Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Hello Everyone, I wanted to give you all an update on my 25 month old son Diagnosed with CAS. My son started on the NN fish oils when he was 20 months old with a small surge in soft vowel production. (He previously had no words and made very few sound other than grunting and pointing.) He also started Speech therapy with a private speech therapist once a week at that time (because EI did not have a speech therapist available and still doesn't.) He began using " B, " " M, " and " P " consonants with soft vowels at around 23months but he had no words and was not mimicking any sounds. At 24 months he did start to pick up some animal sound approximations " ba and moo " and was able to say " moe " for more. We had his 6 month re-evaluation (through EI) in the middle of January. They evaluated his expressive language to be at 12 months and increased his therapy to twice a week. (He has no other delays.) He does have some hypotonia in his lower lip and tongue. After careful consideration and the " OK " from his pediatrician, I started our 24 and ½ month old son on Nutriiveda on February 1st. It has been two weeks and we have seen him go from 1-2 word approximations to well over 50 word approximations! He will try to mimic anything I ask him too. He even has some two word approximations: " la oo " for love you! He can make all consonant sounds now except for " j, t, d, and s. " I did not tell his speech therapist when I started him and she could not believe the difference! She said he was mimicking and trying any word she asked! I can now get him to mimic whole sentences: I will say one word at a time and he will repeat it. He will say " I - wan - moe - ruck - pees " for I want more truck please. He has many more spontaneous approximations as well. He can even say some words spontaneously and perfectly: " pop, happy, me, my, mama, baby, go, up, yeah, wee, uh-oh " and I am sure there are a few more that I am not thinking of right now. He will even sing along with his new CD aimed at children with CAS " Drills on Wheels! " So it has been about a month now since he was evaluated to be 12 months expressively and I took him to Chicago to see a Developmental Pediatrician (to get a formal diagnoses) on Friday. There was a speech therapist, a developmental therapist, an occupational therapist, a child psychiatrist, and the Pediatrician in the room for his evaluation. They determined that his expressive speech is now at a 21 month level! That means he went from a 12 month level to a 21 month level in less than a month (and two weeks on the Nutriiveda!) We were amazed and so was the group that evaluated him! I did bring a label and some of our group's information to let them know about the Nutriiveda, but they pretty much dismissed that it could be the Nutriiveda. They told us to keep doing " whatever " we were doing. I believe differently of course! I can't say that there have been many other noticeable changes in my son, but he has never had any behavioral problems and he has always been very social. I do think he focuses a little better during his speech therapy sessions but other than that, I haven't noticed any other changes. (As if the speech wasn't enough!) So, thank you for bringing this wonderful product to our group and I hope that all of you see as many great changes in your children as we have seen in the last few weeks! Sincerely, IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Oh , I am so excited for you! I already ordered NV and can't wait to start it. Hope the we see the same marked improvement! MO Sent via BlackBerry from T-Mobile RE: [ ] 25month old son on NutriiVeda update Hello Everyone, I wanted to give you all an update on my 25 month old son Diagnosed with CAS. My son started on the NN fish oils when he was 20 months old with a small surge in soft vowel production. (He previously had no words and made very few sound other than grunting and pointing.) He also started Speech therapy with a private speech therapist once a week at that time (because EI did not have a speech therapist available and still doesn't.) He began using " B, " " M, " and " P " consonants with soft vowels at around 23months but he had no words and was not mimicking any sounds. At 24 months he did start to pick up some animal sound approximations " ba and moo " and was able to say " moe " for more. We had his 6 month re-evaluation (through EI) in the middle of January. They evaluated his expressive language to be at 12 months and increased his therapy to twice a week. (He has no other delays.) He does have some hypotonia in his lower lip and tongue. After careful consideration and the " OK " from his pediatrician, I started our 24 and ½ month old son on Nutriiveda on February 1st. It has been two weeks and we have seen him go from 1-2 word approximations to well over 50 word approximations! He will try to mimic anything I ask him too. He even has some two word approximations: " la oo " for love you! He can make all consonant sounds now except for " j, t, d, and s. " I did not tell his speech therapist when I started him and she could not believe the difference! She said he was mimicking and trying any word she asked! I can now get him to mimic whole sentences: I will say one word at a time and he will repeat it. He will say " I - wan - moe - ruck - pees " for I want more truck please. He has many more spontaneous approximations as well. He can even say some words spontaneously and perfectly: " pop, happy, me, my, mama, baby, go, up, yeah, wee, uh-oh " and I am sure there are a few more that I am not thinking of right now. He will even sing along with his new CD aimed at children with CAS " Drills on Wheels! " So it has been about a month now since he was evaluated to be 12 months expressively and I took him to Chicago to see a Developmental Pediatrician (to get a formal diagnoses) on Friday. There was a speech therapist, a developmental therapist, an occupational therapist, a child psychiatrist, and the Pediatrician in the room for his evaluation. They determined that his expressive speech is now at a 21 month level! That means he went from a 12 month level to a 21 month level in less than a month (and two weeks on the Nutriiveda!) We were amazed and so was the group that evaluated him! I did bring a label and some of our group's information to let them know about the Nutriiveda, but they pretty much dismissed that it could be the Nutriiveda. They told us to keep doing " whatever " we were doing. I believe differently of course! I can't say that there have been many other noticeable changes in my son, but he has never had any behavioral problems and he has always been very social. I do think he focuses a little better during his speech therapy sessions but other than that, I haven't noticed any other changes. (As if the speech wasn't enough!) So, thank you for bringing this wonderful product to our group and I hope that all of you see as many great changes in your children as we have seen in the last few weeks! Sincerely, IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 thank you so much for sharing this update!!! I can totally understand why the professionals wouldn't believe the nutriiveda would have that profound of an impact -but that's why the world needs to hear Mel's story. http://littlemermaidmelanie.wordpress.com/about You see your child is still so young -so even though for all of us it's amazing -for the average person on the street a sudden dramatic surge in speech in a child your child's age is par for the course. The fact that it happened within days of nutriiveda -and it's only been 2 weeks for such a dramatic surge would appear as coincidental. The reason it is remarkable is because it's what we keep hearing from parents of children of all ages and all conditions- that makes the chance of your child's surges a " coincidence " low. We went through the same thing with the fish oils. It's hard to credit something so simple to changes that are so great -add to the fact that we are using this as a fund raiser and it appears even more biased. But we never meant this to be for the kids! I mean how many parents and professionals are in this group that want or need to lose a few pounds??? That's why we did the http://www.nutraeasy.com page That's who we thought our fundraiser could be for -us -not our kids! This new " therapy " was a surprise side benefit I discovered in my 13 year old apraxic son Tanner who had the same remarkable surges in all the areas I documented- and this needs to be studied as it's remarkable- it is THAT remarkable...and Tanner's surges were first reported to us as parents by his school professionals who even today continue to be amazed " blown away " by his sudden and dramatic changes. Tanner is NOT the same child. I can't explain it but it's like he's the Tanner he would have been if he was never apraxic. He's not yet 100% and I know this is going to sound bold for me to say -but I want to for the record say that there will be something in the nutriiveda that is found to be healing the brain of our children. I have talked to other parents of children surging on the nutriiveda and they agree. I'm sure you know what I mean - right? Please let me know because I don't believe you and I have spoken (but if we did don't feel bad I've been speaking to so many people I am losing track!!) So yes for little ones the world won't take that seriously as it's due to the nutriiveda. But we know from even the kids 7, 13, and 25 years old, that they regressed within days of being off the nutriiveda -and surged again back on- that it is not coincidence. Wait until you read Robin's newest update for Mel -she called me the other day that had a conversation with her that she wants to have a life like her sisters!!! Robin told me that Mel never before talked about her frustrations. She's TWENTY FIVE YEARS OLD!! Or wait -her birthday is the same day as mine...Robin is she now 26???? Either way -a sudden and dramatic surge in a closer to 2 year old is priceless to the parents of that child -but yes will not be taken seriously by the media- or by close minded professionals...but nobody can ignore when it happens again, and again, and again...and in " children " of all ages and with various diagnosis. But...it won't be until it's validated with research that the skeptics both in the professionals and public will still remain. That's OK...as long as it's approved as " benign " and parents are given the go ahead to try it- more and more will know what some of us are living....for lack of better words -a miracle. (and how many don't believe in them either???) CONGRATULATIONS KATIE!!!! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Thanks ! I hope you do too! Did you try my email again? If it still doesn't work, try my work email: katie.m.stahl@... Best Regards, From: [mailto: ] On Behalf Of elizabeth7899@... Sent: Monday, February 15, 2010 10:51 AM Subject: Re: [ ] 25month old son on NutriiVeda update Oh , I am so excited for you! I already ordered NV and can't wait to start it. Hope the we see the same marked improvement! MO Sent via BlackBerry from T-Mobile RE: [ ] 25month old son on NutriiVeda update Hello Everyone, I wanted to give you all an update on my 25 month old son Diagnosed with CAS. My son started on the NN fish oils when he was 20 months old with a small surge in soft vowel production. (He previously had no words and made very few sound other than grunting and pointing.) He also started Speech therapy with a private speech therapist once a week at that time (because EI did not have a speech therapist available and still doesn't.) He began using " B, " " M, " and " P " consonants with soft vowels at around 23months but he had no words and was not mimicking any sounds. At 24 months he did start to pick up some animal sound approximations " ba and moo " and was able to say " moe " for more. We had his 6 month re-evaluation (through EI) in the middle of January. They evaluated his expressive language to be at 12 months and increased his therapy to twice a week. (He has no other delays.) He does have some hypotonia in his lower lip and tongue. After careful consideration and the " OK " from his pediatrician, I started our 24 and ½ month old son on Nutriiveda on February 1st. It has been two weeks and we have seen him go from 1-2 word approximations to well over 50 word approximations! He will try to mimic anything I ask him too. He even has some two word approximations: " la oo " for love you! He can make all consonant sounds now except for " j, t, d, and s. " I did not tell his speech therapist when I started him and she could not believe the difference! She said he was mimicking and trying any word she asked! I can now get him to mimic whole sentences: I will say one word at a time and he will repeat it. He will say " I - wan - moe - ruck - pees " for I want more truck please. He has many more spontaneous approximations as well. He can even say some words spontaneously and perfectly: " pop, happy, me, my, mama, baby, go, up, yeah, wee, uh-oh " and I am sure there are a few more that I am not thinking of right now. He will even sing along with his new CD aimed at children with CAS " Drills on Wheels! " So it has been about a month now since he was evaluated to be 12 months expressively and I took him to Chicago to see a Developmental Pediatrician (to get a formal diagnoses) on Friday. There was a speech therapist, a developmental therapist, an occupational therapist, a child psychiatrist, and the Pediatrician in the room for his evaluation. They determined that his expressive speech is now at a 21 month level! That means he went from a 12 month level to a 21 month level in less than a month (and two weeks on the Nutriiveda!) We were amazed and so was the group that evaluated him! I did bring a label and some of our group's information to let them know about the Nutriiveda, but they pretty much dismissed that it could be the Nutriiveda. They told us to keep doing " whatever " we were doing. I believe differently of course! I can't say that there have been many other noticeable changes in my son, but he has never had any behavioral problems and he has always been very social. I do think he focuses a little better during his speech therapy sessions but other than that, I haven't noticed any other changes. (As if the speech wasn't enough!) So, thank you for bringing this wonderful product to our group and I hope that all of you see as many great changes in your children as we have seen in the last few weeks! Sincerely, IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Thanks ! No, we have not talked before. I have only been a member of the group for a few months and this is the biggest surge we have seen. If there is anything that I (we) can do to help get the word out or to help with the research, let me know. Isn't it funny how people don't believe this as if we would make something like this up! We did increase our son's therapy from once to twice a week, but two extra sessions of therapy (in the two weeks) can not account for this surge. The thing that is frustrating to me is when the people (besides me) that are with him everyday (my husband and my mom)...still do not believe it is the NutriiVeda. My mom who watches my boys while we work thinks the improvements are remarkable, but she rolls her eyes when I credit the NutriiVeda. My husband pretty much does the same. I guess it is because they have not read the growing number of amazing testimonials (like yours and Mel's) that I have from this group. At this point, it doesn't matter what they think...it is working! As a side note...my poor little guy was hit in the mouth yesterday at tumbling and almost got his front tooth knocked out. It didn't fall out, but it is now pushed back and he has the most swollen upper lip I have ever seen. As if he didn't have enough going on in his mouth and he didn't have enough trouble figuring out where to put his tongue and lips to make certain sounds, but now he has this too deal with. Sometimes I swear these kids just can't catch a break! Well, I hope it doesn't impede his progress. I will keep you posted on any other improvements! Thanks again, ________________________________ From: [mailto: ] On Behalf Of kiddietalk Sent: Monday, February 15, 2010 12:13 PM Subject: [ ] Re: 25month old son on NutriiVeda update thank you so much for sharing this update!!! I can totally understand why the professionals wouldn't believe the nutriiveda would have that profound of an impact -but that's why the world needs to hear Mel's story. http://littlemermaidmelanie.wordpress.com/about You see your child is still so young -so even though for all of us it's amazing -for the average person on the street a sudden dramatic surge in speech in a child your child's age is par for the course. The fact that it happened within days of nutriiveda -and it's only been 2 weeks for such a dramatic surge would appear as coincidental. The reason it is remarkable is because it's what we keep hearing from parents of children of all ages and all conditions- that makes the chance of your child's surges a " coincidence " low. We went through the same thing with the fish oils. It's hard to credit something so simple to changes that are so great -add to the fact that we are using this as a fund raiser and it appears even more biased. But we never meant this to be for the kids! I mean how many parents and professionals are in this group that want or need to lose a few pounds??? That's why we did the http://www.nutraeasy.com page That's who we thought our fundraiser could be for -us -not our kids! This new " therapy " was a surprise side benefit I discovered in my 13 year old apraxic son Tanner who had the same remarkable surges in all the areas I documented- and this needs to be studied as it's remarkable- it is THAT remarkable...and Tanner's surges were first reported to us as parents by his school professionals who even today continue to be amazed " blown away " by his sudden and dramatic changes. Tanner is NOT the same child. I can't explain it but it's like he's the Tanner he would have been if he was never apraxic. He's not yet 100% and I know this is going to sound bold for me to say -but I want to for the record say that there will be something in the nutriiveda that is found to be healing the brain of our children. I have talked to other parents of children surging on the nutriiveda and they agree. I'm sure you know what I mean - right? Please let me know because I don't believe you and I have spoken (but if we did don't feel bad I've been speaking to so many people I am losing track!!) So yes for little ones the world won't take that seriously as it's due to the nutriiveda. But we know from even the kids 7, 13, and 25 years old, that they regressed within days of being off the nutriiveda -and surged again back on- that it is not coincidence. Wait until you read Robin's newest update for Mel -she called me the other day that had a conversation with her that she wants to have a life like her sisters!!! Robin told me that Mel never before talked about her frustrations. She's TWENTY FIVE YEARS OLD!! Or wait -her birthday is the same day as mine...Robin is she now 26???? Either way -a sudden and dramatic surge in a closer to 2 year old is priceless to the parents of that child -but yes will not be taken seriously by the media- or by close minded professionals...but nobody can ignore when it happens again, and again, and again...and in " children " of all ages and with various diagnosis. But...it won't be until it's validated with research that the skeptics both in the professionals and public will still remain. That's OK...as long as it's approved as " benign " and parents are given the go ahead to try it- more and more will know what some of us are living....for lack of better words -a miracle. (and how many don't believe in them either???) CONGRATULATIONS KATIE!!!! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 , Those improvements are wonderful! I have a few clients on the NV & am seeing great changes as well! Yes, more imitation of new wds, & greater length of utterance too. The one client I am thinking of is a 3yo. I am excited to hear about their changes too. Warmest wishes, Barbara A , M.S., CCC-SLP Executive Director, Help Me Speak, LLC 410-442-9791 RE: [ ] 25month old son on NutriiVeda update Hello Everyone, I wanted to give you all an update on my 25 month old son Diagnosed with CAS. My son started on the NN fish oils when he was 20 months old with a small surge in soft vowel production. (He previously had no words and made very few sound other than grunting and pointing.) He also started Speech therapy with a private speech therapist once a week at that time (because EI did not have a speech therapist available and still doesn't.) He began using " B, " " M, " and " P " consonants with soft vowels at around 23months but he had no words and was not mimicking any sounds. At 24 months he did start to pick up some animal sound approximations " ba and moo " and was able to say " moe " for more. We had his 6 month re-evaluation (through EI) in the middle of January. They evaluated his expressive language to be at 12 months and increased his therapy to twice a week. (He has no other delays.) He does have some hypotonia in his lower lip and tongue. After careful consideration and the " OK " from his pediatrician, I started our 24 and ½ month old son on Nutriiveda on February 1st. It has been two weeks and we have seen him go from 1-2 word approximations to well over 50 word approximations! He will try to mimic anything I ask him too. He even has some two word approximations: " la oo " for love you! He can make all consonant sounds now except for " j, t, d, and s. " I did not tell his speech therapist when I started him and she could not believe the difference! She said he was mimicking and trying any word she asked! I can now get him to mimic whole sentences: I will say one word at a time and he will repeat it. He will say " I - wan - moe - ruck - pees " for I want more truck please. He has many more spontaneous approximations as well. He can even say some words spontaneously and perfectly: " pop, happy, me, my, mama, baby, go, up, yeah, wee, uh-oh " and I am sure there are a few more that I am not thinking of right now. He will even sing along with his new CD aimed at children with CAS " Drills on Wheels! " So it has been about a month now since he was evaluated to be 12 months expressively and I took him to Chicago to see a Developmental Pediatrician (to get a formal diagnoses) on Friday. There was a speech therapist, a developmental therapist, an occupational therapist, a child psychiatrist, and the Pediatrician in the room for his evaluation. They determined that his expressive speech is now at a 21 month level! That means he went from a 12 month level to a 21 month level in less than a month (and two weeks on the Nutriiveda!) We were amazed and so was the group that evaluated him! I did bring a label and some of our group's information to let them know about the Nutriiveda, but they pretty much dismissed that it could be the Nutriiveda. They told us to keep doing " whatever " we were doing. I believe differently of course! I can't say that there have been many other noticeable changes in my son, but he has never had any behavioral problems and he has always been very social. I do think he focuses a little better during his speech therapy sessions but other than that, I haven't noticed any other changes. (As if the speech wasn't enough!) So, thank you for bringing this wonderful product to our group and I hope that all of you see as many great changes in your children as we have seen in the last few weeks! Sincerely, IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 I understand that too. It's funny with this one the Dads do appear to be more skeptical than the Moms -at least to start. Most are believers once they see all your husband has -but your child again is so young. Your husband probably never quite accepted that there is anything but a speech delay going on anyway at 25 months old -and just thinks this is good the craziness is all over and others are seeing what he's suspected all along -that his son was just a late talker. Am I right? And come to think of it -your mom probably falls into that same " he is just a late talker " boat- right? There is only one way to prove it's from the nutriiveda. Stop it. At least for a few days. No harm in stopping it and it will be the only way to prove that it's what made the difference. I do know with fish oils the younger the better in helping to get the brain to rewire and it could be the same with the nutriiveda -but still it's only been 2 weeks. If the surges you are seeing which are so dramatic were just coincidental than certainly stopping the nutriiveda won't make any difference. Let us know! (and like the fish oils once you start again the surges come back -so don't worry about that) ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Can anyone please check that this product does not cause yeasts flare ups---would like to try but when you read the ingredients like selenuim yeast and iodine yeasts does anyone know  tthank you From: kiddietalk <kiddietalk@...