Re: Need your advice.....

[Guest guest]

Okay , I am going to give you my honest opinion since you asked for advice.

I am saying all of this as a parent who also loves her child and who's child is

also doing amazing on NV. So...out of love.

I'm a parent like you and my son has never been put on a diet like this, but, to

me, it sounds very restrictive and not very balanced at all! Where did this

" doctor " go to school? Does he have a degree in anything about neurology? You

said " he specializes or his INTEREST is in children with autism, apraxia etc... "

Well, I have an interest in marine life, but, I am no marine biologist! Who told

him that apraxia is caused by allergens? Does he even know that apraxia is a

neurologically based motor planning disorder? Did HE sell you those supplements

or did he give you a list to go out and get them from a store? I can't imagine

what all that cost you!! I would tell you to go with your gut on this one.

Another parent from our group followed the advice of another naturalpathic

" doctor " and took her child off of the NV and her child seriously regressed. The

NV supplies the body with all the essential amino acids and nutrients the body

needs for optimal health -probably more than the stuff he made you buy but with

NV you know it's from whole foods and not just supplements that you don't even

know if your child can digest or may cause side effects. The ingredients are

synergistically combined together by world renowned MEDICAL doctors like Dr.

Deepak Chopra http://pursuitofresearch.org/advisors.html so that they cause the

other components to increase in effectiveness. B12 is just one of the nutrients

naturally found in the NV from whole food. If you KNOW that the NV is working

" extremely well " , then why would you change anything on some " doctor's " kookie

recommendation, using your child as a brown rice guinea pig on the theory that

apraxia is caused by allergens?

Just because someone, anyone, recommends you do something doesn't mean it is

sound advice! Especially if you don't feel good about it and you think your

child can't stick with this! I would stick with what you KNOW works and let

this guy work his voodoo on somebody that has no other alternative like we have!

I personally saw the differences in my child when he was on, then off, then on

NV. Not sure if you read but he went from essentially nonverbal to now he just

did a 3 word sentence- I couldn't be happier! If someone told me to pull my

child off NV I'd run screaming the other way -with my son's NV clutched in my

hands!

That is my advice! I hope this helps. :-)

Romesa

The NV Sheriff

334-220-8140

romesa1@...

>

> Ok, so as many of you know, Marcus has been doing extremely well on NV.

Before I had him on it, I had scheduled an appt with a Naturalpathic doctor.

This doctor specializes, or his interest is in children with autism, apraxia

etc. So, seeing that it normally takes mths t obe seen by him, I went....and

now....

>

> He's placed Marcus on a " Brown Rice Diet " for 3 weeks. he wants to see what,

if any allergens are causing his apraxia. Now, my boys love food, and this diet

is not working for them (today is Day 1, and we've already cheated at Tim

Horton's) They have him on all these supplements (B12, Rice Protein, Rice Milk

just to name a few)

>

> He's asked that I stop giving the boys NV....I was so mad...I was like " are

you kidding me, I worked to hard to get that stuff into them! (on the bright

side, they appreciate NV more than the rice protein shake! " Mommy, oder drink

bedar "

>

> I feel that doing this diet is going to gross them out of all foods, has

anyone done this diet, and has seen some time of outcome? is this worth doing?

>

> Any advice would be appreciated.

>

> mary

>

[Guest guest]

I am new on here but what is NV?

Thank you

 

 

From: <marymejia@...>

Subject: [ ] Need your advice.....

Date: Monday, October 18, 2010, 5:04 PM

Ok, so as many of you know, Marcus has been doing extremely well on NV.

[Guest guest]

Nutriiveda - it is a natural supplement many parents use. My son Ethan has had

great surges with it since we started using it in July.

[Guest guest]

Sorry, NV is Nutriiveda...

________________________________

From: missie w carman <mysonboys@...>

Sent: Mon, October 18, 2010 6:55:41 PM

Subject: Re: [ ] Need your advice.....

I am new on here but what is NV?

Thank you

From: <marymejia@...>

Subject: [ ] Need your advice.....

Date: Monday, October 18, 2010, 5:04 PM

Ok, so as many of you know, Marcus has been doing extremely well on NV.

