Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 Would you mind keeping me updated on your sons progress. My son is 24 months and we are on supplements, vitamins, and fish oil. I have been wanting to try it but I was worried about my son's age. Thank you so much! Sent via BlackBerry from T-Mobile [ ] Do any of you use Nutriiveda for your little ones (under 3)? We just started fish oils in December, so I've been holding off on doing anything w/ the Nutriiveda to see how my son does on the fish oils (GREAT, btw!). But I was just curious if anyone is using the Nutriiveda for a 2-3 yo, and if their doctor was okay with it for that age. My son will be 3 in April, btw. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2010 Report Share Posted February 9, 2010 Thank you so much for your info!! I believe I will order it this week. My son has been having problems with bowel movements and throws up every 7 to 10 days. We had an ultrasound done yesterday and all the results came back normal. We have been on the gfcf diet for 1 month and the throwing up has been going on since before the start of the diet and still continues. He is on probiotics, cod liver oil, multi-vitamin, and carnitine for low muscle tone. Should I continue all the supplements and the NV? The cod liver oil has shown to give him the most improvement and do not want to stop that. Let me know what you think. Thank you so much for keeping me up to date! Congrats on your son's progress and to you to as well!! Did he have any speech skills before you started it? My son only makes noises. Thanks again!!! Sent via BlackBerry from T-Mobile [ ] Do any of you use Nutriiveda for your little ones (under 3)? We just started fish oils in December, so I've been holding off on doing anything w/ the Nutriiveda to see how my son does on the fish oils (GREAT, btw!). But I was just curious if anyone is using the Nutriiveda for a 2-3 yo, and if their doctor was okay with it for that age. My son will be 3 in April, btw. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2010 Report Share Posted February 9, 2010 I'd check with the doctor that prescribed all the supplements but I'd highly recommend stopping the multivitamin as the nutriiveda contains all the essential amino acids and nutrients and is or can be full meal and vitamin replacement. I'd also stop the probiotics as the nutriiveda is so easily digestible by the body and also just to make sure the probiotics don't compromise whatever it is in the nutriiveda that is " working " for our children. After all you can always start the probiotics again at some point and see if they affect the nutriiveda in a positive or negative way. My son for example we've tried numerous probiotics and he doesn't do well on them for some reason. You can continue the fish oils but check the level of vitamin A in the dosage of cod liver oil you are using (cod liver oil has vitamin A because unlike the oils most of us use cod liver oil is made from the liver of the fish so naturally contains the vitamin A...fish oils not made from the liver of the fish do not contain vitamin A...just curious -have you tried the ProEFA?) The carnitine if your child tested low in this area needs to be continued of course for safety reasons as this is a nutrient that if your child tested low in is typically a prescription quality and dosage and for life and death reasons needs to be overseen by the geneticist or other medical doctor that prescribed it. You probably know that the carnitine should be taken with food because it can create stomach upset. Below is an archive on more on carnitine deficiency and best of luck in getting to the root of your child's digestive issue of vomiting so often! How terrible for all of you! CARNITINE DEFICIENCY testing and archive Just a reminder that carnitine unlike the amino acid carnitine is something to take serious. You may not see changes on or off supplementation but this is typically rare and appears to be high in this group out of those children tested. Also just wanted to point out that me and many others here had the blood draws ordered through our regular pediatrician and the labs done through medical labs -and if tested low the child is put onto prescription carnitine with a referral to a geneticist that specializes in metabolic disorders. Try the basics which mean appropriate therapies for your child and the oil therapy and in most cases that alone will create remarkable surges and you can save your time and money for karate and swimming lessons -maybe some hippo therapy or a much needed vacation for the family. The biomedical group if not needed is complex and expensive. And BTW =the brilliant Dr. is a traditional medical doctor/pediatrician and so is my co author of The Late Talker book neurodevelopmental pediatrician Dr. Marilyn Agin. Watch what you post here about regular medical doctors because they are part of this group and they have feelings! And in case it wasn't clear -if you go through your ped it can all be covered by your insurance. My son's was. Here's more on carnitine from an archive Re: Levocarnatine Is what you are using prescription? " Certain levocarnitine products have been specifically approved by the U.S. Food and Drug Administration for medical use and are available only with your doctor's prescription. Other levocarnitine products are sold without a prescription as food supplements and should not be used to treat serious levocarnitine deficiency. " http://www.drugs.com/cons/levocarnitine.html Not much if anything may change in the tone or speech -but that's not the reason