Re: on NV for two weeks and no improvement

[Guest guest]

She isn't much older than my son and his pediatrician approved two scoops a day

to start and then go up to 3 scoops. Maybe you used too little and then too

much? What did her pediatrician say? Kate

We started the first few days with a half scoop, then 2 days one scoop, then 2

scoops a day, then 3 a day ,and now for 6 days has been on 4 scoops a day> She

is 7 years old, and is 53 pounds.

[Guest guest]

I did not ask approval from the pediatrcian, but showed the carton to her DAN

type Dr. who does alternative treatment and he just shrugged and said yeah go

ahead it's fine and won't hurt her,looks like a nutrition drink. I think he was

just mad because I wasn't buying the junk supplements he wanted to sell(at this

point we are only using him for alternative allergy therapy). I think I may as

well reduce the amount I'm giving her since it's doing nothing anyway. Now I

have to decide wether or not to buy anymore--we only have 3/4 of a canister

left.But I don't want to stop if there's some surge possibly to come.I really

don't need to keep her on this for nutritional benefits so if there's no

language,no articulation, no academic, no sense of well being, no motor, no

attention, no behavioral improvements then I gues there's no point. I was

judging on the amount on what others were doing here, and keeps stressing

it's dosage dependent for the maximum benefit so since I saw nothing with the

lower dosage I got up to 4 scoops. I should back off. HAs your son shown

improvements,if so how soon? When our daughter was 2 and we started fish oils we

saw suges within 2 days, and each time we increased the number of fish pills.I'm

running out of new things to try-therapy wise and supplement wise and nutrition

wise. Thanks so much for your input. Cheryl

> We started the first few days with a half scoop, then 2 days one scoop, then 2

scoops a day, then 3 a day ,and now for 6 days has been on 4 scoops a day> She

is 7 years old, and is 53 pounds.

>

[Guest guest]

Cheryl,

I noticed a few things in your emails. I agree with that it was too much

NV too fast. She wasn't on any one dose long enough. I've had success in all of

my clients and even though many see changes quickly, I have found it can

sometimes take a few weeks. Usually for a child your child's age, my client's

pediatricians have recommended to start slowly, perhaps 1 scoop/day for the

first week or two, then increase to 2 scoops/day for at least a month, and then

perhaps up to 3 scoops/day months down the road. Remember that the NV naturally

rids the body of the " Ama " or plague, toxins, waste; within the first week or

so. There is information about this here

http://pursuitofresearch.org/science.html Each time you increase the dosage she

can go through another detox so you didn't give this enough time and quickly

raised the dosage. You want to make sure that your child is regular and most

notice an increase in bowel movements. From what you wrote you had your child

go from a half scoop up to three scoops the first week and then a dosage of four

scoops which is above the recommended dosage for the second week. has said

and I have seen in my practice that NV is dosage dependent and there are

typically greater surges with increased dosages, but that means starting at the

recommended dosage and raising it slightly. Most don't raise any higher unless

approved by their child's pediatrician. Also, make sure she gets enough good

fluids (not soda) per day. Multiply her weight x .6 & that is how many ounces of

fluid she should get per day.

So in my opinion, yes, I would buy more NV so that you can try giving it as

above. I know you are probably anxious but you have to give it time at the

recommended dosage. If along the way she is showing any nonproductive changes,

then decrease the amount given & go slower to build her up to the full dosage.

Once she is at the full dosage for 3-4 weeks you can look for positive changes.

Keep in mind sometimes they are in areas you may not choose--like independence,

etc.

Good luck!

Warmest wishes,

Barbara A , M.S.,CCC-SLP

CEO,

Help Me Speak, LLC

www.helpmespeak.com

2500 Wallington Way

Suite 103

Marriottsville, MD 21104

410-442-9791

Ask me about NutriiVeda!

