Guest guest Posted October 19, 2010 Report Share Posted October 19, 2010 Oh yes drooling is another lovely area that I am a mom expert on! My oldest son had terrible issues with drooling and in fact if you are interested I have a drooling archive (imagine that!) SO...I know for a fact that drooling has nothing in the slightest to do with fluid intake from what I have seen. In my son's case it had to do with oral motor damage to his facial nerves from birth injury as he had crushed facial nerves, torn neck muscles -extensive damage to the entire face and head etc. which led of course to eating and breathing problems and was quite severe, drooling was the least of his issues to say the least. The funny thing about NV is that it is my opinion it is creating neuro repair but depending upon the individual it may help in one area or another area. I'm starting to think those that don't see the same areas of success there may be other improvements going on...like what you are seeing (and if you aren't sure if it's the school or NV that is helping...stop the NV for a few days- I know the answer based on what I've heard in this group now and what I've seen in my son but new people always doubt it just as they do the fish oils still So...right now perhaps it's working on the oral motor area in your child where we mention increased: FACIAL EXPRESSIONS more non-verbal communication, for oral apraxia more expressions instead of blank stares when not engaged in conversation http://pursuitofresearch.org/pursuit.html and perhaps we need to include drooling? I remember what an issue drooling is...I mean after getting past the more serious life threatening " GLENN DAKOTA JUST STOPPED BREATHING AGAIN AND HIS EYES ARE BULGING OUT AND HE'S TURNING RED.... HELP!! " period which would happen at times if I had him on his back changing his diaper due to the torn neck muscles right after we first brought him home from the hospital (really- most of you thank goodness will never know the horror of what poor Dakota went through) Do I wish I had NV for Dakota? For Tanner as a two year old? You have no idea. And you know what with this study http://www.abc2news.com/dpp/news/health/birth-weight-a-predictor-for-future-chil\ d-development about birth weight -well with Dakota I ate SUPER healthy- juiced, no junk at all. And Dakota was too large for me, and transverse...from what I understand only 2 percent of babies are delivered transverse in the US because it's so dangerous to the mother and the baby...my doctor was on vacation and it was a new doctor just out of medical school who delivered Dakota and we both almost died (just in case any of you wonder why I don't just take advice now from anyone without question and am amazed at how quickly some of you will drop something that is working for " advice " from especially people who I feel have no right in a neurological area- other than as a side addition to a primary neurological medical doctor) Anyway....just wanted to share and admit that I actually deliberately ate poorly, not horrible but I did even eat Mc s when pregnant with Tanner because I was TERRIFIED for both of us that Tanner too would be too large for my birth canal as Dakota was...in my ignorant and at the time still traumatized mind I figured this was the best thing to do -don't eat 'as' well -as that is how most of my friends eat anyway...and Tanner won't grow as much. Tanner wasn't as big as Dakota- but don't even ask what guilt I had as I've expressed her prior to how I ate when pregnant with Tanner vs. Dakota. Then again Tanner's delivery was a cake walk -even had new age music playing at St Barnabas hospital in NJ. Anyway the point being don't ask how horrific it is for me to read in that article that what the baby consumes after birth doesn't have as much impact on the brain as while in utero during brain development. Oh the guilt!!! But you know...NV has been once again to me a life saver in so many ways. I can't imagine either of my boys doing any better than they are in all ways. So....maybe the researchers behind the study just don't know about NV yet -because in my opinion it does not only make up for what was lost during pregnancy, but at least in my son Tanner's case it also clearly corrected whatever regression was created by the massive vitamin e which I also felt so guilty about putting him on...but we live and learn. So sorry this is so far off the topic from drooling but now you see how it is being me the way my mind works. Drooling, Dakota, Tanner etc. ha! But back to liquid intake with NV...there is even liquids in the foods we eat -even bread and crackers! It is an approximate amount we all should consume daily whether or not you are taking NV...it's just that as we all know most of us walk around daily dehydrated. If you 'feel' thirsty -you are probably already slightly dehydrated. I carry a water bottle with me everywhere. But yes -can be juice, milk, watermelon etc. Here's a page on that. http://pursuitofresearch.org/faq.html#serve Again I am currently working on TWO new websites that will cover both NV as well as the importance of whole foods in general for health with as much current research out there all in one place to make it easy...and in hopes to raise awareness that good health doesn't have to be complex and expensive. Right now the only thing that is new is the theory page up at the pursuit site -but stay tuned. ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2010 Report Share Posted October 19, 2010 Yes, I would be very interested in the drooling archive. Thanks. > > Oh yes drooling is another lovely area that I am a mom expert on! My oldest son had terrible issues with drooling and in fact if you are interested I have a drooling archive (imagine that!) > > SO...I know for a fact that drooling has nothing in the slightest to do with fluid intake from what I have seen. In my son's case it had to do with oral motor damage to his facial nerves from birth injury as he had crushed facial nerves, torn neck muscles -extensive damage to the entire face and head etc. which led of course to eating and breathing problems and was quite severe, drooling was the least of his issues to say the least. > > The funny thing about NV is that it is my opinion it is creating neuro repair but depending upon the individual it may help in one area or another area. I'm starting to think those that don't see the same areas of success there may be other improvements going on...like what you are seeing (and if you aren't sure if it's the school or NV that is helping...stop the NV for a few days- I know the answer based on what I've heard in this group now and what I've seen in my son but new people always doubt it just as they do the fish oils still So...right now perhaps it's working on the oral motor area in your child where we mention increased: > FACIAL EXPRESSIONS more non-verbal communication, for oral apraxia more expressions instead of blank stares when not engaged in conversation > http://pursuitofresearch.org/pursuit.html and perhaps we need to include drooling? > > I remember what an issue drooling is...I mean after getting past the more serious life threatening " GLENN DAKOTA JUST STOPPED BREATHING AGAIN AND HIS EYES ARE BULGING OUT AND HE'S TURNING RED.... HELP!! " period which would happen at times if I had him on his back changing his diaper due to the torn neck muscles right after we first brought him home from the hospital (really- most of you thank goodness will never know the horror of what poor Dakota went through) > > Do I wish I had NV for Dakota? For Tanner as a two year old? You have no idea. And you know what with this study http://www.abc2news.com/dpp/news/health/birth-weight-a-predictor-for-future-chil\ d-development about birth weight -well with Dakota I ate SUPER healthy- juiced, no junk at all. And Dakota was too large for me, and transverse...from what I understand only 2 percent of babies are delivered transverse in the US because it's so dangerous to the mother and the baby...my doctor was on vacation and it was a new doctor just out of medical school who delivered Dakota and we both almost died (just in case any of you wonder why I don't just take advice now from anyone without question and am amazed at how quickly some of you will drop something that is working for " advice " from especially people who I feel have no right in a neurological area- other than as a side addition to a primary neurological medical doctor) > > Anyway....just wanted to share and admit that I actually deliberately ate poorly, not horrible but I did even eat Mc s when pregnant with Tanner because I was TERRIFIED for both of us that Tanner too would be too large for my birth canal as Dakota was...in my ignorant and at the time still traumatized mind I figured this was the best thing to do -don't eat 'as' well -as that is how most of my friends eat anyway...and Tanner won't grow as much. Tanner wasn't as big as Dakota- but don't even ask what guilt I had as I've expressed her prior to how I ate when pregnant with Tanner vs. Dakota. Then again Tanner's delivery was a cake walk -even had new age music playing at St Barnabas hospital in NJ. > > Anyway the point being don't ask how horrific it is for me to read in that article that what the baby consumes after birth doesn't have as much impact on the brain as while in utero during brain development. Oh the guilt!!! But you know...NV has been once again to me a life saver in so many ways. I can't imagine either of my boys doing any better than they are in all ways. So....maybe the researchers behind the study just don't know about NV yet -because in my opinion it does not only make up for what was lost during pregnancy, but at least in my son Tanner's case it also clearly corrected whatever regression was created by the massive vitamin e which I also felt so guilty about putting him on...but we live and learn. So sorry this is so far off the topic from drooling but now you see how it is being me the way my mind works. Drooling, Dakota, Tanner etc. ha! > > But back to liquid intake with NV...there is even liquids in the foods we eat -even bread and crackers! It is an approximate amount we all should consume daily whether or not you are taking NV...it's just that as we all know most of us walk around daily dehydrated. If you 'feel' thirsty -you are probably already slightly dehydrated. I carry a water bottle with me everywhere. But yes -can be juice, milk, watermelon etc. Here's a page on that. http://pursuitofresearch.org/faq.html#serve > > Again I am currently working on TWO new websites that will cover both NV as well as the importance of whole foods in general for health with as much current research