some questions

[Guest guest]

Dmitry

The effects of PA range widely from person to person.

To qualify for disability assistance can be a long and

difficult process here in the USA. Basically the test

is whether you can work or not. I manage to work

part-time in a bookstore that some friends of mine own

and get along fine with the limited amount of physical

activity this requires. Some people with this disease

can hardly walk or get around, they would probably

qualify for assistance but it might still take a while

to prove that they are indeed disabled. Simply having

this disease is not enough, you must be able to prove

that you can not work by having a doctor show this and

also prove it to government officials. I must add that

I have never been through this process but am just

reporting what people I know have told me. I'm sure

you will get some better answers from others on this

list. As for help with treatment, that also would be

on a as needed basis. I don't have medical insurance

through my part-time job(I could get it if I wanted to

pay for it) but do have it through my wifes good job.

Most people here get medical insurane through their

work and you have no guarentees that this care will

continue beyond your next contract. I know little

about the process of getting the Government to help

with medical care. If you are unemployed and in

serious need I imagine you would find a way.

--- Dmitry Penzin <dmitry@...> wrote:

> Dear Sirs,

>

> want ask you. Is government structure consider human

> who have

> PA invalid? Or this men also must be work as

> ordinary guys?

> Are there government help for medical treatment and

> drugs

> or etc?. Excuse me my bad english. Thanks.

>

> Dmitry, http://www.the-notes.spb.ru

>

>

>

>

>

>

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>

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=====

C McCullough

thelockhorns@...

[Guest guest]

Have you done a food elmination diet to identify what

foods are causing you a reaction? A big key is if

there is any food you " have to " have/crave. If so,

you are probably hypersensitive to it and need to cut

back. Is ingesting the fruit in the protein shakes

causing a physical or mood reaction? Keep a diary,

take notes and document - that way, since everyones

different, you will find your sugar toleranace.

Have you considered granny smith appels or grapefruit?

Also depends where you are in your fight against

candida. Some can tolerate more fruit later on in

their treatment.

> First, I'm drinking a protein shake every night,

> that my naturopath wants me

> to take, to help me sleep through the night. She

> wants me to use

> blueberries, blackberries, or raspberries in it. Is

> that too much fruit on a

> candida diet? It's the only fruit that I eat.

Any processed foods, like Cheerios, is a warning sign

for people with yeast problems. Check the label, if

it has chemicals in it that you wouldn't be using at

home, and/or if it has wheat, flour, or other food

that you have done a food elimination test for, then

you can't have it. Also depends on where are you in

your stuggle against candida. Many folks (from what i

read) can go back to foods that used to cause them

problems. Are you reading up on books like Dr. Crooks

" Yeast Connection " - also try reading Body Ecology

Diet or " Fit for Life "

Best of luck - this is tough stuff. Matty

> And the second question: is Cheerio's okay on a

> candida diet? It only has

> one gram of sugar per serving. Is that too much?

>

>

> lindaj@...

>

>

>

>

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[Guest guest]

Joan,

I have a blood clot in my arm and I had no forwarning. It just blew up

like a balloon and I wound up in the hospital for treatment.

Now they kept asking me if I had pain cause I was not complaining of

any, and there is usually pain with a blood clot.

My humble opinion is to get to your Dr. or call as soon as you can cause

if you do suspect a blood clot it is potentially very serious.

My Dr. put me on Coumadin to prevent the clot from breaking away and

travelling into the lung or my heart.

Please call and speak with your Dr., I have been dealing with mine since

January.

Angera

[Guest guest]

I'm so sorry your daughter is in pain! When I have a painful joint I wrap it

with an elastic bandage, not tight that hurts, just enough to compress the

swelling slightly and rest the joint. I also use hot compresses, moist heat

helps the most for me. I also use several pillows at night to prop up the

painful part/parts, my prized possession is a pair of king size down pillows.

I've learned not to turn over, when turning something will shoot pain

somewhere. Put thick pillows under her knees if she is a back sleeper, the

stress on her low back from laying flat is not good. I'm sure the fatigue she

feels compounds the ability she has to " deal " with the pain see that she has

plenty of " down " time to rest.

I wouldn't hesitate taking her for a second opinion not that her doctor is

wrong, just that someone else may have something to make her more

comfortable.