On Nov 1, 2010, at 11:48 PM, " capetalker " <capetalker@...> wrote:

> I did not ask approval from the pediatrcian, but showed the carton to her DAN

type Dr. who does alternative treatment and he just shrugged and said yeah go

ahead it's fine and won't hurt her,looks like a nutrition drink. I think he was

just mad because I wasn't buying the junk supplements he wanted to sell(at this

point we are only using him for alternative allergy therapy). I think I may as

well reduce the amount I'm giving her since it's doing nothing anyway. Now I

have to decide wether or not to buy anymore--we only have 3/4 of a canister

left.But I don't want to stop if there's some surge possibly to come.I really

don't need to keep her on this for nutritional benefits so if there's no

language,no articulation, no academic, no sense of well being, no motor, no

attention, no behavioral improvements then I gues there's no point. I was

judging on the amount on what others were doing here, and keeps stressing

it's dosage dependent for the maximum benefit so since I saw nothing with the

lower dosage I got up to 4 scoops. I should back off. HAs your son shown

improvements,if so how soon? When our daughter was 2 and we started fish oils we

saw suges within 2 days, and each time we increased the number of fish pills.I'm

running out of new things to try-therapy wise and supplement wise and nutrition

wise. Thanks so much for your input. Cheryl

>

> > We started the first few days with a half scoop, then 2 days one scoop, then

2 scoops a day, then 3 a day ,and now for 6 days has been on 4 scoops a day> She

is 7 years old, and is 53 pounds.

> >

>

>

[Guest guest]

My boys are about 35 lbs, give or take a few pounds, and ages 2 ½ and 3 ½ and

I still have them on one heaping scoop. At first I did a full scoop AND fish

oils (started both at the same time which I shouldn’t have done) and had some

issues with the oldest having big time fits etc for a couple of weeks. After

that went away though I love the stuff. I think the fish oils and NV together

are what do so much for my boys. My 3 ½ year old is so much more calm, listens

SO well, shows that he is super smart and understands SOOO much. His speaking is

all the time BUT very hard to understand, however this is a child that didn’t

really say anything before. My 2 ½ year old didn’t say a peep and now mimics

a lot of things.

From:

[mailto: ] On Behalf Of Barbara

Sent: Tuesday, November 02, 2010 6:52 AM

Subject: Re: [ ] Re: on NV for two weeks and no improvement

Cheryl,

I noticed a few things in your emails. I agree with that it was too much

NV too fast. She wasn't on any one dose long enough. I've had success in all of

my clients and even though many see changes quickly, I have found it can

sometimes take a few weeks. Usually for a child your child's age, my client's

pediatricians have recommended to start slowly, perhaps 1 scoop/day for the

first week or two, then increase to 2 scoops/day for at least a month, and then

perhaps up to 3 scoops/day months down the road. Remember that the NV naturally

rids the body of the " Ama " or plague, toxins, waste; within the first week or

so. There is information about this here

http://pursuitofresearch.org/science.html Each time you increase the dosage she

can go through another detox so you didn't give this enough time and quickly

raised the dosage. You want to make sure that your child is regular and most

notice an increase in bowel movements. From what you wrote you had your child go

from a half scoop up to three scoops the first week and then a dosage of four

scoops which is above the recommended dosage for the second week. has said

and I have seen in my practice that NV is dosage dependent and there are

typically greater surges with increased dosages, but that means starting at the

recommended dosage and raising it slightly. Most don't raise any higher unless

approved by their child's pediatrician. Also, make sure she gets enough good

fluids (not soda) per day. Multiply her weight x .6 & that is how many ounces of

fluid she should get per day.

So in my opinion, yes, I would buy more NV so that you can try giving it as

above. I know you are probably anxious but you have to give it time at the

recommended dosage. If along the way she is showing any nonproductive changes,

then decrease the amount given & go slower to build her up to the full dosage.

Once she is at the full dosage for 3-4 weeks you can look for positive changes.

Keep in mind sometimes they are in areas you may not choose--like independence,

etc.

Good luck!

Warmest wishes,

Barbara A , M.S.,CCC-SLP

CEO,

Help Me Speak, LLC

www.helpmespeak.com

2500 Wallington Way

Suite 103

Marriottsville, MD 21104

410-442-9791

[Guest guest]

Barbara, I apologize ,I re-read your response and you did specifically answer my

question. I am just a bit punchy as I have no more things up my sleeve to try,

and since Shea is tolerating the nutii veda this time I am anxious for positive

results.( We have been doing therapeutic Listening with a new OT since August

and haven't had any remarkable results-yet)

So then should I even back her off from the three scoops a day as which I just

did today(tuesday?),perhaps down to 2 or even 11/2 a day?

