Guest guest Posted October 27, 2010 Report Share Posted October 27, 2010 ________________________________ From: kat tyu <k888yut@...> Sent: Wed, October 20, 2010 5:54:47 PM Subject: [ ] Fish Oil HELP PLEASE!  Hello  I have a 5 year old currently non verbal with severe apraxia. We were on Nordic Naturals Omega 3-6-9 Liquid. We ran out. I heard that there may be other brands out there that are better ???  Anyway,this topic I'm sure came up many times before but I want to ask the following. I apologize if these are stupid questions...  1. I know EFA but what is EPA and why do I have to take seperate tablets for them ? Doesn't the Nordic Naturals Omega 3-6-9 have both EFA and EPA together in one bottle. ? 2. What brand is best ? 3. How much to give ? We were giving 5ml of the NN Omega 3-6-9 once a day. I don't know if this is still the dosage for a 5 year old - 33 lbs ? 4. Our DAN doctor prescribed Cod Liver Oil ? What is the difference between that and the Fish oil ? Do I give both ?? 5. For whatever recommendation, please tell me the best place to purchase this.  THANK YOU SO MUCH!!!!   Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2010 Report Share Posted October 27, 2010 Hi Kat! Nordic Omega 369 is the commercial line which carries the same products as the professional line under different names. The professional line is exactly the same as far as formula and quality -but for sure the cost of the professional line is better as if you are purchasing Omega 369- check the prices at http://www.speech411.com for the professional equivalent and you'll find you'll get more for the same or less money. For example you'll get 60 Omega 369 capsules for around the same cost as 90 ProEFA...and not sure about you but most of us will take those extra 30 capsules for the extra dollar or so! As far as 'better' formula -ProEFA, Efalex and EyeQ are the 3 Omega 3/6 formulas brought up and used with success the most. Coromega is a great pure Omega 3 formula as it's higher in EPA than DHA- but no GLA. But no-don't know a better formula than ProEFA that you can purchase in working for surges here. I discovered over a decade ago however that a 2;1 ratio of 2 ProEFA to 1 ProEPA created more surges than just going to 3 ProEFA- so raising the EPA a bit. I found regressions on higher DHA, and if you went higher with EPA slight regressions too for apraxia. For ADHD however you do want a 1;1 ratio of ProEFA to ProEPA. So depends. The ProEFA does contain EPA -but no where as high as the ProEPA. EPA is a more refined, expensive, harder to process oil than the cheaper DHA oils. The only set dosages at this time are really when there is research and yes they are quite high in research -even in children. One capsule (regular not Jr) of ProEFA is about equivalent to the dosage of EFA approved by the FDA for infant formula; so considered " extremely conservative " for children according to ALL of the experts that presented at our First Apraxia Conference http://www.cherab.org/news/scientific.html or http://www.cherabfoundation.org/2001/cherab-foundations-first-apraxia-conference\ / You will probably notice some surges on even just one capsule of ProEFA a day. Many of us have gone up to 2 capsules of ProEFA to 1 of ProEPA with better results if you check the archives. Some have gone higher -I again have noticed since adding NV I was able to lower my son Tanner's fish oils to the 3 capsules a day from 6 (2 ProEFA and 1 ProEPA now) and he has continued to surge. Please look into NV for essential amino acids and nutrients from whole foods as well. The surges are even quicker and more dramatic in almost all cases http://pursuitofresearch.org/pursuit.html There are probably better ways to get vitamin A than use of the CLO. Again NV contains high amounts of vitamin A -but instead of it being fat soluble it's water soluble in NV and after what we have seen in this group that is WAY safer!! Don't mess with fat soluble vitamins that store in the body- don't underestimate them!! Any fish oil made from the liver of the fish naturally will contain the fat soluble vitamins including vitamin A. Fish oils not made from the liver of the fish contain no vitamin A. Most doctors recommend CLO because not all know yet what we know in this group- they are too high in DHA, not enough EPA and no GLA to be the most therapeutic formula. Most won't know until we validate our decade of thousands of parental and professional anecdotal reports with clinical research which is planned. No I would not mix the ProEFA with the CLO as you will change the formula -and not in a good way as you will raise the DHA. In fact if you check the archives most when they stopped the CLO and just used ProEFA saw increased surges. So less