Re: Nutriiveda questions and other questions

[Guest guest]

I use Nordic Naturals (I buy it at Vitamin Shoppe) 1EPA & 2 complete

3-6-9 capsules a day. I pierce the capsules w/ a pushpin, squirt it

into a medicine cup, then use an oral medication syringe to get it out

of the cup & into my son. I don't try to hide it in anything. I

treat it like a medication.

I had to do the same w/ the nutriiveda at the beginning too. I have

put that in applesauce, pudding, and now I mix it in his apple juice.

It took a long time to get up to a full dose of both the fishoil & the

nutriiveda. We had many instances of him throwing both of those up

until he adjusted. Be persistent.

Good luck!

Noelle

Sent from my iPhone

On Dec 20, 2010, at 9:21 PM, " papercandles123 " <snowbnny@...>

wrote:

> Hi

>

> I am new to this group. My son just turned 2 and I have a strong

> feeling he has apraxia. I plan on taking him to a speech evaluation

> hopefully soon. He is also an extremely picky eater. He only drinks

> water, no juice nothing else and his food choices are very limited.

> His eating seems to be slightly improving though, but he has a long

> way to go I think.

>

> I am trying to get him to take fish oil, but they are all flavored

> and he won't take it. I really want to try nutriiveda because of

> what I read about it. (I just literally found out about it today)The

> problem is, I read it isn't very good tasting, is this true? Which

> of the flavors would you recommend? I know it's all personal

> opinion, but I was hoping to get advice on which one to go for? And

> the big question, how do I get him to take it? He doesn't like

> yogurt or pudding, or even ice cream. He will eat gerber oatmeal

> though. I am thinking if I get it, the chances of him taking it are

> slim to non. I don't think he will take it mixed into anything.

> Also, do any of you give omegas to your children? If so, which brand

> do you use?

>

> thank you so much!!!

>

>

[Guest guest]

Thanks for your reply! which flavor do you think is the least offensive for

nutriiveda? Do you find that your son is improving with speech?

>

> > Hi

> >

> > I am new to this group. My son just turned 2 and I have a strong

> > feeling he has apraxia. I plan on taking him to a speech evaluation

> > hopefully soon. He is also an extremely picky eater. He only drinks

> > water, no juice nothing else and his food choices are very limited.

> > His eating seems to be slightly improving though, but he has a long

> > way to go I think.

> >

> > I am trying to get him to take fish oil, but they are all flavored

> > and he won't take it. I really want to try nutriiveda because of

> > what I read about it. (I just literally found out about it today)The

> > problem is, I read it isn't very good tasting, is this true? Which

> > of the flavors would you recommend? I know it's all personal

> > opinion, but I was hoping to get advice on which one to go for? And

> > the big question, how do I get him to take it? He doesn't like

> > yogurt or pudding, or even ice cream. He will eat gerber oatmeal

> > though. I am thinking if I get it, the chances of him taking it are

> > slim to non. I don't think he will take it mixed into anything.

> > Also, do any of you give omegas to your children? If so, which brand

> > do you use?

> >

> > thank you so much!!!

> >

> >

>

>

>

[Guest guest]

Paper candles123,

As an SLP who specializes in apraxia & eating challenges, I have to comment.

NutriiVeda DOES taste good! It comes in vanilla & chocolate. For children who

are picky eaters, it usually takes a little longer to get them adjusted to it

because it is NEW- not because it tastes bad. Since it doesn't have fat in it,

it's not going to taste like a fast food milkshake. It's important with a

picky eater to add a flavor he/she does like--for instance choc syrup, ice

cream, etc---so that there is a just noticeable difference between a drink

he/she likes & NV. It sounds like your son is not ready for NV as a drink. Since

I don't know what foods he eats, it's hard for me to advise you---but I would

try a tsp or so (very small amt) in his oatmeal, after you cook it, when it's

warm (not too hot b/c u can't cook w/NV). Try that for a while until he adjusts

to it-be persistent-and then add a little more. If he doesn't notice the chane,

u may be able to add a bit mire but don't go too fast. Once he gets to 1/2 scoop

2x a day, then u can start to look for surges. Here are some serving suggestions

http://pursuitofresearch.com/products/nutriiveda/nv-serving-suggestions

In what city & state are u located?

Warmest wishes,

Barbara A , M.S.,CCC-SLP

CEO,

Help Me Speak, LLC

www.helpmespeak.com

2500 Wallington Way

Suite 103

Marriottsville, MD 21104

410-442-9791

Ask me about NutriiVeda!