to supplement with prescription carnotine. The possible side effect of sudden death from carnotine deficiency outweighs any side effect of levocarnitine. If not -I suggest you take your child to a medical doctor; preferably a geneticist who specializes in metabolic disorders and there have been a few posted here as recommendations. How much do you know/were you informed about carnotine deficiency? In this group out of those that did blood draws there was an alarmingly high number that tested low in carnotine which is typically rare. Here are some archives -first from Tina who's apraxic child was doing really well -but she like I did the blood draws just to check. While Tanner tested normal -Landon tested low in carnotine: " Going to a geneticist that specializes in metabolic disorders would be very helpful. My understanding from what I have read a biopsy helps confirm mito disorders. Lab work is first though. The link below might help you find more answers. http://www.umdf.org/site/c.dnJEKLNqFoG/b.3041929/ United Mitochondrial Disease Foundation Landon's carnitine level was 23 normal was 25-70 in July. In Dec. it was ran again and it was 76 again normal range 25-70. The geneticist that specializes in metabolic disorders isn't concerned with his Carnitine level being high. He did run a lab to see if it is coming out in urine which is what would happen if it isn't being used up. And he did run Carnitine again in Feb so it probably will be higher than it was in Dec. We will probably have to adjust his dose. Landon could come off Carnitine right now, but I thought it was helping him some so the doctor said to continue. Regular blood test should be done to check levels so dosing can be changed either increased or lowered. Here is an article that discusses Carnitine and CoQ10. It is a good explanation, hope you all will take the time to read it from the top to the bottom. http://www.mdausa.org/publications/Quest/q61coq10.html HTH, Tina " Some have suggested the better doctors in this area because apparently there are not that many out there! Also while Kathy from our group who I highly respect talks about an OTC brand - highly advises against OTC for carntine if a child tests low. And for those that don't know -do not supplement with carnotine unless your pediatrician orders the blood draws that we talk about here first. You want to know prior to supplementation if your child is deficient. More archives below Unlike other supplements -a carnitine deficiency could come with the most severe consequence over time since carnitine deficiency is associated with sudden death. The good news is that at least you'll know early -most people don't find out their child was deficient in carnitine until it's too late. (we all heard about that football player in HS with the sudden heart attack) Also how else are you going to guarantee that not only are you going to give and keep giving your child this supplement which they 'have' to take -but that your child will know to monitor with his doctor and continue to supplement if needed perhaps the rest of his or her life? This is why you want to investigate this aggressively with a geneticist. There are a few who have been recommended here as I understand that there are not yet enough geneticist who specialize in metabolic or mitochondrial disorders. If found to have a carnitine deficiency, like your child, you would want to take your child to a medical doctor that was knowledgeable about what that means as this is not something to take lightly. It's good to get the prescription form of carnitine so you know the quality, correct dosage -overseen by an MD. Also once tested low in caritine you would also want to discover why by taking your child to a geneticist who specializes in metabolic disorders. I believe based on the findings of blood analysis from this group that any child going ahead diagnosed with apraxia or autism should be tested for a carnitine deficiency. As you'll be hearing more about this soon from Dr. -the numbers of children that tested low in this amino acid were off the charts. Typically it's a rare disorder affecting one in 20 to 40,000. This was also the reason I took my son Tanner for all the blood testing -to test for this one deficiency since it can be so severe if left untreated. Here's some quotes from Dr. who is head of fellowship research at her hospital -a pediatrician -and mom to an apraxic child who also tested to be carnitine deficient. Below this is an archive on this which includes all the testing which you can share with your child's medical doctor to secure the testing. We did this with our son's " regular " pediatrician and all the blood word was covered by BC/BS. " Impact of carnitine supplements may not be clinically obvious - but could be helping strengthen heart muscle. Low levels are associated with a floppy dilated weak heart, and when it approaches 10-20% of normal, sudden death can occur. Carnitine is essential for normal cell/mitochondria function. It allows fatty acids to get transported into the mitochondria (or the battery of the cell). Major problems if this is not working properly. So you may be getting benefits that you don't obviously see. One does not want to run around with a severe carnitine deficiency and not treat it. " end of quote Carnitine and Carnosine are 2 TOTALLY different supplements. Carnitine plays a key role in transferring long-chain fatty acids into the mitochondria. There has been some research done on carnoSine (amino acids histidine and alanine), and carnaware has carnoSine + vit E + zinc. There have