Re: Hello All - My 22 month old has been given an Apraxia Dx

November 17, 2010

How much does he weigh?

[ ] Hello All - My 22 month old has

been given an Apraxia Dx

I have read the reseach on Fish Oils and Fatty Acid and would

like to start Tucker on them - he has been in speech therapy for 3

months now and has gone from saying nothing to saying BYE BYE, DADA, and

MAMA, and learning about 15 signs (Sign Language)which is great, because

is frustration level has come down a lot. His receptive language is

great, he is truly a smart little guy, just want to see if starting him

on a fish oil regimen will help bring out some more word. If you have

the names of the best products and where to get them, I would love for

someone to supply those names for me.

Thanks,

Brett

November 17, 2010

That's awesome Brett that he's starting to say words so quickly! Most with

speech impairments have normal receptive and cognitive ability, and 75% of " late

talkers " are just that -children that speak developmentally a bit later. Why do

they suspect apraxia? Has he been seen by any neuromedical doctors (pediatric

neurologist or developmental pediatrician) to check for any " soft signs " such as

low tone, sensory or motor planning deficits in the body? Anything else? It

would have to be a knowledgeable professional that would diagnose as we as

parents and even some pediatricians can't always pick the soft signs up early.

As again speech impairments don't have anything to do with receptive or

cognitive ability they know what is expected of them -which is very little when

they are little. But if you don't get the appropriate therapies to address any

other issues through Early Intervention -these are the kids that first are

diagnosed when it's obvious to all -even lay people -and typically school

age...so yes to know sooner is better.

If it's a developmental delay with or without therapy or fish oils speech will

just come in -but just a bit later. Thing is you don't want to take a wait and

see approach because if there is an impairment you want to get therapies as

early as possible. So awesome you are on it with therapy and advocacy for your

22 months old!! Here's a basic archived message from our facebook page

http://www.apraxia.org and the direct link to Fish oils 101

http://www.facebook.com/topic.php?uid=115029735601 & topic=7401

There is no set dosage for children as you'll read -but in general one capsule

of ProEFA is about what the FDA approved for infant formula -so a capsule of

ProEFA would be a good start point. Again more info on that link.

Here's more " new member " info that may help I just posted here that may help:

If your

child is apraxic that would mean the inability to perform on command- and that

goes for speech, sounds, words, as well as actions -motor planning in the body.

The sticking out the tongue could be a sign of oral apraxia as well -so will

want to check that out -here's some info on that

http://www.cherab.org/information/speechlanguage/oralapraxia.html

If you let us know what state of country you are in we may be able to get you

help as far as local support. There may be parents or professionals in your

area that will be able to recommend private SLP or neuroMDs to you to help you

advocate for appropriate placement and services if needed going ahead.

Regardless of the diagnosis (which by the way does sound like apraxia) there is

SO much hope that your child will be able to be mainstreamed in school and life.

I know that is a huge fear of ours when our kids are little -but statistics as I

say below -are extremely high in our group. A distinguished group you are now a

part of! So welcome to you and good for you!

Below is a bit more info which may help too, after reading all of this we are

here to help more!

First of all congratulations for being so " on it " when your child is still such

a young age. Because of you, it is my belief that your child's future prognosis

is bright!! What you are describing in symptoms is actually more advanced than

my son Tanner was at the same age...in fact even after almost a year of therapy

from 2 to 2 years 10 months my son was not able to make just about any sound

except " ma " and " mmm " In therapy we would have to sing this " silly song " and act

like a ghost and say " boooo " to get Tanner to attempt the sound " ooooo " and a

conductor of a train and say " choo choo " to get Tanner to attempt the sound " ch "

(yes not kidding -that severe) but...he wasn't able to put them together to say

" choo " He didn't have the ability to say that simple little sound -even with a

professional SLP working with him a number of times a week. Tanner also was

diagnosed with hypotonia, dysarthria (weakness in the facial structure for

speech) apraxia including oral, verbal and through out the body...apraxia being

a motor planning disorder- the inability to do or say something on command -as

well as sensory issues of course. That's the short list. And yes as

suggested you probably will have genetic testing done by some of the

neurologists -most in our group do. A decade ago most of us found no answers

there -today due to better testing we are learning there are some chromosomal

deletions or additions that may play a part -but being that in some cases one of

the normal functioning parents have that same chromosomal issues as the child

-it's still too new to answer questions as what to do with that information.