dosage -more surges. Again formula matters more. But check again and see if it's due to vitamin A -and share the NV with the professional you trust. NV and fish oils are in my opinion the closest thing I have ever seen to a cure. There does appear to be neuro repair going on now for many of the children in this group. And that probably isn't as far off as it may sound to the average parent -please read this http://pursuitofresearch.org/science.html Right now most of the parents using NV with their children tend to be those of a medical or educational background, those with higher education for some reason. It will be good when it hits the average parent- it's that life changing. Essential nutrients such as essential fatty acids (fish oils) and essential amino acids (NV) need to be consumed daily as the body needs them for all functions but can't produce them -and we do pay with our health when they are lacking. And PS -here's " Fish oils 101 " from our http://www.apraxia.org page at fb http://www.facebook.com/topic.php?uid=115029735601 & topic=7401 ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2010 Report Share Posted October 27, 2010 For those of us that have kids that LOVE and beg for the Coromega, is there a way we can get in the GLA too in addition without taking the Coromega away? Just curious. My son has had big surges on the combo of NV and Coromega and I’ve tried several times to switch him to the NN, but he will beg for the Coromega and I don’t think it’s safe to give both? From: [mailto: ] On Behalf Of kiddietalk Sent: Wednesday, October 27, 2010 9:01 AM Subject: [ ] Re: Fish Oil HELP PLEASE! Hi Kat! Nordic Omega 369 is the commercial line which carries the same products as the professional line under different names. The professional line is exactly the same as far as formula and quality -but for sure the cost of the professional line is better as if you are purchasing Omega 369- check the prices at http://www.speech411.com for the professional equivalent and you'll find you'll get more for the same or less money. For example you'll get 60 Omega 369 capsules for around the same cost as 90 ProEFA...and not sure about you but most of us will take those extra 30 capsules for the extra dollar or so! As far as 'better' formula -ProEFA, Efalex and EyeQ are the 3 Omega 3/6 formulas brought up and used with success the most. Coromega is a great pure Omega 3 formula as it's higher in EPA than DHA- but no GLA. But no-don't know a better formula than ProEFA that you can purchase in working for surges here. I discovered over a decade ago however that a 2;1 ratio of 2 ProEFA to 1 ProEPA created more surges than just going to 3 ProEFA- so raising the EPA a bit. I found regressions on higher DHA, and if you went higher with EPA slight regressions too for apraxia. For ADHD however you do want a 1;1 ratio of ProEFA to ProEPA. So depends. The ProEFA does contain EPA -but no where as high as the ProEPA. EPA is a more refined, expensive, harder to process oil than the cheaper DHA oils. The only set dosages at this time are really when there is research and yes they are quite high in research -even in children. One capsule (regular not Jr) of ProEFA is about equivalent to the dosage of EFA approved by the FDA for infant formula; so considered " extremely conservative " for children according to ALL of the experts that presented at our First Apraxia Conference http://www.cherab.org/news/scientific.html or http://www.cherabfoundation.org/2001/cherab-foundations-first-apraxia-confer ence/ You will probably notice some surges on even just one capsule of ProEFA a day. Many of us have gone up to 2 capsules of ProEFA to 1 of ProEPA with better results if you check the archives. Some have gone higher -I again have noticed since adding NV I was able to lower my son Tanner's fish oils to the 3 capsules a day from 6 (2 ProEFA and 1 ProEPA now) and he has continued to surge. Please look into NV for essential amino acids and nutrients from whole foods as well. The surges are even quicker and more dramatic in almost all cases http://pursuitofresearch.org/pursuit.html There are probably better ways to get vitamin A than use of the CLO. Again NV contains high amounts of vitamin A -but instead of it being fat soluble it's water soluble in NV and after what we have seen in this group that is WAY safer!! Don't mess with fat soluble vitamins that store in the body- don't underestimate them!! Any fish oil made from the liver of the fish naturally will contain the fat soluble vitamins including vitamin A. Fish oils not made from the liver of the fish contain no vitamin A. Most doctors recommend CLO because not all know yet what we know in this group- they are too high in DHA, not enough EPA