Re: Permanent Teeth - lack of/poor development

[Guest guest]

Hi -

Unfortunately, I cannot find out if Josh's dental issues are genetic - he was

adopted at 4 days old and the info we had on birthmom was minimal, then we

discovered somewhat inaccurate, and we have nothing on birthdad. That being

said, Josh's dentist also wants to do dental surgery - cut down the gums to

prevent gum disease and tooth rot, pull out a few teeth in hopes that the teeth

will straighten (Josh is simply not a candidate for braces for a lot of

reasons), he's got a couple of front teeth on the bottom that I lovingly refer

to as his " shark teeth " (shark have two rows of teeth - so does Josh right in

the bottom front), and his permanent teeth have had problems coming in

(sometimes not at all). All of these dental issues, particularly the severe

overbite and his very high palate, can and do have an effect on speech

development (as if he didn't need anything else affecting that!).

If you can find any info on whether it's a genetic thing or tied to global

dyspraxia (which Josh has on top of verbal apraxia, dysarthria, and a whole host

of other things), that would be very interesting to know. Thanks for sharing!

Sherry and Josh

> From: winremmerswaal <winremmerswaal@...>

> Subject: [ ] Permanent Teeth - lack of/poor development

>

> Date: Wednesday, October 20, 2010, 9:58 AM

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>  

>

>

>

>

>

>

>

>

>

> Hello, all -

>

>

>

> I am curious to know if any parents/advocates/medical

> community members could speak to any experiences their

> children/students/patients may have encountered with respect

> to poor development of permanent teeth in children with

> developmental disabilities.

>

>

>

> Let me provide a brief back-story: my 6-year old daughter

> was diagnosed with global development dyspraxia several

> years ago. Over time, there have been a variety of medical

> issues that she has endured that all seem to have the same

> common denominator of growth immaturity (examples: minor

> loss of hearing, strabismus corrective surgery, genetic

> testing, etc.).

>

>

>

> Yesterday, she had a dentist's appointment in which

> X-rays provided the troubling news that her existing molars

> had poor root development. Additionally, the X-ray showed

> that the manner in which her permanent teeth were developing

> beneath the gums was likewise deficient. If this root

> development does not improve over the next few months, we

> will need to consult with a periodontist to consider issues

> such as possible gum disease, or worse-case, surgical

> options for bridge implantation.

>

>

>

> The issue that my wife & I are trying to circle back to

> & connect the dots is: is the lack of root development

> tied to genetic history within the family tree, or can it be

> tied back to her diagnosis? My wife & I are researching

> both sides of the issue (i.e. reviewing the family tree'

> dental history, consulting with our daughter's

> pediatrician, etc.).

>

>

>

> We would truly appreciate any thoughts or comments if

> others have seen this. Please feel free to post responses

> or e-mail me at winremmerswaal@....

>

>

>

>

> Many thanks.

>

>

>

> -

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi ,

 

My son is 12 diagnosed with severe oral and verbal

dyspraxia,sid,hypotonia. My son has been seeing a dentist since a toddler. My

son also has since early on had many issues come up with his health, Mys on also

has had had very issues with lack of development in different areas. He has had

some lack of bone growth also for instance he is age 12 but his bone age

actually age 8. His height and weight are way off also (he is low on the growth

charts height wise he is still off the chart meaning below the 5th pecentile and

the weight he is a little above that. When we first went to the dentist x-rays

revealed surprising results. My son has an under developed jaw and his mouth is

small his adult teeth are also coming in small sized. He only at age 12 has 6

adult teeth . The rest are baby ones still. Some of the adult teeth are there

but some of the molars are not yet. The x-rays show that the baby teeth may

never fall out on their own for they have roots

attached to them. The dentist says that he will lose baby teeth til age 16 or

older. The adult teeth at coming in far apart with gaps in betwwen them. There

is also small tiny cavities forming between the teeth which is due to the baby

teeth not falling out the way they should.

 

We are facing possible oral surgery here also. Surgery to remove abby teeth and

maybe more. Wait and see what happens at this point. His teeeth are the right

size and the over bite is not bad right now.

 

I think lack of poor development in our case is a very good definition for

.. He is and has shown a lack of development ina ll areas at some point in time.