What we do know is yes get the testing, but the most important thing at your

child's age is appropriate diagnosis to secure appropriate placement and

services (therapy)

There is so much hope for any child with a speech impairment or delay or any

sort. And again especially because you are out searching so young- again good

for you and your child! There are things you can do to help too; in addition to

what the therapist can provide to you to do as " homework " there are many fun and

effective things to do at home to help your child. Have you read the book I co

authored -The Late Talker? Here's a clip of parent tips I wrote for Contemporary

Pediatrics which is the trade magazine for pediatric medical professionals

across the US which covers things to do at home

http://contemporarypediatrics.modernmedicine.com/contpeds/data/articlestandard//\

\

contpeds/492004/136315/article.pdf

I have a new member archive up on this facebook group http://www.apraxia.org/

page- and if you check the discussion board here there are many other new

members with children around your child's age. What's awesome about facebook is

that you can ask the other parents to be your friend- and it's your choice and

theirs whether you do or don't " friend " someone. Here is just one new member

archive http://www.facebook.com/topic.php?uid=115029735601 & topic=13085 or

http://www.facebook.com/topic.php?uid=115029735601 & topic=7329 but there are so

many others if you check the discussion board topics at this site.

Just a few things to point out when you take your child for second opinions with

a speech pathologist, a neurodevelopmental medical doctor (pediatric neurologist

or developmental pediatrician) and even occupational therapist- all of which I

recommend you secure private outside of EI -through insurance. We have a chapter

in The Late Talker book on how to help with coverage and there is also a topic

in the discussion area here with a wealth of info on this -here is a direct link

to this topic http://www.facebook.com/topic.php?uid=115029735601 & topic=13830

=====

November 17, 2010

He is 31 lbs and 34 inches tall.

>

> How much does he weigh?

>

> [ ] Hello All - My 22 month old has

> been given an Apraxia Dx

>

> I have read the reseach on Fish Oils and Fatty Acid and would

> like to start Tucker on them - he has been in speech therapy for 3

> months now and has gone from saying nothing to saying BYE BYE, DADA, and

> MAMA, and learning about 15 signs (Sign Language)which is great, because

> is frustration level has come down a lot. His receptive language is

> great, he is truly a smart little guy, just want to see if starting him

> on a fish oil regimen will help bring out some more word. If you have

> the names of the best products and where to get them, I would love for

> someone to supply those names for me.

>

> Thanks,

>

> Brett

>

November 17, 2010

Hi,

Thanks for getting back to me so quickly. We had him tested by the local

CDSA when he was 18 months because my wife just had a feeling the something was

wrong. When he was tested, he tested at a 30 month old level for fine and gross

motor, which was great, but when it came to speech and social - he was on a 10

month old level. His social has come a long way with OT once a week and

playschool 4 hour/2x a week, although he still doesn't really like playing with

kids his age (he more or less just watches and then play by himself). We were

worried that he fell on the autism spectrum, but after his therapist have worked

with him they said he is not on that spectrum and is normal other than his

speech delay. CDSA said that he qualified for ST, so we started him 2x a week.

The thearpist that he goes to specializes in Apraxia and says that he

demontrates a lot of the symtoms of verbal Apraxia, although she said it wasn't

a 100% dx. She said that she would not feel comfortable give a concrete DX until

he was 30-36 months. She mentioned the Nordiac Naturals fish oils and I was just

wanting to get some feed back on people that have tried it and find out where

the best place to purchase it would be.

>

> That's awesome Brett that he's starting to say words so quickly! Most with