and no GLA to be the most therapeutic formula. Most won't know until we validate our decade of thousands of parental and professional anecdotal reports with clinical research which is planned. No I would not mix the ProEFA with the CLO as you will change the formula -and not in a good way as you will raise the DHA. In fact if you check the archives most when they stopped the CLO and just used ProEFA saw increased surges. So less dosage -more surges. Again formula matters more. But check again and see if it's due to vitamin A -and share the NV with the professional you trust. NV and fish oils are in my opinion the closest thing I have ever seen to a cure. There does appear to be neuro repair going on now for many of the children in this group. And that probably isn't as far off as it may sound to the average parent -please read this http://pursuitofresearch.org/science.html Right now most of the parents using NV with their children tend to be those of a medical or educational background, those with higher education for some reason. It will be good when it hits the average parent- it's that life changing. Essential nutrients such as essential fatty acids (fish oils) and essential amino acids (NV) need to be consumed daily as the body needs them for all functions but can't produce them -and we do pay with our health when they are lacking. And PS -here's " Fish oils 101 " from our http://www.apraxia.org page at fb http://www.facebook.com/topic.php?uid=115029735601 <http://www.facebook.com/topic.php?uid=115029735601 & topic=7401> & topic=7401 ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2010 Report Share Posted October 27, 2010 I really believe we hit a paradigm shift due to the NV for at least those of us that are fortunate enough to have our children on it. As I have been saying the surges are in most cases more sudden and dramatic with NV than fish oils (but yes I believe BOTH are important of course as both are essential nutrients which the body needs to consume as it can't produce and lacking in our diets) And in addition the surges are beyond speech and motor planning -beyond what we saw before with the academic and growth surges as well as some of the other areas of surge mentioned some here http://pursuitofresearch.org/pursuit.html My son Tanner is now 14 and has been on the fish oils for 11 years...and yes there are times he forgot to take them, but...for the first time ever once on NV...ever ever... I was able to lower Tanner's fish oils and we were NEVER able to do that even for one day without a regression in his speech prior- and he just continues to thrive. And again no I am not looking to take Tanner off fish oils as we have heart attacks that run on both his mother and father's side of the family and again they are essential and not in the NV -and I'm not sure he gets enough daily in his diet. But about lower dosages or even different formulas...that's why I just answered that one message about the Nordic fishies were are more of a treat as they are so low in EPA and DHA (and no GLA) but who knows? I mean we know for sure people are seeing the dramatic surges even without the fish oils -so why not with some? But will one work better than the other? I don't know. We haven't had enough feedback on that. All I can tell you is that perhaps with all the essential amino acids and nutrients the metabolic system supported can now digest and utilize the essential fats better as I have here http://pursuitofresearch.org/science.html So in short here are your options to answer your question from my opinion. Just use the Coromega if your child loves it and you are seeing surges anyway. You can buy some primrose oil and just add a few drops to the Coromega to add some GLA to it and see if you notice any more surges -but Coromega is a formula that is higher in EPA than DHA. Not sure how many drops- but just start with one or two. Hope that helps! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2010 Report Share Posted October 27, 2010 Thanks ! Yes he has surged all around. His comprehension is through the roof and he is calm, happy, funny, dances, etc. From: [mailto: ] On Behalf Of kiddietalk Sent: Wednesday, October 27, 2010 1:16 PM Subject: [ ] Re: Fish Oil HELP PLEASE! I really believe we hit a paradigm shift due to the NV for at least those of us that are fortunate enough to have our children on it. As I have been saying the surges are in most cases more sudden and dramatic with NV than fish oils (but yes I believe BOTH are important of course as both are essential nutrients which the body needs to consume as it can't produce and lacking in our diets) And in addition the surges are beyond speech and motor planning -beyond what we saw before with the