been some preliminary studies that show benefit of carnaware in autism and other speech disorders. There are many members with personal experience with both carnosine and carnoware. I suspect the vitamin E of carnoware is contributing to benefits, based on what vit E alone can do. Without sufficient CarniTine...the mitochondria (or cell " batteries " ) don't run very well. There can be symptoms from muscle weakness, heart problems to severe brain and metabolic abnormalities and in some (rare) cases... to the extreme of sudden death from carnitine deficiency...depending on how severe and the exact cause. Carnitine deficiency is typically rare -around 1 in 40,000. I don't know if the deficiency your child has is considered severe or not but either way I'd check it out. In this group out of the few that did blood draws an alarmingly high number tested low in this amino acid and that's concerning for a number of reasons. The main one is that there may be no sign of a carnitine deficiency -but it can have serious affects if left untreated. If discovered consider it a blessing as most don't know about this deficiency until it's " too late " and it's easily treated by prescription carnitine. The suggestion is that if a child tests low on carnitine to take him to a geneticist who is a metabolic specialist for a complete work- up. There have been a few suggestions for particular MDs posted here. ~~~~~~~~~~~~~~~~~~~~ ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2010 Report Share Posted February 9, 2010 , Thank you for taking the time to respond to my situation. I appreciate all the articles you pulled for me to read. In light of your info I will stop the very small dose of carnitine that I was giving to my son. To be clear - I have not started NV yet because I was waiting for more great feedback. My son is only 24 months and I was nervous to try it. I hope that I did not offend a medical professional in any way...those were not my intentions ever. I was only sharing my specific situation and any feedback I had received regarding NV. I think it is something that I want to try with doctor consent. I live in a small town with limited medical resources. I am a believer in biomedical intervention, it has shown positive results in only 4 weeks. I can not deney my sons progress and can not be happier with what we together, as a team have accomplished. I am seeing positive results. I have called every hospital in my town begging and pleading for help working with a medical professional. I was told " no " at every door and on every phone call. I called local support groups and will be attending my first meeting this Saturday. I can't wait to get involved with other parents and seek out their support, that is why I joined many health groups on . I need help and advice from other parents and medical professionals. This is my fight and like many other parents I will not stop until I have turned over every stone and called every doctor on God's green earth that could help me. Let this be my personal plea of help to all medical doctors participating in this forum. I am only at the beginning of our journey.  Current conditions: Global developmental delays Ocularmotor apraxia Current Therapies: PT, OT, and Speech twice a week thru IE and hospital covered by insurance. Current Diet and Supplements: GFCF diet Multi - vitamin 1 teaspoon cod liver oil  - I will change the cod liver oil to Pro EFA. 1/2 teaspoon probiotics Brief birth story: 01/18/2008 - Born two months premature with his TWIN brother (NT) because I had preeclampsia. Needing nothing in NICU except a feeding tube. We are scheduled to have genetic testing performed this month thru our pediatrician. Thank you for taking time to read my story, ________________________________ From: kiddietalk <kiddietalk@...> Sent: Tue, February 9, 2010 12:20:33 PM Subject: [ ] Re: Do any of you use Nutriiveda for yourlittle ones (under 3)?  I'd check with the doctor that prescribed all the supplements but I'd highly recommend stopping the multivitamin as the nutriiveda contains all the essential amino acids and nutrients and is or can be full meal and vitamin replacement. I'd also stop the probiotics as the nutriiveda is so easily digestible by the body and also just to make sure the probiotics don't compromise whatever it is in the nutriiveda that is " working " for our children. After all you can always start the probiotics again at some point and see if they affect the nutriiveda in a positive or negative way. My son for example we've tried numerous probiotics and he doesn't do well on them for some reason. You can continue the fish oils but check the level of vitamin A in the dosage of cod liver oil you are using (cod liver oil has vitamin A because unlike the oils most of us use cod liver oil is made from the liver of the fish so naturally contains the vitamin A...fish oils not made from the liver of the fish do not contain vitamin A...just curious -have you tried the ProEFA?) The carnitine if your child tested low in this area needs to be continued of course for safety reasons as this is a nutrient that if your child tested low in is typically a prescription quality and dosage and for life and death reasons needs to be overseen by the geneticist or other medical doctor that prescribed it. You probably know that the carnitine should be taken with food because it can create stomach upset. Below is an archive on more on carnitine deficiency and best of luck in getting to the root of your child's digestive issue of vomiting so often! How terrible for all of you! CARNITINE