[Guest guest]

Hey! Welcome to the group! NV is the supplement that many of us parents are

using and finding great improvements in our children with neurological

disorders. It is a whole food, 100% water soluble and free of heavy metals,

pesticides and herbicides. You can check out the ingredients, testimonials and

theories from doctors and speech therapists as to why they believe it is

working: http://www.pursuitofresearch.org

If you would like to try it I could help you with that. There is a 30 day money

back guarantee if you don't see a change in your child, but, most of us here see

some pretty dramatic changes within the first week. My son, Isaac was only

saying around 3-4 words three months ago, since then, he is speaking 2-3 word

sentences! His vocabulary, awareness and ability to communicate with much less

frustration has been just a huge blessing using NV. I would never let him run

out. :-)

Romesa

The NV Sheriff

334-220-8140

romesa1@... (if you have a question about NV)

>

>

> From: <marymejia@...>

> Subject: [ ] Need your advice.....

>

> Date: Monday, October 18, 2010, 5:04 PM

>

>

> Ok, so as many of you know, Marcus has been doing extremely well on NV.

>

[Guest guest]

,

Here are my thoughts:

NutriiVeda (NV) contains brown rice so unless he's had any adverse

reaction to it so far, it would seem to be helping and not an allergen.

Isn't there any other way he can test for the allergens? Blood draw? Urine?

Stool? If so, that would be better than this brown rice diet.

Is there a reason he suspects that an allergy is causing his apraxia?

It sounds like he has your son on some supplements that are already in NV!

B12, yep. Protein, yep. Brown rice, yep. So why not just give him the NV?

I would ask those questions. Also perhaps consider another opinion?

In my opinion, I think that the reason that many of the DAN type docs have

not recommended NutriiVeda is that they have NEVER heard of it. NV is

cutting edge. It seems to be making metabolic changes for kids and adults.

It is creating surges in the kids ( & adults). AND it is a natural, whole,

slow grown food.

So ever hear the expression " if it ain't broke, don't fix it " ?? That would

be my recommendation. Return to using the NV, since it has been working for

your sons!! I would stick with NV.

While I understand the reason for this other elimination diet, it doesn't

seem to be worth it. My 2 cents. J

Also, NV is working for many of my clients too. Surges in speech, language,

fine motor, gross motor, etc. Once they are on it and using it, I would

tell them to keep using it. Don't stop.

Warmest wishes,

Barbara

Barbara A. , M.S., CCC-SLP

Executive Director/ Help Me Speak, LLC

<http://www.helpmespeak.com/> http://www.helpmespeak.com

(o) 410-442-9791 (f) 410-442-9783

2500 Wallington Way; Suite 103

Marriottsville, MD 21104

From:

[mailto: ] On Behalf Of

Sent: Monday, October 18, 2010 5:05 PM

Subject: [ ] Need your advice.....

Ok, so as many of you know, Marcus has been doing extremely well on NV.

Before I had him on it, I had scheduled an appt with a Naturalpathic doctor.

This doctor specializes, or his interest is in children with autism, apraxia

etc. So, seeing that it normally takes mths t obe seen by him, I went....and

now....

He's placed Marcus on a " Brown Rice Diet " for 3 weeks. he wants to see what,

if any allergens are causing his apraxia. Now, my boys love food, and this

diet is not working for them (today is Day 1, and we've already cheated at

Tim Horton's) They have him on all these supplements (B12, Rice Protein,

Rice Milk just to name a few)

He's asked that I stop giving the boys NV....I was so mad...I was like " are

you kidding me, I worked to hard to get that stuff into them! (on the bright

side, they appreciate NV more than the rice protein shake! " Mommy, oder

drink bedar "

I feel that doing this diet is going to gross them out of all foods, has

anyone done this diet, and has seen some time of outcome? is this worth

doing?

Any advice would be appreciated.

mary

[Guest guest]

Hi !

This is a toughie question for me- because I know you are just trying to do what

is best, right -and you clearly must greatly respect this person to take your

child off of something that is working so dramatically not just for your child

but for so many of us -and start a highly restrictive diet, a long list

supplements (which are already in NV from whole food) even when we recently had

conversations in this group about the differences between whole food nutrition

and supplements -how whole food nutrition is the purest form.

