Re: 25 month old who continues to throw up

[Guest guest]

Hi

Do you think this is some form of detox? Does your son still have an appetite?

You can go to this group GFCFKids  and they will probably

have an answer for you!

AJ

From: elizabeth7899 <elizabeth7899@...>

Subject: [ ] 25 month old who continues to throw up

Date: Thursday, February 18, 2010, 9:00 PM

 

My son, has been dx with oculamotor apraxia and has delays in all development

area. He started throwing up at the end of Decemeber and still continues to this

day, including tonight. I started him on a GFCF diet with probiotics,

multi-vitamin, and NN Omega 3-6-9 January 7th. Although the supplements and diet

have made huge improvements, he still continues to throw up every other week. I

started him on NV Wednesday, February 17th. I did stop the multi-vitamin when I

started NV.

He has had an ultrasound that showed only normal results and the ped doctor gave

me ZANTAC to give to him last week. My son made it past the 10th day in

rotation, which would have been the normal day that he thows up. I decided not

to give him Zantac because he was doing so well, developmentally and physically.

We mad it all the way to day 15 in rotation with no throwing up. Tonight, day

16, he threw up, not as bad as previous times.

I want to continue NV and give it a chance to do it's nurishment on my son.

Any suggestions on what could be causing the problem? Should I continue NV? (I

really want to, if it is safe for my condition.)

[Guest guest]

Hi and welcome! I looked up the symptoms and was your child ever

checked for Cyclic Vomiting Syndrome? " Cyclic Vomiting Syndrome (CVS) consists

of recurrent, stereotypic episodes of incapacitating nausea and vomiting lasting

hours to days and separated by symptom-free intervals, which typically last

weeks or months "

http://www.biomedcentral.com/1741-7015/3/20

May also want to read

http://digestive.niddk.nih.gov/ddiseases/pubs/cvs

There are a number of message boards and doctors recommended on them for this

one condition but don't know if this is what is going on. The one thing that

looks promising is that it appears CVS if that is what it is is a metabolic

disorder and the nutriiveda supports the metabolic system -but think we are

crossing uncharted territory as this has never come up here before. From what I

read if it is CVS it is rare. I did read the following doctor specializes in

CVS- he's all over many blogs on this condition (don't know him in any way -but

can't hurt to call -he did publish http://www.biomedcentral.com/1741-7015/3/20 )

Dr. J. Feldman, MD

8635 West 3rd Street

Los Angeles, CA 90048-6106

(310) 652-8031

Being that your son was only on the nutriiveda for one day (yesterday) and since

this has been going on since the end of December I personally -as you stated-

think it'll help with putting nutrients back into the body! I'm sure you shared

with his doctor- what did he or she say?

I wish I had more to say -perhaps someone else has more? Best of luck!

=====

[Guest guest]

Hi and ,

As an SLP who specializes in working with kids that are picky (<30 foods) or

problem (<20 foods) eaters, I would HIGHLY recommend an appt w/a GI doctor,

if you have not yet had one. It's important to see if your son's vomiting

is medical, sensory, behavioral, or a combo. Often eating difficulties

start as a medical issue with sensory issues but progress quickly to having

behavioral components. Your son's difficulties may or may not be an eating

difficulty---that is why you need to have the medical issues evaluated by a

GI doctor.

I can't dx CVS but I do know of another SLP whose son has CVS. I don't

remember all the details-look at this info:

http://digestive.niddk.nih.gov/ddiseases/pubs/cvs/index.htm

Cheri Fraker, whose son has CVS (controlled), is an SLP who ironically works

with kids who are picky eaters. (as I do) She has some helpful info on her

blog--- www.cheriandlaura.blogspot.com

There is a GI doc who diagnosed Cheri's son---

Mark Fishbein MD

Associate Professor of Pediatrics

Northwestern University's Feinberg School of Medicine

Division of Gastroenterology, Hepatology, and Nutrition

Attending Physician, Children's Memorial Hospital

1.800.KIDS DOC (1.800.543.7362)

Let us know what you discover. J As others have said, if the NV is helping,

continue it.