Ilene

[Guest guest]

Dear Melody,

I was 22 when I was first diagnosed with PA. And when

it first came one it was very painful. As the years

went on the pain decreased. I was told by the doctor

that this is the way it works. Does the DR have your

daughter on anti-inflammatory drugs? I believe

quality of life and I've encountered dr. that would

not give me pain meds for my flare ups. I found

another dr who does give me meds. That kind of pain

effects every aspect of your life and no one should

have to suffer that way. I found that warm baths

before bedtime and when I get up, help me with the

pain. Although I am NOT recommending pain killers and

sitting in the bathtub, unless someone is there with

you. I would ask other drs. about pain meds or even

try to find a pain management clinic in your area.

I've also had some success with accupuncture for pain

management. May I ask what the dr is perscriping now

to " get the PA under control " ?

Take care,

[Guest guest]

Hi Melody,

I can't tell you how much your post has touched my heart.

I know what its like when you toss and turn in bed, never really

getting comfortable and when you do start to drop off you move and it

starts all over again.

I worry about my kids, hoping and praying they won't suffer with the

same things i do.....but its not in our hands and we can only try to

cope with what life brings. Please give a hug from me and tell

her to hang in there. Is she taking anti inflammatory drugs ? maybe

you should consider trying different types until you find some that

help a bit more. I try not to take my pain killers the pain reaches

10 ( I scale the pain 1-10 as it helps my husband to understand it a

bit better ) but when its so bad that even sitting or lying down is

total agony i couldn't live without them.

I think you should push the Dr into giving something for when

the pain is totally unbearable. I understand when you say it came so

fast, its less than a year for me and this time last year i was

making jams and cakes for the school's summer fair, now i can't cut

up food to eat never mind anything else.

Keep giving your love and support,as a mothers love

is a good medicine ( without my mum .....i don't know what i would

do )

Love x

[Guest guest]

Hi Melody,

I first got P when I was 15, I don't think I would have got PA ifI hadn't

got so sick in my 20's with totally unrelated illnesses. I have 3 sisters

and 1 has P and is 40 and has never had PA. I feel that sometimes arthritis

can be triggered by an 'event' in your life - ill health,

stress...emmotional problems. Sometimes it appears to just happen.

Hopefully will be like my friend Cheryl and it will disappear later in

life, if not earlier. Cheryl was so bad that she had to have gold

injections in the heels of her feet and had to get orthodics at 20.....now

I'm the one complaining and she's fine! Painfully so!!! She still has PA,

but it is hardly anything.

In the mean time life must be hell for ...at 36 it can be pretty

terrible with PA....let alone at 14. I have problems at night with pain, a

racing feeling in my body and temperatures...some weeks I have felt

terrible. As you will see from my previous emails I have been on a

diet...while I don't think it will cure the PA it certainly has helped. I

have had a decrease in fatigue, pain and temperature. The hardest thing

trying to work out what to eat.

Kate

[Guest guest]

Please take your daughter for a second opinion. I used to be a pediatric

nurse and still have a few pediatric cases with hospice. There is no excuse

for leaving a child or anyone in pain. Find the nearest medical center,

preferably one that has a rheumatology department and is a teaching hospital

and get a second opinion. Everyone is entitled to a second opinion. I

have seen young children with RA treated with pain medications, for comfort.

If that is not successful get a third opinion. This a terrible disease that

causes adults to suffer. I can't imagine watching a child go through this.

I made up my mind when my husband was diagnosed that I would keep searching

for doctors that could treat this disease and also be sympathetic to it. A

Doctor should never refuse to work with the patient and family for symptom

management and pain management. We are on our third doctor and finally have

met those criteria. Hope this helps. Sharon Inman

[Guest guest]

CHLOE1212@... wrote:

> I also use several pillows at night to prop up the

> painful part/parts, my prized possession is a pair of king size down pillows.

> I've learned not to turn over, when turning something will shoot pain

> somewhere. Put thick pillows under her knees if she is a back sleeper, the

> stress on her low back from laying flat is not good.

Melody, I agree with Ilene's advice here. I had a hip replacement this past

winter and had to

sleep on my back for the first six weeks. To make that more manageable, since up

till then I'd

always slept on my side or stomach, I had no fewer than 4 or 5 soft _feather_

pillows, plus a

couple throw pillows, that I could scrunch up and place under my knees, or under

one knee kind

of angled on it, or between my legs, and especially under my head/upper back.