You are now the 3rd parent who followed the advice of someone like this -and I

never thought it would happen again after the first. One of the first people on

NV other than my son Tanner was a 25 year old woman who went from being

essentially nonverbal, catatonic, unable to feed, dress, bathe herself and

unable to leave the house to see a professional without being sedated and on

massive amounts of seizure meds as she had almost died of seizures to within 6

months on NV this 25 year old was flirting with a doctor and sitting at the

kitchen table telling her mom what her goals were for the future -going out with

her sisters -having a life for the first time ever outside of the walls of her

home and as her doctor said about her lack of seizures and the scans that showed

for the first time a normal healthy brain that " there was no other logical

explanation but the NV was healing her brain " . I then heard from this mother

" well if NV is working there must be something else that will work more " Like

some other supplement -and maybe one of these alternative doctors can figure out

which. I reminded her that within 6 months that she was already seeing what

most would consider a miracle...and that even if neuro repair was going on it

would be unlikely any faster than what she was seeing and that using other

supplements can compromise the NV. Well no worries there because like you she

followed the advice one of these people who's first advice was to pull this 25

year old off of NV - the whole food product that changed her life and put her on

the long list of supplements. (where do you buy them from?) Sadly -last I

heard the 25 year old daughter is back to having seizures again and the mom

isn't updating anyone who has tried to contact her and that includes me after

all I did for this family...I can be hurt or I can be confused -or both- but

again thought -nobody else would follow something this crazy.... But I was

wrong...and clearly you won't be the last either as you weren't the only other

one that listened to something like this.

I'm not saying your child had seizures -but the other parent like the first has

a seizure prone child who had stopped having seizures on NV also took her child

to someone like this, and he didn't just pull the child off NV -he said that NV

" wasn't an energetic match " I don't know how you test for an energetic match

and figured it's one of the new age ways of " testing " where the person holds the

item in their hand to see which side drops more...Fun for which juice does your

body need more in theory -but to use it for a child with a neurological issue on

what to give them as " treatment " I just don't understand. I by the way got

nothing from google from the words " not an energetic match " try it. Well this

mom listened to this person and pulled her child off NV, cancelled the shipment

of NV that was coming to her that had been helping her child and started her

child on a " protocol " of a huge amount of stuff, all kinds of supplements...like

you... and within 2 weeks her child who had stopped having seizures had 2 Grand

Mal seizures.

It was after the second massive seizure that this mother contacted me, because

like you she " wasn't sure " if pulling her child off NV was right. I put her in

touch with one of the parents in the group who has 2 children with a history of

seizures that have been helped by NV (part of the case studies here

http://www.facebook.com/topic.php?topic=15306 & post=93938 & uid=115029735601#post93\

938 )and now she's putting her child back on NV...but last I heard will continue

with the rest of this person's advised " protocol " I pointed out by using other

supplements you can be overdosing on stuff and you don't also know what can

compromise the NV as it's simple...most of us just use NV, fish oil, and have

our child in therapy and you can read now numerous cases where the child is no

longer even qualified for services the surges are so great in a few months!

Will be putting up case studies on that and hope from professionals. But if

it's the money spent -again can't you return all this stuff? One can return NV

as you know!

I told her what I'll tell you -I have respect for some of these type of

individuals as a side addition if one has the extra money and time and wants to

learn more about nutrition or alternative theories -but last I checked the

archives I don't know about any tremendous or small track record for them- they

don't come up much. But in the world of alternative Dr. Deepak Chopra and Dr.

Simon worked with the NIH on " mind body spirit " grants for health and

wellness but in addition to being experts on alternative both are world renowned

medical doctors with a background in neurology too -and they formulated NV!!

http://pursuitofresearch.org/advisors.html

There are numerous theories as to what causes apraxia -and many today with

apraxic children who look to explore more as to what can help their child (even

when they already found something that is working) are learning what parents of

autistic children have known for awhile. There are probably more things you can

buy to help your autistic child than there are theories. You get to decide

which you believe are viable and which help, which are benign and which are

potentially dangerous.