DEFICIENCY testing and archive Just a reminder that carnitine unlike the amino acid carnitine is something to take serious. You may not see changes on or off supplementation but this is typically rare and appears to be high in this group out of those children tested. Also just wanted to point out that me and many others here had the blood draws ordered through our regular pediatrician and the labs done through medical labs -and if tested low the child is put onto prescription carnitine with a referral to a geneticist that specializes in metabolic disorders. Try the basics which mean appropriate therapies for your child and the oil therapy and in most cases that alone will create remarkable surges and you can save your time and money for karate and swimming lessons -maybe some hippo therapy or a much needed vacation for the family. The biomedical group if not needed is complex and expensive. And BTW =the brilliant Dr. is a traditional medical doctor/pediatrician and so is my co author of The Late Talker book neurodevelopmental pediatrician Dr. Marilyn Agin. Watch what you post here about regular medical doctors because they are part of this group and they have feelings! And in case it wasn't clear -if you go through your ped it can all be covered by your insurance. My son's was. Here's more on carnitine from an archive Re: Levocarnatine Is what you are using prescription? " Certain levocarnitine products have been specifically approved by the U.S. Food and Drug Administration for medical use and are available only with your doctor's prescription. Other levocarnitine products are sold without a prescription as food supplements and should not be used to treat serious levocarnitine deficiency. " http://www..drugs. com/cons/ levocarnitine. html Not much if anything may change in the tone or speech -but that's not the reason to supplement with prescription carnotine. The possible side effect of sudden death from carnotine deficiency outweighs any side effect of levocarnitine. If not -I suggest you take your child to a medical doctor; preferably a geneticist who specializes in metabolic disorders and there have been a few posted here as recommendations. How much do you know/were you informed about carnotine deficiency? In this group out of those that did blood draws there was an alarmingly high number that tested low in carnotine which is typically rare. Here are some archives -first from Tina who's apraxic child was doing really well -but she like I did the blood draws just to check. While Tanner tested normal -Landon tested low in carnotine: " Going to a geneticist that specializes in metabolic disorders would be very helpful. My understanding from what I have read a biopsy helps confirm mito disorders. Lab work is first though. The link below might help you find more answers. http://www.umdf. org/site/ c.dnJEKLNqFoG/ b.3041929/ United Mitochondrial Disease Foundation Landon's carnitine level was 23 normal was 25-70 in July. In Dec. it was ran again and it was 76 again normal range 25-70. The geneticist that specializes in metabolic disorders isn't concerned with his Carnitine level being high. He did run a lab to see if it is coming out in urine which is what would happen if it isn't being used up. And he did run Carnitine again in Feb so it probably will be higher than it was in Dec. We will probably have to adjust his dose. Landon could come off Carnitine right now, but I thought it was helping him some so the doctor said to continue. Regular blood test should be done to check levels so dosing can be changed either increased or lowered. Here is an article that discusses Carnitine and CoQ10. It is a good explanation, hope you all will take the time to read it from the top to the bottom. http://www.mdausa. org/publications /Quest/q61coq10. html HTH, Tina " Some have suggested the better doctors in this area because apparently there are not that many out there! Also while Kathy from our group who I highly respect talks about an OTC brand - highly advises against OTC for carntine if a child tests low. And for those that don't know -do not supplement with carnotine unless your pediatrician orders the blood draws that we talk about here first. You want to know prior to supplementation if your child is deficient. More archives below Unlike other supplements -a carnitine deficiency could come with the most severe consequence over time since carnitine deficiency is associated with sudden death. The good news is that at least you'll know early -most people don't find out their child was deficient in carnitine until it's too late. (we all heard about that football player in HS with the sudden heart attack) Also how else are you going to guarantee that not only are you going to give and keep giving your child this supplement which they 'have' to take -but that your child will know to monitor with his doctor and continue to supplement if needed perhaps the rest of his or her life? This is why you want to investigate this aggressively with a geneticist. There are a few who have been recommended here as I understand that there are not yet enough geneticist who specialize in metabolic or mitochondrial disorders. If found to have a carnitine deficiency, like your child, you would want to take your child to a medical doctor that was knowledgeable about what that means as this is not something to take lightly. It's good to get the prescription form of carnitine so you know the quality, correct dosage -overseen by an MD. Also once tested low in caritine you would also want to discover why by taking your child to a geneticist