Re: 2 1/2 yo won't work with SLT

[Guest guest]

go to the website written by Mize called Teach me to Talk........wish I

had the site however she has wonderful suggestions...sounds like there has been

no raport established yet!  let me know if you have any more

questions....s site is great for laying out what it takes to get a child

like yours interested in interaction!  best wishes

From: wandre_k <wandre_k@...>

Subject: [ ] 2 1/2 yo won't work with SLT

Date: Thursday, February 25, 2010, 6:00 PM

 

I am frustrated and need some support. My non-verbal 2 1/2 year old apraxic son

won't work with our SLT. At school, he goes to a SLT and all they say is that

" he won't talk " which I know. They are working on getting a computer device for

him. We have a SLT that comes to our home once a week, but he won't even let her

touch his face and tries to run away from her, especially when she is trying to

make him make noises. She has said that this is her only case were she hasn't

made a connection with him yet (he has been seeing her for about 2 months). Has

anyone had any experience with this? Is this an " age " thing or just " him " . he

does well with the OT (we are just working on feeding, so all he is doing is

eating there which he likes to do anyway).

By the way, we are on day 10 of NV/fish oil and he has said baba, mmm and pa

from saying absolutly nothing. He isn't consistant with it, but at least it is

something. We are giving him 2 tbs a day. should we up it?

[Guest guest]

Until we started the GF/CF diet and added carnitine and vitamin E, and folate

and Co Q10 and Mb12 shots and a good multi--a good probiotic of course--until we

did all these 3 local apraxia " experts refused to work with her because she was

so non-compliant-- She was severly apraxic and seemed uninterested in building a

verbal communication system--though we could tell seh was interested in being

with kids and was very responsive emotionally but her little brain just couldn't

do it while being bombarded by all the gluten casein peptides which in these

kids act as neurotoxins--even though she did not test positive for any

allergies--according to usual methods practiced by mainstream doctors.

Blood and urien tests indicated problems but those --as any and all tests are

hard to interpret accutrately--so while we knew there wetre definite metabolic

problems due to her skin autoimmune issues--eczemas and scalp psoriasis--we just

couldn't get a handle on this until we began addressing the metabolic unbalances

and giving her little brain the missing nutrinets that helpped her methyaltion

and other normal brain processing that was obviously deficient. these kids

really do have starving brains as the title of that book says--and while there

are similarities--there are also differences.

Once we figured out a workable supplement/diet protocol our daughter began

responding to treatment--began following directions and building a verbal

communication system.

Shes' now mainstreamed din regular kindergarten--we still do lots of speech but

the progress is continuous and she can now function more or less

normally--particularly in regular daily conversations---story telling gets

tricky as she looses intelligibility and multisyllabic words are tricky---but

overall she's a normal kid with speech/language issues in normal classes.

Before diet/supplements we wondered if she'd ever speak and feared even special

ed classes would have trouble dealing with her--or she would pretty much learn

nothing and all time would be spent on trying to get her to follow directions

and comply. We put her back on the gluten and dairy 2 years alter to do the

allergy teting and her behavior regresed back to where it had been before--both

SLPs were begging me to put her back on the diet--and all thsi without ever

having any digestive problems, or any allergy test positives on any of the food

items tested. Mainstream doctors would ahve dismissed her as an child with food

intolerances for sure--they don't even acknowledge food intolerances in spite of

growing body of neuroscience and microbiology research pointing in this

direction for decades now.But it takes mainstream clinical practice decades to

catch up--they only get their guidelines from the Pharmaceutical Industry so

don't hold your breath until

they figure out a way to capitalize on it. It's all about $ and diets and

supplements simply don't bring in the big bucks that drugs do.

Biomed--diet/supplemnts can do wonders for these starving brains. it's all about

eliminating waht does NOT belong and providing what si missing and they will

begin to flourish. Do not for a minute think therapy alone can do it--their

brains are just too deficient in vital brain nutrients and there si too much

inflammation and oxidative stress from what does NOT belong in their bodies and

this can differ slightly for each child.

All the best,

Elena

________________________________

From: wandre_k <wandre_k@...>

Sent: Thu, February 25, 2010 4:00:15 PM

Subject: [ ] 2 1/2 yo won't work with SLT

I am frustrated and need some support. My non-verbal 2 1/2 year old apraxic son

won't work with our SLT. At school, he goes to a SLT and all they say is that

" he won't talk " which I know. They are working on getting a computer device for

him. We have a SLT that comes to our home once a week, but he won't even let

her touch his face and tries to run away from her, especially when she is trying

to make him make noises. She has said that this is her only case were she

hasn't made a connection with him yet (he has been seeing her for about 2

months). Has anyone had any experience with this? Is this an " age " thing or

just " him " . he does well with the OT (we are just working on feeding, so all he

is doing is eating there which he likes to do anyway).