On Dec 22, 2010, at 4:54 PM, " papercandles123 " <snowbnny@...> wrote:

> Thanks for your reply! which flavor do you think is the least offensive for

nutriiveda? Do you find that your son is improving with speech?

>

>

> >

> > > Hi

> > >

> > > I am new to this group. My son just turned 2 and I have a strong

> > > feeling he has apraxia. I plan on taking him to a speech evaluation

> > > hopefully soon. He is also an extremely picky eater. He only drinks

> > > water, no juice nothing else and his food choices are very limited.

> > > His eating seems to be slightly improving though, but he has a long

> > > way to go I think.

> > >

> > > I am trying to get him to take fish oil, but they are all flavored

> > > and he won't take it. I really want to try nutriiveda because of

> > > what I read about it. (I just literally found out about it today)The

> > > problem is, I read it isn't very good tasting, is this true? Which

> > > of the flavors would you recommend? I know it's all personal

> > > opinion, but I was hoping to get advice on which one to go for? And

> > > the big question, how do I get him to take it? He doesn't like

> > > yogurt or pudding, or even ice cream. He will eat gerber oatmeal

> > > though. I am thinking if I get it, the chances of him taking it are

> > > slim to non. I don't think he will take it mixed into anything.

> > > Also, do any of you give omegas to your children? If so, which brand

> > > do you use?

> > >

> > > thank you so much!!!

> > >

> > >

> >

> >

> >

[Guest guest]

Where do you live? Every state has some sort of Early Intervention/Birth-3

program. You can get a free evaluation for Speech, OT and PT. What makes you

think he has Apraxia? My 12 yo son was only saying 10 words at 2yo. He had one

year of Speech thur Early Intervention and some prek speech outside of regular

prek 2x a week, he caught up to his age group by 3.5yo. Its my daughter who came

after him who is now 9yo that has the severe apraxia. Low tone at birth, and

followed by a Neurologist since 1yo. Most 2yo kids are picky eaters and any

Pediatrician will say that kids should not be drinking juice, I think its

wonderful he only likes water! I just have to wonder what makes you diagnose

your son with Apraxia when he's not even had an evaluation yet?

Maureen

>

> Hi

>

> I am new to this group. My son just turned 2 and I have a strong feeling he

has apraxia. I plan on taking him to a speech evaluation hopefully soon. He is

also an extremely picky eater. He only drinks water, no juice nothing else and

his food choices are very limited. His eating seems to be slightly improving

though, but he has a long way to go I think.

>

> I am trying to get him to take fish oil, but they are all flavored and he

won't take it. I really want to try nutriiveda because of what I read about it.

(I just literally found out about it today)The problem is, I read it isn't very

good tasting, is this true? Which of the flavors would you recommend? I know

it's all personal opinion, but I was hoping to get advice on which one to go

for? And the big question, how do I get him to take it? He doesn't like yogurt

or pudding, or even ice cream. He will eat gerber oatmeal though. I am thinking

if I get it, the chances of him taking it are slim to non. I don't think he will

take it mixed into anything. Also, do any of you give omegas to your children?

If so, which brand do you use?

>

> thank you so much!!!

>

[Guest guest]

I think sometimes there's a fine line between apraxia, ADD/ADHD, and

autism. From the definitions, I often think they sound very similar. At

age 3, our dd was diagnosed with moderate-severe autism and admittedly, she

had a number of stims. She was also drooling a lot and had zero words and

no babbling at the time of diagnosis, also mouthing a lot of objects. She

completely mute. We've done a number of biomedical interventions and I'd

say that all of the stims are gone, behaviors are almost completely in line

with age-appropriate behaviors, she has gained pretend play skills, and

receptive language is at about age 2.5. The only thing that still remains

now is the absence of functional expressive language. Although I do not

doubt her initial diagnosis of moderate-severe autism, I somewhat think that

her diagnosis has changed. However, in ABA, she still cannot do verbal

imitation, which makes me now think the diagnosis isn't quite autism anymore

but apraxia now, or perhaps mild autism and apraxia. She won't even do

basic imitation of sounds like " eeeeee " .

I've been using Carnosine and Carnitine and zinc and it seems to have

improved her overall tone. I'm getting some word approximations now and

they are spontaneous words of things she wants but it's very hard to

decipher. I spoke to her SLP who is treating it as though dd is ASD (and

why wouldn't she, that was dd's diagnosis) -- but somehow, it doesn't quite

sit right with me. All other things are indicating that this is less and

less autism and more apraxia. She said that they are unable to diagnose

apraxia until she has more words. But if she can't make the words, wouldn't

that be apraxia? I find it frustrating.