> Subject: [ ] Re: 25month old son on NutriiVeda update Date: Monday, February 15, 2010, 2:34 PM  I understand that too. It's funny with this one the Dads do appear to be more skeptical than the Moms -at least to start. Most are believers once they see all your husband has -but your child again is so young. Your husband probably never quite accepted that there is anything but a speech delay going on anyway at 25 months old -and just thinks this is good the craziness is all over and others are seeing what he's suspected all along -that his son was just a late talker. Am I right? And come to think of it -your mom probably falls into that same " he is just a late talker " boat- right? There is only one way to prove it's from the nutriiveda. Stop it. At least for a few days. No harm in stopping it and it will be the only way to prove that it's what made the difference. I do know with fish oils the younger the better in helping to get the brain to rewire and it could be the same with the nutriiveda -but still it's only been 2 weeks. If the surges you are seeing which are so dramatic were just coincidental than certainly stopping the nutriiveda won't make any difference. Let us know! (and like the fish oils once you start again the surges come back -so don't worry about that) ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Hi Carolyn -we answered this before here. The yeast in the nutriiveda is inactive/dead -only added for the nutrients. " Checked with the manufacturer and the chromium, molybdenum, iodine, selenium, and manganese yeast are all inactive and as I was told could be taken even by someone who has a candida problem. They are there as a natural way to get the nutrients chromium, molybdenum, iodine, selenium, and manganese. Hope that helps! " More on this here http://www.facebook.com/topic.php?uid=115029735601 & topic=13047 But be open -there was a time that people thought the world was flat. It is possible that whatever is in this product is needed by the body. Just like good and bad fats this may be an example of good and bad yeasts. As always the proof is in the pudding. If it's working and you are seeing all positive on it with a " yeast flare up " but without the yeast flare up with whatever you are doing your child is still impaired and not surging -which road do you choose? As I joked on fb -if there 'were' active yeast in nutriiveda -it must be a really good one! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 , I am interested in trying Nutriiveda. But unlike fishoil, this is really something that has not been confirmed by scientific studies. Personally, I would feel more comfortable trying this if you as the leader in pushing for parents to try it make an official disclaimer that you have no personal commercial interest in asking any parents to try this. I apologize if I am not sounding diplomatic enough here. just like folks on CNBC recommending stocks have to disclose any personal positions or interest in the stocks. When the investment pros make recommendations without hiding any conflict of interest, it makes folks more willing to accept the recommendations. Thanks, Xun From: kiddietalk <kiddietalk@...> Subject: [ ] Re: 25month old son on NutriiVeda update Date: Monday, February 15, 2010, 6:25 PM  Hi Carolyn -we answered this before here. The yeast in the nutriiveda is inactive/dead -only added for the nutrients. " Checked with the manufacturer and the chromium, molybdenum, iodine, selenium, and manganese yeast are all inactive and as I was told could be taken even by someone who has a candida problem. They are there as a natural way to get the nutrients chromium, molybdenum, iodine, selenium, and manganese. Hope that helps! " More on this here http://www.facebook .com/topic. php?uid=11502973 5601 & topic= 13047 But be open -there was a time that people thought the world was flat. It is possible that whatever is in this product is needed by the body. Just like good and bad fats this may be an example of good and bad yeasts. As always the proof is in the pudding. If it's working and you are seeing all positive on it with a " yeast flare up " but without the yeast flare up with whatever you are doing your child is still impaired and not surging -which road do you choose? As I joked on fb -if there 'were' active yeast in nutriiveda -it must be a really good one! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Also, . My wife just took my son to CHOP autism center this a.m. and we asked about Nutrriveda and the Dr's response is that she has never heard about it. I know that you quoted a CHOP study below that supports the use of Nutrriveda below. My daughter has an appointment with CHOP autism center later on. How shall we ask the right question about Nutriiveda to get them on board for this? http://www.sflorg.com/comm_center/medical/p974_99.html Thx, Xun Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Hi Xun! Actually that's a theory of mine amongst others that the essential amino acids could be the reason that the nutriiveda is working -and this study http://www.sflorg.com/comm_center/medical/p974_99.html supports that. But I never said that they used or supported nutriiveda in the study!!! -is that what you thought? This is so new I'd be shocked if they did hear about it, and if they did it would be through someone in this group as I am the one that discovered it!!! -and while I have thought of contacting various doctors who may want to research this -I've already spoken to the company and know that research would be done by the doctors that formulated it including of course Dr. Chopra and Dr. Simon. And who better than them? But it's all so new -but benign. There is nothing in the nutriiveda that is not classified as a food -so as far as you saying you wouldn't use it without clinical science to back it up -it would similar to saying you didn't want to give your child a cheeseburger without scientific research to support it (that there may be however -and there will be research for nutriiveda and our children I'm sure about it -but may take a few years) There are in fact 300 studies behind the importance of the ingredients in the nutriiveda and they are in the process of human clinical studies now on the actual product -but again it's benign from all I have read anyway. This is so like the original messages I got about fish oil...and don't you use fish oils now??? If your doctors from CHOP DON'T approve nutriiveda than I want to speak with them. That's just crazy based on their research -it wouldn't make sense. To me from your first message especially I didn't even think you were looking to try it -perhaps they didn't either. Again it's all food classified and it's providing a diet rich in essential amino acids amongst everything else. You may have put them off if you stated that I said they recommended nutriiveda which is putting words in my mouth Xun. If you go back and read what I wrote here http://www.facebook.com/topic.php?uid=115029735601 & topic=13047 you'll see that I'm thinking outloud of why this may be working so quickly and finding their study supports one theory. As far as what to say to get your doctors on board -I don't believe any of us have found that to be hard if you ask and share the info. I'd share the information from the links I've posted on fb here (which includes their study http://www.facebook.com/topic.php?uid=115029735601 & topic=13047 You can share this as well: Anecdotal reports of the Cherab Foundation are coming in from the United States as well as other countries that children with autism, apraxia and other speech impairments, ADHD, TBI, seizure disorders, and global delays are seeing surges in the following areas in most cases within just a few days: SPEECH articulation, complexity and sophistication of sentence structure LANGUAGE better understanding of written and spoken word, development of better reading and writing skills ACADEMICS/LEARNING reported surges in all areas of school FINE AND GROSS MOTOR SKILLS also multi tasking SENSE OF HUMOR both catching subtle humor and wanting to make others laugh-joking around AWARENESS OF SURROUNDINGS (for autism) reported following gaze and moreinteractions FACIAL EXPRESSIONS (for those with oral apraxia) instead of blank stares when not engaged in conversation (non verbal expressions) FOCUS on task, more willing to listen and try MULTI TASKING (for apraxia as this is something typically not done or done well) SOCIAL wanting to participate with others via play and communication MOOD reported seems " happier " for a number DEVELOPMENTAL CATCHING UP for those that never went through stages -reportedly going through them for the first time. DECREASE IN SEIZURES so far in one case elimination of any seizures and headaches and decrease in seizure meds as well As far as full disclosure -as we have up on the website Zrii is a direct sales company and one of our grandparents who has made millions in the past few years got Cherab involved to help us raise monies for PUFA research (which I would be happy to in private share the details with anyone willing to help fund it but we need to keep the " parents from blogging about it " for credibility reasons) You can read about that at http://www.pursuitofresearch.org under apraxia research. Or even more commercial I've posted http://www.nutraeasy.com I don't know how much more full disclosure you need? I mean I do understand the skepticism =my son is one of the ones that has had a dramatic surge in multiple areas and it is hard to believe this all happened this quick for even me. And how do you think Robin and her family feels about Mel's continued surges across the board as well?? http://littlemermaidmelanie.wordpress.com/about Point is you can try it -you'll know within days- and if you don't see anything which most clearly do -then get your money back. If it's approved by your doctors than that's all that matters. But if you check this group so far I believe it's only one doctor's group that didn't approve it -but that was a group that diagnosed a child that was diagnosed apraxic by an SLP as " PDD NOS " -so clearly gave the child a diagnosis name that won't help secure any specific appropriate therapy -useless. One thing that does shock me is that we are reading testimony after testimony and instead of you writing " the testimonies are incredible but.... " to at least acknowledge them -you don't mention any of them. I mean I've run this group for over ten years and have never seen a product have this positive a reaction from this many people. The only negative is from people that have not used it. You posted this on top of 's amazing update no matter what the reason for her son's amazing surges in ....TWO WEEKS!!!!!!!! Sounds like a reason to say CONGRATULATIONS to me Hope this cleared it all up for you! (I'll include 's update below again in case you missed it) ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Xun, I am sure will not mind if I answer your concern. I agree and do respect your concerns about Nutriiveda and the lack of research for kids like ours. But I am from India and each ingredient is something we use in food daily. It's a very new product which was basically introduced for natural weight management and has been endorsed by the Chopra Center. It so happens that somehow the ingredients in it has been helping lots of our kids [the number of inputs coming from parents proves it]. Just like fish oil we as parents are finding that nurtiiveda is bringing surges in language, fine motor ability, focus and in many other areas. has been very open about the fact that she tried it for her son Tanner to reduce his weight…. But on her journey in helping out her son she discovered that this was making Tanner' speech clearer and noticed his improving focus. She was contacted by the professionals at her son's school who noticed the improvements. She couldn't hide her excitement about all the good reports she was getting from her son's school above all from the school Principal itself. Robin has been graciously shelling out time to tell about how her 26 year old daughter 's life has drastically changed for the better since adding nutriiveda in the last 2 months!!! Seeing so