And does it appear to be the fact that the body is being bolstered by the

increased nutrients that are causing the surges or is it the level of nutrients

in their system that are resulting in the repair that are causing the surges?

Once the actual desired dosage is reached are there still surges or do they

platue? I'm asking because I've used supplements in the past(carnatine and

carnosine and phosphatydyl choline) which resulted in awesome surges but then

after about a month developed into uncontrollable aggitation and a leveling off

of progress(actually regression because of the aggitation/overstimulation).It

also happened with fish pills--surges then platue.Not saying NV will cause

aggitation,but I'm wondering if the surge is coming from the body being

stimulated by the new nutrients or the repair as I said above? Again, thank You

Cheryl

>

> Cheryl,

> I noticed a few things in your emails. I agree with that it was too much

NV too fast. She wasn't on any one dose long enough. I've had success in all of

my clients and even though many see changes quickly, I have found it can

sometimes take a few weeks. Usually for a child your child's age, my client's

pediatricians have recommended to start slowly, perhaps 1 scoop/day for the

first week or two, then increase to 2 scoops/day for at least a month, and then

perhaps up to 3 scoops/day months down the road. Remember that the NV naturally

rids the body of the " Ama " or plague, toxins, waste; within the first week or

so. There is information about this here

http://pursuitofresearch.org/science.html Each time you increase the dosage she

can go through another detox so you didn't give this enough time and quickly

raised the dosage. You want to make sure that your child is regular and most

notice an increase in bowel movements. From what you wrote you had your child

go from a half scoop up to three scoops the first week and then a dosage of four

scoops which is above the recommended dosage for the second week. has said

and I have seen in my practice that NV is dosage dependent and there are

typically greater surges with increased dosages, but that means starting at the

recommended dosage and raising it slightly. Most don't raise any higher unless

approved by their child's pediatrician. Also, make sure she gets enough good

fluids (not soda) per day. Multiply her weight x .6 & that is how many ounces of

fluid she should get per day.

>

> So in my opinion, yes, I would buy more NV so that you can try giving it as

above. I know you are probably anxious but you have to give it time at the

recommended dosage. If along the way she is showing any nonproductive changes,

then decrease the amount given & go slower to build her up to the full dosage.

Once she is at the full dosage for 3-4 weeks you can look for positive changes.

Keep in mind sometimes they are in areas you may not choose--like independence,

etc.

>

> Good luck!

>

> Warmest wishes,

> Barbara A , M.S.,CCC-SLP

> CEO,

> Help Me Speak, LLC

> www.helpmespeak.com

> 2500 Wallington Way

> Suite 103

> Marriottsville, MD 21104

> 410-442-9791

>

[Guest guest]

Cheryl,

In my opinion, I would back her off to 1 scoop/day for 1week. Then increase to 2

scoops the next week. Continue at 2scoops for 4 weeks or so & reassess--See what

she is doing at that point.

Also my clients & 's son, Tanner, continue to have surges on the same

dosage. has info on the science/reasons why NV may be working here:

www.pursuitofresearch.org

Warmest wishes,

Barbara A , M.S.,CCC-SLP

CEO,

Help Me Speak, LLC

www.helpmespeak.com

2500 Wallington Way

Suite 103

Marriottsville, MD 21104

410-442-9791

Ask me about NutriiVeda!

On Nov 2, 2010, at 11:52 PM, " capetalker " <capetalker@...> wrote:

> Barbara, I apologize ,I re-read your response and you did specifically answer

my question. I am just a bit punchy as I have no more things up my sleeve to

try, and since Shea is tolerating the nutii veda this time I am anxious for

positive results.( We have been doing therapeutic Listening with a new OT since

August and haven't had any remarkable results-yet)

> So then should I even back her off from the three scoops a day as which I just

did today(tuesday?),perhaps down to 2 or even 11/2 a day?

> And does it appear to be the fact that the body is being bolstered by the

increased nutrients that are causing the surges or is it the level of nutrients

in their system that are resulting in the repair that are causing the surges?