academic and growth surges as well as some of the other areas of surge mentioned some here http://pursuitofresearch.org/pursuit.html My son Tanner is now 14 and has been on the fish oils for 11 years...and yes there are times he forgot to take them, but...for the first time ever once on NV...ever ever... I was able to lower Tanner's fish oils and we were NEVER able to do that even for one day without a regression in his speech prior- and he just continues to thrive. And again no I am not looking to take Tanner off fish oils as we have heart attacks that run on both his mother and father's side of the family and again they are essential and not in the NV -and I'm not sure he gets enough daily in his diet. But about lower dosages or even different formulas...that's why I just answered that one message about the Nordic fishies were are more of a treat as they are so low in EPA and DHA (and no GLA) but who knows? I mean we know for sure people are seeing the dramatic surges even without the fish oils -so why not with some? But will one work better than the other? I don't know. We haven't had enough feedback on that. All I can tell you is that perhaps with all the essential amino acids and nutrients the metabolic system supported can now digest and utilize the essential fats better as I have here http://pursuitofresearch.org/science.html So in short here are your options to answer your question from my opinion. Just use the Coromega if your child loves it and you are seeing surges anyway. You can buy some primrose oil and just add a few drops to the Coromega to add some GLA to it and see if you notice any more surges -but Coromega is a formula that is higher in EPA than DHA. Not sure how many drops- but just start with one or two. Hope that helps! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2010 Report Share Posted October 27, 2010 Please forgive me if this is a repeat question, but I'm new here. My daughter with apraxia has been taking the SPEAK formula. I'm currently out, though and haven't noticed that formula mentioned here. I am also just learning about NV. What can people here share about best combinations and what is cost efficient. Sophie is a unique case because she was adopted from Russia and is profoundly deaf. She got cochlear implants at age 3 and they are effective at allowing her access to spoken language. However her expressive was so slow in coming, and she was finally Dx with apraxia at age 4.5. She is now almost 6 and the window for her to learn spoken language is getting smaller. Thanks for your input, Jodi in AZ On Wednesday, October 27, 2010, kiddietalk <kiddietalk@...> wrote: > > > > > > > > > > > > > > > > > > > > > > > > > > Hi Kat! > > Nordic Omega 369 is the commercial line which carries the same products as the professional line under different names. The professional line is exactly the same as far as formula and quality -but for sure the cost of the professional line is better as if you are purchasing Omega 369- check the prices at http://www.speech411.com for the professional equivalent and you'll find you'll get more for the same or less money. For example you'll get 60 Omega 369 capsules for around the same cost as 90 ProEFA...and not sure about you but most of us will take those extra 30 capsules for the extra dollar or so! > > As far as 'better' formula -ProEFA, Efalex and EyeQ are the 3 Omega 3/6 formulas brought up and used with success the most. Coromega is a great pure Omega 3 formula as it's higher in EPA than DHA- but no GLA. But no-don't know a better formula than ProEFA that you can purchase in working for surges here. I discovered over a decade ago however that a 2;1 ratio of 2 ProEFA to 1 ProEPA created more surges than just going to 3 ProEFA- so raising the EPA a bit. I found regressions on higher DHA, and if you went higher with EPA slight regressions too for apraxia. For ADHD however you do want a 1;1 ratio of ProEFA to ProEPA. So depends. > > The ProEFA does contain EPA -but no where as high as the ProEPA. EPA is a more refined, expensive, harder to process oil than the cheaper DHA oils. > > The only set dosages at this time are really when there is research and yes they are quite high in research -even in children. One capsule (regular not Jr) of ProEFA is about equivalent to the dosage of EFA approved by the FDA for infant formula; so considered " extremely conservative " for children according to ALL of the experts that presented at our First Apraxia Conference http://www.cherab.org/news/scientific.html or http://www.cherabfoundation.org/2001/cherab-foundations-first-apraxia-conference\ / > > You will probably notice some surges on even just one capsule of ProEFA a day. Many of us have gone up to 2 capsules of