To Robin

[Guest guest]

HI Robin,

Welcome to the list. I just had to write you and tell you about my

daughter, who had the great good fortune to be diagnosed early with her

OCD, at age 5. The things you have written about your relationship with

your daughter struck me so deeply as being so like our situation before

diagnosis.

Like Kathy H. and others have stressed, there is much hope before you.

Two years ago I was angry at my little daughter nearly every day! She

clung to me like velcro and it got to the point where I couldn't even

carry on a conversation with others during my daughter's waking hours.

How well I understand the anger you describe and the intense feelings of

suffocation and frustration. I used to look longingly at the other

little babies who would sit calmly in their strollers and watch the

world go by, while mine was non-stop fussing and demanding eye contact,

singing, holding, talking, etc. every moment.

andra exhibited a great deal of anxiety from her toddler years on

and was very nearly diagnosed with separation anxiety. However, the

first therapist I went to was a sharp diagnostician and ultimately

realized that my daughter feared separating from me because I was her

one and only comfort and coping mechanism against the OCD, which was the

eventual diagnosis.

She now does CBT therapy and takes Prozac. OCD is an incredible

challenge for her each day but I can truthfully say that, with

treatment, she is truly happy, possibly for the first time in her short

life. This wonderful list was an incredible source of information for

us and I hope it will be for you, too.

Take care,

Lesli (San Francisco Bay)

[Guest guest]

Hi Robin,

Best of luck to you and Carly at Montessori school. Her desire to overcome her

separation anxiety at school is a wonderful motivator and perhaps the most

important ingredient for success. It sounds as if you have made some good

progress in spite of the tactile defensiveness with clothing. Remember--it's

often two steps forward, one step back so focus on the forward movement!

My daughter Kelsey had recurrent scary dreams of fire for years before OCD

onset. These were brought on by some canyon wildires that came very close to our

home and wiped out a number of homes in our area. She also had a fear of

volcanoes based on nothing that I could understand, even refusing to step foot

on Mount Hood when we were in Oregon last winter, because it " used to be " a

volcano.

Since CBT though, I haven't heard about fire dreams in almost a year. I'll have

to check in about the volcanoe phobia with her.

Take care,

in San Diego

[Guest guest]

HI Robin,

As said, I too think Carly's desire to be at school will work

greatly in her favor. My own formerly very timid daughter is highly

motivated by peer pressure. (This is great now, but scares me to think

about her teen years!)

andra is now six and a half, and experienced moderate to severe

tactile defensiveness from ages two to five. I would now classify her

tactile problems as mild. In our case, CBT did not work for her tactile

issues with clothing, even though it has and does work beautifully for

her OCD.

I'm not sure what has lessened her tactile defensiveness: Prozac,

increased maturity, some mystery force, or a combination of all three.

Perhpas now that treatment for OCD has greatly lowered her overall

anxiety, she is better able to tolerate the tactile stuff. My husband

has the same issues with clothing, but manages to survive through a

combination of 100% cotton clothes and very expensive shoes! (

Hang in there Robin, it will improve. Congratulations to you and Carly

for all your hard work.

Take care,

Lesli (San Francisco Bay)

[Guest guest]

Message was mis-sent. Sorry about that

Jim B

[Guest guest]

Robin,

I've thought of something else. Do you know what an F-Scan is? It's

a device that has Dr. 's and the Rife frequencies on it. When

you expose a living thing to it's own frequency, you kill it. That

is what the Zapper does for parasites, and the F-Scan and the Rife

Machine do it for a wider range of things. The F-Scan can run a scan

of your body and list what the most common frequencies are in your

body. (In other words, living entities in your body). Then you set

it to that frequency, and basically " zap. "

You could do this for flukes, worms, and bacteria. I have the link

if you want it. I posted it before.

If you tell me what state you live in, (you can e-mail me privately),

I can try to find out on the Rife group or from Amrein of the

Dr. Association, who has one of these devices and if they would

be willing to hook you up to it to kill your tapeworm.