This let me sleep

sort of inclined and worked amazingly well. Also sometimes I used one to rest my

cheek against,

which kind of fools you into thinking you aren't totally lying on your back (I'm

not making

that up; I learned that from my online hip replacement support group). Even now,

after I can

sleep on either side, I find I'm more rested if I use these pillows as described

(either I'm

getting more middle-aged aches and pains or my shoulders are becoming affected

by the PA, not

sure which).

In any event, I'm truly sorry to hear that your young daughter has this problem,

and in so much

intensity all at once. _Do_ keep seeking the appropriate treatment for her,

which will reduce

or eliminate her pain and inflammation. There are some very different

rheumatologists out

there, and there _is_ at least one who'll know how best to treat your daughter.

--Louise

Tucson

[Guest guest]

Thank you for all your responses. is on Oruvail and Sulfasalazine, she

has already been on 6 different medications. This rhuemy is our second, and

for the most part we like him, except for his stance on pain medications. We

live close to Knoxville, Tn, and we've been told that the closest rhuemy to

us, that our insurance covers, isn't good and to stay away from him. As it

is we go more than 100 miles to the one she sees now. The next closest one

is 175 miles away. I feel sort of trapped, we can't afford to pay for the

doctor on our own. That's why I was wondering about asking our family

doctor. She doesn't have very many bad days, about 1 a month, when she says

the pain's an 8 on a 1-10 scale. Since she's been on her current meds she

hasn't had a really bad day, it's been 3 weeks, I've got my fingers crossed.

I wasn't very assertive with her doctor when I talked to him the first time

about pain meds. And sort of down plays her pain to him, when he asks

how she's been doing she says fine. She doesn't like to tell anyone about

the arthritis, and hates taking meds, though she is starting to get better

about it. At first she wouldn't talk to anyone about it, now she talks to us

about it, and she takes her meds, most of the time, without me having to

remind, or push, her to do it. I think she's starting to come to terms with

it, she just wants to be a normal teenager. It's almost like she's going

through the grieving process, first denial, then anger, and now she's

starting to accept it. If these meds don't work maybe we can gang up on him!

Thanks again for your advice and help,

Melody

[Guest guest]

Hello Melody,

I am a member of onelist and also a member

of the National Psoriasis Foundation (NPF). In order to try to help

you and your daughter, I sent the following email to Ms. White, who

is the contact person dealing with PA in Tennessee; I hope she can

help you. Sincerely, Bill in DC

[Guest guest]

Thank you for all your responses. is on Oruvail and Sulfasalazine, she

has already been on 6 different medications. This rhuemy is our second, and

for the most part we like him, except for his stance on pain medications.

Melody,

by all means your first step should be to confront your doctor with your wishes

for your daughter. However having worked with doctor's some will listen, some

have a control issues and resent not being the decision maker. The doctor that

diagnosed Wayne is a very fine Rheumatologist but once he couldn't control his

symptoms and I asked for a consult he got bent out of joint. I arranged for

the consult at the university of Miami Medical center (150 miles) and I was able

to get my insurance company to pay for the consult. When we came back after

the consult he was cold imagine the nerve of us putting my husbands health above

the feelings of a DR. . I thought who needs this kind of treatment a doctor

should satisfy the needs of his patient unless it is harmful.. You and your

daughter need to be honest about the pain levels with your current Rheumy. Then

you need to ask yourself if it were you would you be satisfied with that care.

I can't stand to watch my husband in pain so we did the consult and took that

info to a 3rd RA who has been very kind and understanding, she is also honest

with the fact that this is at present an incurable painful disease she treats

his disease with all the current medications at her disposal, most of all she

listens to what we are saying. We go over sleep, drug and pain issues at every

visit. Speak to your family doctor about your right to a consult and perhaps

that doctor would treat your daughter based on the reccomendations of the

consulting doctor. I have found out with this disease you have to be

aggressive to get treatment . . Sharon Inman .

[Guest guest]

As to mattresses, I love my tempurpedic. Expensive, though. You can find

them on the web or through tone.

Sorry to hear about your daughter's troubles. Hope this list helps her.