Once the actual desired dosage is reached are there still surges or do they

platue? I'm asking because I've used supplements in the past(carnatine and

carnosine and phosphatydyl choline) which resulted in awesome surges but then

after about a month developed into uncontrollable aggitation and a leveling off

of progress(actually regression because of the aggitation/overstimulation).It

also happened with fish pills--surges then platue.Not saying NV will cause

aggitation,but I'm wondering if the surge is coming from the body being

stimulated by the new nutrients or the repair as I said above? Again, thank You

Cheryl

>

>

> >

> > Cheryl,

> > I noticed a few things in your emails. I agree with that it was too

much NV too fast. She wasn't on any one dose long enough. I've had success in

all of my clients and even though many see changes quickly, I have found it can

sometimes take a few weeks. Usually for a child your child's age, my client's

pediatricians have recommended to start slowly, perhaps 1 scoop/day for the

first week or two, then increase to 2 scoops/day for at least a month, and then

perhaps up to 3 scoops/day months down the road. Remember that the NV naturally

rids the body of the " Ama " or plague, toxins, waste; within the first week or

so. There is information about this here

http://pursuitofresearch.org/science.html Each time you increase the dosage she

can go through another detox so you didn't give this enough time and quickly

raised the dosage. You want to make sure that your child is regular and most

notice an increase in bowel movements. From what you wrote you had your child go

from a half scoop up to three scoops the first week and then a dosage of four

scoops which is above the recommended dosage for the second week. has said

and I have seen in my practice that NV is dosage dependent and there are

typically greater surges with increased dosages, but that means starting at the

recommended dosage and raising it slightly. Most don't raise any higher unless

approved by their child's pediatrician. Also, make sure she gets enough good

fluids (not soda) per day. Multiply her weight x .6 & that is how many ounces of

fluid she should get per day.

> >

> > So in my opinion, yes, I would buy more NV so that you can try giving it as

above. I know you are probably anxious but you have to give it time at the

recommended dosage. If along the way she is showing any nonproductive changes,

then decrease the amount given & go slower to build her up to the full dosage.

Once she is at the full dosage for 3-4 weeks you can look for positive changes.

Keep in mind sometimes they are in areas you may not choose--like independence,

etc.

> >

> > Good luck!

> >

> > Warmest wishes,

> > Barbara A , M.S.,CCC-SLP

> > CEO,

> > Help Me Speak, LLC

> > www.helpmespeak.com

> > 2500 Wallington Way

> > Suite 103

> > Marriottsville, MD 21104

> > 410-442-9791

> >

>

[Guest guest]

I started fish oils 4 months ago on my 34 lb. 32 month old son. The oils

immediately cleared up his dry skin and hair, so I know his body had

deficiencies. I started the NV 2 weeks later. I did 1 scoop for 1

month. 1.5 scoops for 2 weeks and then 2 scoops for 5 or so weeks. I

stopped NV 2 weeks ago after I didn't notice any changes. I saw no

regression. At the same time I stopped NV, I purchased the Signing Time

video set. My son loves them and is now learning sign very quickly. I

think the signs also work as a trigger for the verbal attempts. (I had

checked the videos out of my library and loved them so much I bought the

set.) I would highly recommend them as a visual cue for your child and to

help ease frustration.

My son is turning 3 at the end of the month and will be attending early

intervention for speech. He has always been super smart. He tested at a 68

for verbal output and a 117 for comprehension. The mean is 100. (He has a

few single words and maybe a couple 2 word sentences...he did say his first

and only 3-4 word sentence last week. When my husband told him he had green

eyes, he said " no, me blue eyes. " (all the other kids had blue eyes..)

I can honestly say I noticed no changes with NV over a 3 month period. His

speech therapist for the last 3 months hasn't commented on any surges

either. I am planning on trying NV one last time in a couple of weeks to

give it one more chance. Though I must say, the break from NV has been nice

and incorporating the signing videos has helped me feel like I was doing

more than giving him a drink and waiting for my miracle...real frustrating

with no changes (I have read the list of " other " changes-- he hasn't had

any I would attriute to NV...)