By the way, we are on day 10 of NV/fish oil and he has said baba, mmm and pa

from saying absolutly nothing. He isn't consistant with it, but at least it is

something. We are giving him 2 tbs a day. should we up it?

------------------------------------

[Guest guest]

This may sound laborious but it is important to get your SLT problem defined

accurately so that you can choose the correct therapy program

For example the problem could be:

ears

eardrum

nerve from ear to brain

wernickes

broca's

breath control

lip control

tongue control

connection from brain to speech articulators

Depending on which of the above have the issue, will determine what SLT you

should be doing

From: wandre_k@...

Date: Fri, 26 Feb 2010 00:00:15 +0000

Subject: [ ] 2 1/2 yo won't work with SLT

I am frustrated and need some support. My non-verbal 2 1/2 year old apraxic son

won't work with our SLT. At school, he goes to a SLT and all they say is that

" he won't talk " which I know. They are working on getting a computer device for

him. We have a SLT that comes to our home once a week, but he won't even let her

touch his face and tries to run away from her, especially when she is trying to

make him make noises. She has said that this is her only case were she hasn't

made a connection with him yet (he has been seeing her for about 2 months). Has

anyone had any experience with this? Is this an " age " thing or just " him " . he

does well with the OT (we are just working on feeding, so all he is doing is

eating there which he likes to do anyway).

By the way, we are on day 10 of NV/fish oil and he has said baba, mmm and pa

from saying absolutly nothing. He isn't consistant with it, but at least it is

something. We are giving him 2 tbs a day. should we up it?

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[Guest guest]

Hello!

I can't answer the dosage part (but I'm sure many here will chime in on that!)

because we've always used the capsules, but we had a similar experience with our

son when he first started ST. Our son never had a problem with letting the SLP

touch his face, but he definitely had no interest in paying any attention to

what she was doing, and wouldn't participate. She simply put him in a highchair

and bribed him for participation. For example, she'd use a toy she knew he

really wanted, like different shapes he had to fit in the right holes, and she'd

start by giving him a couple to gain his interest, witholding the rest, and

would give him one at a time each time he would attempt to imitate a vowel sound

she made. You could start this on your own so he would understand what to

expect when she gets there.

Congratulations on the new sounds/words! Very exciting! Hang in there - many

of us here had completely nonverbal toddlers (my son didn't even say mommy until

he was 4) who are now speaking much better!

Hope this helps.

Dianne

>

> I am frustrated and need some support. My non-verbal 2 1/2 year old apraxic

son won't work with our SLT. At school, he goes to a SLT and all they say is

that " he won't talk " which I know. They are working on getting a computer

device for him. We have a SLT that comes to our home once a week, but he won't

even let her touch his face and tries to run away from her, especially when she

is trying to make him make noises. She has said that this is her only case were

she hasn't made a connection with him yet (he has been seeing her for about 2

months). Has anyone had any experience with this? Is this an " age " thing or

just " him " . he does well with the OT (we are just working on feeding, so all he

is doing is eating there which he likes to do anyway).

>

> By the way, we are on day 10 of NV/fish oil and he has said baba, mmm and pa

from saying absolutly nothing. He isn't consistant with it, but at least it is

something. We are giving him 2 tbs a day. should we up it?

>

[Guest guest]

Hi there- 2 months seems a long to me to not have made a connection

yet......we had a similar experience.

Does your ST try to play with your Son, act silly, etc? Our Developmental

Therapist acted like a " crazy woman " for the first few sessions-- just to

make my Son laugh..... once rapport was established, she launched into the

therapy. The Developmental Therapist did " fun things " with my Son-- I

think this is why he took to her easier.

I also DO clearly recall my Son's behaviors with his new Speech Therapist

at age 21 months.....it took longer for him to accept her. He would put

his fingers in his ears every time she came! This lasted for about one

month.... then he stopped. Well- instead of " plugging his ears " .... he

resorted to turning his head around in his high chair so that he would not be

facing her. (it was amazing how far he managed to turn his little head..... it

reminded me of the character Regan in the movie " The Exorcist " ) !

i can't remember how long this went on.... but I do recall thinking that

" the ST was not working well " ...... right when I was thinking about asking

for someone else, everything became better. My Son is now 35 months old-- and

he has been working very well with this same therapist for the past year.

Keep in mind, speech is hard work for our kids. Kids close to age 2 are

starting to become more stubborn as well.

I would suggest that you " go with your gut " ..... do you feel that the ST is

really making an effort to engage your son? Is she " getting down to his

level " ..... acting silly, doing all that she can to be his friend? Do you

have other therapists that your Son is more cooperative with? If so, is

there something that they do differently to engage your son? You can always

give suggestions to your ST of " ways to get your child to work with her

better " ....

Good luck

In a message dated 2/26/2010 9:38:09 A.M. Eastern Standard Time,

teriannkay@... writes:

to make him make noises. She has said that this is her only case were she

hasn't made a connection with him yet (he has been seeing her for about 2

months). Has anyone had any experience with this?