I find the different definitions confusing but where we're at, we get more

services having an autism diagnosis, so I'm not really doing much to have

the diagnosis updated at this point. But when I read some of the things

other people are experiencing, the different definitions sound very similar

to me.

On Thu, Dec 23, 2010 at 8:45 AM, mosense <mosense@...> wrote:

>

>

> Where do you live? Every state has some sort of Early Intervention/Birth-3

> program. You can get a free evaluation for Speech, OT and PT. What makes you

> think he has Apraxia? My 12 yo son was only saying 10 words at 2yo. He had

> one year of Speech thur Early Intervention and some prek speech outside of

> regular prek 2x a week, he caught up to his age group by 3.5yo. Its my

> daughter who came after him who is now 9yo that has the severe apraxia. Low

> tone at birth, and followed by a Neurologist since 1yo. Most 2yo kids are

> picky eaters and any Pediatrician will say that kids should not be drinking

> juice, I think its wonderful he only likes water! I just have to wonder what

> makes you diagnose your son with Apraxia when he's not even had an

> evaluation yet?

> Maureen

>

>

>

> >

> > Hi

> >

> > I am new to this group. My son just turned 2 and I have a strong feeling

> he has apraxia. I plan on taking him to a speech evaluation hopefully soon.

> He is also an extremely picky eater. He only drinks water, no juice nothing

> else and his food choices are very limited. His eating seems to be slightly

> improving though, but he has a long way to go I think.

> >

> > I am trying to get him to take fish oil, but they are all flavored and he

> won't take it. I really want to try nutriiveda because of what I read about

> it. (I just literally found out about it today)The problem is, I read it

> isn't very good tasting, is this true? Which of the flavors would you

> recommend? I know it's all personal opinion, but I was hoping to get advice

> on which one to go for? And the big question, how do I get him to take it?

> He doesn't like yogurt or pudding, or even ice cream. He will eat gerber

> oatmeal though. I am thinking if I get it, the chances of him taking it are

> slim to non. I don't think he will take it mixed into anything. Also, do any

> of you give omegas to your children? If so, which brand do you use?

> >

> > thank you so much!!!

> >

>

>

>

[Guest guest]

I have to go back and read the rest of the messages later to see why you suspect

your child has apraxia (if you did share that -if not please provide some

details as to why) Have you read the book I coauthored called The Late Talker?

If not I highly recommend that for you as it covers basics for a child that is

late to speak no matter what the reason and will help with the basics such as

Early Intervention -what type of therapies and professionals you may want to be

aware of as well as how to deal with frustrations -both your child's as well as

your own. Just sending out some quick emails today as like many here I'm with

family for Christmas Eve and just have a short break to pop in.

As far as NV -my boys and I didn't care for it much when we first tried it- but

my husband LOVED it to start and thought we were nuts. I did have to " doctor "

ours up to mix it with liquids we liked and some mix it with foods. You don't

have to start at the full dosage either -can even start at a " dusting " and go

from there. But no it doesn't taste nasty -OMG fish oil is nasty and we get

that into kids! And unlike fish oils which I never developed a taste for- I

just swallow capsules each day like the rest of my family -now my entire family

would think anyone that doesn't like the taste of NV is nuts (like my husband to

start) because we got used to it and can drink it with water alone even. This

comes in great when we travel to parks like Disney for the day (we live in

Florida) because I know I can serve my boys a healthy " meal " and then we walk

around and " eat " knowing they get the essential nutrients from the NV and the

fat and sodium and sugar from the Disney food! Ha! Also once they drink NV

they don't crave as much unhealthy foods -no longer do I have them bugging me

every second for something else to eat (we go to Disney often as we live in

Florida)

Which flavor -my son Dakota LOVES the vanilla and can tolerate the chocolate but

finds it " too chocolaty " while the rest of us prefer chocolate. My son Tanner

not only prefers chocolate but HATES the vanilla and will drink it now if we run

out of chocolate but will complain non stop of how gross it is. Both my boys

try to get each other to understand how good the flavor they like it over the

other. " Just try this how can you not like this?!! " they will both say. Point

being that each loves a different flavor.

