Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 I look forward to reading updates about Mel every time I visit the board. What has happened for your family is truly amazing and i am so happy for you all! I especially love it when you can even baffle the doctors! Keep it up Mel! And please keep us updated! I dont know about everyone else, but I feel like I know Mel by now! Im so happy for Mel, and Tanner, and all of the kiddos who are having such wonderful results with nutriiveda...now if only they would make a dairy free version! Again, thanks for sharing! [ ] Day 48 I'm sorry that the following is for a few days but hope to catch everyone up to what is going on with our Mel. I first wanted to start off thanking everyone for the emails I've received about with so much support and love. It thrills me to read that now many of the younger children are on the nutriiveda and reading such positive reports of how it's helping others now too. I do hope those of you with younger children are aware how fortunate you are to have something available to your child at such a young age that can make such a profound impact. I watched the one video of and got tears in my eyes knowing this child's life is changed in such a beautiful way...just like Mel's is- but the huge difference is one child is 4 and my daughter is now 25 years old. January is usually a month that I really dislike but this year it is so different. For some reason, perhaps the change from her normal schedule due to the holidays, January would always begin 's struggles with her post traumatic stress disorder PTSD from her ABA therapy she received in school when she was misdiagnosed as autistic, and would last at least through spring but sometimes through the summer as well. This January is so different for our family has NO PTSD issues at all! This January is one of the best of my life! is smiling from the time she wakes up until the times she goes to sleep. is able to sleep a full night, prior to nutriiveda she wouldn't be able to sleep well and would be awake for 4 to 5 nights in a row due to her PTSD. continues to be able to be out of the house all day without any issues- even though this is new, it's starting to become accepted as normal in our home. Our friend is still in the hospital and really wanted our family to come and visit him Saturday night. I thought should I really try this with as the hospital or any institution that can in any way look like a school is one of 's major triggers for her PTSD. I sat down with and had a long talk with her about our friend being in the hospital and he really would like to have our family visit him. I asked her if she felt she was strong enough and could get thru the visit. I can't remember the last time Mel and I were able to have such a serious mother to daughter talk. Things others take for granted are all new for us. said " yes " Because Mel agreed, we went and pick up our friend's wife first and we all ate at this restaurant called The Varsity and then went to the hospital. Usually would have just left her dinner if she thought the next activity was going to cause her any stress but ate all of her dinner and even shared a dessert with Tom! It was really interesting after dinner took our friend's hand and just held it and looked into her eyes and just smiled at her. My friend said it just gave her a sense of peace that everything was going to be ok with her husband. My friend has known all of her life and this was the first time has ever reached out to her in this way. She knew our friend was in pain, and she wanted to comfort her. went for her once a month visit yesterday with Dr. Black. He could not believe the difference in her. He was impressed with how well she looked, great eye contact, she tried to answer every question that he asked her, and overall just very different from the young lady that he has known for the past 5 years. He had been getting prepared for this month as he knows from the past Januarys always began the difficult time for and her PTSD and that meant he would be receiving a lot of e-mails and phone calls from me asking for help. Instead we left his office decreasing 's seizure medication once again (WOW!) and him asking me to keep him posted through e-mail on how well she continues to do during this month before our next visit. The nutriiveda is extremely intriguing to him as he knows just how many therapies, strategies, medications, and therapists have failed prior for our Mel. has been teaching us that communication comes in many forms for her currently. Unlike before, is now able to move her body more for communication with hand gestures. Something as simple as hand gestures were difficult for her before due to her profound global apraxia. And it's not just that. As Quote Link to comment Share on other sites More sharing options...
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