ProEFA to 1 of ProEPA with better results if you check the archives. Some have gone higher -I again have noticed since adding NV I was able to lower my son Tanner's fish oils to the 3 capsules a day from 6 (2 ProEFA and 1 ProEPA now) and he has continued to surge. Please look into NV for essential amino acids and nutrients from whole foods as well. The surges are even quicker and more dramatic in almost all cases http://pursuitofresearch.org/pursuit.html > > There are probably better ways to get vitamin A than use of the CLO. Again NV contains high amounts of vitamin A -but instead of it being fat soluble it's water soluble in NV and after what we have seen in this group that is WAY safer!! Don't mess with fat soluble vitamins that store in the body- don't underestimate them!! Any fish oil made from the liver of the fish naturally will contain the fat soluble vitamins including vitamin A. Fish oils not made from the liver of the fish contain no vitamin A. Most doctors recommend CLO because not all know yet what we know in this group- they are too high in DHA, not enough EPA and no GLA to be the most therapeutic formula. Most won't know until we validate our decade of thousands of parental and professional anecdotal reports with clinical research which is planned. No I would not mix the ProEFA with the CLO as you will change the formula -and not in a good way as you will raise the DHA. In fact if you check the archives most when they stopped the CLO and just used ProEFA saw increased surges. So less dosage -more surges. Again formula matters more. But check again and see if it's due to vitamin A -and share the NV with the professional you trust. NV and fish oils are in my opinion the closest thing I have ever seen to a cure. There does appear to be neuro repair going on now for many of the children in this group. And that probably isn't as far off as it may sound to the average parent -please read this http://pursuitofresearch.org/science.html Right now most of the parents using NV with their children tend to be those of a medical or educational background, those with higher education for some reason. It will be good when it hits the average parent- it's that life changing. Essential nutrients such as essential fatty acids (fish oils) and essential amino acids (NV) need to be consumed daily as the body needs them for all functions but can't produce them -and we do pay with our health when they are lacking. > > And PS -here's " Fish oils 101 " from our http://www.apraxia.org page at fb > http://www.facebook.com/topic.php?uid=115029735601 & topic=7401 > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2010 Report Share Posted October 27, 2010 Jodi I am so sorry it took so long for them to diagnose your baby. My son Tanner went to the Summit Speech School for the Hearing Impaired in Summit NJ which is one of the top if not the top oral based schools for the hearing impaired in the world. Tanner has normal hearing but I had a theory that if the deaf world can teach someone like Helen Keller to speak -for goodness sake they have to be able to teach my son Tanner who could see and hear! And that theory as many now know is very sound. The same multisensory approaches used for the hearing impaired population worked wonders for my son Tanner and many other hearing as well as hearing impaired children with apraxia. Tanner went to SSS for his preschool Early Intervention years -so I know quite a few children who are deaf or hearing impaired with cochlear implants who were diagnosed with apraxia- getting motor planning therapy. As Dr. Judy Flax once said on a TV show we were on together 6 months is a lifetime for a child in regards to Early Intervention so if they are not making progress we need to know why -examine therapy, therapist, placement -even diagnosis. So again I am so sorry that it took a year and a half to find out. I checked and both with that and the fact you had your child on speak- I figured you were a new member as you are and thank goodness you found us now!! Please know that this group had what I would consider to be overwhelming catastrophic side effects reported within days on the product you (in my opinion thank GOD) ran out of. My son Tanner had massive regressions which to this day I get emotional talking about. Not only in speech but in academics -just everything. It's almost like the product not only regressed him but as if he developed a sort of aphasia where he just kept forgetting very simple things...like how to say the letter B (that one was like ice water to me after he had been talking like this http://www.debtsmart.net/talk/tanner.html ) I had to go to his school and present in front of the entire school -all the students and teachers and head