Warmest wishes,

Barbara

Barbara A. , M.S., CCC-SLP

Executive Director/ Help Me Speak, LLC

<http://www.helpmespeak.com/> http://www.helpmespeak.com

(o) 410-442-9791 (f) 410-442-9783

2500 Wallington Way; Suite 103

Marriottsville, MD 21104

follow us on FaceBook:

http://www.facebook.com/pages/Marriottsville-MD/Help-Me-Speak-LLC/1046288520

32

Call me with any questions about NutriiVeda! www.hms.myzrii.com

From:

[mailto: ] On Behalf Of kiddietalk

Sent: Thursday, February 18, 2010 11:33 PM

Subject: [ ] Re: 25 month old who continues to throw up

Hi and welcome! I looked up the symptoms and was your child ever

checked for Cyclic Vomiting Syndrome? " Cyclic Vomiting Syndrome (CVS)

consists of recurrent, stereotypic episodes of incapacitating nausea and

vomiting lasting hours to days and separated by symptom-free intervals,

which typically last weeks or months "

http://www.biomedcentral.com/1741-7015/3/20

May also want to read

http://digestive.niddk.nih.gov/ddiseases/pubs/cvs

There are a number of message boards and doctors recommended on them for

this one condition but don't know if this is what is going on. The one thing

that looks promising is that it appears CVS if that is what it is is a

metabolic disorder and the nutriiveda supports the metabolic system -but

think we are crossing uncharted territory as this has never come up here

before. From what I read if it is CVS it is rare. I did read the following

doctor specializes in CVS- he's all over many blogs on this condition (don't

know him in any way -but can't hurt to call -he did publish

http://www.biomedcentral.com/1741-7015/3/20 )

Dr. J. Feldman, MD

8635 West 3rd Street

Los Angeles, CA 90048-6106

(310) 652-8031

Being that your son was only on the nutriiveda for one day (yesterday) and

since this has been going on since the end of December I personally -as you

stated- think it'll help with putting nutrients back into the body! I'm sure

you shared with his doctor- what did he or she say?

I wish I had more to say -perhaps someone else has more? Best of luck!

=====

[Guest guest]

Hi,

Has your son had been tested for food allergies?  My NT son had the same

symptoms at about the same age and it turned out to be allergies to soy,

eggs as well as about 25 other foods. We pulled these foods out of his diet,

and he was fine (although the epi-pen is always near).

Marlowe

Mom to Jimmy (14), (10 - food allergies), and (8 -

Apraxia/PDD/Polymyositis)

[Guest guest]

Good advice Barb -the doctor's name I provided is also a GI doc -and apparently

knowledgeable about CVS. From what I read many doctors don't know what it is

(not that I would have either if not for Google!) It's good because now you and

I both provided names of doctors that have knowledge in CVS and they'll be able

to provide perhaps names of GI doctors near where lives if she needs

one.

I do not suspect it is food allergies -they wouldn't come and go like clockwork

every other week since late December! Same for just about anything else I found

that is obvious anyway.

Actually however now that I'm reading her message again I suspect the doctor she

has already suspects it or else why would Zantac which is one of the medications

used in CVS to " help calm the stomach by lowering the amount of acid it makes be

prescribed? "

http://digestive.niddk.nih.gov/ddiseases/pubs/cvs/#treatment

Here's just one of the reasons I provided info for Dr. Feldman

(from a blog from NORD)

" Dr. Feldman's info:

J. Feldman, M.D.

telephone: (310)652-8031

He does not take insurance. But, he does make phone appointments and it might be

possible that you would not need to travel to be treated by him. He also knows

of reputable doctors throughout the country who are knowledgeable about CVS, and

might be near you. "

http://www.inspire.com/groups/rare-disease/discussion/cyclical-vomiting-syndrome

And more and more post about this one doctor on this blog -and check other ones

for CVS- he's the guy (and the one on that paper I just posted -and again yes he

is a GI doc) Apparently he's been a key doctor for many with CVS His name is

almost linked to CVS due to his patients and I guess his research -you can't pay

for that type of recommendation.

