Guest guest Posted March 10, 2010 Report Share Posted March 10, 2010 Hi There, Just wanted to say that we are on day 17 of SCD and have seen absolutely AMAZING results. My child has awful, awful gut bacteria and we are very hopeful about SCD. We did stop the NV simply because SCD is all or nothing. You are either feeding the bacteria with sugar/carbs or you are not. I do look forward to the day, however, that we can reintroduce the NV. We had seen some positives on that as well. But for us, the changes with SCD have been wonderful- very obvious that it's working. I was wondering if there were any true success stories out there- I am looking for parents of apraxic, autistic kids that did SCD and came out with no visible symptoms of apraxia afterward. Anyone? All the Best, Kim > > Hi, > My son has had the yeast behaviours as well. The giggls, night waking etc. We are doing scd. I stopped NV while on intro and introduced it during phase 1. I know it is scd illegal, howvever I wanted to try, he had done so well on it. Yeast can be fed by sugar but also undigested food. I think NV is helpng digestion. Yeast die off symptoms can look like a flare up. He had this in the begining but we are muh better now. > To anyone doing scd, it does work. As far as NV and scd I think I am in unchartered territory, it may not be for everyone. SCD premise is to heal the gut, NV has healing properties. Everyday I watch to see how his digestion is doing, he is doing well so I will keep going. > Just FYI for anyone trying the diet, > Anni > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2010 Report Share Posted March 10, 2010 Hi Kim, How old is your child? My 4 year old autistic/apraxic son will start SCD this weekend... we will do it without NV for a bit and then decide if we should add it back in as NV has had some positives for him. However, I am curious about your son/daughter? Did your child have any verbal communication? How what stage are you on now after 17 days? Does your child take any meds/antifungals at the moment or is it just the diet? You refer to amazing results - what have you seen in your child? I am so curious b/c it's hard to connect with people who are still in the early stages of SCD... did you child accept the diet readily or was it difficult to get started? I would love to connect with you by private email to talk more... especially about any good recipes or SCD foods that your child likes... also about when you might introduce NV again... Tatyana [ ] Re: yeast and scd diet and NV Hi There, Just wanted to say that we are on day 17 of SCD and have seen absolutely AMAZING results. My child has awful, awful gut bacteria and we are very hopeful about SCD. We did stop the NV simply because SCD is all or nothing. You are either feeding the bacteria with sugar/carbs or you are not. I do look forward to the day, however, that we can reintroduce the NV. We had seen some positives on that as well. But for us, the changes with SCD have been wonderful- very obvious that it's working. I was wondering if there were any true success stories out there- I am looking for parents of apraxic, autistic kids that did SCD and came out with no visible symptoms of apraxia afterward. Anyone? All the Best, Kim > > Hi, > My son has had the yeast behaviours as well. The giggls, night waking etc. We are doing scd. I stopped NV while on intro and introduced it during phase 1. I know it is scd illegal, howvever I wanted to try, he had done so well on it. Yeast can be fed by sugar but also undigested food. I think NV is helpng digestion. Yeast die off symptoms can look like a flare up. He had this in the begining but we are muh better now. > To anyone doing scd, it does work. As far as NV and scd I think I am in unchartered territory, it may not be for everyone. SCD premise is to heal the gut, NV has healing properties. Everyday I watch to see how his digestion is doing, he is doing well so I will keep going. > Just FYI for anyone trying the diet, > Anni > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2010 Report Share Posted March 10, 2010 Hi - My son is almost seven, with autism. I am new to the group, but not to diets, biomedical and various therapies to help my son. We did the scd diet strictly for 2 years to promote gut healing and reduce yeast & bacteria. We now do a modified scd by adding in potato and rice flours but not corn. If you have a child that has high inflammation and poor gut health, I believe that scd is worth a trial. I cannot say that scd gave my son specific speech