Re: omega 3-6-9

[Guest guest]

> Thanks! we are still working on the constipation

See my previous message on EFAs causing constipation for my family.

Other constipation ideas

http://www.danasview.net/constip.htm

Dana

[Guest guest]

I dont know. But I do know that it is not so much the fish oil as it

is the cod liver oil that contains the natural vit. A that is the best.

>

> I bought my 4.5yr old 37lb girl some omega 3-6-9 caps yesterday

1000mg gave her one last night, what dosage is best to work up to?

Thank you!

>

> ¶*:._.:*¶*:._.:*¶

> Lena

> ¶*:._.:*¶*:._.:*¶

>

>

>

[Guest guest]

I give my daughter the Nordic Naturals DHA - 1/2 tsp every morning.  I don't

believe you increase the dosage as time goes on, but the literature is so

limited.  She does noticeably better while she is on it.As an aside, I read on

one of my other groups that different people react differently to the DHA and to

the 3-6-9.  Some people that were on the 3-6-9 showed great progress in the

beginning, but then showed great signs of regression.  Apparently, it's a

matter of how your body is made up and how it reacts to the 3-6-9 or the DHA.

 I don't know how much credibility this information has, as I read it from

another parent on another board, but I figured it was worth sharing.

[Guest guest]

,

could you share your comments on this please. I have never heard about kids

regressing from the use of fish oil (I am using the Pro-EFA - which I was told

is exactly the same as the 3-6-9, and intend adding the Pro-EPA in a month or

so). Having read the comment about regression makes me a little anxious - and

double thinking whether I should continue with the fish oil? I did feel I was

seeing some progress in my little boy already.

>

> I give my daughter the Nordic Naturals DHA - 1/2 tsp every morning.  I don't

believe you increase the dosage as time goes on, but the literature is so

limited.  She does noticeably better while she is on it.As an aside, I read on

one of my other groups that different people react differently to the DHA and to

the 3-6-9.  Some people that were on the 3-6-9 showed great progress in the

beginning, but then showed great signs of regression.  Apparently, it's a

matter of how your body is made up and how it reacts to the 3-6-9 or the DHA.

 I don't know how much credibility this information has, as I read it from

another parent on another board, but I figured it was worth sharing.

>

[Guest guest]

Don't be anxious - I think it's great you are seeing progress.  We see a

tremendous amount of progress in my daughter since she started fish oil and I

wouldn't dream of taking her off.  I'm going to dig through the archives of my

other board and see if I can find what the comment was.  It was basically

saying that if you don't the any effect or if you see a positive effect and then

a negative effect, it might be that you don't react well to the particular

supplement.  In her case, one of her children reacted really well to the 3-6-9

and the other didn't, so she switched and put him on the DHA.  It has something

to do with our make-up.I will keep looking and try to find the old posting.It's

great news that you are seeing such positive results.  I couldn't believe the

changes we saw in my daughter - and it happened so fast!  

From: rubykatee <ttaniaa0000@...>

Subject: [ ] Re: omega 3-6-9

Date: Saturday, February 13, 2010, 8:06 AM

 

,

could you share your comments on this please. I have never heard about kids

regressing from the use of fish oil (I am using the Pro-EFA - which I was told

is exactly the same as the 3-6-9, and intend adding the Pro-EPA in a month or

so). Having read the comment about regression makes me a little anxious - and

double thinking whether I should continue with the fish oil? I did feel I was

seeing some progress in my little boy already.

>

> I give my daughter the Nordic Naturals DHA - 1/2 tsp every morning.  I

don't believe you increase the dosage as time goes on, but the literature is so

limited.  She does noticeably better while she is on it.As an aside, I read

on one of my other groups that different people react differently to the DHA and

to the 3-6-9.  Some people that were on the 3-6-9 showed great progress in

the beginning, but then showed great signs of regression.  Apparently, it's a

matter of how your body is made up and how it reacts to the 3-6-9 or the DHA.

 I don't know how much credibility this information has, as I read it from

another parent on another board, but I figured it was worth sharing.

>

[Guest guest]

Ruby no there is as far as I know no credibility to the statement that the

person made as far as I know. While most that surge on fish oils seem to need

to continue them, which isn't a biggie as most health organizations recommend

them as they are essential, there are stories of those children who take them

for a few years -surge -and then don't seem to need them anymore. The only time

children will have regressions on fish oils after surges are:

1. changed fish oil formulas

(novice to fish oil therapy do not appreciate that not all fish oils are the

same)

2. addition of other supplements or medications that compromise the fish oils

(while in the past most parents kept it simple with just the fish oils and

appropriate therapy -today's parent is using more and more biomedical treatments

sometimes even believing that this will heal the child without the therapy which

I don't agree with either. The brain responds to multiple stimuli and

appropriate therapy is vital. Even the addition of simple things like cod liver

oil or fiber can compromise the effectiveness of the fish oil therapy. More and

more expensive and complex does not always mean better)

3. child grows and needs a higher dosage

(fish oils are not only formula dependent but appear to be dosage dependent as

well. The child won't regress -but may appear that way as they hit a plateau

and stop surging)

4. If accurate story -child's initial surges may or may not have been from fish

oils -but either way may have a progressive metabolic or other severe condition

that is not typical of most apraxic or any other children.

5. the child never responded to the fish oils and surged and regressed due to

another reason.

6. the parent is misinformed and sharing inaccurate information. As always

double check everything you read here or elsewhere with professionals you

respect and trust with your child's health. And...keep in mind that fear of

fish oils also means fear of tuna fish sandwiches!