Thanks for everyone's input. It is nice to know what is and isn't working

for others..

Malinda

On Tue, Nov 2, 2010 at 8:41 AM, Stilwell

<shannonstilwell@...>wrote:

>

>

> My boys are about 35 lbs, give or take a few pounds, and ages 2 ½ and 3 ½

> and I still have them on one heaping scoop. At first I did a full scoop AND

> fish oils (started both at the same time which I shouldn’t have done) and

> had some issues with the oldest having big time fits etc for a couple of

> weeks. After that went away though I love the stuff. I think the fish oils

> and NV together are what do so much for my boys. My 3 ½ year old is so much

> more calm, listens SO well, shows that he is super smart and understands

> SOOO much. His speaking is all the time BUT very hard to understand, however

> this is a child that didn’t really say anything before. My 2 ½ year old

> didn’t say a peep and now mimics a lot of things.

>

> From:

< %40>[mailt\

o:

> < %40>]

> On Behalf Of Barbara

> Sent: Tuesday, November 02, 2010 6:52 AM

> < %40>

> Subject: Re: [ ] Re: on NV for two weeks and no

> improvement

>

>

> Cheryl,

> I noticed a few things in your emails. I agree with that it was too

> much NV too fast. She wasn't on any one dose long enough. I've had success

> in all of my clients and even though many see changes quickly, I have found

> it can sometimes take a few weeks. Usually for a child your child's age, my

> client's pediatricians have recommended to start slowly, perhaps 1 scoop/day

> for the first week or two, then increase to 2 scoops/day for at least a

> month, and then perhaps up to 3 scoops/day months down the road. Remember

> that the NV naturally rids the body of the " Ama " or plague, toxins, waste;

> within the first week or so. There is information about this here

> http://pursuitofresearch.org/science.html Each time you increase the

> dosage she can go through another detox so you didn't give this enough time

> and quickly raised the dosage. You want to make sure that your child is

> regular and most notice an increase in bowel movements. From what you wrote

> you had your child go from a half scoop up to three scoops the first week

> and then a dosage of four scoops which is above the recommended dosage for

> the second week. has said and I have seen in my practice that NV is

> dosage dependent and there are typically greater surges with increased

> dosages, but that means starting at the recommended dosage and raising it

> slightly. Most don't raise any higher unless approved by their child's

> pediatrician. Also, make sure she gets enough good fluids (not soda) per

> day. Multiply her weight x .6 & that is how many ounces of fluid she should

> get per day.

>

> So in my opinion, yes, I would buy more NV so that you can try giving it as

> above. I know you are probably anxious but you have to give it time at the

> recommended dosage. If along the way she is showing any nonproductive

> changes, then decrease the amount given & go slower to build her up to the

> full dosage. Once she is at the full dosage for 3-4 weeks you can look for

> positive changes. Keep in mind sometimes they are in areas you may not

> choose--like independence, etc.

>

> Good luck!

>

> Warmest wishes,

> Barbara A , M.S.,CCC-SLP

> CEO,

> Help Me Speak, LLC

> www.helpmespeak.com

> 2500 Wallington Way

> Suite 103

> Marriottsville, MD 21104

> 410-442-9791

>

>

>

[Guest guest]

I have more updates to share for Tan -but will have to share later! Yes Cheryl-

one year later and I have to say some of the newest updates are not as wonderful

-he's becoming more and more " normal " You know -14 year old teen- where he

used to be my good child that listened!! OK real quick he said to me yesterday

that he's going up to kids that are in groups to talk to them and make new

friends (he's in a brand new school for 8th at some of you know) The other kids

all know each other and are in clicks -so he's breaking in. He said to me " But

this has nothing to do with Accell " (that's the new product in the NV line) but

then added " it's just that I'm getting older so I just go up to people and talk

to them to make friends) Yes in the past 4 days he's been on Accell...I'm sure

it's all just a coincidence! Tanner does credit Accell to more energy at

basketball and is a huge cheerleader for NV as many of you know because it's

helped him in so many ways including that now he can " jump over a bush " ha!

