Guest guest Posted October 16, 2010 Report Share Posted October 16, 2010 My daughter has a neurologic disease called CDKL5 which is also a form of Rett syndrome. SHe has severe apraxia and seizures. It appears that almost all of the girls with this disease have apraxia. Unfortunatley this diagnosis is often missed so I wanted to let everyone know that if you have a daughter with seizures and apraxia you should see if this could be a possible diagnosis. You can visit the CDKL5 website for more information at www.cdkl5.com Quote Link to comment Share on other sites More sharing options...
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