Awareness is good if it's accurate!!!

[Guest guest]

" Karsen had apraxia, an uncommon neurological disorder that in his case meant he

had the cognitive ability of a child half his age. "

http://www.lenconnect.com/features/x1270136011/-family-shares-experiences-\

after-son-s-diagnosis-with-apraxia

This article refers to the what I consider cruel name " childhood apraxia of

speech " (or CAS which stands for the same thing) which implies either apraxia

will be outgrown in childhood, or as in the case of this article that there is

some sort of " developmental " or " childhood " limited ability of neurological

function...which I didn't believe would negatively affect children until they

were teens and adults and it's part of their school and medical records that

they have " childhood apraxia of speech " If I were any of you with CAS or

Childhood Apraxia Of Speech in your child's records I would get it removed

immediately and switched to just " apraxia " or " vebal apraxia " or even " apraxia

of speech " etc. I have all my life an ability to see things before it hits the

fan, so if you don't do this don't say I didn't warn you. Again when my son

Tanner was diagnosed in 1999 there was no CAS or childhood apraxia of speech

-there was DAS and developmental apraxia of speech -and we GOT RID OF IT!!! for

many reasons...so who brought it back?!! Not this group!!!

The UK had it right with just calling it " dyspraxia " Radcliffe (Harry

Potter) grew up and still has " dyspraxia " Can anyone imagine the horror for him

if in the UK the articles came out as they would saying that - the star of

Harry Potter grew up with and still suffers from childhood dyspraxia (of ___ not

sure of what his diagnosis were but fill in the blanks and make the name longer

and longer and even more ridiculous)

Awareness for apraxia is ONLY good if the information is accurate and what we

want to share. I would rather there was no article at all than one that implies

apraxia affects cognitive function (to half the age) and that it's " rare "

Apraxia is NOT rare!!! There are way more with apraxia than autism and there

are so many with autism that have apraxia and yet you don't see them calling

autism rare! You know why? Because apraxia as of now has no monies yet. Which

is why we are working on this with our " Pursuit of Research "

http://pursuitofresearch.org/pursuit.html

If anyone would like to know more information about what we are raising monies

for email me at lisa@... or call me 772 335 5135 if you'd like to help.

We together are not just a walk, we are a movement!

=====