Guest guest Posted November 9, 2010 Report Share Posted November 9, 2010 My son is now 4 yrs 4 months. He was completely nonverbal at age 3 yrs 11 months. He only said the sounds ah, eh and ma occasionally. He tested extremely low whenever he was tested. I started him on proefa around when he turned 4 and saw changes in his attention to tasks (especially in OT) but his speech was still non existent. He used sign to communicate. In September we added NV and within days started getting some approximations, starting with cookie (cu cu) etc.... Now he was too many words for me to count and is beginning to put 2 and 3 words together with the occasional 4 words together. He is actually saying part of his alphabet, he can name some of the days of the week, he knows his colors and shapes. He has a wonderful speech therapist who has been a tremendous help and he has been in a preschool program through our school district 4 days a week with therapy. I'm not sure what has helped the most but credit all of it. His official diagnosis is CAS, Hypotonia, DSI. Just wanted others to know to never give up hope and just keep pushing on. I never would have believed we would be where we are right now. God bless, April Mom to Andy 4.4 yrs (CAS, DSI, Hypotonia) and ph 21 months age appropriate > > Hello, I wanted to let everyone know that I am still here even though I have > only been a lurker.. I have been very busy and knee deep in a lot of stuff for > at this moment. So please understand that I do care about this issues > very much, I am just absorbed in much bigger issues at this time. I am still a > fan of Nutriiveda. is only drinking two scoops daily at this time > because I just cant seem to find the time to get more into him at this point. > However, Matt still remains seizure FREE!! We are now at ten months free!! I > feel that NV has provided him some sort of nourishment that his brain/body was > lacking and that is why he is seizure free. He still remains on Carbartrol > 400mg daily, which his levels in his blood stream are at a sub therapeutic > level. However, will remain on this low dose of anti seizure medication > for another year. I am working with his neurologist and agree with him to > follow Hopkins protocol to remain seizure free for two year before removing all > meds completely. I do agree that we should not jump to quickly in this > regard. On a daily basis we are not dealing with the treat of seizures which > is huge!! > As far as other changes in , it is hard to clearly define. He seems to > have matured in many ways, this may or may not be due to NV. is such a > bad eater that if for another reason I feel that I am getting him all the vital > nutrients that his body is not getting from food. > > > I just started drinking NV about four days ago. I have noticed more energy at > this point. I am drinking it as a nutritional supplement and to help my body be > more well balanced. I will keep you posted if I see any other improvements. > > If you are thinking of starting NV and have any questions you can also contact > me. > > *below I attached my original testimony for you to read. > > Happy Autumn, > Alyssa > > NV what a surprise!!! > I was told about it back in January and of course I was thinking it was like a > million other products out there that parents with special needs children try. > However, being skeptical I did order it and started (9yrs) on it once a > day (2 scoops). Shortly after he started it I noticed very slight differences. > He seemed to have a healthy look or glow to him; his temper seemed to have > leveled off instead of extreme highs and lows. seemed to be grasping > or understanding language a bit more too. The most drastic of all the changes > is that as of today remains seizure free!! has been having > uncontrolled seizures for three years now despite whatever medications we have > tried. He has gone through many types of testing procedures and we were on the > road to have a surgery consult to remove the portion of his right temporal lobe > where his seizures were occurring. Today is drinking NV twice a day (4 > scoops) and is seizure free going on 15 weeks! We have dropped his seizure > medications twice now and still remain seizure free. I remain optimistic that > when we hit the six months marker Matt’s neurologist will help us to slowly > remove all seizure medications. I am in awe of Nutriiveda and what it has done > for our family. > > Alyssa > > > > > ________________________________ > From: kiddietalk <kiddietalk@...> > > Sent: Wed, November 3, 2010 4:36:48 PM > Subject: [ ] Re: NutriiVeda - want testimonials from members > > > Kate if you look at what is written over the years with fish oils it's the same > thing. People typically write here if they need support or want to share. It's > very few that reach out to help others long after they need this group -so most > do move on once their child is better -which is one of the reasons we've had > such a difficult time over the years in getting monies for PUFA research. NV I > see the same thing -just a bit faster. But we do have something we can do this > time we didn't have before -new types of websites! > > If you look at http://www.wholefoodtherapy.com that is one site I'm still not > done with but it's set up more in a blog format -and we are working on a new > http://www.pursuitofresearch.com website the same way (still pointed to the > .org) so that people will be able to update, comment on testimonies, or ask > questions. We have a ton of information that is not up on the > http://www.pursuitofresearch.org site but once it's interactive -I believe the > word will travel much quicker (honestly pardon the pun!) People need to know > about this. > > > And to le- very interesting about the headaches -do you get regular > headaches or migraines? Since you are new not sure if you know there are a > number of individuals now either soon to be off or off seizure medications and > no longer having headaches either once on NV- here's just three case studies > http://www.facebook.com/topic.php?topic=15306 & post=93938 & uid=115029735601 > > Congratulations! Stay tuned for more and more great things to come!! > > ===== > Quote Link to comment Share on other sites More sharing options...
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