much positive improvements decided to share the news with the rest of us….. I am glad SHE DID!!!! has also been open about the fact that she is trying to raise money for the PUFA research to help kids with apraxia. She has openly said that her venture into nutriiveda started of as a fundraiser…but the more she found great reports on Tanner she as a parent was eager to tell that to all of us, keeping in mind that it will help other kids. has already mentioned numerous number of times that ordering through http://www.pursuitofresearch.org will help with the research. If you are not comfortable, you can always pay more and order from chopra.com. To try or not to try is an individual decision. sowmya > > > > > > > > Thanks ! No, we have not talked before. I have only been a member of the group for a few months and this is the biggest surge we have seen. If there is anything that I (we) can do to help get the word out or to help with the research, let me know. Isn't it funny how people don't believe this as if we would make something like this up! We did increase our son's therapy from once to twice a week, but two extra sessions of therapy (in the two weeks) can not account for this surge. The thing that is frustrating to me is when the people (besides me) that are with him everyday (my husband and my mom)...still do not believe it is the NutriiVeda. My mom who watches my boys while we work thinks the improvements are remarkable, but she rolls her eyes when I credit the NutriiVeda. My husband pretty much does the same. I guess it is because they have not read the growing number of amazing testimonials (like yours and Mel's) that I have from this group. At > this > > > point, it doesn't matter what they think...it is working! > > > > > > > > As a side note...my poor little guy was hit in the mouth yesterday at tumbling and almost got his front tooth knocked out. It didn't fall out, but it is now pushed back and he has the most swollen upper lip I have ever seen. As if he didn't have enough going on in his mouth and he didn't have enough trouble figuring out where to put his tongue and lips to make certain sounds, but now he has this too deal with. Sometimes I swear these kids just can't catch a break! Well, I hope it doesn't impede his progress. > > > > > > > > I will keep you posted on any other improvements! > > > > > > > > Thanks again, > > > > > > > > ____________ _________ _________ __ > > > > From: @groups. com [mailto:childrensap raxianet @groups. com] On Behalf Of kiddietalk > > > > Sent: Monday, February 15, 2010 12:13 PM > > > > @groups. com > > > > Subject: [childrensapraxiane t] Re: 25month old son on NutriiVeda update > > > > > > > > > > > > > > > > thank you so much for sharing this update!!! I can totally understand why the professionals wouldn't believe the nutriiveda would have that profound of an impact -but that's why the world needs to hear Mel's story. http://littlemermai dmelanie. wordpress. com/about > > > > > > > > You see your child is still so young -so even though for all of us it's amazing -for the average person on the street a sudden dramatic surge in speech in a child your child's age is par for the course. The fact that it happened within days of nutriiveda -and it's only been 2 weeks for such a dramatic surge would appear as coincidental. The reason it is remarkable is because it's what we keep hearing from parents of children of all ages and all conditions- that makes the chance of your child's surges a " coincidence " low. We went through the same thing with the fish oils. It's hard to credit something so simple to changes that are so great -add to the fact that we are using this as a fund raiser and it appears even more biased. But we never meant this to be for the kids! I mean how many parents and professionals are in this group that want or need to lose a few pounds??? That's why we did the http://www.nutraeas y.com page That's who we thought our > > > fundraiser could be for -us -not our kids! This new " therapy " was a surprise side benefit I discovered in my 13 year old apraxic son Tanner who had the same remarkable surges in all the areas I documented- and this needs to be studied as it's remarkable- it is THAT remarkable.. .and Tanner's surges were first reported to us as parents by his school professionals who even today continue to be amazed " blown away " by his sudden and dramatic changes. Tanner is NOT the same child. I can't explain it but it's like he's the Tanner he would have been if he was never apraxic. He's not yet 100% and I know this is going to sound bold for me to say -but I want to for the record say that there will be something in the nutriiveda that is found to be healing the brain of our children. I have talked to other parents of children surging on the nutriiveda and they agree. I'm sure you know what I mean - right? Please let me know because I don't believe you and I > have > > > spoken (but if we did don't feel bad I've been speaking to so many people I am losing track!!) > > > > > > > > So yes for little ones the world won't take that seriously as it's due to the nutriiveda. But we know from even the kids 7, 13, and 25 years old, that they regressed within days of being off the nutriiveda -and surged again back on- that it is not coincidence. > > > > > > > > Wait until you read Robin's newest update for Mel -she called me the other day that had a conversation with her that she wants to have a life like her sisters!!! Robin told me that Mel never before talked about her frustrations. She's TWENTY FIVE YEARS OLD!! Or wait -her birthday is the same day as mine...Robin is she now 26???? > > > > > > > > Either way -a sudden and dramatic surge in a closer to 2 year old is priceless to the parents of that child -but yes will not be taken seriously by the media- or by close minded professionals. ..but nobody can ignore when it happens again, and again, and again...and in " children " of all ages and with various diagnosis. But...it won't be until it's validated with research that the skeptics both in the professionals and public will still remain. That's OK...as long as it's approved as " benign " and parents are given the go ahead to try it- more and more will know what some of us are living....for lack of better words -a miracle. (and how many don't believe in them either???) > > > > > > > > CONGRATULATIONS KATIE!!!! > > > > > > > > ===== > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 , You must be a very proud MOM!!! To see the jump from 12 month to 21 month level in less than a month....really amazing!!! My therapists are blown away by my son' requests, great focus and good eye-contact!!! Hope your little guy gets better...and we hear more great news. sowmya > > Thanks ! No, we have not talked before. I have only been a member of the group for a few months and this is the biggest surge we have seen. If there is anything that I (we) can do to help get the word out or to help with the research, let me know. Isn't it funny how people don't believe this as if we would make something like this up! We did increase our son's therapy from once to twice a week, but two extra sessions of therapy (in the two weeks) can not account for this surge. The thing that is frustrating to me is when the people (besides me) that are with him everyday (my husband and my mom)...still do not believe it is the NutriiVeda. My mom who watches my boys while we work thinks the improvements are remarkable, but she rolls her eyes when I credit the NutriiVeda. My husband pretty much does the same. I guess it is because they have not read the growing number of amazing testimonials (like yours and Mel's) that I have from this group. At this point, it doesn't matter what they think...it is working! > > As a side note...my poor little guy was hit in the mouth yesterday at tumbling and almost got his front tooth knocked out. It didn't fall out, but it is now pushed back and he has the most swollen upper lip I have ever seen. As if he didn't have enough going on in his mouth and he didn't have enough trouble figuring out where to put his tongue and lips to make certain sounds, but now he has this too deal with. Sometimes I swear these kids just can't catch a break! Well, I hope it doesn't impede his progress. > > I will keep you posted on any other improvements! > > Thanks again, > > ________________________________ > From: [mailto: ] On Behalf Of kiddietalk > Sent: Monday, February 15, 2010 12:13 PM > > Subject: [ ] Re: 25month old son on NutriiVeda update > > > > thank you so much for sharing this update!!! I can totally understand why the professionals wouldn't believe the nutriiveda would have that profound of an impact -but that's why the world needs to hear Mel's story. http://littlemermaidmelanie.wordpress.com/about > > You see your child is still so young -so even though for all of us it's amazing -for the average person on the street a sudden dramatic surge in speech in a child your child's age is par for the course. The fact that it happened within days of nutriiveda -and it's only been 2 weeks for such a dramatic surge would appear as coincidental. The reason it is remarkable is because it's what we keep hearing from parents of children of all ages and all conditions- that makes the chance of your child's surges a " coincidence " low. We went through the same thing with the fish oils. It's hard to credit something so simple to changes that are so great -add to the fact that we are using this as a fund raiser and it appears even more biased. But we never meant this to be for the kids! I mean how many parents and professionals are in this group that want or need to lose a few pounds??? That's why we did the http://www.nutraeasy.com page That's who we thought our fundraiser could be for -us -not our kids! This new " therapy " was a surprise side benefit I discovered in my 13 year old apraxic son Tanner who had the same remarkable surges in all the areas I documented- and this needs to be studied as it's remarkable- it is THAT remarkable...and Tanner's surges were first reported to us as parents by his school professionals who even today continue to be amazed " blown away " by his sudden and dramatic changes. Tanner is NOT the same child. I can't explain it but it's like he's the Tanner he would have been if he was never apraxic. He's not yet 100% and I know this is going to sound bold for me to say -but I want to for the record say that there will be something in the nutriiveda that is found to be healing the brain of our children. I have talked to other parents of children surging on the nutriiveda and they agree. I'm sure you know what I mean - right? Please let me know because I don't believe you and I have spoken (but if we did don't feel bad I've been speaking to so many people I am losing track!!) > > So yes for little ones the world won't take that seriously as it's due to the nutriiveda. But we know from even the kids 7, 13, and 25 years old, that they regressed within days of being off the nutriiveda -and surged again back on- that it is not coincidence. > > Wait until you read Robin's newest update for Mel -she called me the other day that had a conversation with her that she wants to have a life like her sisters!!! Robin told me that Mel never before talked about her frustrations. She's TWENTY FIVE YEARS OLD!! Or wait -her birthday is the same day as mine...Robin is she now 26???? > > Either way -a sudden and dramatic surge in a closer to 2 year old is priceless to the parents of that child -but yes will not be taken seriously by the media- or by close minded professionals...but nobody can ignore when it happens again, and again, and again...and in " children " of all ages and with various diagnosis. But...it won't be until it's validated with research that the skeptics both in the professionals and public will still remain. That's OK...as long as it's approved as " benign " and parents are given the go ahead to try it- more and more will know what some of us are living....for lack of better words -a miracle. (and how many don't believe in them either???) > > CONGRATULATIONS KATIE!!!! > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 , Wow what an amazing update! I remember those test when was young and how heartbreaking they were for us to hear. I can only imagine how you felt after receiving the news he went from 12 months to 21 months level in less than a month! Please keep us posted. Thanks, Robin On Feb 15, 2010, at 11:03 PM, sow wrote: > , > You must be a very proud