Guest guest Posted October 31, 2010 Report Share Posted October 31, 2010 , I think this group is a mix of what works/what doesn't as well as the emotional aspect. Goodness knows that we all have those moments where we fall into the depths of despair.(i liken it to a roller coaster ride) I've had my moments over the years where I just can't seem to come out of the funk. I usually try to get my crying done at night in bed and hopefully I'm ok the next day because my son really needs me to be there for him in full advocate mode. Some days it works....some days it doesn't. I really do try to stop comparing my son to the other kids in his class because that's where I really get myself in trouble emotionally. I concentrate on how really lucky we are because when my son was little I was told over and over again that he would never talk, and now I find myself hoping for a moments peace! I'm glad you're seeing a therapist....I needed help too when my son was younger and I didn't have anyone to talk to. But I know this is a very caring group and we all " get it " when it comes to the emotional side of parenting special needs. You can email me privately if you like as well. things do get better sandy ________________________________ From: laura919 <lapatini@...> Sent: Sun, October 31, 2010 12:28:51 PM Subject: [ ] Support groups?  I know that this group is geared more toward sharing the details of what we are doing with our kids and what works and what doesn't, but I was wondering if any of you have found good online " support " groups for dealing with the emotional aspects of parenting special kids. My son specifically seems to have a type of language disorder, which also presents with " uneven cognitive development " and some autistic characteristics. We don't fully know what we're going to be dealing with as the years pass. He's in a little preschool program now, and it's just so hard seeing the other kids, and what they can do and say. And Halloween (we celebrated last night) was hard. I also have an older child whose OCD is flaring up at the moment, so I have my hands full and I guess I'm feeling it right now. I know this isn't the place to ask for " that kind " of support, although you guys are all very nice and it helps just reading about all the things we're all trying with our kids, So where do you go for help with the emotions? I'm personally seeing a therapist, but I need something specific to the parenting stuff, I think. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2010 Report Share Posted October 31, 2010 I just want to also share a hotline number that I believe is awesome in that it's there for ANYONE in this group for ANY reason! Hotline number 1(800) 448-3000 24/7 http://www.boystown.org/national-hotline Below is some info off the site: National Hotline Call our national hotline for immediate help. 1(800) 448-3000 24/7 http://www.boystown.org/national-hotline Help At The End Of The Line Over the past 20 years, the Boys Town National HotlineSM has helped more than 8 million teens, parents and families. We've heard from callers just how much the Hotline has helped them, giving them hope when their situations seemed hopeless. We invite you to check this site regularly for videos and other helpful resources. The Boys Town National HotlineSM is open 24 hours a day, 365 days a year and staffed by specially trained Boys Town counselors. Parents, teens and families can find help with the following: * Suicide prevention * Sexual abuse * Parenting troubles * Anger * Physical abuse * School issues * Chemical dependency * Relationship problems * Depression * Emotional abuse * Runaways * And much more Spanish-speaking counselors and translation services, representing more than 140 languages, are available, along with a TDD line (1-800-448-1833) that allows counselors to communicate with speech-impaired and deaf callers. Two-year call helps mom and son Parenting is a tough job. When you have questions, we have answers. Call the Boys Town National HotlineSM any time, day or night, to find help with your parenting questions. Watch the video to find out all the ways we can help. National Hotline Call our national hotline for immediate help. 1(800) 448-3000 24/7 http://www.boystown.org/national-hotline ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2010 Report Share Posted November 1, 2010 I agree that it's hard to know where advice ends and support starts as who here has not cried or has not feared for their child's future or got frustrated at an iep meeting or angry with comments people make about your child? I know I'm not the only one and that's what I like about reading the messages here, I know I am not alone. I am a private person and sometimes I don't need to have anything other than that to make me feel better. My son has really improved with therapy and fish oils and his pediatrician approved NV months ago and we do plan to start that too (I hear Santa may bring some!) Kate > > , > > I think this group is a mix of what works/what doesn't as well as the emotional > aspect. Goodness knows that we all have those moments where we fall into the > depths of despair.