Anyway -Cheryl the exact science page you asked for is

http://pursuitofresearch.org/science.html

=====

[Guest guest]

Could be the start of something good.....???I gave Shea 2 scoops of NV

today,one in the am and one right before bed since I hadn't checked posts this

evening seeing the suggestion to back off to one a day.

I don't know if this is an incredible coincidence but this morning she said she

wanted to read three different stories tonight. Well after a hectic evening she

got into bed and pretty clearly hardly getting stuck on any words read a level

" I " book(in school she has been benchmarked independent only at a level D).We

started this book a few days ago and she needed quite a bit of support. Tonight

she wanted to start in the beginning because Daddy was listening too,I thought

oh gosh this is going to take forever and result in frustration,but she sat

there reading with fluency and rarely getting stuck! Then she read two

comprhension reading pieces/paragraphs with minimal help on a few words,pretty

much read the questions independently and then answered them correctly. When she

was done she smiled and sighed saying " phew I'm tired. Did I do good? " I will

say no more, but maybe this may mean SOMETHING is happening! I'll keep you

posted. WOW this would be soooo phenominal if we see improvement. I will do 1

scoop a day starting tomorrow but feel apprhensive because if tonghts

performance has anything to do with the dosage of 2 scoops then I'm afraid to

change it--but then 1 scoop would be better because now we are down to about 1/2

a canister. Thank you!! Cheryl

> > >

> > > Cheryl,

> > > I noticed a few things in your emails. I agree with that it was too

much NV too fast. She wasn't on any one dose long enough. I've had success in

all of my clients and even though many see changes quickly, I have found it can

sometimes take a few weeks. Usually for a child your child's age, my client's

pediatricians have recommended to start slowly, perhaps 1 scoop/day for the

first week or two, then increase to 2 scoops/day for at least a month, and then

perhaps up to 3 scoops/day months down the road. Remember that the NV naturally

rids the body of the " Ama " or plague, toxins, waste; within the first week or

so. There is information about this here

http://pursuitofresearch.org/science.html Each time you increase the dosage she

can go through another detox so you didn't give this enough time and quickly

raised the dosage. You want to make sure that your child is regular and most

notice an increase in bowel movements. From what you wrote you had your child go

from a half scoop up to three scoops the first week and then a dosage of four

scoops which is above the recommended dosage for the second week. has said

and I have seen in my practice that NV is dosage dependent and there are

typically greater surges with increased dosages, but that means starting at the

recommended dosage and raising it slightly. Most don't raise any higher unless

approved by their child's pediatrician. Also, make sure she gets enough good

fluids (not soda) per day. Multiply her weight x .6 & that is how many ounces of

fluid she should get per day.

> > >

> > > So in my opinion, yes, I would buy more NV so that you can try giving it

as above. I know you are probably anxious but you have to give it time at the

recommended dosage. If along the way she is showing any nonproductive changes,

then decrease the amount given & go slower to build her up to the full dosage.

Once she is at the full dosage for 3-4 weeks you can look for positive changes.

Keep in mind sometimes they are in areas you may not choose--like independence,

etc.

> > >

> > > Good luck!

> > >

> > > Warmest wishes,

> > > Barbara A , M.S.,CCC-SLP

> > > CEO,

> > > Help Me Speak, LLC

> > > www.helpmespeak.com

> > > 2500 Wallington Way

> > > Suite 103

> > > Marriottsville, MD 21104

> > > 410-442-9791

> > >

> >

>

>

>

[Guest guest]

My son is having the same issue (no surges), but we have been on it since

February 2 scoops a day-40 lbs plus EPA/EFA. I did the NV for 3 months

(gradually increasing dosage) and then added the fish oil and still nothing.

I did have to take hime off the EPA/EFA last week since he was having surgery

today for tubes in his ears (kept him on the NV) and fish oil does have blood

thinning properties. i noticed a reduction in " noises " (he has yet to really

say anything). i am restarting him on the fish oils tomorrow.

Even when taking the NV/EPA/EFA i didn't see any sort of surge in verbal.

1) should i increase inte NV to 2 1/2 scoops?

2) i read in some other posts that there was a mom who added digestive enzymes

into the mix (she stated that her son needed it with the NV). Should I try

this? Only reason for my thinking is my son besides the apraxia has PDD-NOS.

