Dawn Falley's Update on (14)

[Guest guest]

Hi everyone, so far so good, has been totally off his seizure meds. 3

wks. now! But I wanted to let all know that last week we had 3 days of h#ll,

because I ran out of NV and he did not have any at all for 4 days. NOT GOOD!!!

He was having emotional meltdowns, he was super sensitive to any sounds, like

even if I was opening a bag of something, the crinkling was making him cringe!He

only got about 3 solid hrs. of sleep each night, because he kept waking and the

ceiling fan was scaring him. It was crazy and I felt sooo bad for him. His

speech definitely declined. Needless to say I ordered extra so this does NOT

happen again. As soon as he had 1 NV drink he started to get back to himself.I

just wanted to let everyone know what happened to us when we ran out. If anyone

would like to contact me my # is 631-447-0615 in New York.

[Guest guest]

How long was on seizure meds and why do you think they took him off? NV

is good for sensory issues?

>

> Hi everyone, so far so good, has been totally off his seizure meds. 3

wks. now! But I wanted to let all know that last week we had 3 days of h#ll,

because I ran out of NV and he did not have any at all for 4 days. NOT GOOD!!!

He was having emotional meltdowns, he was super sensitive to any sounds, like

even if I was opening a bag of something, the crinkling was making him cringe!He

only got about 3 solid hrs. of sleep each night, because he kept waking and the

ceiling fan was scaring him. It was crazy and I felt sooo bad for him. His

speech definitely declined. Needless to say I ordered extra so this does NOT

happen again. As soon as he had 1 NV drink he started to get back to himself.I

just wanted to let everyone know what happened to us when we ran out. If anyone

would like to contact me my # is 631-447-0615 in New York.

>