=====

[Guest guest]

There is a new concept in allergy relief. A 2 second laser point set to

frequency of allergy item removes physical distress to item. This is how

understand it. Check out www.BioVedaOFYardley.com  Beth Ann ShanksMSCCC/SLP

www.speechacademyllc.com

[Guest guest]

Not meaning to hijack, but my 35 mo old son is an extremely picky eater. When

you say under 20 items, do you count the ingredients or the item? i.e. an

omelet only made a certain way is one food item, or you count the onion, egg and

cheese as three although they are not consumed any other times.

I'm suspecting I have a problem eater.

[Guest guest]

Thank you so much for responding. This is great information to take to my

doctor!! I am going to start him on the zantac, keep him on nutriiveda and give

it a chance to work!

My son is actually a very good eater. He will eat anything that I put on his

plate! Normal foods that I feed him are...carrots, green beans, corn, peas,

baked chicken, baked pork chop, turkey burgers, fish sticks, chicken

fingers, soy yogurt and pudding, waffles, cereals, and all kinds of fruit. I

can not find one common denominator in all his incidents of throwing up.

We have an appt in March to see a DAN! doctor for the first time, that will run

all of food allergey panels and other test.

Thank you so much for responding!

Springfield, MO 

________________________________

From: Barbara <helpmespeak@...>

Sent: Fri, February 19, 2010 12:09:29 AM

Subject: RE: [ ] Re: 25 month old who continues to throw up

 

Hi and ,

As an SLP who specializes in working with kids that are picky (<30 foods) or

problem (<20 foods) eaters, I would HIGHLY recommend an appt w/a GI doctor,

if you have not yet had one. It's important to see if your son's vomiting

is medical, sensory, behavioral, or a combo. Often eating difficulties

start as a medical issue with sensory issues but progress quickly to having

behavioral components. Your son's difficulties may or may not be an eating

difficulty-- -that is why you need to have the medical issues evaluated by a

GI doctor.

I can't dx CVS but I do know of another SLP whose son has CVS. I don't

remember all the details-look at this info:

http://digestive. niddk.nih. gov/ddiseases/ pubs/cvs/ index.htm

Cheri Fraker, whose son has CVS (controlled) , is an SLP who ironically works

with kids who are picky eaters. (as I do) She has some helpful info on her

blog--- www.cheriandlaura. blogspot. com

There is a GI doc who diagnosed Cheri's son---

Mark Fishbein MD

Associate Professor of Pediatrics

Northwestern University's Feinberg School of Medicine

Division of Gastroenterology, Hepatology, and Nutrition

Attending Physician, Children's Memorial Hospital

 1.800.KIDS DOC  1.800.KIDS DOC ( 1.800.543.7362  1.800.543.7362 )

Let us know what you discover. J As others have said, if the NV is helping,

continue it.

Warmest wishes,

Barbara

Barbara A. , M.S., CCC-SLP

Executive Director/ Help Me Speak, LLC

<http://www.helpmespeak.com/> http://www.helpmespeak.com

(o) 410-442-9791 (f) 410-442-9783

2500 Wallington Way; Suite 103

Marriottsville, MD 21104

follow us on FaceBook:

http://www.facebook.com/pages/Marriottsville-MD/Help-Me-Speak-LLC/1046288520

32

Call me with any questions about NutriiVeda! www.hms.myzrii. com

From: @groups. com

[mailto: @groups. com] On Behalf Of kiddietalk

Sent: Thursday, February 18, 2010 11:33 PM

@groups. com

Subject: [childrensapraxiane t] Re: 25 month old who continues to throw up

Hi and welcome! I looked up the symptoms and was your child ever

checked for Cyclic Vomiting Syndrome? " Cyclic Vomiting Syndrome (CVS)