We have vsited many specialists and he has had a full MRI of the body.results

normal except the brain scan showed abnormalties to the speech center.

 

Good luck.

 

Jeanne and

NH

From: winremmerswaal <winremmerswaal@...>

Subject: [ ] Permanent Teeth - lack of/poor development

Date: Wednesday, October 20, 2010, 10:58 AM

 

Hello, all -

I am curious to know if any parents/advocates/medical community members could

speak to any experiences their children/students/patients may have encountered

with respect to poor development of permanent teeth in children with

developmental disabilities.

Let me provide a brief back-story: my 6-year old daughter was diagnosed with

global development dyspraxia several years ago. Over time, there have been a

variety of medical issues that she has endured that all seem to have the same

common denominator of growth immaturity (examples: minor loss of hearing,

strabismus corrective surgery, genetic testing, etc.).

Yesterday, she had a dentist's appointment in which X-rays provided the

troubling news that her existing molars had poor root development. Additionally,

the X-ray showed that the manner in which her permanent teeth were developing

beneath the gums was likewise deficient. If this root development does not

improve over the next few months, we will need to consult with a periodontist to

consider issues such as possible gum disease, or worse-case, surgical options

for bridge implantation.

The issue that my wife & I are trying to circle back to & connect the dots is:

is the lack of root development tied to genetic history within the family tree,

or can it be tied back to her diagnosis? My wife & I are researching both sides

of the issue (i.e. reviewing the family tree' dental history, consulting with

our daughter's pediatrician, etc.).

We would truly appreciate any thoughts or comments if others have seen this.

Please feel free to post responses or e-mail me at winremmerswaal@....

Many thanks.

-

[Guest guest]

I never linked this to being special needs for my older son Dakota -but he has a

slight nightmare going on with his permanent teeth as well. One of my best

friends is Dakota's orthodontist and she and Dakota's oral surgeons (yes he has

more than one!!!) linked it to the traumatic birth injuries where he had crushed

head, and facial damage as a newborn from numerous attempts at high forceps

which went directly over his face, not to mention the torn neck muscles and head

damage from the numerous attempts at the vacuum and trying to manually turn him

as he was transverse and too large for the birth canal (MY birth canal!!) So

yes lovely they almost killed the both of us -but we both made it through- but

yes Dakota's teeth. Let me try to explain what is going on. He had teeth

growing that had no room to come down, teeth growing over other teeth.

Dakota's got something called iBraces http://www.ibraces.com or same site

http://www.hiddenbraces.com which go behind his teeth and I got a really good

deal on them as Bibi is my friend -but they are super expensive -made of gold or

something! But...they are more like a prescription type of braces as they are

custom made for Dakota's mouth. He needed to have surgery not only to remove

teeth but to have a chain attached to one tooth in particular that needed to be

pulled down from the abyss of - well it was high up there! My friend said that

if we didn't have the money for braces as we do -Dakota was at risk for facial

deformity as his teeth came in- and I believe that. Bibi is funny -she used to

put her hands to her mouth and shake her head looking at Dakota's mouth -it made

her nervous. Today however she is thrilled with the progress ibraces and

surgery have brought Dakota. We are fortunate in that he has Bibi - a great

orthodontist and two great oral surgeons that have worked together to get

Dakota's teeth on their way to normal. Not there yet- it may take a few more

years- but what a nightmare it was.

But I don't believe this has to do with special needs only because Dakota was

perfectly healthy and fine up till the doctor who just graduated from medical

school as my doctor was on vacation tried to deliver a baby that is transverse

not as a section (no I didn't sue -but I could have- she didn't know any better

and I wanted to focus on Dakota's getting better not focus on what was wrong

with him -if he did end up disabled, MR, limbs not growing or any of the other

things the neurologists said he was at high risk for -then yes. Thank God we

didn't have to) So like Dakota's ADHD diagnosis which we have helped him with

over the years with fish oils and now with NV too -the nightmare teeth are the

least of the issues that could have been for his today. Early Intervention is

what I credit to Dakota's success for his major issues- fish oils and NV for the

ADHD- and Bibi (Dr. Ramos) and the oral surgeons for his teeth!

BTW -Tanner my apraxic child -his teeth are straight -no issues.

=====