who specializes in metabolic disorders. I believe based on the findings of blood analysis from this group that any child going ahead diagnosed with apraxia or autism should be tested for a carnitine deficiency. As you'll be hearing more about this soon from Dr. -the numbers of children that tested low in this amino acid were off the charts. Typically it's a rare disorder affecting one in 20 to 40,000. This was also the reason I took my son Tanner for all the blood testing -to test for this one deficiency since it can be so severe if left untreated. Here's some quotes from Dr. who is head of fellowship research at her hospital -a pediatrician -and mom to an apraxic child who also tested to be carnitine deficient. Below this is an archive on this which includes all the testing which you can share with your child's medical doctor to secure the testing. We did this with our son's " regular " pediatrician and all the blood word was covered by BC/BS. " Impact of carnitine supplements may not be clinically obvious - but could be helping strengthen heart muscle. Low levels are associated with a floppy dilated weak heart, and when it approaches 10-20% of normal, sudden death can occur. Carnitine is essential for normal cell/mitochondria function. It allows fatty acids to get transported into the mitochondria (or the battery of the cell). Major problems if this is not working properly. So you may be getting benefits that you don't obviously see. One does not want to run around with a severe carnitine deficiency and not treat it. " end of quote Carnitine and Carnosine are 2 TOTALLY different supplements. Carnitine plays a key role in transferring long-chain fatty acids into the mitochondria. There has been some research done on carnoSine (amino acids histidine and alanine), and carnaware has carnoSine + vit E + zinc. There have been some preliminary studies that show benefit of carnaware in autism and other speech disorders. There are many members with personal experience with both carnosine and carnoware. I suspect the vitamin E of carnoware is contributing to benefits, based on what vit E alone can do. Without sufficient CarniTine... the mitochondria (or cell " batteries " ) don't run very well. There can be symptoms from muscle weakness, heart problems to severe brain and metabolic abnormalities and in some (rare) cases.... to the extreme of sudden death from carnitine deficiency.. .depending on how severe and the exact cause. Carnitine deficiency is typically rare -around 1 in 40,000. I don't know if the deficiency your child has is considered severe or not but either way I'd check it out. In this group out of the few that did blood draws an alarmingly high number tested low in this amino acid and that's concerning for a number of reasons. The main one is that there may be no sign of a carnitine deficiency -but it can have serious affects if left untreated. If discovered consider it a blessing as most don't know about this deficiency until it's " too late " and it's easily treated by prescription carnitine. The suggestion is that if a child tests low on carnitine to take him to a geneticist who is a metabolic specialist for a complete work- up. There have been a few suggestions for particular MDs posted here. ~~~~~~~~~~~~ ~~~~~~~~ ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2010 Report Share Posted February 9, 2010 I'm sorry if you misunderstood. I wasn't saying you should stop the carnitine as I know that is a supplement that if one is found deficient in is extremely important to supplement with. Carnitine is one of those supplements it's best to test for prior to supplementation because once you supplement the test results could be skewed. If your child was not tested for carnitine deficiency and you just had him on it to help with low tone please know that supplementation of carnitine may or may not show any change in the tonal issue. Again it would be a supplement that if needed your child would need to take for years or life even if you notice no change at all because if deficient in this amino acid by supplementing with it - down the road you can prevent any serious medical or life threatening situations for your child as carnitine deficiency can affect all the muscles including those around the heart. Carnitine deficiency is rare but seems to be a bit higher in this group with our children for some reason so testing (prior to supplementation) is highly recommended. Great news you'll be going to a support group this weekend- you'll learn so much and I'm sure find many recommendations there! For some reason parents who are seeing results in the first few days on the nutriiveda all don't feel comfortable sharing here yet but have shared it with me via telephone or through email -but perhaps you'll meet someone at the meeting who has a child on it. My confidence in the product based on the overwhelming amount of positive surges reported (and seen myself firsthand) is through the roof and I am positive that all here will soon hear and learn more about all the feedback as more and more feel comfortable sharing. It would be good if more can share even though it is just a few days and good news because this product does appear to be " working " faster than the fish oils for some reason. Just one more thing -I'd get rid of the " global delays " diagnosis for your son unless he's tested appropriately and found to also have cognitive/receptive delays. Most children with apraxia have delays in more than just speech, but labels have a way of sticking- and one can prejudge a child based on labels. This