consists of recurrent, stereotypic episodes of incapacitating nausea and

vomiting lasting hours to days and separated by symptom-free intervals,

which typically last weeks or months "

http://www.biomedcentral.com/1741-7015/3/20

May also want to read

http://digestive. niddk.nih. gov/ddiseases/ pubs/cvs

There are a number of message boards and doctors recommended on them for

this one condition but don't know if this is what is going on. The one thing

that looks promising is that it appears CVS if that is what it is is a

metabolic disorder and the nutriiveda supports the metabolic system -but

think we are crossing uncharted territory as this has never come up here

before. From what I read if it is CVS it is rare. I did read the following

doctor specializes in CVS- he's all over many blogs on this condition (don't

know him in any way -but can't hurt to call -he did publish

http://www.biomedce ntral.com/ 1741-7015/ 3/20 )

Dr. J. Feldman, MD

8635 West 3rd Street

Los Angeles, CA 90048-6106

 (310) 652-8031  (310) 652-8031

Being that your son was only on the nutriiveda for one day (yesterday) and

since this has been going on since the end of December I personally -as you

stated- think it'll help with putting nutrients back into the body! I'm sure

you shared with his doctor- what did he or she say?

I wish I had more to say -perhaps someone else has more? Best of luck!

=====

[Guest guest]

I should also mention that when I say x # of foods, I am looking at how many a

child has in each of 3 categories: proteins, veggies/fruits, carbs

IF there are not 10 in each one, there MAY be an eating concern. BUT I look at

the whole child and family, NOT just the food.

Warmest wishes,

Barbara

Barbara A. , M.S., CCC-SLP

Executive Director/ Help Me Speak, LLC

<http://www.helpmespeak.com/> http://www.helpmespeak.com

(o) 410-442-9791 (f) 410-442-9783

2500 Wallington Way; Suite 103

Marriottsville, MD 21104

follow us on FaceBook:

http://www.facebook.com/pages/Marriottsville-MD/Help-Me-Speak-LLC/104628852032

Call me with any questions about NutriiVeda! www.hms.myzrii.com

From:

[mailto: ] On Behalf Of

Sent: Friday, February 19, 2010 4:13 PM

Subject: Re: [ ] Re: 25 month old who continues to throw up

Thank you so much for responding. This is great information to take to my

doctor!! I am going to start him on the zantac, keep him on nutriiveda and give

it a chance to work!

My son is actually a very good eater. He will eat anything that I put on his

plate! Normal foods that I feed him are...carrots, green beans, corn, peas,

baked chicken, baked pork chop, turkey burgers, fish sticks, chicken fingers,

soy yogurt and pudding, waffles, cereals, and all kinds of fruit. I can not find

one common denominator in all his incidents of throwing up.

We have an appt in March to see a DAN! doctor for the first time, that will run

all of food allergey panels and other test.

Thank you so much for responding!

Springfield, MO

________________________________

From: Barbara <helpmespeak@... <mailto:helpmespeak%40verizon.net>

>

<mailto: %40>

Sent: Fri, February 19, 2010 12:09:29 AM

Subject: RE: [ ] Re: 25 month old who continues to throw up

Hi and ,

As an SLP who specializes in working with kids that are picky (<30 foods) or

problem (<20 foods) eaters, I would HIGHLY recommend an appt w/a GI doctor,

if you have not yet had one. It's important to see if your son's vomiting

is medical, sensory, behavioral, or a combo. Often eating difficulties

start as a medical issue with sensory issues but progress quickly to having

behavioral components. Your son's difficulties may or may not be an eating

difficulty-- -that is why you need to have the medical issues evaluated by a

GI doctor.

