son Tanner has been mainstreamed since kindergarten and is a good kid. Outside of a product called Pharma Omega Speak which has mega vitamin e in it that created MASSIVE regressions in my poor son which lasted for months- the rest has been awesome -but it wasn't until NV that Tanner went from having any apraxia quirks to well above normal in various areas (see http://pursuitofresearch.org/pursuit.html as much of what is there first started with Tanner but many others today are seeing the same) > > So to answer your question...from what I have seen more so than the severity of the initial diagnosis, prognosis for verbal disabled children depends greatly on the involvement of the parents -and being your are here...your child is one of the lucky ones! > > There honestly is so much hope!! And please please if you have not yet -read The Late Talker for basic advocacy and other info to learn how to secure appropriate therapy -and please look into fish oils and NV!!! > > ===== > Quote Link to comment Share on other sites More sharing options...
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