The tapeworms are in one frequency range, like 444 KHz's, so you

could be sure of what you're targeting.

I don't know what kind of die off symptoms you would expereince once

the thing is dead....

Let me know if you want me to ask. I think the essiac tea may take

too long, and I question if it really does work on something that

size. I don't know, but the above is another shot.

[Guest guest]

Could we please have properly labeled posts here?

, you seem to be a person of boundless energy and resources. is it

really so hard for you to include a subject line on your posts?

Robin G.

[Guest guest]

In a message dated 12/23/02 9:21:34 AM, jekteachme@... writes:

<< Another 'butt question'.....I have the low butt pain and back of the leg

pain in both legs and both cheeks..but the tender spot on the hip (where the

sciatica starts) is only on one side....does that make sense? was it the same

for you? Once again thanks so much for being ther >>

One can never get too many butt questions lol. To be honest, I don't remember

if the hip pain was only on one side or both. I just remember having the hip

pain. I suppose on some months one side was worse than the other side (I know

that doesn't exactly answer the question, but it's been a while, thankfully,

since I've had that particular pain). Since taking the Topamax, the spasming

has been sooooo much better and it's really been quite some time since I've

had to have a pyraformis injection. Sorry sweetie, just can't remember but I

suppose it's possible...

[Guest guest]

In a message dated 12/23/02 5:44:44 PM, Ckelly@... writes:

<< Hi Jan,

I'm not Robin....nor do I play her on TV <G> Thankfully, the New Year is

right around the corner! We will be waiting to hear some good news!

>>

ROFLMAO

xoxoxooxxo

Robin

[Guest guest]

>Spent all morning making doctors appointments...of course noone can see me

>before the new year...oh well.>>

Hi Jan,

I'm not Robin....nor do I play her on TV <G> Thankfully, the New Year is

right around the corner! We will be waiting to hear some good news!

Ask me about my new MSM lotion for aches/pains!

http://www.scentsappeal.net

[Guest guest]

Tonia, Hi, It's me again, Jeanie Uhlik, sooooo glad to hear you are

feeling better. Has the new fill kicked in and have you started

loosing that last horrible 10 lbs. Me? I still have 47 to loose, but

still hangin' in there, it's only been since 9/14/07, so I guess I'm

not doing too bad. My friend I was telling you about (the one that

lost her band...she had a baby too, ooops!!! She already had 3 girls

but Robbie is a God send and she is so happy now. She is considering

the sleeve, but now she has insurance (we'll see how far she gets

there, she'll probably be seeing Dr. A again before the end of the

year!!! (lol)

Best, Jeanie (246/193/145) dob 9/14/07

[Guest guest]

Hello Tonia, Good to hear from you. Did you gain much weight when you where pregnant? It sounds like you had a healthy babygirl. My daughter had her little girl on May 7th. That mad number 6. She seems to be doing good with her weight. I am still not as good as I should be but its not from eating to much. I can't eat much. My band is as tight as it can be. I'll get it off but, I need this year to get it off. I do wish he had not put a large band on me. What did you do when you got the flu? Are you able to throw up? I am suppose to have a total knee replacement in Aug and I am wondering if I can have surgery and if I will get sick will the band effect that when they put me to sleep for surgery. G'Day, Robin Send me a note back.Tonia Telles

<toniatelles@...> wrote: Robin,Sorry to hear you aren't doing as well as you had hoped. Maybe the diabetes has something to do with it? I had my daughter back on Feb 9, her name is Olivia Rose and I don;t mean to brag too much but you could not tell I even had a baby the day I walked out of the hospital. I have been really successful with my band, but maybe you are having a hard time because you had the larger band? Also, I wasn't sick because I was overfilled, I actually had a flu

so I feel much better now! Tonia Telles From: rbnsohlercalif Date: Thu, 24 Apr 2008 16:21:59 -0700Subject: Re: Re: Can't keep anything down.... Too Tight ...but scared to Unfill. Hi Tonia, So you had your baby. 9 months goes by fast. I still haven't gotten to my goal and it has been a year and I am working on my 2 year. I have only lost 30 lbs and now I can't seem to lose anymore. I keep working at it but, I am still injecting alot of insulin and taking close to 20 meds a day. Nothing much has changed except People tell me I look good. What did you have? A Girl or a boy? So you are at your weight goal. I went to get several fills and I