is also why I don't care for the " expressive receptive delay " label unless one knows for sure there is a receptive delay as well. In fact they do not provide your child with any diagnosis of why he isn't speaking yet other than " global delays " which could mean developmental simple, or more complex reasons that include cognitive. I'd seek out a diagnosis as you are looking to find ASAP and make sure it's appropriate so that you can secure appropriate Early Intervention therapies. (not just speech and occupational etc...but what types?) Have you read The Late Talker book? Also what are they doing for the Ocularmotor apraxia in regards to therapy? I do believe said she'd be in touch with you personally -and perhaps there are other parents who will respond to you as well. As asked please let us know if you can what state/country you are in! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2010 Report Share Posted February 9, 2010 I have a grandson who has autism and is now starting to use words. We started him on the NV product. We showed the NV to his doctor and she said there was nothing in it that would hurt him. She also told us that it was fine to leave him on his other supplements. Has your son a diagnosis for apraxia or autism or something else? My grandson just turned 4 and he ways 36lbs. We have been pretty successful in treating his stomach and bowel issues. Have you had an organic acid profile done? Have you done the large panel for allergies? We went after viruses and yeast first with anti-virals and anti-virus treatments for about a year. Put him on a GFCF diet and very little sugar. Now we use Enhansa to keep the viruses and yeast in check. He was off the chart for yeast, very very high. He was on the CLO but he is now on ProEFA and EPA, they were huge for him. Made big jumps with these two fish oils and Enhansa. He is on a GFCF multi-vitamin, he also still does probiotics and digestive enzymes. The digestive enzymes are needed less and less. After getting the stomach under control we are going after the extremely high levels of lead that he has shown in urine tests with chelation. He has progressed throughout his ordeal of treatments, but I do believe you have to start at the beginning and address each issue systematically. The stomach and intestines are key. That said, we are just beginning with the NV and so far so good. He is taking 1/2 scoop twice a day. PS does your son use digestive enzymes? They were a life saver for quite sometime. My grandson has some issues with low muscle tone but nothing extreme. I know nothing about carnitine, but noticed that it can cause vomiting. Hope this helps some Nora > > Thank you so much for your info!! I believe I will order it this week. My son has been having problems with bowel movements and throws up every 7 to 10 days. We had an ultrasound done yesterday and all the results came back normal. We have been on the gfcf diet for 1 month and the throwing up has been going on since before the start of the diet and still continues. He is on probiotics, cod liver oil, multi-vitamin, and carnitine for low muscle tone. Should I continue all the supplements and the NV? The cod liver oil has shown to give him the most improvement and do not want to stop that. Let me know what you think. Thank you so much for keeping me up to date! Congrats on your son's progress and to you to as well!! Did he have any speech skills before you started it? My son only makes noises. Thanks again!!! > > Sent via BlackBerry from T-Mobile > > [ ] Do any of you use Nutriiveda for your little ones (under 3)? > > > > > > > > We just started fish oils in December, so I've been holding off on doing anything w/ the Nutriiveda to see how my son does on the fish oils (GREAT, btw!). But I was just curious if anyone is using the Nutriiveda for a 2-3 yo, and if their doctor was okay with it for that age. My son will be 3 in April, btw. > > > > Thanks! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2010 Report Share Posted February 9, 2010 Okay, I think we are on the same page now. I agree with you in regards to carnitine and will wait until further testing as I do not want to skew any results. I did make my son a doctors appt with a DAN! doctor that will help me with biomedical intervention. However, he is three hours away in Kansas City. We live in Springfield, MO. His name is Dr. Jeremey Baptist and he is a MD, PHD. I am now convinced to order the Nutriveda. Do you know if it helps with stimming? I appreciate your personal feedback and feedback from other parents. When my son shows progress on Nutriveda...I will shout it out on every forum! I can not get him any other therapies than he already has because he does not qualify. I took him to a pediatrician that specialized with neuro-development delay and he said that my son would always be delayed. He said there was nothing more that I could do than I am already doing. He also said there was no way to test a child's cognitive ability other than gross motor skills, at my sons age. I actually broke down and cried in his office. Needless to say, I can't get a dx. I have not read The Late Talker, but plan too. I have called all therapy places in town that I know of and was told I could only get the standard therapies. I am aware of other diffrent therapies however I can not find them. It has been very frustrating! With IE, I had to beg for OT therapy weekly...I was only going to get it monthly. Thanks again,   Quote Link to comment Share on other sites More sharing options...
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