(i liken it to a roller coaster ride) I've had my moments over > the years where I just can't seem to come out of the funk. I usually try to get > my crying done at night in bed and hopefully I'm ok the next day because my son > really needs me to be there for him in full advocate mode. Some days it > works....some days it doesn't. I really do try to stop comparing my son to the > other kids in his class because that's where I really get myself in trouble > emotionally. I concentrate on how really lucky we are because when my son was > little I was told over and over again that he would never talk, and now I find > myself hoping for a moments peace! > > I'm glad you're seeing a therapist....I needed help too when my son was younger > and I didn't have anyone to talk to. But I know this is a very caring group and > we all " get it " when it comes to the emotional side of parenting special needs. > You can email me privately if you like as well. > > things do get better > sandy > > > > > ________________________________ > From: laura919 <lapatini@...> > > Sent: Sun, October 31, 2010 12:28:51 PM > Subject: [ ] Support groups? > >  > I know that this group is geared more toward sharing the details of what we are > doing with our kids and what works and what doesn't, but I was wondering if any > of you have found good online " support " groups for dealing with the emotional > aspects of parenting special kids. > > > My son specifically seems to have a type of language disorder, which also > presents with " uneven cognitive development " and some autistic characteristics. > We don't fully know what we're going to be dealing with as the years pass. He's > in a little preschool program now, and it's just so hard seeing the other kids, > and what they can do and say. And Halloween (we celebrated last night) was hard. > I also have an older child whose OCD is flaring up at the moment, so I have my > hands full and I guess I'm feeling it right now. > > I know this isn't the place to ask for " that kind " of support, although you guys > are all very nice and it helps just reading about all the things we're all > trying with our kids, > > So where do you go for help with the emotions? I'm personally seeing a > therapist, but I need something specific to the parenting stuff, I think. > > Thanks, > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2010 Report Share Posted November 2, 2010 Thanks, guys. > > > > , > > > > I think this group is a mix of what works/what doesn't as well as the emotional > > aspect. Goodness knows that we all have those moments where we fall into the > > depths of despair.(i liken it to a roller coaster ride) I've had my moments over > > the years where I just can't seem to come out of the funk. I usually try to get > > my crying done at night in bed and hopefully I'm ok the next day because my son > > really needs me to be there for him in full advocate mode. Some days it > > works....some days it doesn't. I really do try to stop comparing my son to the > > other kids in his class because that's where I really get myself in trouble > > emotionally. I concentrate on how really lucky we are because when my son was > > little I was told over and over again that he would never talk, and now I find > > myself hoping for a moments peace! > > > > I'm glad you're seeing a therapist....I needed help too when my son was younger > > and I didn't have anyone to talk to. But I know this is a very caring group and > > we all " get it " when it comes to the emotional side of parenting special needs. > > You can email me privately if you like as well. > > > > things do get better > > sandy > > > > > > > > > > ________________________________ > > From: laura919 <lapatini@> > > > > Sent: Sun, October 31, 2010 12:28:51 PM > > Subject: [ ] Support groups? > > > >  > > I know that this group is geared more toward sharing the details of what we are > > doing with our kids and what works and what doesn't, but I was wondering if any > > of you have found good online " support " groups for dealing with the emotional > > aspects of parenting special kids. > > > > > > My son specifically seems to have a type of language disorder, which also > > presents with " uneven cognitive development " and some autistic characteristics. > > We don't fully know what we're going to be dealing with as the years pass. He's > > in a little preschool program now, and it's just so hard seeing the other kids, > > and what they can do and say. And Halloween (we celebrated last night) was hard. > > I also have an older child whose OCD is flaring up at the moment, so I have my > > hands full and I guess I'm feeling it right now. > > > > I know this isn't the place to ask for " that kind " of support, although you guys > > are all very nice and it helps just reading about all the things we're all > > trying with our kids, > > > > So where do you go for help with the emotions? I'm personally