of school to explain why my son could no longer talk. A bunch of teachers thought I had put Tanner on some exploratory drug!!! But guess that isn't so crazy -the side effects he had were probably worse than most drugs. We also had reports of seizures and many other issues headaches which my son had too etc. You may want to look up this exact word " hypervitaminosis e " and also look up the meta analysis for vitamin e toxicity and for sure look up the upper tolerable level for vitamin e (I know vitamin k was off the roof high too but it's just too much for me to even go there yet to think of what I gave my child!) Make sure you are sitting down because some here were giving their child two to three times upper tolerable levels of the fat soluble vitamins through that product you were using that we no longer like to speak of here (get it You also can look up a Chicago Tribune article on it that was just published as there was or were complaints about the product -and here's a link from this page as to side effects /links/Pharma_Omega_Spea\ k_reports_from_group_001224703760/ Here is a link from our http://www.apraxia.org site http://www.facebook.com/topic.php?uid=115029735601 & topic=10637 As far as cost effective -I have never seen surges like we have seen with NV with anything else- and can't imagine what it would cost or what any of us would pay to see what we are seeing in days, weeks, months. We have a few reports now of children no longer qualifying for services or going from a diagnosis of profound to mild apraxia in months...so do I think you should run not walk to check out NV....uh YES!!! For sure you should and in my opinion not just due to the surges. The only reason I put my son Tanner on NV to begin with was due to after that product you used that made him regress -it appeared to have messed up his metabolic system where no matter how healthy I fed him, how much he worked out and played he couldn't lose weight and kept gaining. I only put him on NV as it supports the metabolic system and was all natural and approved by not one or two -but nine different professionals including his pediatrician I checked it out with...the fact that his same head of school called me about a week after he was on it -about a year ago today -to say " What is going on with Tanner?! " and to report all the surges they were seeing in school was nothing shy of a blessing. It seems that if there was damage from that other product's mega vitamin E and K- NV seemed to make it not just all better- but help my son become better than anyone ever dreamed and in just about all areas you can imagine. Some here http://pursuitofresearch.org/pursuit.html As far as cost effective for fish oils -the most important aspect of fish oil is formula, quality of oils and dosage. Peroxide level measures the rancidity and most OTC fish oils are rancid. So yes you can find less expensive fish oils but I'd believe it better to use less of a high quality fish oil IMO. You kind of get what you pay for in regards to fish oils I found over the years. You buy one of the huge mega tubs of fish oils at a Sams Club or something - I know some PhDs in the area of the PUFAs (fish oils EFAs) that wouldn't even feed that stuff " to their dogs " Really direct quote. But as I just wrote earlier today NV created what appears to be a paradigm shift in all we know. So yes maybe you can use less oils- but again I'd still stick with high quality oils. I spent time working on " why " NV may be working and have this page here http://pursuitofresearch.org/science.html I know I just gave you so much to read and look into and think about- but just know I am so thrilled that you found us! And I can't wait to hear great updates from you too!! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2010 Report Share Posted October 27, 2010 , Quick comment, then tomorrow I'll do the research you pointed me to. You said you were sorry Sophie took so long to get diagnosed, but since she had only had hearing for 1.5 yrs at the point she was diagnosed, isn't that about right? Yes, she was 4.5 but she was only 1.5 in terms of her " hearing age " as it is referred to in the hearing loss world. And Summit school is a Moog school, which is the same kind of school that Sophie is attending now. I do know that what they offer is best. One problem we have, though, is that my husband is looking for new employment and we may relocate, and the oral schools -even Summit school, which is one I looked into - almost all of them mainstream the kids by kindergarten, but Sophie is still largely pre-verbal and almost 6 yo. She speaks but is not really intelligible to anyone that isn't very familiar with her language nuances. Btw, this brings me to a question, what is done for children who are not able to reach a level of functional speech? Are they encouraged to go the sign language route or what? We have focused so much on her deafness that I am only now really accepting and pursuing the problem of the apraxia. It is definitely the problem far more than the hearing loss. Many in the deaf education realm feel it is natural to go for sign language, but it still involves motor planning, and since Sophie has good audition (hearing ability) we would prefer for her to be able to communicate verbally. I also know how hard it is to learn to sign fluently! Thanks for your thoughts thus far. Jodi in AZ On Wednesday, October 27, 2010, kiddietalk <kiddietalk@...