I have two boys who are both mainstreamed and doing well and I credit that to

sticking with what works. yes I went to some kooky alternative people -one who

touched my son's feet and said she was adjusting his energies or

something....they offered the service to me for free in hopes I'd share it here.

I smiled when I left but I won't share it. And by the way I tried to search

for brown rice diet in children and read it's a detox diet (NV has a natural

detox and doesn't limit the diet- you have to be so careful with restrictive

diets with growing brains!!!) The healthier version is 7 days and the most it

should be is 2 weeks -didn't read about it lasing 3 weeks and found things for

adults. If I were you as I say for NV too -run it past your child's pediatrician

and see what he says. Not sure if this is another name for the diet this person

put your child on that you are following -but they talk about brown rice and the

danger of this diet and how it's been proven not to work-and again this is in

adults -with children you have to be SO much more careful

http://www.cancer.org/Treatment/TreatmentsandSideEffects/ComplementaryandAlterna\

tiveMedicine/DietandNutrition/macrobiotic-diet

Again I've run this group for over a decade and all one has to do is search the

archives to see what comes up the most. The things that work do -and in the

history of this group we have never seen such dramatic results for almost all

across the board for so many conditions. These are just a few of the areas of

improvement http://pursuitofresearch.org/pursuit.html

I hope the research is done soon to validate this to help your child -and

all those like yours who's parents listen to these people. Again -I just don't

understand. And I know that once gone people don't just stop and come back

-maybe because these other things cost so much -and they feel like it has to

work? Again is NV just too simple and cheap to be taken serious by some?

I just put together an updated science page

http://www.pursuitofresearch.org/science.html for those that are interested in

learning more about perhaps why NV is working.

And PS ...you can cancel a charge to a doctor- or stop payment on a check if you

think someone tried to scam you. Did you check their business out with the BBB?

=====

[Guest guest]

wow, this is tough. I am the mother of an almost 4 year old with mild apraxia at

this point and i also recently obtained my batchelors degree in nutriton (not as

a dieitian and that gave me the opportunity to deviate from mainstream 'diets').

i have thought many times about trying NV for my son and i would do so with high

hopes. actually i wouldnt hesitate to recommend it to nearly anyone.

i'll relate my story and see where it goes. myself and my non-apraxic son suffer

from (sorry tmi) severe constipation. about a year ago now we gave up dairy as

it was the likely culprit and it has made all the difference. since we went

dairy free there was also a dramatic change in gage (my challenged guy). he has

more facial tone, he smiles more of the time, he's less frusturated, he started

singing, etc. by no means is he cured or even all better, but dairy made a

difference for him/us. i believe is is also sensitive to certain food dyes but

have not given this aspect my full attention yet. i would expect cutting out

dyes we would see surges once again.

I also believe deficiencies play a role. the recomended daily intake are barely

enough to sustain life in most people - that's not looking too good if you ask

me. so to give our (often) picky eaters a multivitamin with 30% RDI doesnt even

begin to bring them up to par. i am certain that my son - heck all of us- are

deficient in at least one or two nutrients. maybe our individual requirements

are actually much greater than the RDI... regardless, it seems as if a

supplement such as NV brings our bodies where it should be in terms of nutrient

intake.

i could understand if your son's doctor wanted to rule out underlying food

sensitivities. if NV is covering up a sensitivity, imagine what the surges could

be like if there were no sensitivity to hold him back. I believe intake is a

large part of everyone's " problem " no matter the issue at hand. while im

doubtful your son has an allergy to the NV, without doing an elimination diet,

there's no way to truly see the results. i actually just counseled someone on a

elimination diet her physician prescribed (because they're nearly impossible to

stick to) and if you dont adhere EXACTLY to the diet, you may as well throw in

the towel before you start.

personally, i would say to follow your instincts. research and look hard for any

signs of food sensitivities. it might be a quirky thing that runs in the family,

depression, anxiety, loose stools, constipation, inattentiveness, hyperactivity,

pink cheeks, rings under the eyes, stuffy nose, glassy eyes, etc. i would also

make a list of questions to ask this new doctor and press hard for specific

answers. it's okay to say " okay, but you didnt exactly answer my question " .

i wish your family the best of luck.

