Guest guest Posted November 12, 2010 Report Share Posted November 12, 2010 Madelyn was dx with apraxia by 2 SLPs and a neuro, but we wanted a more thorough evaluation to use for our next round of testing for the school district, so we had a private, out of pocket eval with a neuro that works with the developmental pediatricians in our local children's hospital. She won't say that Madelyn has apraxia, and even said that most parents use the diagnosis to get more services. The doctor said that she can't dx apraxia yet because of her global delays and hypotonia (she wrote apraxia-high risk). That apraxia occurs by itself most of the time, and the fact that she has other issues decreases the possibility that she has apraxia. What????? That wasn't my understanding, and doesn't seem to be the case in this group. She said she could send me descriptions of apraxia, as if I haven't done a TON of research. She wants us to come back in 3 months and check her progress. Hmmmm, maybe not. So frustrating, and money wasted. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2010 Report Share Posted November 12, 2010 Ahhhh, yes. The neurologist. Same experience with my daughter. He decided she just has ADD, and should be medicated. Keep in mind, she is 5 and he saw her for a total of about an hour... I understand your pain. [ ] evalution vent Madelyn was dx with apraxia by 2 SLPs and a neuro, but we wanted a more thorough evaluation to use for our next round of testing for the school district, so we had a private, out of pocket eval with a neuro that works with the developmental pediatricians in our local children's hospital. She won't say that Madelyn has apraxia, and even said that most parents use the diagnosis to get more services. The doctor said that she can't dx apraxia yet because of her global delays and hypotonia (she wrote apraxia-high risk). That apraxia occurs by itself most of the time, and the fact that she has other issues decreases the possibility that she has apraxia. What????? That wasn't my understanding, and doesn't seem to be the case in this group. She said she could send me descriptions of apraxia, as if I haven't done a TON of research. She wants us to come back in 3 months and check her progress. Hmmmm, maybe not. So frustrating, and money wasted. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2010 Report Share Posted November 12, 2010 This is why I believe that parental recommendation is so important -and not just from one parent. If you find a support source and you are speaking to someone who's child is making progress, receiving appropriate therapies and placement that would be one to ask who is recommended. If you don't have a local support group you can ask here -just put the state or country in the subject. Like anything there are those that graduate at the top and those that shouldn't even have squeezed through for a degree but all are called " Dr. " Like a good SLP -the best are hard to get appointments with, can be more expensive, but priceless for what they bring in the way of therapy, support, and guidance. As I've said before: I seek those professionals that are: 1. Respected in the community by other doctors as well as patients 2. NOT alarmists -I'm hyper enough, I like common sense MDs. 3. Open minded to out of the box and new ideas and still learning. 4. Out of the box him or herself! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2010 Report Share Posted November 14, 2010 I too had the same experience from our neurologist. My daughter has the soft neuro signs too - hypotonia, sensory issues. He said her " apraxia " is just a name to describe a group of symptoms that she displays which is just a piece of a bigger puzzle- probably genetic but don't know what. I continue to follow the advice in lisa's book bc so far the medical community has continually failed us. Sent from my iPhone On Nov 12, 2010, at 4:08 PM, " D. Meyer " <mmeyer@...> wrote: > Ahhhh, yes. The neurologist. Same experience with my daughter. He > decided she just has ADD, and should be medicated. Keep in mind, she is > 5 and he saw her for a total of about an hour... > > I understand your pain. > > > [ ] evalution vent > > > > > Madelyn was dx with apraxia by 2 SLPs and a neuro, but we wanted > a more thorough evaluation to use for our next round of testing for the > school district, so we had a private, out of pocket eval with a neuro > that works with the developmental pediatricians in our local children's > hospital. She won't say that Madelyn has apraxia, and even said that > most parents use the diagnosis to get more services. The doctor said > that she can't dx apraxia yet because of her global delays and hypotonia > (she wrote apraxia-high risk). That apraxia occurs by itself most of the > time, and the fact that she has other issues decreases the possibility > that she has apraxia. What????? That wasn't my understanding, and > doesn't seem to be the case in this group. She said she could send me > descriptions of apraxia, as if I haven't done a TON of research. > She wants us to come back in 3 months and check her progress. > Hmmmm, maybe not. > So frustrating, and money wasted. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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