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Re: Please help child in Virginia!!!!

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Oh and PS -if you don't know when...I'd send them a letter that states what they

promised to you to document it in writing because currently it's just a promise

and means absolutely nothing and say something like:

Date

Re: IEP for ____(your son's name)

" Dear ____,

Thank you for taking the time to meet with me regarding my 4 year old son ___

who has unintelligible speech. I wanted to clarify our discussion from ____

(date) when I was told that ____ (son's name) did not qualify for the _____(name

of school's) preschool early intervention program, but that he is currently (why

not assume haha) qualified to receive one on one therapy a " few " days a week

according to _____ (name the person that stated this if it's not the one you

write the letter to -or just say " you " )

I would like to know in writing however why my son ____ is not qualified for the

preschool program so that I can share it with professionals that know more about

this than I do.

Since our meeting I have decided to pursue private evaluations for ____ (name of

son) as I am not sure how he can not be eligible for the preschool program yet

is eligible for one on one speech therapy services a " few " days a week. I'd

also like in writing to know how many days a week of one on one speech therapy

you believe is appropriate for my son when you said a " few " and would like to

have all of this in his IEP so we can get started.

I very much appreciate all you are doing to help ____ (your son's name) Up till

meeting with you I had been in denial and thank you for pointing out that due to

his speech disability he is qualified for one on on services a few days a week.

You have made me aware that I have to take this serious today and I want to

thank you for that! (yes have fun with it- you can always have fun with IEP

letters and laugh as you write them too)

Please contact me back at your earliest convenience for an IEP meeting for

____(son's name) so that I can get him started with the one on one speech

therapy as soon as possible.

Thank you again!

Sincerely,

____ (of course you and if married your husband's name here)

Start your paper trail now -and take a tape recorder to any meetings...you know

because...well tell them because you are new to all of this and will be sharing

it with the private professionals you will be taking your son to. The school

won't put anything in writing that is against what your child is entitled to.

You want to know why he isn't qualified for the preschool program.

And up to you if you want to throw in that you have read The Late Talker book

and you have been speaking with me :)

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Thanks Barbara,

4 hours away is a bit much for me, so hopefully there is someone nearby. On

Thursday, we get the results of the evaluation, but from what I understand, the

only thing he qualified for was speech. They decided almost immediately that he

didn't qualify for the preschool program, which surprised me. Honestly though,

one-on-one is what I wanted, so I am fine with that.

Gwen

> > >

> > > Oh girl we'll get you up to speed here!!! Yes you want the school to be

involved but no...they are not the ones you go to for the evaluation -please

don't leave it up to them alone! Clearly from what you wrote your child should

have been getting occupational therapy OT already. Funny thing about our kids is

that they do seem " normal " until they start getting older and not able to keep

up. Cognitive and receptive ability does not necessarily have anything to do

with diagnosis. In fact your child can be have a genius IQ and have impaired

speech. One has nothing to do with another and your child still needs a

diagnosis. That's why I didn't say developmental delay because the older they

get the less likely it's developmental. And the thing is the older they are when

you seek appropriate diagnosis and therapy the less time you have to get them up

to speed by kindergarten. Please consider not starting kindergarten until your

child is 6 years old -you have time and I have articles on that. So yes your

child does have something other than speech -speech impairment and some type of

gross motor issue -that's two things. And none of us are skilled to know our

kids have " nothing else " wrong. I can share first emails I sent to grouplists

about Tanner -completely normal except he couldn't talk. Ended up Tanner had

oral and verbal apraxia, hypotonia, motor planning deficits in the body and

sensory issues to name a few. Due to early intervention which it's not too late

for your babe to start- my son appears " normal " and has been mainstreamed and a

good student with an active social life since kindergarten.

> > >

> > > About NV -I was looking for any improvements over what he already did..and

in regards to elimination was looking to see if his bowel movements have more of

a foul odor to them than normal -any increase in amount or times of day because

those would be signs of the natural detox from the casein free whey isolate. And

yes let us know if you go to heaping scoops if you notice any changes -if you

don't I'd stop it for a month or so...and I wouldn't start again until you find

a private SLP to work with for your son. It appears there are a few times now

where the professionals are able to notice the surges more than the parents as

odd as that sounds. And then again on the other hand it's possible you have one

of the only children NV isn't working for -but I wouldn't give up yet as the

success rate is that high.

> > >

> > > But again main thing is we need to get you a diagnosis -and the school is

not going to do that. Without an outside evaluation your child will probably be

offered 2 or 3 times a week of group speech therapy -and that's probably what he

has now right? Depending upon your child's severity and diagnosis one on one

therapy may be appropriate.

> > >

> > > Have you read The Late Talker book that I co authored? You need someone to

help you look over the IEP goals set by the school to tell you if they are

appropriate for your child.

> > >

> > > Let us know what state or country you are in and we can see if as a group

we can offer suggestions of good private SLPs and for sure I'd take him for a

neuromedical exam as well with a pediatric neurologist or developmental

pediatrician to confirm or rule out any soft signs that the average parent

doesn't always notice -especially when young. The younger they are when they get

diagnosed and therapy -the better :)

> > >

> > > =====

> > >

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