Jen

live, laugh, love till your heart's content

[Guest guest]

HI ,

My name is Natan Gendelman. I am therapist, have been working with kids who

have different neurological disorders for over 23 years.

I completely agree with Romesa. You cannot have an " interest " in kids with

neurological disorders. You either working with them or you do not.

NV is credible and proved itself.

There are some good Naturopaths out there, but be careful, when someone is

selling you certain things. Do not trust anyone, but yourself and your

child. You see your child 24 / 7. And you see what works and what is not.

All the best wishes,

Respectfully,

Natan Gendelman

From:

[mailto: ] On Behalf Of romesa1

Sent: October-18-10 6:49 PM

Subject: [ ] Re: Need your advice.....

Okay , I am going to give you my honest opinion since you asked for

advice. I am saying all of this as a parent who also loves her child and

who's child is also doing amazing on NV. So...out of love.

I'm a parent like you and my son has never been put on a diet like this,

but, to me, it sounds very restrictive and not very balanced at all! Where

did this " doctor " go to school? Does he have a degree in anything about

neurology? You said " he specializes or his INTEREST is in children with

autism, apraxia etc... " Well, I have an interest in marine life, but, I am

no marine biologist! Who told him that apraxia is caused by allergens? Does

he even know that apraxia is a neurologically based motor planning disorder?

Did HE sell you those supplements or did he give you a list to go out and

get them from a store? I can't imagine what all that cost you!! I would tell

you to go with your gut on this one. Another parent from our group followed

the advice of another naturalpathic " doctor " and took her child off of the

NV and her child seriously regressed. The NV supplies the body with all the

essential amino acids and nutrients the body needs for optimal health

-probably more than the stuff he made you buy but with NV you know it's from

whole foods and not just supplements that you don't even know if your child

can digest or may cause side effects. The ingredients are synergistically

combined together by world renowned MEDICAL doctors like Dr. Deepak Chopra

http://pursuitofresearch.org/advisors.html so that they cause the other

components to increase in effectiveness. B12 is just one of the nutrients

naturally found in the NV from whole food. If you KNOW that the NV is

working " extremely well " , then why would you change anything on some

" doctor's " kookie recommendation, using your child as a brown rice guinea

pig on the theory that apraxia is caused by allergens?

Just because someone, anyone, recommends you do something doesn't mean it is

sound advice! Especially if you don't feel good about it and you think your

child can't stick with this! I would stick with what you KNOW works and let

this guy work his voodoo on somebody that has no other alternative like we

have! I personally saw the differences in my child when he was on, then off,

then on NV. Not sure if you read but he went from essentially nonverbal to

now he just did a 3 word sentence- I couldn't be happier! If someone told me

to pull my child off NV I'd run screaming the other way -with my son's NV

clutched in my hands!

That is my advice! I hope this helps. :-)

Romesa

The NV Sheriff

334-220-8140

romesa1@... <mailto:romesa1%40hotmail.com>

>

> Ok, so as many of you know, Marcus has been doing extremely well on NV.

Before I had him on it, I had scheduled an appt with a Naturalpathic doctor.

This doctor specializes, or his interest is in children with autism, apraxia

etc. So, seeing that it normally takes mths t obe seen by him, I went....and

now....

>

> He's placed Marcus on a " Brown Rice Diet " for 3 weeks. he wants to see

what, if any allergens are causing his apraxia. Now, my boys love food, and

this diet is not working for them (today is Day 1, and we've already cheated

at Tim Horton's) They have him on all these supplements (B12, Rice Protein,

Rice Milk just to name a few)

>

> He's asked that I stop giving the boys NV....I was so mad...I was like "

are you kidding me, I worked to hard to get that stuff into them! (on the

bright side, they appreciate NV more than the rice protein shake! " Mommy,

oder drink bedar "

>

> I feel that doing this diet is going to gross them out of all foods, has

anyone done this diet, and has seen some time of outcome? is this worth

doing?

>

> Any advice would be appreciated.