out there all in one place to make it easy...and in hopes to raise awareness that good health doesn't have to be complex and expensive. Right now the only thing that is new is the theory page up at the pursuit site -but stay tuned. > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2010 Report Share Posted October 19, 2010 The search is down again -but I was able to find this through our BigTent group which doesn't have as great of a search. I know there is more than this -but it's a start for a really great suggestion that worked for us for Dakota: From 2001 Re: Doctors appt. " miracle child " Hi Angi! I have a suggestion about the drooling. My younger son Tanner who has oral and verbal apraxia (and hypotonia and SI) never had a drooling problem-but my older son Dakota who had birth trauma with crushed facial nerves and torn neck muscles among other head and neck injuries had a great deal of breathing, eating and feeding, and drooling problems. When you look at and he is drooling, take your finger and run it down your throat and say " swallow " to remind him to swallow. After awhile, you do not need to say " swallow " you will only have to run your finger down your throat as a sign for him to remind them to swallow. This way it doesn't draw attention to him and embarrass him in public situations. It worked for Dakota-he hasn't drooled in years. I know how scary the neurologist is-not really with Tanner, even though he is the reason I started the Children's Apraxia Network and the CHERAB group-but I know because of Dakota. Even though both of my sons were " late talkers " Dakota's injuries were life threatening and could have been life disabling. Dakota's therapy began at birth. His one neurologist some of you in NJ may know Dr. DeSouza -who is wonderful. When Dakota was two years old Dr. DeSouza brought my husband Glenn and me into his office and looked at us very serious and told us " Dakota has a 6 month delay, and due to the amount of injury he sustained at birth, nobody can tell you right now whether that delay will be permanent or not " I just sat there and cried and cried. He also however gave us one bit of hope and we grabbed it...He said, " do whatever you can to stimulate his brain during this year-there is a huge window in birth to three " ...and then went in to talk about some of the windows that are there after three that are a bit smaller. He suggested for brain stimulation -music, colors, computers, playing, " exposing Dakota to as much as possible " -and that's what we did. It was only after searching for Tanner that I found this link that talked about some of what Dr. DeSouza suggested for Dakota- The site from Vanderbilt University Hospital used to talk about brain stimulation helping children who had brain injuries. It now goes more into Sowell and his theory-but it's still from the same hospital-I don't know why they took down the other info. anyway-here is one of the links to get you there. http://latetalking.com/helping%20communication.htm I'll never forget when Dakota was about three years old, his favorite movie was Disney's Aristocats, and he used to ask for it by saying " mee-ah " and would stick his tongue out on the " ah " part. It just broke my heart to watch him say that-or anything, or struggle to learn to do everything, hold up his head, turn his head, not be able to move his head certain ways, eat, sit up with a boppy-he never crawled. We just didn't know if he was going to be mentally challenged or not-but I fought back crying and just worked and worked every day with Dakota-I was obsessive about it (who...me?) Well " Leap Years " to today at seven years old in second grade and mainstreamed since Kindergarten...(and Dr. Agin wait till you see this!) Dakota is now in the " excelled " class for the top 96% in math and english. He's reading the Judy Blume books like " Tales of the Forth Grade Nothing " and " Super Fudge " and " Fudgeamania " in his spare time and " can't wait till she writes more because mommy she is hysterical " (he hears his cousins say that about the Harry Potter books) Every night-Dakota reads at least one book to his brother Tanner because that's his job-and he takes it seriously (that I gave him as big brother) Dakota still gets speech therapy in school because of the oral motor weakness which is still there-but so subtle that unless you were a professional you would not notice it. He sounds fine when he talks-he just has a bit of mild residual weakness that the school picked up. Dakota loves school and loves his friends and thinks that second grade is much easier than first grade and is getting 100% plus extra credit on most of his tests today. I am so proud of him. Thinking back I never gave up hope, and I never wanted to look back and say I wish I did this or that. No matter how Dakota ended up, I know that we did whatever we could for him-just like all of you guys in this group are. That's why I know I can tell you that miracles do happen, and that children never cease to amaze us, the parents...or their doctors either! Quite a few doctors have called Dakota the miracle child-but is it a miracle-or was it Early Intervention? Maybe both? Angie-good luck with , the next " miracle child " ?! ===== Quote Link to comment Share on other sites More sharing options...
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