MOM!!! > To see the jump from 12 month to 21 month level in less than a > month....really amazing!!! > My therapists are blown away by my son' requests, great focus and > good eye-contact!!! > Hope your little guy gets better...and we hear more great news. > sowmya > > > > > > Thanks ! No, we have not talked before. I have only been a > member of the group for a few months and this is the biggest surge > we have seen. If there is anything that I (we) can do to help get > the word out or to help with the research, let me know. Isn't it > funny how people don't believe this as if we would make something > like this up! We did increase our son's therapy from once to twice a > week, but two extra sessions of therapy (in the two weeks) can not > account for this surge. The thing that is frustrating to me is when > the people (besides me) that are with him everyday (my husband and > my mom)...still do not believe it is the NutriiVeda. My mom who > watches my boys while we work thinks the improvements are > remarkable, but she rolls her eyes when I credit the NutriiVeda. My > husband pretty much does the same. I guess it is because they have > not read the growing number of amazing testimonials (like yours and > Mel's) that I have from this group. At this point, it doesn't matter > what they think...it is working! > > > > As a side note...my poor little guy was hit in the mouth yesterday > at tumbling and almost got his front tooth knocked out. It didn't > fall out, but it is now pushed back and he has the most swollen > upper lip I have ever seen. As if he didn't have enough going on in > his mouth and he didn't have enough trouble figuring out where to > put his tongue and lips to make certain sounds, but now he has this > too deal with. Sometimes I swear these kids just can't catch a > break! Well, I hope it doesn't impede his progress. > > > > I will keep you posted on any other improvements! > > > > Thanks again, > > > > ________________________________ > > From: [mailto: > ] On Behalf Of kiddietalk > > Sent: Monday, February 15, 2010 12:13 PM > > > > Subject: [ ] Re: 25month old son on NutriiVeda > update > > > > > > > > thank you so much for sharing this update!!! I can totally > understand why the professionals wouldn't believe the nutriiveda > would have that profound of an impact -but that's why the world > needs to hear Mel's story. http://littlemermaidmelanie.wordpress.com/about > > > > You see your child is still so young -so even though for all of us > it's amazing -for the average person on the street a sudden dramatic > surge in speech in a child your child's age is par for the course. > The fact that it happened within days of nutriiveda -and it's only > been 2 weeks for such a dramatic surge would appear as coincidental. > The reason it is remarkable is because it's what we keep hearing > from parents of children of all ages and all conditions- that makes > the chance of your child's surges a " coincidence " low. We went > through the same thing with the fish oils. It's hard to credit > something so simple to changes that are so great -add to the fact > that we are using this as a fund raiser and it appears even more > biased. But we never meant this to be for the kids! I mean how many > parents and professionals are in this group that want or need to > lose a few pounds??? That's why we did the http://www.nutraeasy.com > page That's who we thought our fundraiser could be for -us -not our > kids! This new " therapy " was a surprise side benefit I discovered in > my 13 year old apraxic son Tanner who had the same remarkable surges > in all the areas I documented- and this needs to be studied as it's > remarkable- it is THAT remarkable...and Tanner's surges were first > reported to us as parents by his school professionals who even today > continue to be amazed " blown away " by his sudden and dramatic > changes. Tanner is NOT the same child. I can't explain it but it's > like he's the Tanner he would have been if he was never apraxic. > He's not yet 100% and I know this is going to sound bold for me to > say -but I want to for the record say that there will be something > in the nutriiveda that is found to be healing the brain of our > children. I have talked to other parents of children surging on the > nutriiveda and they agree. I'm sure you know what I mean - > right? Please let me know because I don't believe you and I have > spoken (but if we did don't feel bad I've been speaking to so many > people I am losing track!!) > > > > So yes for little ones the world won't take that seriously as it's > due to the nutriiveda. But we know from even the kids 7, 13, and 25 > years old, that they regressed within days of being off the > nutriiveda -and surged again back on- that it is not coincidence. > > > > Wait until you read Robin's newest update for Mel -she called me > the other day that had a conversation with her that she > wants to have a life like her sisters!!! Robin told me that Mel > never before talked about her frustrations. She's TWENTY FIVE YEARS > OLD!! Or wait -her birthday is the same day as mine...Robin is she > now 26???? > > > > Either way -a sudden and dramatic surge in a closer to 2 year old > is priceless to the parents of that child -but yes will not be taken > seriously by the media- or by close minded professionals...but > nobody can ignore when it happens again, and again, and again...and > in " children " of all ages and with various diagnosis. But...it won't > be until it's validated with research that the skeptics both in the > professionals and public will still remain. That's OK...as long as > it's approved as " benign " and parents are given the go ahead to try > it- more and more will know what some of us are living....for lack > of better words -a miracle. (and how many don't believe in them > either???) > > > > CONGRATULATIONS KATIE!!!! > > > > ===== > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Hi Xun, When shared the Nutriiveda with me, I never felt like she was pushing Nutriiveda for her own personal gain. Never once did I have that thought. My first impression is that she was only trying to help when everyone else had given up. did explain to me about her research project with regards to fish oil but that conversation was brief as she was more interested in the possible benefits the Nutriiveda would have for . and I have been friends for over 10 years and has always tried to help me with . I tried Nutriiveda for for the weight loss as needed to loose her extra weight from her seizure medication. We did not expect to see anything else from Nutriiveda as everything else we tried never worked for . Because of Nutriiveda is now PTSD and Seizure free, better speech and motor planning, lost 15 pounds, and for the first time in many years finally enjoying life!! You can read Mel's blog for all the changes and I'll be updating it later http://littlemermaidmelanie.wordpress.com/about If you would speak with personally you will discover that her heart is in the right place. is trying to help all of us help our children. Robin > Xun, > I am sure will not mind if I answer your concern. > I agree and do respect your concerns about Nutriiveda and the lack > of research for kids like ours. But I am from India and each > ingredient is something we use in food daily. > > It's a very new product which was basically introduced for natural > weight management and has been endorsed by the Chopra Center. It so > happens that somehow the ingredients in it has been helping lots of > our kids [the number of inputs coming from parents proves it]. Just > like fish oil we as parents are finding that nurtiiveda is bringing > surges in language, fine motor ability, focus and in many other areas. > > has been very open about the fact that she tried it for her son > Tanner to reduce his weight…. > But on her journey in helping out her son she discovered that this > was making Tanner' speech clearer and noticed his improving focus. > She was contacted by the professionals at her son's school who > noticed the improvements. She couldn't hide her excitement about all > the good reports she was getting from her son's school above all > from the school Principal itself. Robin has been graciously shelling > out time to tell about how her 26 year old daughter 's life > has drastically changed for the better since adding nutriiveda in > the last 2 months!!! Seeing so much positive improvements > decided to share the news with the rest of us….. > > I am glad SHE DID!!!! > > has also been open about the fact that she is trying to raise > money for the PUFA research to help kids with apraxia. She has > openly said that her venture into nutriiveda started of as a > fundraiser…but the more she found great reports on Tanner she as a > parent was eager to tell that to all of us, keeping in mind that it > will help other kids. > > has already mentioned numerous number of times that ordering > through http://www.pursuitofresearch.org will help with the > research. If you are not comfortable, you can always pay more and > order from chopra.com. > > To try or not to try is an individual decision. > > sowmya > > > > > > > > > > > > > > Thanks ! No, we have not talked before. I have only been a > member of the group for a few months and this is the biggest surge > we have seen. If there is anything that I (we) can do to help get > the word out or to help with the research, let me know. Isn't it > funny how people don't believe this as if we would make something > like this up! We did increase our son's therapy from once to twice a > week, but two extra sessions of therapy (in the two weeks) can not > account for this surge. The thing that is frustrating to me is when > the people (besides me) that are with him everyday (my husband and > my mom)...still do not believe it is the NutriiVeda. My mom who > watches my boys while we work thinks the improvements are > remarkable, but she rolls her eyes when I credit the NutriiVeda. My > husband pretty much does the same. I guess it is because they have > not read the growing number of amazing testimonials (like yours and > Mel's) that I have from this group. At > > this > > > > > point, it doesn't matter what they think...it is working! > > > > > > > > > > > > As a side note...my poor little guy was hit in the mouth > yesterday at tumbling and almost got his front tooth knocked out. It > didn't fall out, but it is now pushed back and he has the most > swollen upper lip I have ever seen. As if he didn't have enough > going on in his mouth and he didn't have enough trouble figuring out > where to put his tongue and lips to make certain sounds, but now he > has this too deal with. Sometimes I swear these kids just can't > catch a break! Well, I hope it doesn't impede his progress. > > > > > > > > > > > > I will keep you posted on any other improvements! > > > > > > > > > > > > Thanks again, > > > > > > > > > > > > ____________ _________ _________ __ > > > > > > From: @groups. com > [mailto:childrensap raxianet @groups. com] On Behalf Of > kiddietalk > > > > > > Sent: Monday, February 15, 2010 12:13 PM > > > > > > @groups. com > > > > > > Subject: [childrensapraxiane t] Re: 25month old son on > NutriiVeda update > > > > > > > > > > > > > > > > > > > > > > > > thank you so much for sharing this update!!! I can > totally understand why the professionals wouldn't believe the > nutriiveda would have that profound of an impact -but that's why the > world needs to hear Mel's story. http://littlemermai dmelanie. > wordpress. com/about > > > > > > > > > > > > You see your child is still so young -so even though for all > of us it's amazing -for the average person on the street a sudden > dramatic surge in speech in a child your child's age is par for the > course. The fact that it happened within days of nutriiveda -and > it's only been 2 weeks for such a dramatic surge would appear as > coincidental. The reason it is remarkable is because it's what we > keep hearing from parents of children of all ages and all > conditions- that makes the chance of your child's surges a > " coincidence " low. We went through the same thing with the fish > oils. It's hard to credit something so simple to changes that are so > great -add to the fact that we are using this as a fund raiser and > it appears even more biased. But we never meant this to be for the > kids! I mean how many parents and professionals are in this group > that want or need to lose a few pounds??? That's why we did the http://www.nutraeas > y.com page That's who we thought our > > > > > fundraiser could be for -us -not our kids! This new " therapy " > was a surprise side benefit I discovered in my 13 year old apraxic > son Tanner who had the same remarkable surges in all the areas I > documented- and this needs to be studied as it's remarkable- it is > THAT remarkable.. .and Tanner's surges were first reported to us as > parents by his school professionals who even today continue to be > amazed " blown away " by his sudden and dramatic changes. Tanner is > NOT the same child. I can't explain it but it's like he's the Tanner > he would have been if he was never apraxic. He's not yet 100% and I > know this is going to sound bold for me to say -but I want to for > the record say that there will be something in the nutriiveda that > is found to be healing the brain of our children. I have talked to > other parents of children surging on the nutriiveda and they agree. > I'm sure you know what I mean - right? Please let me know > because I don't believe you and I > > have > > > > > spoken (but if we did don't feel bad I've been speaking to so > many people I am losing track!!) > > > > > > > > > > > > So yes for little ones the world won't take that seriously as > it's due to the nutriiveda. But we know from even the kids 7, 13, > and 25 years old, that they regressed within days of being off the > nutriiveda -and surged again back on- that it is not coincidence. > > > > > > > > > > > > Wait until you read Robin's newest update for Mel -she called > me the other day that had a conversation with her that she > wants to have a life like her sisters!!! Robin told me that Mel > never before talked about her frustrations. She's TWENTY FIVE YEARS > OLD!! Or wait -her birthday is the same day as mine...Robin is she > now 26???? > > > > > > > > > > > > Either way -a sudden and dramatic surge in a closer to 2 year > old is priceless to the parents of that child -but yes will not be > taken seriously by the media- or by close minded > professionals. ..but nobody can ignore when it happens again, and > again, and again...and in " children " of all ages and with various > diagnosis. But...it won't be until it's validated with research that > the skeptics both in the professionals and public will still remain. > That's OK...as long as it's approved as " benign " and parents are > given the go ahead to try it- more and more will know what some of > us are living....for lack of better words -a miracle. (and how many > don't believe in them either???) > > > > > > > > > > > > CONGRATULATIONS KATIE!!!! > > > > > > > > > > > > ===== > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Robin, I have been on the board for a while. Even if I do not know on a personal basis as you do, I have read her book, bought fish oil from her and took her advice for taking my kids to see Dr. Jonas. I just thought that it would be easier for all the parents who do not know her as well as you do to have a higher comfort level to trust the good news on Nutriiveda that we have heard on this board for speech. I am ethnic Chinese and unlike my wife, am familiar and have faith in alternative treatment including fish oils and DAN doctors supplements and protocols. The CHOP autism Dr. that my wife and son saw yesterday was Dr Mariko Nakashimi. She is ethnic Japanese. If any mainstream Dr. would give some thought to alternative treatment, you would expect those with Asian background, in addition to DAN doctors. But all she is willing to endorse and support is fish oil and nothing else. She has never heard about Nutrriveda. I am also curious why no DAN doctors have jumped on the Nutriiveda wagon. That is why I asked to make clear disclosure about any personal interest and assure parents that indeed our children's need is the primary objective for the enthusiasm not any commercial interest. Xun > From: Robin Ketchem <rcketchem@...> > Subject: Re: [ ] Re: 25month old son on NutriiVeda update > > Date: Tuesday, February 16, 2010, 7:00 AM > Hi Xun, > > When shared the Nutriiveda with me, I never felt like > she was > pushing Nutriiveda for her own personal gain. Never > once did I have > that thought. My first impression is that she was > only trying to help > when everyone else had given > up.   did explain to me > about her research project with regards to fish oil but > that > conversation was brief as she was more interested in the > possible   > benefits the Nutriiveda would have for . > and I have been > friends for over 10 years and has always tried to help > me with > . I tried Nutriiveda for for the > weight loss as > needed to loose her extra weight from her seizure > medication.   > We did not expect to see anything else from Nutriiveda as > everything > else we tried never worked for . Because of > Nutriiveda  > is now PTSD and Seizure free, better speech and motor > planning, lost 15 pounds, > and for the first time in many years finally enjoying > life!! You can read Mel's blog for all the changes and > I'll be updating it later http://littlemermaidmelanie.wordpress.com/about > If you > would speak with personally you will discover that her > heart is > in the right place. is trying to help all of us > help our children. > > Robin > > > > > > > Xun, > > I am sure will not mind if I answer your > concern. > > I agree and do respect your concerns about Nutriiveda > and the lack > > of research for kids like ours. But I am from India > and each > > ingredient is something we use in food daily. > > > > It's a very new product which was basically introduced > for natural > > weight management and has been endorsed by the Chopra > Center. It so > > happens that somehow the ingredients in it has been > helping lots of > > our kids [the number of inputs coming from parents > proves it]. Just > > like fish oil we as parents are finding that > nurtiiveda is bringing > > surges in language, fine motor ability, focus and in > many other areas. > > > > has been very open about the fact that she tried > it for her son > > Tanner to reduce his weight…. > > But on her journey in helping out her son she > discovered that this > > was making Tanner' speech clearer and noticed his > improving focus. > > She was contacted by the professionals at her son's > school who > > noticed the improvements. She couldn't hide her > excitement about all > > the good reports she was getting from her son's school > above all > > from the school Principal itself. Robin has been > graciously shelling > > out time to tell about how her 26 year old daughter > 's life > > has drastically changed for the better since adding > nutriiveda in > > the last 2 months!!! Seeing so much positive > improvements  > > decided to share the news with the rest of us….. > > > > I am glad SHE DID!!!! > > > > has also been open about the fact that she is > trying to raise > > money for the PUFA research to help kids with apraxia. > She has > > openly said that her venture into nutriiveda started > of as a > > fundraiser…but the more she found great reports on > Tanner she as a > > parent was eager to tell that to all of us, keeping in > mind that it > > will help other kids. > > > > has already mentioned numerous number of times > that ordering > > through http://www.pursuitofresearch.org will > help with the > > research. If you are not comfortable, you can always > pay more and > > order from chopra.com. > > > > To try or not to try is an individual decision. > > > > sowmya > > > > > > > > > > > > > > > > > > > > Thanks ! No, we have not talked > before. I have only been a > > member of the group for a few months and this is the > biggest surge > > we have seen. If there is anything that I (we) can do > to help get > > the word out or to help with the research, let me > know. Isn't it > > funny how people don't believe this as if we would > make something > > like this up! We did increase our son's therapy from > once to twice a > > week, but two extra sessions of therapy (in the two > weeks) can not > > account for this surge. The thing that is frustrating > to me is when > > the people (besides me) that are with him everyday (my > husband and > > my mom)...still do not believe it is the NutriiVeda. > My mom who > > watches my boys while we work thinks the improvements > are > > remarkable, but she rolls her eyes when I credit the > NutriiVeda. My > > husband pretty much does the same. I guess it is > because they have > > not read the growing number of amazing testimonials > (like yours and > > Mel's) that I have from this group. At > > > this > > > > > > > point, it doesn't matter what they > think...it is working! > > > > > > > > > > > > > > > > As a side note...my poor little guy was > hit in the mouth > > yesterday at tumbling and almost got his front tooth > knocked out. It > > didn't fall out, but it is now pushed back and he has > the most > > swollen upper lip I have ever seen. As if he didn't > have enough > > going on in his mouth and he didn't have enough > trouble figuring out > > where to put his tongue and lips to make certain > sounds, but now he > > has this too deal with. Sometimes I swear these kids > just can't > > catch a break! Well, I hope it doesn't impede his > progress. > > > > > > > > > > > > > > > > I will keep you posted on any other > improvements! > > > > > > > > > > > > > > > > Thanks again, > > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > > > > > > From: @groups. > com > > [mailto:childrensap raxianet @groups. com] On > Behalf Of > > kiddietalk > > > > > > > > Sent: Monday, February 15, 2010 12:13 > PM > > > > > > > > @groups. > com > > > > > > > > Subject: [childrensapraxiane t] Re: > 25month old son on > > NutriiVeda update > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > thank you so much for sharing > this update!!! I can > > totally understand why the professionals wouldn't > believe the > > nutriiveda would have that profound of an impact -but > that's why the > > world needs to hear Mel's story. http://littlemermai dmelanie. > > wordpress. com/about > > > > > > > > > > > > > > > > You see your child is still so young > -so even though for all > > of us it's amazing -for the average person on the > street a sudden > > dramatic surge in speech in a child your child's age > is par for the > > course. The fact that it happened within days of > nutriiveda -and > > it's only been 2 weeks for such a dramatic surge would > appear as > > coincidental. The reason it is remarkable is because > it's what we > > keep hearing from parents of children of all ages and > all > > conditions- that makes the chance of your child's > surges a > > " coincidence " low. We went through the same thing with > the fish > > oils. It's hard to credit something so simple to > changes that are so > > great -add to the fact that we are using this as a > fund raiser and > > it appears even more biased. But we never meant this > to be for the > > kids! I mean how many parents and professionals are in > this group > > that want or need to lose a few pounds??? That's why > we did the http://www.nutraeas > > y.com page That's who we thought our > > > > > > > fundraiser could be for -us -not our kids! > This new " therapy "  > > was a surprise side benefit I discovered in my 13 year > old apraxic > > son Tanner who had the same remarkable surges in all > the areas I > > documented- and this needs to be studied as it's > remarkable- it is > > THAT remarkable.. .and Tanner's surges were first > reported to us as > > parents by his school professionals who even today > continue to be > > amazed " blown away " by his sudden and dramatic > changes. Tanner is > > NOT the same child. I can't explain it but it's like > he's the Tanner > > he would have been if he was never apraxic. He's not > yet 100% and I > > know this is going to sound bold for me to say -but I > want to for > > the record say that there will be something in the > nutriiveda that > > is found to be healing the brain of our children. I > have talked to > > other parents of children surging on the nutriiveda > and they agree. > > I'm sure you know what I mean - right? Please let > me know > > because I don't believe you and I > > > have > > > > > > > spoken (but if we did don't feel bad I've > been speaking to so > > many people I am losing track!!) > > > > > > > > > > > > > > > > So yes for little ones the world won't > take that seriously as > > it's due to the nutriiveda. But we know from even the > kids 7, 13, > > and 25 years old, that they regressed within days of > being off the > > nutriiveda -and surged again back on- that it is not > coincidence. > > > > > > > > > > > > > > > > Wait until you read Robin's newest > update for Mel -she called > > me the other day that had a conversation with > her that she > > wants to have a life like her sisters!!! Robin told me > that Mel > > never before talked about her frustrations. She's > TWENTY FIVE YEARS > > OLD!! Or wait -her birthday is the same day as > mine...Robin is she > > now 26???? > > > > > > > > > > > > > > > > Either way -a sudden and dramatic surge > in a closer to 2 year > > old is priceless to the parents of that child -but yes > will not be > > taken seriously by the media- or by close minded > > > professionals. ..but nobody can ignore when it happens > again, and > > again, and again...and in " children " of all ages and > with various > > diagnosis. But...it won't be until it's validated with > research that > > the skeptics both in the professionals and public will > still remain. > > That's OK...as long as it's approved as " benign " and > parents are > > given the go ahead to try it- more and more will know > what some of > > us are living....for lack of better words -a miracle. > (and how many > > don't believe in them either???) > > > > > > > > > > > > > > > > CONGRATULATIONS KATIE!!!! > > > > > > > > > > > > > > > > ===== > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Xun I'm thinking of trying the nutreveda and have been part of this group for two years but I'm confused by your messages so please don't speak for me. Why shouldn't a parent be excited about her son when he has surges and she shares it here? I am not as quick as some here to do all the different therapies like home shots and I don't even really know what a dan doctor is. My pediatrician said it is OK for us to use nutreveda and if it wasn't for this group I wouldn't have known about which fish oils either. I appreciate all I learn here from those who share helpful information. And just wanted to say thank you for sharing your son's update. I hope we see the same surges and I am so happy for you! Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Xun, told in her previous message addressed to you that she was the one who shared it with Robin first. She's the first to mention it to anyone. She has repeatedly mentioned that nurtiiveda had been launched just a few months ago as a metabolic weight management product formulated and endorsed by the Chopra Center. She got highly enthusiastic when GREAT reports started coming out about her own son especially the Principal calling her up to ask about what she was doing differently with Tanner! Her enthusiasm over the nutriiveda made her to call Robin in November to help her out with her 25 year old daughter, at that point she didn't share it here. Well also had incredible surges on the nutriiveda as you can read at her blog here http://littlemermaidmelanie.wordpress.com/about…and the rest is history. Why wouldn't she share it here at that point? I'm thankful she did as my son responded to it. Just like fish oil she wanted to share her enthusiasm to tell about nutriiveda so that it will help our kids. I think you are missing the point that it's just been a month that many of us have heard and started using nutriiveda and already there are lots of very positive updates coming out!!!! I don't think outside this group and the doctors involved with our kids from this group know much about nutriiveda because it is brand new. Hence your doctor is not able to recognize it. Most of the parents have taken the product, the information about the ayurvedic ingredients [which plays a key role too] and asked their doctors if it is ok for them to give their child. And the doctors did give all of them a green signal. Perhaps you haven't read that some of the doctors have really embraced the nutriiveda and feel it is a very good product. There have been couple of moms who did say that their DAN doctors have approved it for their child as well. has always asked everyone to consult their doctors before starting as this is not a " supplement " but sure is as effective as one. And again everything in it is all natural and certified as a food. Yes, all our kids are precious and if it is not for their best interest in mind she would not even have mentioned it. On Sunday my 7 year old son's therapist came and she was amazed as my son went through everything very quickly. This is not like him from before. His fine motor and speech have improved and it's only been about a month on nutriiveda. My husband and I are very thankful. sowmya > > > > > > > > > > > > > > > > > > > > Thanks ! No, we have not talked > > before. I have only been a > > > member of the group for a few months and this is the > > biggest surge > > > we have seen. If there is anything that I (we) can do > > to help get > > > the word out or to help with the research, let me > > know. Isn't it > > > funny how people don't believe this as if we would > > make something > > > like this up! We did increase our son's therapy from > > once to twice a > > > week, but two extra sessions of therapy (in the two > > weeks) can not > > > account for this surge. The thing that is frustrating > > to me is when > > > the people (besides me) that are with him everyday (my > > husband and > > > my mom)...still do not believe it is the NutriiVeda. > > My mom who > > > watches my boys while we work thinks the improvements > > are > > > remarkable, but she rolls her eyes when I credit the > > NutriiVeda. My > > > husband pretty much does the same. I guess it is > > because they have > > > not read the growing number of amazing testimonials > > (like yours and > > > Mel's) that I have from this group. At > > > > this > > > > > > > > > point, it doesn't matter what they > > think...it is working! > > > > > > > > > > > > > > > > > > > > As a side note...my poor little guy was > > hit in the mouth > > > yesterday at tumbling and almost got his front tooth > > knocked out. It > > > didn't fall out, but it is now pushed back and he has > > the most > > > swollen upper lip I have ever seen. As if he didn't > > have enough > > > going on in his mouth and he didn't have enough > > trouble figuring out > > > where to put his tongue and lips to make certain > > sounds, but now he > > > has this too deal with. Sometimes I swear these kids > > just can't > > > catch a break! Well, I hope it doesn't impede his > > progress. > > > > > > > > > > > > > > > > > > > > I will keep you posted on any other > > improvements! > > > > > > > > > > > > > > > > > > > > Thanks again, > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > > > > > > > > From: @groups. > > com > > > [mailto:childrensap raxianet @groups. com] On > > Behalf Of > > > kiddietalk > > > > > > > > > > Sent: Monday, February 15, 2010 12:13 > > PM > > > > > > > > > > @groups. > > com > > > > > > > > > > Subject: [childrensapraxiane t] Re: > > 25month old son on > > > NutriiVeda update > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > thank you so much for sharing > > this update!!! I can > > > totally understand why the professionals wouldn't > > believe the > > > nutriiveda would have that profound of an impact -but > > that's why the > > > world needs to hear Mel's story. http://littlemermai dmelanie. > > > wordpress. com/about > > > > > > > > > > > > > > > > > > > > You see your child is still so young > > -so even though for all > > > of us it's amazing -for the average person on the > > street a sudden > > > dramatic surge in speech in a child your child's age > > is par for the > > > course. The fact that it happened within days of > > nutriiveda -and > > > it's only been 2 weeks for such a dramatic surge would > > appear as > > > coincidental. The reason it is remarkable is because > > it's what we > > > keep hearing from parents of children of all ages and > > all > > > conditions- that makes the chance of your child's > > surges a > > > " coincidence " low. We went through the same thing with > > the fish > > > oils. It's hard to credit something so simple to > > changes that are so > > > great -add to the fact that we are using this as a > > fund raiser and > > > it appears even more biased. But we never meant this > > to be for the > > > kids! I mean how many parents and professionals are in > > this group > > > that want or need to lose a few pounds??? That's why > > we did the http://www.nutraeas > > > y.com page That's who we thought our > > > > > > > > > fundraiser could be for -us -not our kids! > > This new " therapy "  > > > was a surprise side benefit I discovered in my 13 year > > old apraxic > > > son Tanner who had the same remarkable surges in all > > the areas I > > > documented- and this needs to be studied as it's > > remarkable- it is > > > THAT remarkable.. .and Tanner's surges were first > > reported to us as > > > parents by his school professionals who even today > > continue to be > > > amazed " blown away " by his sudden and dramatic > > changes. Tanner is > > > NOT the same child. I can't explain it but it's like > > he's the Tanner > > > he would have been if he was never apraxic. He's not > > yet 100% and I > > > know this is going to sound bold for me to say -but I > > want to for > > > the record say that there will be something in the > > nutriiveda that > > > is found to be healing the brain of our children. I > > have talked to > > > other parents of children surging on the nutriiveda > > and they agree. > > > I'm sure you know what I mean - right? Please let > > me know > > > because I don't believe you and I > > > > have > > > > > > > > > spoken (but if we did don't feel bad I've > > been speaking to so > > > many people I am losing track!!) > > > > > > > > > > > > > > > > > > > > So yes for little ones the world won't > > take that seriously as > > > it's due to the nutriiveda. But we know from even the > > kids 7, 13, > > > and 25 years old, that they regressed within days of > > being off the > > > nutriiveda -and surged again back on- that it is not > > coincidence. > > > > > > > > > > > > > > > > > > > > Wait until you read Robin's newest > > update for Mel -she called > > > me the other day that had a conversation with > > her that she > > > wants to have a life like her sisters!!! Robin told me > > that Mel > > > never before talked about her frustrations. She's > > TWENTY FIVE YEARS > > > OLD!! Or wait -her birthday is the same day as > > mine...Robin is she > > > now 26???? > > > > > > > > > > > > > > > > > > > > Either way -a sudden and dramatic surge > > in a closer to 2 year > > > old is priceless to the parents of that child -but yes > > will not be > > > taken seriously by the media- or by close minded > > > > > professionals. ..but nobody can ignore when it happens > > again, and > > > again, and again...and in " children " of all ages and > > with various > > > diagnosis. But...it won't be until it's validated with > > research that > > > the skeptics both in the professionals and public will > > still remain. > > > That's OK...as long as it's approved as " benign " and > > parents are > > > given the go ahead to try it- more and more will know > > what some of > > > us are living....for lack of better words -a miracle. > > (and how many > > > don't believe in them either???) > > > > > > > > > > > > > > > > > > > > CONGRATULATIONS KATIE!!!! > > > > > > > > > > > > > > > > > > > > ===== > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Xun, Do not be ashamed of being a skeptic. You are right to question associations with a product. I too worry about such things in everything we do for my grandson. It is best to check a product out. We did. We took it to our doctor and had her look at it and she okayed the product. We did not rush in and start this product, just as we did not rush in with the ProEFA and EPA. I observed and then made a decision. ( actually have my grandson's doctor recommending ProEFA and ProEPA now) has already admitted to the money being made for apraxic research. This was the original point of the product to make money for apraxic research. She did not have original intentions of children using this, but now that they are so be it. ly, I could give a Rats Arss about where the money goes as long as my grandson shows improvement. We tried the chocolate and we could not get him to eat or drink it. I just received the vanilla and hopefully he will take it. One parent has already posted that they are using just whey and showing results, but I want some