I can't dx CVS but I do know of another SLP whose son has CVS. I don't

remember all the details-look at this info:

http://digestive. niddk.nih. gov/ddiseases/ pubs/cvs/ index.htm

Cheri Fraker, whose son has CVS (controlled) , is an SLP who ironically works

with kids who are picky eaters. (as I do) She has some helpful info on her

blog--- www.cheriandlaura. blogspot. com

There is a GI doc who diagnosed Cheri's son---

Mark Fishbein MD

Associate Professor of Pediatrics

Northwestern University's Feinberg School of Medicine

Division of Gastroenterology, Hepatology, and Nutrition

Attending Physician, Children's Memorial Hospital

1.800.KIDS DOC 1.800.KIDS DOC ( 1.800.543.7362 1.800.543.7362 )

Let us know what you discover. J As others have said, if the NV is helping,

continue it.

Warmest wishes,

Barbara

Barbara A. , M.S., CCC-SLP

Executive Director/ Help Me Speak, LLC

<http://www.helpmespeak.com/> http://www.helpmespeak.com

(o) 410-442-9791 (f) 410-442-9783

2500 Wallington Way; Suite 103

Marriottsville, MD 21104

follow us on FaceBook:

http://www.facebook.com/pages/Marriottsville-MD/Help-Me-Speak-LLC/1046288520

32

Call me with any questions about NutriiVeda! www.hms.myzrii. com

[Guest guest]

Hi

My son was mis diagnosed with congenital ocular motor apraxia. He had

head jerks which were mistaken for head thrusts. He also had cyclical

vomiting. It turned out he had Tourette's caused by a post streptococcal

infection. A course of penicillin quickly cured the vomiting and the

head thrusts which which were in fact huge tics. Unfortunately it took

ages (10 years old ) to get diagnosed because he had global

developmental delay. Everyone who saw him said, " oh well it's just part

of his undiagnosed syndrome.... "

In the two years following diagnosis his speech came along in leaps and

bounds. He still has a long way to go but the strep didn't help.

I hope you find an answer soon

JudithUK

[Guest guest]

What kind of doctor did you see to get this dx?

Also, I am unfamiliar with strep. How does one get a strep infection. My son was

born 2 months premature and needed nothing but a feeding tube. He did have heart

apnea and was given... excuse my spelling, " anapholan " . Thanks so much for

letting me know!

Sent via BlackBerry from T-Mobile

[ ] Re: 25 month old who continues to throw up

Hi

My son was mis diagnosed with congenital ocular motor apraxia. He had

head jerks which were mistaken for head thrusts. He also had cyclical

vomiting. It turned out he had Tourette's caused by a post streptococcal

infection. A course of penicillin quickly cured the vomiting and the

head thrusts which which were in fact huge tics. Unfortunately it took

ages (10 years old ) to get diagnosed because he had global

developmental delay. Everyone who saw him said, " oh well it's just part

of his undiagnosed syndrome.... "

In the two years following diagnosis his speech came along in leaps and

bounds. He still has a long way to go but the strep didn't help.

I hope you find an answer soon

JudithUK

[Guest guest]

both Barbara SLP and I posted names of GI doctors

(gastroenterologist) who diagnose CVS. The doctor I posted -Dr. Feldman, has

published papers in this area and apparently is one of the leading doctors for

this condition. Vomiting every other week for months -that's not a sign of any

food allergies I know of! (unless every other week you feed him exactly the

same food he's allergic to???)

Here's just one message board that talks about Dr. Feldman

Dr. Feldman's info:

J. Feldman, M.D.

telephone: (310)652-8031

http://www.inspire.com/groups/rare-disease/discussion/cyclical-vomiting-syndrome\

/

=====

[Guest guest]

Hi

Strep infection is a bacterial throat infection that circulates in the winter

time. Most children will get over it in a few days and suffer no ill effects.

But in rare cases some children have an auto immune reaction post infection. It

is often referred to as PANDAS.

http://intramural.nimh.nih.gov/pdn/web.htm

It's not a well recognised condition and we had to see a neurologist for

diagnosis.

Obviously it's not the only cause of vomiting, it's just that my son was

vomiting regularly with it.

Judith