Re: Our story of Nutriiveda.....and the success....

October 13, 2010

Wow! That is amazing that your son went from moderate/severe to mild apraxia in

just three weeks!!! I don't think anyone else has posted that it happened that

quickly! Thank you so much for sharing your good news and your boy's progress.

We are all eager to hear more so please, keep posting! Congratulations!!!

Romesa

The NV Sheriff

334-220-8140

romesa1@...

From: marymejia@...

Date: Wed, 13 Oct 2010 13:42:28 +0000

Subject: [ ] Our story of Nutriiveda.....and the success....

I am a mother of 39mth old triplets. It's been about 3 weeks that my boys have

been on NV. It was amazing in the beginning, they had no problem taking it, and

then they refused it. I found that taking them off for a day or two gave them a

break...I snuck it in their vanilla pudding, and I think once they got used to

the taste, they expect it in the morning before breakfast.

A few months ago, one of the 3 was diagnosed with moderate to severe Apraxia.

With combination speech therapy, and fish oils, there was a surge....then I

tried NV....I did all the research, read all the posts, spoke to a Natural path

doctors and had my boys pediatrician review it....they were all impressed.

Now 3 weeks into NV (we're almost at a heaping scoop) My son has gone from

moderate/severe apraxia, to mild apraxia. He is much more coherent, and is

making 4-5 word sentences....all three of my boys are. They too are humming and

singning, the tantrums are rarely happening, and they play so much better

together. There coordiantion in tracing, and there new found love in the

alphabet and numbers (both in english and in Spanish) has blown everyone away.

I wanted to let the parents who are still on the fence read this. I was

skeptical, very skeptical, bombarded with so many questions. Once the

doctors gave me the go ahead, I had no reason not to try it.

Also, my boys are heavy boys, they weighed over 40lbs, and although they didn't

look it, felt very heavy. Since NV, they feel lighter, and have more energy ( in

a positive way.

I am very thankful for this product, and for this site.

October 13, 2010

Hi and all! Just like the message I sent out 2 weeks ago -I honestly

believe we have a paradigm shift going on due to NV where we have individuals

surging so quickly and dramatically at all ages that the average professional

out there that doesn't know the research

http://www.facebook.com/topic.php?topic=15272 & uid=115029735601 that food can

repair neuro damage (at least proven in mice studies so far) I would like to

put together some case studies on this just as I did for the seizures

http://www.facebook.com/topic.php?topic=15306 & post=93938 & uid=115029735601#post93\

938 These posts are just rough- I'm going to clean them up and am working on a

new site. if I can share your story as well that will be great -and I

don't have to put names. Also if anyone else wants to be included please email

me at lisa@... We need to document this so that there is more awareness.

too -her child went from a 10 month old level to a 21 month old level at

26 months...in 2 weeks. More on this below. I now have the entire evaluation

from from Kent University how her child went from severe to mild

apraxia in 3 months- will be including that and taking out names -but all here

know who it is. From what I have seen all parents are willing to speak with

doctors -and most are willing to speak with other parents as well. This is just

incredible news!! Here's the last message I sent out on this and nobody

responded...come on -this is Exciting with a capital E!!

[ ] Has NV created a paradigm shift?

I got the following email from who's son surged from 10 to 21 month old

level in speech on NV -and below is that is the message I sent out yesterday

from about her 5 and a half year old not being qualified for services

any longer either because he's doing so well. We need help from the SLPs and MDs

in this group who have patients, clients, or children on NV to be able to write

something up that explains the brain responds to multiple stimuli and just

because these children have surges on NV doesn't mean they do not require

services to further help them. The goal is to get these children up to speed and

whether a random professional doesn't believe NV (or fish oils -same issues but

never this extreme) created the surge. We know it's from the NV. If you are able

to help by writing up case studies of your clients on NV who STILL need therapy

- and why it's so important ..that parents can share to help maintain services

please share.

Hi ,

So, the news is good, but not as good as you might expect. Jack is doing great!

He is talking in 3-6 word sentences now (He is 32 months old now.) He is able to

say almost any word spontaneously now. I feel as though he is catching up but is

not there yet because he will say three fluid words then pause where a pause is

not needed and then a 4 word related phrase. " Horsee eat hay...in big red barn.)