There has been several posts in this room about the clinical study of using a

digestive enzyeme for an autism treament due to the fact that autistic kids

can't digest protiens. I called OSU for info about this study-they said it is

for a pancreatic digestive enzyme you sprinkle of food. They said to be apart

of the study, he couldn't be on the NV or fish oil at all. I am not planning on

doing this actual study, but i know you can buy digestive enzymes at GNC.

3) -have you found any differences between the dosages given to straight

" apraxic " kids vs. autistic/apraxic kids?

Thanks in advance

[Guest guest]

Hi ,

I'm the mom who has added back the enzymes.  I seem to notice more of a

difference with them.  Not in increased babbling really as he's 11 years old,

but I have noticed a more complex use of language.  I have been toying with

the

idea of putting him back on the probiotics as well.  I had taken him off both

when I started him on the NV.  I'll be trying to keep better track of what I

see.  I downloaded the app " Ibiomed " for my ipod touch so it will be easier to

keep track of everything in one place!

Sandy

________________________________

From: wandre_k <wandre_k@...>

Sent: Tue, November 30, 2010 11:02:02 AM

Subject: [ ] Re: on NV for two weeks and no improvement

 

My son is having the same issue (no surges), but we have been on it since

February 2 scoops a day-40 lbs plus EPA/EFA. I did the NV for 3 months

(gradually increasing dosage) and then added the fish oil and still nothing.

I did have to take hime off the EPA/EFA last week since he was having surgery

today for tubes in his ears (kept him on the NV) and fish oil does have blood

thinning properties. i noticed a reduction in " noises " (he has yet to really say

anything). i am restarting him on the fish oils tomorrow.

Even when taking the NV/EPA/EFA i didn't see any sort of surge in verbal.

1) should i increase inte NV to 2 1/2 scoops?

2) i read in some other posts that there was a mom who added digestive enzymes

into the mix (she stated that her son needed it with the NV). Should I try this?

Only reason for my thinking is my son besides the apraxia has PDD-NOS. There has

been several posts in this room about the clinical study of using a digestive

enzyeme for an autism treament due to the fact that autistic kids can't digest

protiens. I called OSU for info about this study-they said it is for a

pancreatic digestive enzyme you sprinkle of food. They said to be apart of the

study, he couldn't be on the NV or fish oil at all. I am not planning on doing

this actual study, but i know you can buy digestive enzymes at GNC.

3) -have you found any differences between the dosages given to straight

" apraxic " kids vs. autistic/apraxic kids?

Thanks in advance

[Guest guest]

Hi ,

I have part of your survey results you sent in to Pursuit of Research and you

listed surges in a number of areas that were also noted by the professionals

-and said you noticed them in 10-14 days. Are you saying that you saw surges

then and then no longer? The following are a few quotes from your survey report

-there were more. Let me know if you wrote this or if this was then and now the

surges stopped?

~~~~~~~~~~~~~~~~~~`

9. Have your child's surges been reported to you by any of the

professionals that work with him/her through therapy or school?

Yes

10. Are the professionals that work with your child aware your child

is taking NutriiVeda?

Yes

1. Improved Speech Skills:

Oral motor skills(jaw,lips,tongue)

Other (please specify) - Went from nonverbal to saying baba

2. Improved oral motor disfunction

Overall coordination of jaw, lips and tongue

3. Improved receptive language skills: (comprehension of….)

Following directions

Direction/Instruction (from parent, at school, at a job)

4. Improved expressive language skills: (production/use of….)

Frequency of speech

5. Improved pragmatic (social) skills:

Eye contact

Engagement with others

Following gaze/pointing

Interactions with friends/family

Turn taking

~~~~~~~~~~

Let me know first of all if the above is what you wrote!!!

We didn't move the survey over yet -but you can find it here

http://pursuitofresearch.org/survey.html

direct link

http://www.surveymonkey.com/s/pursuitofresearch Will be on our new site soon.

if you never saw surges then it is possible your child is one of the rare

non responders- but if you were seeing surges which is appears you were and then

no longer you may want to raise the dosage from the one scoop up to one and a

half or even two.

=====