>

> mary

>

[Guest guest]

Hi Missie,

NV is a food that was developed by leading medical doctors as a way to naturally

nourish and detox the body through food. If one needs to lose weight, or gain,

it supports the metabolic system so does that naturally. There are over 300

clinical trials on each of the foods in NV -including those that are from

ayurveda, a traditional ancient medicine used in the East for over 5 thousand

years. It has no known side effects, drug interactions, or no known overdose

level as again it's water soluble. One can be allergic to any food however, but

the foods in it are chosen to be the gold standard for nutrients and with none

of the most common allergens such as nuts and soy. All nutrients are from the

food and it contains per serving all the essential amino acids and nutrients

needed daily, is GFCF, fat, sodium and caffeine free and 100 percent natural and

100 percent water soluble. Each food in it is tested free of heavy metals,

herbicides and pesticides.

I am the one that discovered how this works for our group completely by mistake

but will be hopefully again be meeting soon with the doctors behind it in hopes

that research will begin to validate this (and we will not have to raise monies

for this research -just the PUFAs- the essential fatty acids)

I am currently putting together TWO new websites -but until they are finished

you can find lots of information to start at http://www.pursuitofreserach.org

Here is my just finished new theory page which is ever growing as to

possibilities based on science why NV is having such dramatic surges in so many

ages (from children just over a year to senior citizens which on the latter you

will be hearing more about soon for Alzheimer Disease from one of our parents

about her father- and this mom also has a child surging on NV) and with so a

variety of diagnosis.

The Science - Nutrition and Special Needs

Parents' Theories

MD Theories

http://pursuitofresearch.org/science.html

From

[Guest guest]

The dr. is for it, but since it has whey in it, he wanted to eliminate it for

now. i think however, I will continue the use of NV, and use the rice protein

for myself.....

Thanks everyone, I knew I could turn to people, that understood my situation. At

times, I feel like I have no one else to talk to.

________________________________

From: W <jwerner421@...>

Sent: Mon, October 18, 2010 8:56:02 PM

Subject: [ ] Re: Need your advice.....

wow, this is tough. I am the mother of an almost 4 year old with mild apraxia at

this point and i also recently obtained my batchelors degree in nutriton (not as

a dieitian and that gave me the opportunity to deviate from mainstream 'diets').

i have thought many times about trying NV for my son and i would do so with high

hopes. actually i wouldnt hesitate to recommend it to nearly anyone.

i'll relate my story and see where it goes. myself and my non-apraxic son suffer

from (sorry tmi) severe constipation. about a year ago now we gave up dairy as

it was the likely culprit and it has made all the difference. since we went

dairy free there was also a dramatic change in gage (my challenged guy). he has

more facial tone, he smiles more of the time, he's less frusturated, he started

singing, etc. by no means is he cured or even all better, but dairy made a

difference for him/us. i believe is is also sensitive to certain food dyes but

have not given this aspect my full attention yet. i would expect cutting out

dyes we would see surges once again.

I also believe deficiencies play a role. the recomended daily intake are barely

enough to sustain life in most people - that's not looking too good if you ask

me. so to give our (often) picky eaters a multivitamin with 30% RDI doesnt even

begin to bring them up to par. i am certain that my son - heck all of us- are

deficient in at least one or two nutrients. maybe our individual requirements

are actually much greater than the RDI... regardless, it seems as if a

supplement such as NV brings our bodies where it should be in terms of nutrient

intake.

i could understand if your son's doctor wanted to rule out underlying food

sensitivities. if NV is covering up a sensitivity, imagine what the surges could

be like if there were no sensitivity to hold him back. I believe intake is a

large part of everyone's " problem " no matter the issue at hand. while im

doubtful your son has an allergy to the NV, without doing an elimination diet,

there's no way to truly see the results. i actually just counseled someone on a

elimination diet her physician prescribed (because they're nearly impossible to

stick to) and if you dont adhere EXACTLY to the diet, you may as well throw in

the towel before you start.

personally, i would say to follow your instincts. research and look hard for any

signs of food sensitivities. it might be a quirky thing that runs in the family,

depression, anxiety, loose stools, constipation, inattentiveness, hyperactivity,

pink cheeks, rings under the eyes, stuffy nose, glassy eyes, etc. i would also

make a list of questions to ask this new doctor and press hard for specific

answers. it's okay to say " okay, but you didnt exactly answer my question " .

i wish your family the best of luck.

Jen

live, laugh, love till your heart's content