> wrote: > Jodi I am so sorry it took so long for them to diagnose your baby. My son Tanner went to the Summit Speech School for the Hearing Impaired in Summit NJ which is one of the top if not the top oral based schools for the hearing impaired in the world. Tanner has normal hearing but I had a theory that if the deaf world can teach someone like Helen Keller to speak -for goodness sake they have to be able to teach my son Tanner who could see and hear! And that theory as many now know is very sound. The same multisensory approaches used for the hearing impaired population worked wonders for my son Tanner and many other hearing as well as hearing impaired children with apraxia. Tanner went to SSS for his preschool Early Intervention years -so I know quite a few children who are deaf or hearing impaired with cochlear implants who were diagnosed with apraxia- getting motor planning therapy. As Dr. Judy Flax once said on a TV show we were on together 6 months is a lifetime for a child in regards to Early Intervention so if they are not making progress we need to know why -examine therapy, therapist, placement -even diagnosis. So again I am so sorry that it took a year and a half to find out. I checked and both with that and the fact you had your child on speak- I figured you were a new member as you are and thank goodness you found us now!! > > Please know that this group had what I would consider to be overwhelming catastrophic side effects reported within days on the product you (in my opinion thank GOD) ran out of. My son Tanner had massive regressions which to this day I get emotional talking about. Not only in speech but in academics -just everything. It's almost like the product not only regressed him but as if he developed a sort of aphasia where he just kept forgetting very simple things...like how to say the letter B (that one was like ice water to me after he had been talking like this http://www.debtsmart.net/talk/tanner.html ) I had to go to his school and present in front of the entire school -all the students and teachers and head of school to explain why my son could no longer talk. A bunch of teachers thought I had put Tanner on some exploratory drug!!! But guess that isn't so crazy -the side effects he had were probably worse than most drugs. We also had reports of seizures and many other issues headaches which my son had too etc. You may want to look up this exact word " hypervitaminosis e " and also look up the meta analysis for vitamin e toxicity and for sure look up the upper tolerable level for vitamin e (I know vitamin k was off the roof high too but it's just too much for me to even go there yet to think of what I gave my child!) Make sure you are sitting down because some here were giving their child two to three times upper tolerable levels of the fat soluble vitamins through that product you were using that we no longer like to speak of here (get it > > You also can look up a Chicago Tribune article on it that was just published as there was or were complaints about the product -and here's a link from this page as to side effects /links/Pharma_Omega_Spea\ k_reports_from_group_001224703760/ > > Here is a link from our http://www.apraxia.org site http://www.facebook.com/topic.php?uid=115029735601 & topic=10637 > > As far as cost effective -I have never seen surges like we have seen with NV with anything else- and can't imagine what it would cost or what any of us would pay to see what we are seeing in days, weeks, months. We have a few reports now of children no longer qualifying for services or going from a diagnosis of profound to mild apraxia in months...so do I think you should run not walk to check out NV....uh YES!!! For sure you should and in my opinion not just due to the surges. The only reason I put my son Tanner on NV to begin with was due to after that product you used that made him regress -it appeared to have messed up his metabolic system where no matter how healthy I fed him, how much he worked out and played he couldn't lose weight