can't eat much so I must be eating the wrong thing. I can eat just about everything except not bread. The last time I was filled they told me that they couldn't fill me anymore but, I don't feel tight. I do however throw up sometimes. I am not sure what my problem is but I want to lose another 50 lbs. Glad to hear you are at your goal. Robin I lived in Las Vegas and now live in Oregon.toniatelles <toniatelles > wrote: I was doing fine. My last fill was April 2007 then I got pregnant and had a baby in February. After this I was fine until 2 days ago, now I can;t even keep doen liquid. I have awful reflux. I am at my goal weight now of 141 but I don't want to lose any more weight.Any suggestions?I started at around 340 pounds back in July 2006 when I had

surgery.Advise please!Tonia>> Hi, Mish...> > Jeanie Uhlik here. I had a fill on the 3rd of April. I think it > wasn't quite an overfull, but close to it. My problem was that I > scratched the stoma or upper stomach by taking my meds like I > normally did (chunked up instead of in powder form). Boy, did I pay > for that, (still am) At the airport I had such chest pains and > couldn't keep anything down, I immediately called Dr. A's office. I > spoke with there. She told me to fast 9 hours then go > entirely on liquids for 2 days, starting with chamomile tea. Well, > that seemed to work, but when I went back on "mushies" I got BPing > again, and my chest hurt so bad, I called back on

Tuesday the > 8th. She told me to stay on straight liquids for a week, that I had > probably brused my stomach.> > Here's the kicker, I am on a "coctail" of pain meds for 2 unsucessful > back surgeries. I have to take 2 10/325 hydrocodone, 1 soma and 1 > xanax 3 times a day, also my high bloodpressure meds. All > the "pulverized-powdered pills" were still irritating my upper > stomach. So I called my pain specialist at home he agreed to see me > on an emergency basis the next day. He gave me a high dose pain med > that melts in my mouth 3 times a day to replace the hydrocodone > (vicodin), thus reducing the amount of powdered drugs I had to > ingest - also put me on a high bloodpressure patch I change once a > week.> > Well, here it is 3 weeks out and I am better, but also 20 lbs > lighter!!! I still have trouble sometimes in the morning

swallowing > anything solid. I can only eat standing up (go figger')otherwise it > gets stuck. I have determined not to go back, because there is no > blood in my "slime" and the stomach will probably just shrink to the > size it needs to be for this fill. I still have 50 lbs to go, so I > believe that relieve is just around the corner. > > Hang in there and take care of your band, since you are so close to > your goal, maybe your stomach will shrink to fit this band and that > will be then end of ever having to have a fill again, that is just my > guess. If anything, even though Dr. A's people didn't do your fill, > you should probably call his office and get his teams opinion, > couldn't hurt you know > > Bye for now, God Bless> Jeanie Uhlik (246/194/145) new BMI 34.4!!!!!> Be a

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[Guest guest]

Robin -

looking forward to hearing how the evaluation goes Monday!  I have reached out

to Betsy Fester (I think that's her name) and am going to talk to her about what

she does, etc.  After your evaluation depending on how things go I may reach out

to your therapist as well!  I know money is no issue with our kids - but

unfortuantely Betsy doesn't take Medicaide, so if I can find someone who does

and is a good PROMPT therapist then I will for sure reach to them!  Our

insurance bites, and when you have a child who needs all 3 (PT, ST, OT) and

multiple hours a week of it, the 30 total sessions Insurance allows goes really

fast!  But again - if I have to, we will find a way to pay for it - anything for

my baby!

Becca goes in for Tube Surgery (2nd go around) on Monday, so I'm hoping once

that is taken care of things will improve more for her!

Look forward to hearing from you Monday!  Good luck!

  Cristal

gtzellner@...