gains ( I have never been one to do only one intervention at a time)but it has improved his overall health and readiness for therapies. There are some things to consider with scd, that I learned along the way that I would be happy to share. Please watch blood ammonia levels. This is a diet high in protein and for some children that can lead to a build up of ammonia. I have had positive experience with yucca and alphketoglutaric acid to help reduce ammonia when I needed to. I could always tell my son had high ammonia by the smell of his urine or stool...it would smell like the monkey cage at the zoo..no kidding. Sacromyces boulardi has helped us with ammonia and restoring gut health as well. One of my favorite websites to order scd food and nut flours is www . digestivewellness . com They make a " star " cookie that is terrific and we jsut tried their honey chews this week for the first time. They are great as well. Scd involves a lot of baking, so pace yourself. This is not a diet you can run to the market so easily for. But digestivewellness can help you by purchasing ready baked safe foods until you get your scd groove going. We bake a cashew cake at least once a week that is a great source of protein, holds off hunger and has no flour. beat 8 eggs 1/2 cup melted coconut oil 1 cup honey 1 teaspoon cinnamon 1 teaspoon vanilla 1 and half teaspoon baking soda 16 oz jar of cashew butter Put in a 13 x 9 greased pan (coconut or palm oil works well) and bake for about 30-35 minutes at 350 until fork comes out clean. When cake cools, I cut and individually wrap pieces.This way it lasts and I can warm up a chunk when I need it. I hope this helps and can get you started. I am sure you found the pecanbread website as well already. Start small, become familiar with 2 safe breakfasts, 2 lunches and 2 dinners and grow from there. Snacking is a little harder when scd, but fresh organic pears are a great choice. I hope this helps some. Good luck. BTW, my son has just started week 2 on nutriveda. I will introduce & update the list soon. With thanks- Tricia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Thanks so much for the reply and the heads up about the ammonia. My son did have slightly elevated ammonia levels about a year ago, so I should definitely keep an eye on that. Can't wait to try the cashew cake recipe! All the Best, Kim > > Hi - > My son is almost seven, with autism. I am new to the group, but not to diets, biomedical and various therapies to help my son. > We did the scd diet strictly for 2 years to promote gut healing and reduce yeast & bacteria. We now do a modified scd by adding in potato and rice flours but not corn. If you have a child that has high inflammation and poor gut health, I believe that scd is worth a trial. > I cannot say that scd gave my son specific speech gains ( I have never been one to do only one intervention at a time)but it has improved his overall health and readiness for therapies. There are some things to consider with scd, that I learned along the way that I would be happy to share. Please watch blood ammonia levels. This is a diet high in protein and for some children that can lead to a build up of ammonia. I have had positive experience with yucca and alphketoglutaric acid to help reduce ammonia when I needed to. I could always tell my son had high ammonia by the smell of his urine or stool...it would smell like the monkey cage at the zoo..no kidding. > Sacromyces boulardi has helped us with ammonia and restoring gut health as well. > One of my favorite websites to order scd food and nut flours is > www . digestivewellness . com They make a " star " cookie that is terrific and we jsut tried their honey chews this week for the first time. They are great as well. Scd involves a lot of baking, so pace yourself. This is not a diet you can run to the market so easily for. But digestivewellness can help you by purchasing ready baked safe foods until you get your scd groove going. > We bake a cashew cake at least once a week that is a great source of protein, holds off hunger and has no flour. > beat 8 eggs > 1/2 cup melted coconut oil > 1 cup honey > 1 teaspoon cinnamon > 1 teaspoon vanilla > 1 and half teaspoon baking soda > 16 oz jar of cashew butter > > Put in a 13 x 9 greased pan (coconut or palm oil works well) and bake for about 30-35 minutes at 350 until fork comes out clean. > When cake cools, I cut and individually wrap pieces.This way it lasts and I can warm up a chunk when I need it. > > I hope this helps and can get you