I know you are from Australia and don't know if you have IEP meetings but will

just use this as an example:

Just like when at an IEP meeting you hear something that you know doesn't make

sense -isn't right and you smile and say " that's interesting, I've never heard

this before. Would you mind putting that in writing for me and explain why? "

When you read something that doesn't make sense on a grouplist just very nicely

say " that's interesting, I've never heard that before. Would you mind sharing

your source of this information with me? "

I was gone for the weekend so sorry I didn't get back to you sooner but below is

one of my favorite messages about using fish oils for a short time and then

never again. And PS -please feel free to share my message in full back to this

parent who wrote what she did.

: Rick Carruthers racmpc@... <racmpc@...>

-owner

Sent: Monday, June 03, 2002 10:44 AM

Subject: We're on the other side......

Dear and group,

I contacted you a few months ago and asked to be removed from the

list as I was being buried w/ mail and could not keep up! You asked

if this was a good thing and I responded YES!!!! You suggested I

share my news with the group so that is what I'm doing now..Please

pass this along for me.... .(better late than never right?)

After nearly two years our son is speaking beautifully. Ricky was

diagnosed at 18months. Early yes, but we pushed...Ricky was our

4th..we knew he should have more..we refused to " wait and see " .

He is even starting to recognize and read small words!! We are

amazed and so grateful. He turned 3 at the end of March and that is

when his therapy ended. (this is a child who we were told may never

speak!!). This should bring hope to many parents who are just

starting their journey.

I remember the night after his first evaluation..I got on the net and

found your sight...I stayed up half the night.. reading..crying..

searching for hope!!! Ricky never babbled or cooed..never made any

vowel signs....the only sound he made was MMMMM...MMMMM. (otherwise

he was typically developing..even early..he stood alone at 7

mos...and was walking independently at 9 mos!!!)

He is now 100% intelligible in context (even w/ most strangers)and

probably 75% out of context, which probably is pretty typical of a 3

yr old anyway right? Some have asked hearing him now..don't you

think he was just a late talker? No, we don't...late talkers just

start talking!! Ricky was taught to speak!!! (incidentally he was

fortunate enough to have the most wonderful slp on the planet!!!!)

She not only taught and cared for him but you could tell she actually

fell in love w/ him!!! When he finally " got something " she sometimes

would well up w/ tears!! Other professionals might not think it's

such a good thing to care so much...but it meant the world to us.

To know someone we were counting on cared as much as we did!! What a

gift!!!!

Ok, now to the details I know parents want to know. Ricky was

considered to have pure verbal apraxia w/ no other issues. Of course

this made him more ready and willing to participate in the therapy.

We rarely had days where he didn't want to " work " . He had two

sessions per week at home that lasted about two hours. We continued

at home... Ricky has older siblings...and our house was a 24 hr

speech camp! The fact that we could get right to the speech issue(no

other stuff to work around/ie sensory stuff) certainly was a major

factor in his quick progress.

The other thing we tried like many was the proefa. He immediately

made huge leaps...after a few weeks his slp looked at me and said

WOW..do you think it's the oil? It was hard to tell...was it the

early early intervention, things just starting to come together, the

oil or the combination of all those things together? We didn't know

but our slp was intrigued enough to recommend it to her other

parents. It's been awhile but as I recall she and other parents were

quite surprised and pleased. Not every child had huge leaps in speech

but as I recall all the feedback was positive. One family reported

their child finally slept thru the night for the first time (he was

FOUR YEARS OLD!!!) His parents were thrilled!!! I remember her

talking about another parent who couldn't believe the difference in

her childs behavior and willingness to cooperate more in his

therapy. That would have to lead to better results..wouldn't it? I

don't know much more than that as she of course has

to protect the privacy of the other families... I just don't recall

her sharing any negative stories w/ me.

Okay, now for your BIG question... Is Ricky still on the

oils...No...and he hasn't been for some time. It became so difficult

to get them in him that we stopped probably after about 3 months. We

decided if his progress slowed we would get them in him no matter

what...fortunately..it didn't. Maybe he just needed a boost.!!!! (by

the way ..... I'm still waiting for someone to produce this oil

in

a suppository form..wouldn't that solve all the problems of getting

it into the little ones at least..the older kids can be bribed!!!!)

As a baby Ricky had very dry skin, we noticed after the oils that

his dry skin went away and has never come back despite the fact that

we never re-started the oils. Who knows..maybe he just needed

one good lube job!!!

The other thing we did that I think helped his progress and growth in

general was enroll him in a Montessori pre school program. It was

good for him to be with other children his own age. I'm certainly not

saying he learned to speak by hearing them....we all know better than

that. But it did force him to use the words he had!!! He learned

turn taking, sharing and the rules of the classroom. It amazed me

how they could get 10 under 3 yr olds to sit thru stories and clean

up their own snack and work areas!! The other real positive I found

at the Montessori was the fact that the preschool class

ranged in ages from 18mos to 3 yrs. The point being..Ricky's

speech...or lack of... did not make him stand out!!! There was quite

a range of verbal skills so he blended right in..it was wonderful!!

I feared he would be intimidated and clam up completely in a typical

2/3yr old preschool since that had been our experience w/ him when he

was around other kids his age w/ typical speech. He was young (2

1/2) but starting to realize he was not the same. What a tough thing

to watch!

In the great scheme of things we realize Ricky's obstacles were small

and we are very very fortunate and SO GRATEFUL for his progess. We

are also grateful to this group who gave us so much hope at such a

difficult time.

To all the parents just beginning this journey..keep working, keep

pushing, follow your instincts and never ever give up.....the rewards

are so wonderful and so worth it!!

Sincerly,

Martha Carruthers

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