and kept gaining. I only put him on NV as it supports the metabolic system and was all natural and approved by not one or two -but nine different professionals including his pediatrician I checked it out with...the fact that his same head of school called me about a week after he was on it -about a year ago today -to say " What is going on with Tanner?! " and to report all the surges they were seeing in school was nothing shy of a blessing. It seems that if there was damage from that other product's mega vitamin E and K- NV seemed to make it not just all better- but help my son become better than anyone ever dreamed and in just about all areas you can imagine. Some here http://pursuitofresearch.org/pursuit.html > > As far as cost effective for fish oils -the most important aspect of fish oil is formula, quality of oils and dosage. Peroxide level measures the rancidity and most OTC fish oils are rancid. So yes you can find less expensive fish oils but I'd believe it better to use less of a high quality fish oil IMO. You kind of get what you pay for in regards to fish oils I found over the years. You buy one of the huge mega tubs of fish oils at a Sams Club or something - I know some PhDs in the area of the PUFAs (fish oils EFAs) that wouldn't even feed that stuff " to their dogs " Really direct quote. > > But as I just wrote earlier today NV created what appears to be a paradigm shift in all we know. So yes maybe you can use less oils- but again I'd still stick with high quality oils. I spent time working on " why " NV may be working and have this page here http://pursuitofresearch.org/science.html > > I know I just gave you so much to read and look into and think about- but just know I am so thrilled that you found us! And I can't wait to hear great updates from you too!! > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2010 Report Share Posted October 28, 2010 We switched to Omega Cure. Find at Omega-Cure.com I do think it works better. It is very fresh. Colleen > > > > Thanks ! Yes he has surged all around. His comprehension is through the > roof and he is calm, happy, funny, dances, etc. > > > > From: > [mailto: ] On Behalf Of kiddietalk > Sent: Wednesday, October 27, 2010 1:16 PM > > Subject: [ ] Re: Fish Oil HELP PLEASE! > > > > > > I really believe we hit a paradigm shift due to the NV for at least > those of us that are fortunate enough to have our children on it. As I have > been saying the surges are in most cases more sudden and dramatic with NV > than fish oils (but yes I believe BOTH are important of course as both are > essential nutrients which the body needs to consume as it can't produce and > lacking in our diets) And in addition the surges are beyond speech and motor > planning -beyond what we saw before with the academic and growth surges as > well as some of the other areas of surge mentioned some here > http://pursuitofresearch.org/pursuit.html My son Tanner is now 14 and has > been on the fish oils for 11 years...and yes there are times he forgot to > take them, but...for the first time ever once on NV...ever ever... I was > able to lower Tanner's fish oils and we were NEVER able to do that even for > one day without a regression in his speech prior- and he just continues to > thrive. And again no I am not looking to take Tanner off fish oils as we > have heart attacks that run on both his mother and father's side of the > family and again they are essential and not in the NV -and I'm not sure he > gets enough daily in his diet. > > But about lower dosages or even different formulas...that's why I just > answered that one message about the Nordic fishies were are more of a treat > as they are so low in EPA and DHA (and no GLA) but who knows? I mean we know > for sure people are seeing the dramatic surges even without the fish oils > -so why not with some? But will one work better than the other? I don't > know. We haven't had enough feedback on that. All I can tell you is that > perhaps with all the essential amino acids and nutrients the metabolic > system supported can now digest and utilize the essential fats better as I > have here http://pursuitofresearch.org/science.html > > So in short here are your options to answer your question from my opinion. > Just use the Coromega if your child loves it and you are seeing surges > anyway. You can buy some primrose oil and just add a few drops to the > Coromega to add some GLA to it and see if you notice any more surges -but > Coromega is a formula that is higher in EPA than DHA. Not sure how many > drops- but just start with one or two. > > Hope that helps! > > ===== > Quote Link to comment Share on other sites More sharing options...
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