seeing a > > therapist, but I need something specific to the parenting stuff, I think. > > > > Thanks, > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2010 Report Share Posted November 2, 2010 , I've found over the years that this group talks about almost anything that anyone needs to talk about from therapy,home crafts,education, diets,poops(ha ha),and all the why's where's, what's and how's of our kids. I don't know of any other groups but there are many compassionate people here that you can share the pitfalls and accomplishments that we all go through trying to help our children. I wish you the best , Cheryl > > I know that this group is geared more toward sharing the details of what we are doing with our kids and what works and what doesn't, but I was wondering if any of you have found good online " support " groups for dealing with the emotional aspects of parenting special kids. > > My son specifically seems to have a type of language disorder, which also presents with " uneven cognitive development " and some autistic characteristics. We don't fully know what we're going to be dealing with as the years pass. He's in a little preschool program now, and it's just so hard seeing the other kids, and what they can do and say. And Halloween (we celebrated last night) was hard. I also have an older child whose OCD is flaring up at the moment, so I have my hands full and I guess I'm feeling it right now. > > I know this isn't the place to ask for " that kind " of support, although you guys are all very nice and it helps just reading about all the things we're all trying with our kids, > > So where do you go for help with the emotions? I'm personally seeing a therapist, but I need something specific to the parenting stuff, I think. > > Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2010 Report Share Posted November 3, 2010 Sandy, I just wanna say thank you for the inspiring words. I can relate to all of what you said in here. , I wanted you to know that you’re not alone and I agree with Sandy… things do get better. Have you tried reading something about RDI (Relationship Development Intervention)… it’s a very powerful parent-driven program and it may have answers to what you are looking for in terms of parenting and all the emotions involved in parenting special needs kids (and even adults too). Hope you feel better. Beth From: [mailto: ] On Behalf Of sandy lehmann Sent: Sunday, October 31, 2010 1:24 PM Subject: Re: [ ] Support groups? , I think this group is a mix of what works/what doesn't as well as the emotional aspect. Goodness knows that we all have those moments where we fall into the depths of despair.(i liken it to a roller coaster ride) I've had my moments over the years where I just can't seem to come out of the funk. I usually try to get my crying done at night in bed and hopefully I'm ok the next day because my son really needs me to be there for him in full advocate mode. Some days it works....some days it doesn't. I really do try to stop comparing my son to the other kids in his class because that's where I really get myself in trouble emotionally. I concentrate on how really lucky we are because when my son was little I was told over and over again that he would never talk, and now I find myself hoping for a moments peace! I'm glad you're seeing a therapist....I needed help too when my son was younger and I didn't have anyone to talk to. But I know this is a very caring group and we all " get it " when it comes to the emotional side of parenting special needs. You can email me privately if you like as well. things do get better sandy ________________________________ From: laura919 <lapatini@... <mailto:lapatini%40bellsouth.net> > <mailto: %40> Sent: Sun, October 31, 2010 12:28:51 PM Subject: [ ] Support groups? I know that this group is geared more toward sharing the details of what we are doing with our kids and what works and what doesn't, but I was wondering if any of you have found good online " support " groups for dealing with the emotional aspects of parenting special kids. My son specifically seems to have a type of language disorder, which also presents with " uneven cognitive development " and some autistic characteristics. We don't fully know what we're going to be dealing with as the years pass. He's in a little preschool program now, and it's just so hard seeing the other kids, and what they can do and say. And Halloween (we celebrated last night) was hard. I also have an older child whose OCD is flaring up at the moment, so I have my hands full and I guess I'm feeling it right now. I know this isn't the place to ask for " that kind " of support, although you guys are all very nice and it helps just reading about all the things we're all trying with our kids, So where do you go for help with the emotions? I'm personally seeing a therapist, but I need something specific to the parenting stuff, I think. Thanks, Quote Link to comment Share on other sites More sharing options...
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