-April

At 10:40 AM 6/29/00 -0400, you wrote:

>Hi, my name is Melody. My daughter has PA, she was diagnosed almost a year

>ago, she is 14 years old. At times she has a lot of pain, sometimes it's so

>bad that she can't get out of bed by herself, or get herself dressed. I

have

>asked her rhuemy about pain medication to help her through those days and he

>said that wasn't the answer, we need to get the PA under control, and that

>she was too young to be on pain medication. As her mother I feel horrible

>knowing she's in so much pain and there's nothing I can do. The rhuemy says

>she can take tylenol, but that doesn't help. I've noticed that some of you

>get your pain medications from your family doctor, and I wonder if I should

>take her into ours? I'm not sure if it would do much good, so far our

doctor

> has left her PA up to the rhuemy. Are there other things that we could do

>to help alleviate her pain? We've tried a lot of over the counter arthritis

>rubs, they do very little, we've tried heating pads, about the only thing

>we've found that does any good is hot baths. She has trouble sleeping at

>nights, and we've thought about getting her a feather mattress, but I'm

>afraid that it won't offer enough support. I've seen a lot of advice on the

>kinds of shoes to wear, what about mattresses? The PA has already started

to

>deteriate 2 joints in her spine, and has affected 2 other places in her

>spine, with no deteriation at this time. It's also in her right hip, right

>knee, left ankle, and left ring finger. Some nights it takes her hours to

>fall asleep, I can hear her tossing and turning because she can't get

>comfortable. I would appreciate any advice. Also, it seems to me that the

>PA has come on so fast. A year ago my daughter was a healthy tomboy,

>climbing trees, playing soccer, etc. Now there are days when she can't even

>get herself dressed, is this normal for PA? I don't understand how it can

>get so bad so fast, and I worry about how much worse it's going to get. I'm

>also worried about my other 2 daughters getting it, they're 17 and 19 years

>old, and both have psoriasis. The rhuemy says that their chances have

>increased because of having it, but not to worry about it. How do you

>not worry about it?

> Kate, your letter to has made me feel better about

>, it's given me hope. It's the first time I've heard about someone

else

>being diagnose with PA that's young like . Thank you for that.

>

>

>

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>Please visit our new web page at:

>http://www.wpunj.edu/icip/pa

>

>We are currently discussing new chat times. moderates a

chat on arthritis at

>www.about.com on Thursday evenings, so check that

>out in the meantime! E mail at RA@... for details.

>

[Guest guest]

--Melody, I'm sorry to hear (read) about your daughter's pain and

discomfort. Under the circumstances in your house, I would check into

getting a water bed or an air bed. Something to think about, anyway.

Now, as far as not giving someone pain medication because of their

age, well in my mind this is baloney. I think a different Internal

Medicine doctor will help and maybe even have some compassion. Good

luck-

Ron

[Guest guest]

In a message dated 09/29/2000 12:30:59 PM Central Daylight Time,

health@... writes:

<< Hi everyone!

Bumble here! Just wana thank everyone for their contribution to

the

list. I been reading and learning so much from all of ur posts!

>>

_______________

What country are you in bumble?

EJ

[Guest guest]

HEY BUMBLE... i know a better way to get rid of guilt......

[Guest guest]

Hi EJ!

You asked what country Bumble in. Moi in Singapore, a small country

near Malaysia and Hongkong.

regards

Bumble

Cheers!

> << Hi everyone!

>

> Bumble here! Just wana thank everyone for their contribution to

> the

> list. I been reading and learning so much from all of ur posts!

> >>

> _______________

> What country are you in bumble?

> EJ

[Guest guest]

Hi Debby

for the last 8 months or so my bloods have been great,for the last year or

so i've felt terrible!i don't have any meds to blame they took me off the

pred/imuran ages ago when it failed to work,so whhhhyyy? my energy is at the

lowest it's been even when my bloods were at their hightest,other symptoms

are strong,what's this about?!one explanation from my doc is the one you

pointed out,that blods only tell part of the story,that only biopsy tells

how the liver itself is doing,but i don't know,it's another wierd thing in a

wierd disease all round,i'll be interested in any other possible

explanations too,meantime i'll be thinking of you debby.

blessings

amber

>From: " dfisher4140 " <dfisher4140@...>

>Reply-

>

>Subject: [ ] Some questions

>Date: Mon, 25 Feb 2002 06:26:45 -0000

>

>Hi all,

>If you've read any of my recent posts you know that all of my blood

>work has been normal for the last 3 mo. That is so great but what I

>don't understand is why am I feeling so lousy? I'm down to 5 mg.