control over the product and quality, so we will continue with this one. In fact, my grandson's ND said that the whey is beneficial and a difficult product to administer taste wise. She also mentioned the amino acids as being key. Her thought was that if they have come up with a product that taste good enough, that offered all of these healthy supplements, then she herself might start suggesting it to her patients. Stay skeptical investigate and answer your own questions. I hope this helps. Nora > > > > > > > > > > > > > > > > > > > > Thanks ! No, we have not talked > > before. I have only been a > > > member of the group for a few months and this is the > > biggest surge > > > we have seen. If there is anything that I (we) can do > > to help get > > > the word out or to help with the research, let me > > know. Isn't it > > > funny how people don't believe this as if we would > > make something > > > like this up! We did increase our son's therapy from > > once to twice a > > > week, but two extra sessions of therapy (in the two > > weeks) can not > > > account for this surge. The thing that is frustrating > > to me is when > > > the people (besides me) that are with him everyday (my > > husband and > > > my mom)...still do not believe it is the NutriiVeda. > > My mom who > > > watches my boys while we work thinks the improvements > > are > > > remarkable, but she rolls her eyes when I credit the > > NutriiVeda. My > > > husband pretty much does the same. I guess it is > > because they have > > > not read the growing number of amazing testimonials > > (like yours and > > > Mel's) that I have from this group. At > > > > this > > > > > > > > > point, it doesn't matter what they > > think...it is working! > > > > > > > > > > > > > > > > > > > > As a side note...my poor little guy was > > hit in the mouth > > > yesterday at tumbling and almost got his front tooth > > knocked out. It > > > didn't fall out, but it is now pushed back and he has > > the most > > > swollen upper lip I have ever seen. As if he didn't > > have enough > > > going on in his mouth and he didn't have enough > > trouble figuring out > > > where to put his tongue and lips to make certain > > sounds, but now he > > > has this too deal with. Sometimes I swear these kids > > just can't > > > catch a break! Well, I hope it doesn't impede his > > progress. > > > > > > > > > > > > > > > > > > > > I will keep you posted on any other > > improvements! > > > > > > > > > > > > > > > > > > > > Thanks again, > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > > > > > > > > From: @groups. > > com > > > [mailto:childrensap raxianet @groups. com] On > > Behalf Of > > > kiddietalk > > > > > > > > > > Sent: Monday, February 15, 2010 12:13 > > PM > > > > > > > > > > @groups. > > com > > > > > > > > > > Subject: [childrensapraxiane t] Re: > > 25month old son on > > > NutriiVeda update > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > thank you so much for sharing > > this update!!! I can > > > totally understand why the professionals wouldn't > > believe the > > > nutriiveda would have that profound of an impact -but > > that's why the > > > world needs to hear Mel's story. http://littlemermai dmelanie. > > > wordpress. com/about > > > > > > > > > > > > > > > > > > > > You see your child is still so young > > -so even though for all > > > of us it's amazing -for the average person on the > > street a sudden > > > dramatic surge in speech in a child your child's age > > is par for the > > > course. The fact that it happened within days of > > nutriiveda -and > > > it's only been 2 weeks for such a dramatic surge would > > appear as > > > coincidental. The reason it is remarkable is because > > it's what we > > > keep hearing from parents of children of all ages and > > all > > > conditions- that makes the chance of your child's > > surges a > > > " coincidence " low. We went through the same thing with > > the fish > > > oils. It's hard to credit something so simple to > > changes that are so > > > great -add to the fact that we are using this as a > > fund raiser and > > > it appears even more biased. But we never meant this > > to be for the > > > kids! I mean how many parents and professionals are in > > this group > > > that want or need to lose a few pounds??? That's why > > we did the http://www.nutraeas > > > y.com page That's who we thought our > > > > > > > > > fundraiser could be for -us -not our kids! > > This new " therapy "  > > > was a surprise side benefit I discovered in my 13 year > > old apraxic > > > son Tanner who had the same remarkable surges in all > > the areas I > > > documented- and this needs to be studied as it's > > remarkable- it is > > > THAT remarkable.. .and Tanner's surges were first > > reported to us as > > > parents by his school professionals who even today > > continue to be > > > amazed " blown away " by his sudden and dramatic > > changes. Tanner is > > > NOT the same child. I can't explain it but it's like > > he's the Tanner > > > he would have been if he was never apraxic. He's not > > yet 100% and I > > > know this is going to sound bold for me to say -but I > > want to for > > > the record say that there will be something in the > > nutriiveda that > > > is found to be healing the brain of our children. I > > have talked to > > > other parents of children surging on the nutriiveda > > and they agree. > > > I'm sure you know what I mean - right? Please let > > me know > > > because I don't believe you and I > > > > have > > > > > > > > > spoken (but if we did don't feel bad I've > > been speaking to so > > > many people I am losing track!!) > > > > > > > > > > > > > > > > > > > > So yes for little ones the world won't > > take that seriously as > > > it's due to the nutriiveda. But we know from even the > > kids 7, 13, > > > and 25 years old, that they regressed within days of > > being off the > > > nutriiveda -and surged again back on- that it is not > > coincidence. > > > > > > > > > > > > > > > > > > > > Wait until you read Robin's newest > > update for Mel -she called > > > me the other day that had a conversation with > > her that she > > > wants to have a life like her sisters!!! Robin told me > > that Mel > > > never before talked about her frustrations. She's > > TWENTY FIVE YEARS > > > OLD!! Or wait -her birthday is the same day as > > mine...Robin is she > > > now 26???? > > > > > > > > > > > > > > > > > > > > Either way -a sudden and dramatic surge > > in a closer to 2 year > > > old is priceless to the parents of that child -but yes > > will not be > > > taken seriously by the media- or by close minded > > > > > professionals. ..but nobody can ignore when it happens > > again, and > > > again, and again...and in " children " of all ages and > > with various > > > diagnosis. But...it won't be until it's validated with > > research that > > > the skeptics both in the professionals and public will > > still remain. > > > That's OK...as long as it's approved as " benign " and > > parents are > > > given the go ahead to try it- more and more will know > > what some of > > > us are living....for lack of better words -a miracle. > > (and how many > > > don't believe in them either???) > > > > > > > > > > > > > > > > > > > > CONGRATULATIONS KATIE!!!! > > > > > > > > > > > > > > > > > > > > ===== > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 I just wanted to thank you all for the support! I am so greatful to have people who understand what a big deal this is! I will keep you updated on any progress! Please do the same! IL From: kiddietalk <kiddietalk@...> Subject: [ ] Re: 25month old son on NutriiVeda update Date: Monday, February 15, 2010, 1:34 PM  I understand that too. It's funny with this one the Dads do appear to be more skeptical than the Moms -at least to start. Most are believers once they see all your husband has -but your child again is so young. Your husband probably never quite accepted that there is anything but a speech delay going on anyway at 25 months old -and just thinks this is good the craziness is all over and others are seeing what he's suspected all along -that his son was just a late talker. Am I right? And come to think of it -your mom probably falls into that same " he is just a late talker " boat- right? There is only one way to prove it's from the nutriiveda. Stop it. At least for a few days. No harm in stopping it and it will be the only way to prove that it's what made the difference. I do know with fish oils the younger the better in helping to get the brain to rewire and it could be the same with the nutriiveda -but still it's only been 2 weeks. If the surges you are seeing which are so dramatic were just coincidental than certainly stopping the nutriiveda won't make any difference. Let us know! (and like the fish oils once you start again the surges come back -so don't worry about that) ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 That's a terrific story, . Thank you for sharing and congratulations. > > > Hello Everyone, > I wanted to give you all an update on my 25 month old son Diagnosed with CAS. My son started on the NN fish oils when he was 20 months old with a small surge in soft vowel production. (He previously had no words and made very few sound other than grunting and pointing.) He also started Speech therapy with a private speech therapist once a week at that time (because EI did not have a speech therapist available and still doesn't.) He began using " B, " " M, " and " P " consonants with soft vowels at around 23months but he had no words and was not mimicking any sounds. At 24 months he did start to pick up some animal sound approximations " ba and moo " and was able to say " moe " for more. We had his 6 month re-evaluation (through EI) in the middle of January. They evaluated his expressive language to be at 12 months and increased his therapy to twice a week. (He has no other delays.) He does have some hypotonia in his lower lip and tongue. > After careful consideration and the " OK " from his pediatrician, I started our 24 and ½ month old son on Nutriiveda on February 1st. It has been two weeks and we have seen him go from 1-2 word approximations to well over 50 word approximations! He will try to mimic anything I ask him too. He even has some two word approximations: " la oo " for love you! He can make all consonant sounds now except for " j, t, d, and s. " I did not tell his speech therapist when I started him and she could not believe the difference! She said he was mimicking and trying any word she asked! I can now get him to mimic whole sentences: I will say one word at a time and he will repeat it. He will say " I - wan - moe - ruck - pees " for I want more truck please. He has many more spontaneous approximations as well. He can even say some words spontaneously and perfectly: " pop, happy, me, my, mama, baby, go, up, yeah, wee, uh-oh " and I am sure there are a few more that I am not thinking of right now. He will even sing along with his new CD aimed at children with CAS " Drills on Wheels! " So it has been about a month now since he was evaluated to be 12 months expressively and I took him to Chicago to see a Developmental Pediatrician (to get a formal diagnoses) on Friday. There was a speech therapist, a developmental therapist, an occupational therapist, a child psychiatrist, and the Pediatrician in the room for his evaluation. They determined that his expressive speech is now at a 21 month level! That means he went from a 12 month level to a 21 month level in less than a month (and two weeks on the Nutriiveda!) We were amazed and so was the group that evaluated him! I did bring a label and some of our group's information to let them know about the Nutriiveda, but they pretty much dismissed that it could be the Nutriiveda. They told us to keep doing " whatever " we were doing. I believe differently of course! > I can't say that there have been many other noticeable changes in my son, but he has never had any behavioral problems and he has always been very social. I do think he focuses a little better during his speech therapy sessions but other than that, I haven't noticed any other changes. (As if the speech wasn't enough!) > > So, thank you for bringing this wonderful product to our group and I hope that all of you see as many great changes in your children as we have seen in the last few weeks! > > Sincerely, > > IL > > > Quote Link to comment Share on other sites More sharing options...
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