He is using adjectives and verbs. We worked hard on " ing " verb endings. He can

say " man riding big red bike. " or other phrases like that. He has made

tremendous progress considering he could only say maybe 5 words total in January

of this year! I do attribute a lot of that to the Nutriiveda. (I believe he

started Nutriiveda in late January or earl y February.) EI has reduced his

speech from twice to once weekly since his last evaluation in August. I was not

real happy with that but not much I could do. Our private speech therapist as

well as the EI therapist put him at around the 24 month mark for his speech

(although I think it is a little better now.) Unfortunately our private speech

therapist had to take a full time school job so he hasn't been able to see her

anymore and we can't find another private therapist around here with good

credentials and references. He is having his speech therapy at a local hospital

once a week now. I am not pleased with the speech therapist there either. Jack

has not taken to her very well and they make us sit in a pretty confined room

(which is hard to ask of ANY two year old boy. SHe has also not done anything

except play with him. I have been there for all but one session and I don't see

her using any technique at all much less any specifically designed for Apraxia.

She even told my husband that she thought Jack's speech was that of a typical 3

year old and that if she had evaluated him, then he would not be receiving

services at all! NICE...probably why she is just playing with him and not

working/drilling him to advance speech. So, I am in the midst of working with

his Service Coordinator to get us either back on the waiting list or working

with a different speech therapist. It is frustrating.

Jack is still receiving 1 - 1 and 1/2 scoops a day. The good news is that when

Jack has been off of the Nutriiveda for 2-3-4 days, I no longer see any

regression! That is the great news! I am thinking about bumping him up to 2

scoops a day. I agree with you in your thinking that there is some sort of

repair going on. Jack isn't totally there yet, but considering where he came

from, and the fact that he won't be three until January, I am very happy with

his progress! I think I will probably always keep him on at least one scoop for

general health purposes. He is a very good eater and he LOVES fruits and

vegetables so I know he is getting all of nutrients he needs, but it can't hurt

I figure! Well, thanks again for all of the support and guidance! For monthers

like me and most of the others in the group, we would be lost without the group

and people like you! Thanks again for all of your help!

Talk to you soon,

and

Of course you can share with the group. I am also worried because this new

speech therapist says she is pretty sure he doesn't have Apraxia. It ticks me

off because she said that after seeing him for less than an hour. I told her we

have two other speech therapists and more importantly a doctor in Chicago that

have diagnosed him with Apraxia. I guess she thinks she knows more than they

do...which really worries me. It makes me wonder if she really even knows what

it is much less how to provide therapy for it. I honestly feel like I give him

more therapy than she does. I think you are right about the paradigm shift. I am

glad Jack is doing so well, but I definitely think he still needs therapy. It is

so frustrating. I wish the " people " who made these dicisions could walk a week

in our shoes or better yet, a week in our children's shoes. It is sickening and

disheartening. When they dropped Jack's services from 2 X per week to 1

( " because he was improving, " ) I said, so rather than keeping him at twice a week

and getting him completely caught up by Kindergarten, let's decrease his

services just enough to keep him behind all the way through school. I was irrate

to put it mildly. I know you know the frustration all too well.

Past messages:

Subject: RE: [childrensapraxiane t] Do any of you use Nutriiveda for your

little ones (under 3)?

Hello ,

Our 24 month old has been on NV for just over a week now. We have seen some

tremendous increases in his speech. He is attempting many more words and is now

" singing " along to some songs. I was very worried about trying this with my son

at first as well. I did have it approved by his Pediatrician and plan to take it

to his Pediatric Neurologist on March 1st. I do have my degree in science and

have asked many other scientists where I work what their thoughts were about the

product. No one thought there would be any problems. I also tried the product

before I gave it to my son. I started him with 1/3 of a scoop twice a day for a

few days and then increased to 1/2 a scoop twice a day. I am thinking about

waiting another week and then stopping the NV to see if there is any regression.

Again, our son's only additional supplements are the ProEPA and ProEFA. I will

keep you posted on any additional improvements!

Hello,

Yes, we just started our 25month old son on NutriiVeda on February 1st. I did

have it approved by his Pediatrician before I started him on it. He takes ½ of a

scoop in the morning and ½ of a scoop with dinner. I have already seen some good

results! He has just begun with two word sentences (approximations) which he had

never done before. I was waiting to post until after he had been on it for a few

weeks, but we are so excited about the progress he has made in just 4 and ½

days! (As a side note...Our son is also on the ProEFA and ProEPA but he has

never been on any other supplements [other than a Flintstones vitamin])

I hope this helps.