>prednisone and I see my doc next Tues. He has said in the past that

>he wants to try me to get me off of the prednisone. This kind of

>scares me because I've heard of too many people going off only to

>have really bad relaspes. Lately my energy level has gone down

>again. My blood sugars are real eradict. I've also heard that just

>because your blood work is good it doesn't mean your liver isn't

>still being destroyed. Anyone else hear this? In the past my doc

>has talked about doing a laparoscopy (sp?) but I've managed to wiggle

>my way out of it. I really don't want to do it but I guess I need to

>know exactly what my liver is up to. I asked my endocronlogist and

>rhuematologist why I still feel so bad even with great blood work.

>They both said, gee, could it be because you have a liver disorder?

>I have such smart-*sses for doctors. Does anyone else have this

>problem? Harper, I know you haven't been back to work and you

>haven't gotten back to normal. Are your blood work-ups good? This

>is such a strange disease. It seems to effect everyone differently.

>

>Any imput is appreciated.

>

>Lot's of love,

>Debbie/FL

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp.

[Guest guest]

In a message dated 6/3/2003 10:21:17 PM Eastern Daylight Time,

teri1504@... writes:

> I have severe fatigue. It is inteferring with my job. No one seems to

> realize that the ffatigue is almost as bad as the other symptoms from PA. I am

> going to the rhuemy this month. I am goingt o ask about provigil. I have a

> friend who has MS and she takes it. Says it works wonders for her energy

level.

My dr is trying to get that for me right now. In the process of the second

appeal since the insurace turned me down the first time. *sigh*(

Smile,

Becky

[Guest guest]

In a message dated 6/3/2003 9:51:10 PM Eastern Daylight Time,

mayelynn7@... writes:

> . i have severe fatigue. does anyone else have

> fatigue to a severe degree?

Welcome Holly. We all have the fatigue that you are describing. It is

actually a symtom of the PA. I always felt like I was in a fog and I thought it

was my thyroid even though my thyroid levels were in range. Then I found out

that this was also a symtom of PA. It has something to do with your body coping

with the inflamation.

Janet

[Guest guest]

Holly, One thing that you can count on is that all of us are fatigued...to the

bone....deeply, t-i-r-e-d-d-d-d! Shhhh, I just need to go to sleep.

" holly h. " <mayelynn7@...> wrote:

im fairly new here. i have several questions. i have pa, and im 25. i have

had psoriasis since i was 12, and pa, since i was in my teens, i believe.

the pa is all over my body. i have severe fatigue. does anyone else have

fatigue to a severe degree? i take provigil for that, which is a stimulant.

im on azulfidine for my pa . i have just started it im very new to this.

thanks for listening God is good

blessings,

holly

[Guest guest]

In a message dated 21/08/2004 08:19:16 Central Standard Time,

gilpnh@... writes:

> Maybe I will stick to

> chocolates!!!!!

>

I find that eating large amounts of chocolates and whining to my RA Support

group help my symptoms immeasurably! heehee Cary

[Guest guest]

In a message dated 21/08/2004 08:19:16 Central Standard Time,

gilpnh@... writes:

> When on the immunosuppressants, does it make you more suceptible

> to infection as a general rule?

>

Okay, seriously now: I've been on several of these drugs including Remicade

for about 2 years now. I also worked full time plus in hospitals as a floor

nurse/charge nurse during that time. I have been exposed to TB (accidently! I

don't take TB patients due to the Remicade), and many other infectious things

like shingles and drug resistant infections. I have not caught anything...I

was worried when we had a bunch of influenza patients and later a round of

infectious gastroenteritis patients, but I didn't catch anything! HOORAY! Why?

I wash my hands! The single most important thing any of us can do is

thoroughly wash our hands. Before we eat, after we eat, before and after

toileting,

etcetcetc. If you are careful about that and don't make out with anyone who

has an infectious disease, you are helping your odds greatly! Cary

[Guest guest]

Hi! I have done a LOT of changes. There was no way I could continue working,

gosh I could do so little for myself for awhile. I did get a motorized scooter

with my SS back pay, not becuz I could never walk but becuz the scooter allowed

me to go where I wanted to when I wanted to, no matter what, it also helped me

pace myself easier so that if I had to go to the store and a school open house

in the same day- I could. I had a walker but found my wrists could not tolerate

a walker or a cane at all. The nie thing is I have not had to use the scooter

in a few months, now. :-)

I also got a grab bar and seat riser for my toilet, for similar reasons- I do

not need them every day, but having them reduces me having to call out for help.

