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Thank you , Matt is really struggling, more than I thought he would and

I cannot wait to chat with the doc tomorrow and see him Tuesday, if not

sooner. The kitty in the card is Rocky, our newest edition and aka lowrider, our

lil crippled kitty. I will post the story about him soon, gotta run and tend to

Matt!

Donna<BR><BR><BR>**************************************<BR>See AOL's top rated

recipes

(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)</HTML>

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Donna

I hope that today finds Matt much better and feeling stronger every day.

Loved your Christmas card with the kitty! It was so cute!

and Rob 18 JAS

Matt update

, ajao_young_adults

> geez, sorry for the delay in posting. Time is just not on my

> side as it goes

> way to quickly and I cant get all done that must be done....Matt

> had his

> surgery Monday and he is fine. It was to be outpatient but he

> had complications

> that required being admitted. he was very sick from anesthetic

> and was in alot of

> pain as well so he was kept an additional 24 hours. He started

> therapy

> yesterday and has said pain sucks, he hates docs, he never wants

> surgery again and

> he really feels for all kids with arthritis.....although his

> injury was sports

> related he said he wouldnt wish surgery and pain on anyone. he

> returns to the

> doc Tuesday and will be on crutches a few more weeks with more

> rehab.....our

> house is gearing for Christmas and from ours to yours we wish

> you a happy,

> healthy and hope filled holiday season!

> hugs!

> Donna<BR><BR><BR>**************************************<BR>See AOL's top rated

recipes

> (http://food.aol.com/top-rated-

> recipes?NCID=aoltop00030000000004)</HTML>

>

>

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  • 2 years later...

Hi everyone,

Just this weekend my mother and I were discussing just how Matt's vocabulary has

exploded and the depths of his conversations with us. He is also telling us

more of what he is feeling (i.e., I'm mad) instead of just reacting (although we

are having more episodes with explosive behavior - which is not unexpected as

his life is changing with my soon to be ex husband moving across country. I

expect Matt's behavior to get even worse once his dad leaves on March 1st - but

hope that it will level out once he becomes used to his NEW normal).

He started baseball this week. He was actually attempting to catch the ball in

his mitt. A big change from last year. He's still not completely clear on the

rules or where the bases are - but he was paying better attention to the coach

and he was staying in task with less need to redirect him.

He is also more aware of his hands and face getting messy while eating. LOL -

not that he still doesn't wear a good portion of some of his food - like his

chocolate ice cream sandwich - but now he tries to wipe his face with his napkin

and wants it washed when finished.

Last night he ASKED to color in a coloring book. That has NEVER happened

before. And he did a pretty good job also!!

We currently have him at 2 scoops of NV a day. After reading 's post on the

various amounts being taken by the various ages, I am going to increase his

dosage to 3 or 4 scoops. Do you think it would be alright to just jump straight

to 4 scoops or should we go to 3 and then 4 scoops?

I am really excited to see the improvements we are seeing in diverse areas of

Matt - speech - but not just word production - also complexity of thought, fine

motor and the seeking out a challenging fine motor task, attention/focus, and

humor.

I look forward to anyone's thoughts on increasing Matt's dosage (reminder - Matt

is 9 years old and weighed 70 pounds in October - haven't weighed him since but

in know he weighs more - he's been on an incredible growth surge).

Thanks.

Lori

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