IL

RE: [ ] 25month old son on NutriiVeda update

Hello Everyone,

I wanted to give you all an update on my 25 month old son Diagnosed with CAS. My

son started on the NN fish oils when he was 20 months old with a small surge in

soft vowel production. (He previously had no words and made very few sound other

than grunting and pointing.) He also started Speech therapy with a private

speech therapist once a week at that time (because EI did not have a speech

therapist available and still doesn't.) He began using " B, " " M, " and " P "

consonants with soft vowels at around 23months but he had no words and was not

mimicking any sounds. At 24 months he did start to pick up some animal sound

approximations " ba and moo " and was able to say " moe " for more. We had his 6

month re-evaluation (through EI) in the middle of January. They evaluated his

expressive language to be at 12 months and increased his therapy to twice a

week. (He has no other delays.) He does have some hypotonia in his lower lip and

tongue.

After careful consideration and the " OK " from his pediatrician, I started our 24

and & #65533; month old son on Nutriiveda on February 1st. It has been two weeks

and we have seen him go from 1-2 word approximations to well over 50 word

approximations! He will try to mimic anything I ask him too. He even has some

two word approximations: " la oo " for love you! He can make all consonant sounds

now except for " j, t, d, and s. " I did not tell his speech therapist when I

started him and she could not believe the difference! She said he was mimicking

and trying any word she asked! I can now get him to mimic whole sentences: I

will say one word at a time and he will repeat it. He will say " I - wan - moe -

ruck - pees " for I want more truck please. He has many more spontaneous

approximations as well. He can even say some words spontaneously and perfectly:

" pop, happy, me, my, mama, baby, go, up, yeah, wee, uh-oh " and I am sure there

are a few more that I am not thinking of right now. He will even sing along with

his new CD aimed at children with CAS " Drills on Wheels! " So it has been about a

month now since he was evaluated to be 12 months expressively and I took him to

Chicago to see a Developmental Pediatrician (to get a formal diagnoses) on

Friday. There was a speech therapist, a developmental therapist, an occupational

therapist, a child psychiatrist, and the Pediatrician in the room for his

evaluation. They determined that his expressive speech is now at a 21 month

level! That means he went from a 12 month level to a 21 month level in less than

a month (and two weeks on the Nutriiveda!) We were amazed and so was the group

that evaluated him! I did bring a label and some of our group's information to

let them know about the Nutriiveda, but they pretty much dismissed that it could

be the Nutriiveda. They told us to keep doing " whatever " we were doing. I

believe differently of course!

I can't say that there have been many other noticeable changes in my son, but he

has never had any behavioral problems and he has always been very social. I do

think he focuses a little better during his speech therapy sessions but other

than that, I haven't noticed any other changes. (As if the speech wasn't

enough!)

So, thank you for bringing this wonderful product to our group and I hope

that all of you see as many great changes in your children as we have seen in

the last few weeks!

Sincerely,

IL

~~~~~~~~~~~~~~~~~~~~~~~~~~

=====

October 13, 2010

Romesa,

It's been so crazy. None of my boys suffer from any other issues that can be

related to Apraxia. Maybe that's another reason why it's only been 3 weeks, and

we've seen all these improvements.

My son's SLP showed me his vocabulary list from his initial assesment (when he

was diagnosed back in July/August). Everything was basically (water= ada,

home=oma, me = nee,) most other words just sounded the same (adad, dada, ada

dada). People would just look at me, as if I knew what he was saying, just

yesterday he said:

" mommy, I want water for me, Gabe and " and counted his brothers and

himself on his fingers. I was floored. His lip rounding, and beginning and

ending sounds have come along. He started with this particular SLP back in

July/August. She is floored too. Today, I had them all with another SLP

(goverment funded) and their last assesment was 1.5mth ago. Today, she said she

had to re-evaulate them, as there was such a change from when she last saw them.

My mother, who was sketical, called me crazy for giving my boys " foreign

substances " can't believe how much she can understand the boys now.

I'm crossing my fingers that the next 3 weeks will put them over the top!

________________________________

From: Romesa <romesa1@...>

Sent: Wed, October 13, 2010 12:59:34 PM

Subject: RE: [ ] Our story of Nutriiveda.....and the

success....