That meant I could be home alone while the kids were at school. I also got a

grab bar in the tub, altho it has been a long time since I felt safe to take a

bath when I am the only one in the house. When I cook, I am no longer who takes

the roast out of the oven, now who drains the pasta. Even if I CAN handle it,

later I pay for it. I bought electric scissors. I also got a headset for my

cordless phone. (my wrist often cannot tolerate getting a phone to my ear)

I am not sure what I miss most. As my RA hit hard and fast, I was in nursing

school after having been a nurses aide for many years. I never did get to work

as a full fledged nurse. I worked hard, many hours every day and took care of

everything at home alone. I miss independance, I miss working....but I have new

passions, now. My house is now never immaculate, but, my kids love to come sit

on me or next to me and chatter with me. This was not possible working the way I

did.

I felt driven, my husband has been disabled since 1990 and for years I was our

sole source of income, and with 2 disabled kids, we had therapists and what not

in our home often- so I was strict with myself with our house. I was a

different kind of wife and mother than I am now. Now the dishes CAN wait. The

laundry is not gonna go anywhere if I do not do it every single day. I think I

was afraid I was gonna die, by suicide or when the RA settled into a spot in my

throat for a short time...and my husband has AGent Orange cancers....it affected

me hard. If my little guy wants to sit with me and watch a movie nwow, I never

tell him " later "

This is not to say I do not still get upset I have this illness. I do still

have days when I really hate it terribly. I DO miss work, so much. I miss

" being in total charge and control " but I am slowly learning to accept the here

and now better. But, I think it does help I am 45 and not 20 or 25 or

something. My kids are 15, 14 and 9. They are not real little. My family was

complete when this hit so hard....

LOL LOL one change that was really fun was, my big old outside dog died when I

was first sick. I had been thinking about a smaller type dog. We got a bichon

poodle dog tricolor and he rides my scooter, and sits at my side and follows me

all day long. BUT before we got him, I had to make it clear that I did need

help with him- cuz to go outside either front or back, there are 4 stairs. I

was so scared I might not be able to get him out every single time- (although

our back is fenced) so I had to have agreement and cooperation from the whole

family that they would help. They have. :-)

He keeps me amused on my low days when everyone else is at school and I am now

just busy being home.

- In , " " <gilpnh@y...> wrote:

> Hey all, as I read and read the posts I am gleaning information on

> the meds used so that maybe I can talk intelligently when I meet

> my " rheumy " as you call them for the first time in a few weeks. Also

> finding that my insurance dosn't cover alot of them.

> When on the immunosuppressants, does it make you more suceptible

> to infection as a general rule?

> What are some things/lifestlyle modifications, tips that help you

> most? I am one of those highfunctioning overachieving females that

> likes things just so, not as bad as I used to be but I can see now

> that I will have to make adjustments to my lifestyle and mental way

> of thinking to maintain some joy in my life, I think with my current

> way of thinking I can easily make myself miserable.

> I think what I am going to hate to give up, and I will fight it

> til the end, is I love cake decorating, the small projects don't

> seem to bother me but when I do multiple cakes for say a banquet I

> can't use my hands for a few weeks afterwards. Maybe I will stick to

> chocolates!!!!!

> I think most important to me is to try and not let this

> interfere with the children, I don't want to hinder their choices

> because of my problem.

> Any thoughts welcome. Thanx a bunch in MO

[Guest guest]

Sue, you may want to check out the web and read about Vitamin B-17

(Laetrile). I don't know much about it but from what I've read,

it's approach to attacking cancer makes a lot of sense and there are

those who swear by it. It may be an alternative to Caissie's tea.

My best wishes and prayers for your father.

Stan

>

> Hi,

>

> My father has been diagnosed with Stage 3 lung cancer and I'm

> looking for some alternative ideas. I am particularly interested

in

> Essiac (but have read that the lumps can enlarge and harden before

> they break down. I'm sure that would be okay in other areas of

the

> body, but I don't know about the lungs as it could block the air

> passages. I'm wondering if anyone here has or knows of someone

who

> has taken Essiac with lung cancer and what happened with this.

> Also, I am wondering if there are any websites where people have

> discussed their reactions to Essiac.

>

> I have also read about Joanna Budwig and the flaxseed oil/quark or

> cottage cheese diet and am wondering if anyone has tried that with

> some success.

>

> Any other suggestions would be welcome, as well.

>

> Thanks,

>

> Sue