started. I am sure you found the pecanbread website as well already. Start small, become familiar with 2 safe breakfasts, 2 lunches and 2 dinners and grow from there. Snacking is a little harder when scd, but fresh organic pears are a great choice. > > I hope this helps some. Good luck. > BTW, my son has just started week 2 on nutriveda. I will introduce & update the list soon. > With thanks- > Tricia > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Hi Tatyana, Please send me an email at kahopkins@... and I will tell you everything I know/answer your questions. I can't figure out how to pull private emails from the messages. Kim > > > > Hi, > > My son has had the yeast behaviours as well. The giggls, night waking etc. We are doing scd. I stopped NV while on intro and introduced it during phase 1. I know it is scd illegal, howvever I wanted to try, he had done so well on it. Yeast can be fed by sugar but also undigested food. I think NV is helpng digestion. Yeast die off symptoms can look like a flare up. He had this in the begining but we are muh better now. > > To anyone doing scd, it does work. As far as NV and scd I think I am in unchartered territory, it may not be for everyone. SCD premise is to heal the gut, NV has healing properties. Everyday I watch to see how his digestion is doing, he is doing well so I will keep going. > > Just FYI for anyone trying the diet, > > Anni > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 I can't believe that I forgot to mention activated charcoal. A capsule at least 2 hours away from any supplements helped to bring down our ammonia level quickly as well. Some great cookbooks are: 1. Adventures in the Family Kitchen by Raman Prasad 2. Cooking to Heal Little Tummies by Jenna and Hagood Good luck- Tricia > > > > Hi - > > My son is almost seven, with autism. I am new to the group, but not to diets, biomedical and various therapies to help my son. > > We did the scd diet strictly for 2 years to promote gut healing and reduce yeast & bacteria. We now do a modified scd by adding in potato and rice flours but not corn. If you have a child that has high inflammation and poor gut health, I believe that scd is worth a trial. > > I cannot say that scd gave my son specific speech gains ( I have never been one to do only one intervention at a time)but it has improved his overall health and readiness for therapies. There are some things to consider with scd, that I learned along the way that I would be happy to share. Please watch blood ammonia levels. This is a diet high in protein and for some children that can lead to a build up of ammonia. I have had positive experience with yucca and alphketoglutaric acid to help reduce ammonia when I needed to. I could always tell my son had high ammonia by the smell of his urine or stool...it would smell like the monkey cage at the zoo..no kidding. > > Sacromyces boulardi has helped us with ammonia and restoring gut health as well. > > One of my favorite websites to order scd food and nut flours is > > www . digestivewellness . com They make a " star " cookie that is terrific and we jsut tried their honey chews this week for the first time. They are great as well. Scd involves a lot of baking, so pace yourself. This is not a diet you can run to the market so easily for. But digestivewellness can help you by purchasing ready baked safe foods until you get your scd groove going. > > We bake a cashew cake at least once a week that is a great source of protein, holds off hunger and has no flour. > > beat 8 eggs > > 1/2 cup melted coconut oil > > 1 cup honey > > 1 teaspoon cinnamon > > 1 teaspoon vanilla > > 1 and half teaspoon baking soda > > 16 oz jar of cashew butter > > > > Put in a 13 x 9 greased pan (coconut or palm oil works well) and bake for about 30-35 minutes at 350 until fork comes out clean. > > When cake cools, I cut and individually wrap pieces.This way it lasts and I can warm up a chunk when I need it. > > > > I hope this helps and can get you started. I am sure you found the pecanbread website as well already. Start small, become familiar with 2 safe breakfasts, 2 lunches and 2 dinners and grow from there. Snacking is a little harder when scd, but fresh organic pears are a great choice. > > > > I hope this helps some. Good luck. > > BTW, my son has just started week 2 on nutriveda. I will introduce & update the list soon. > > With thanks- > > Tricia > > > Quote Link to comment Share on other sites More sharing options...
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