In general a chocolate lover will be better off with chocolate and one who loves

say oatmeal -maybe the vanilla will be better to try first. You can now order

from our site a mixed pack of one vanilla and one chocolate and try both. We

are raising monies for a particular research and I'm having more meetings about

this right after the Holidays!!!! Here's a page that covers all of the most

common surges we see in a day to three days.

http://pursuitofresearch.com/pursuit-of-research/

Happy Holidays!

=====

[Guest guest]

Thank you so much everyone for your replies, I really appreciated the advice you

have all given me. The reason why I think he has apraxia is because his speech

is not clear. He can say approx 17 or so words but most of those words are not

clear. For example, he says chee for cheese, ess for yes, eye for hi, dee for

tv, waa for water, beh for bed. When I ask him to say bottle, he will say the

word without the " T " sound. Most other words that he says doesn't sound

anywhere near where the average person could guess what he is saying. The words

he says very well for his age are bear and bye. 99% of the day he will talk in

baby talk. He only said 3 words today on his own but he will say a word when I

ask him to.

He had feeding issues for a long time. He would gag and throw up food but that

started to resolved around 16 months but he is still very picky with food. He

met all his milestones on time and he is a very social and friendly little boy.

He understands what is said to him and asked of him most of the time. We never

took him for a speech eval but we did take him for an autim evaluation at a

children's hospital because of the speech issue and they said he didn't have

autism but suggested we contact early intervention for a speech evaluation so we

plan to do that.

Do aprexia children also have other problems like weak muscle tone usually? He

doesn't have any problems with muscle tone but he seems to be pretty strong for

a toddler. But the only problem seems to be speech. He did have a very traumatic

birth (but didn't go to nicu) so I wonder if that had anything to do with his

speech. If he suffered a brain injury during birth, would an mri detect this? I

want to take him to a pediatric neurologist if his speech doesn't resolve around

age 3. I read that mri's are iffy but there is something that shows the blood

flow to the part of the brain that controls speech and I would like to look into

that. I am sure I am getting ahead of myself but I want to be informed incase he

does have apraxia or another speech disorder.

> >

> > Hi

> >

> > I am new to this group. My son just turned 2 and I have a strong feeling he

has apraxia. I plan on taking him to a speech evaluation hopefully soon. He is

also an extremely picky eater. He only drinks water, no juice nothing else and

his food choices are very limited. His eating seems to be slightly improving

though, but he has a long way to go I think.

> >

> > I am trying to get him to take fish oil, but they are all flavored and he

won't take it. I really want to try nutriiveda because of what I read about it.

(I just literally found out about it today)The problem is, I read it isn't very

good tasting, is this true? Which of the flavors would you recommend? I know

it's all personal opinion, but I was hoping to get advice on which one to go

for? And the big question, how do I get him to take it? He doesn't like yogurt

or pudding, or even ice cream. He will eat gerber oatmeal though. I am thinking

if I get it, the chances of him taking it are slim to non. I don't think he will

take it mixed into anything. Also, do any of you give omegas to your children?

If so, which brand do you use?

> >

> > thank you so much!!!

> >

>

[Guest guest]

Hi, thank you for the reply. He's a very picky eater. He eats mashed potatoes

w/butter and cheese, He loves pasta with cheese and tomato sauce, and he eats

gerber oatmeal. He actually eats the oatmeal cold. That's litterally what he

eats every day. He will eat sliced banana pieces and he loves the canned slices

of pears in heavy syrup. He likes wendy's chicken nuggets cut up, he will eat 2

or 3 nuggets. Oh, and he will eart small pieces of hot dog and also those turkey

short cuts in a package (very small pieces other wise he will chew it then spit

it out) But that's about it. He won't drink juice, won't eat yogurt, not even

ice cream. I actually got him to finally try an ice pop and amazingly he liked

it. I always said I would never give junk food to my child and now I find myself

doing the opposite just to try to get him to eat a variety of foods. Thank you

so much for the link, I will check it out!

> > >

> > > > Hi

> > > >

> > > > I am new to this group. My son just turned 2 and I have a strong

> > > > feeling he has apraxia. I plan on taking him to a speech evaluation

> > > > hopefully soon. He is also an extremely picky eater. He only drinks

> > > > water, no juice nothing else and his food choices are very limited.

> > > > His eating seems to be slightly improving though, but he has a long

> > > > way to go I think.

> > > >

> > > > I am trying to get him to take fish oil, but they are all flavored

> > > > and he won't take it. I really want to try nutriiveda because of

> > > > what I read about it. (I just literally found out about it today)The

> > > > problem is, I read it isn't very good tasting, is this true? Which

> > > > of the flavors would you recommend? I know it's all personal

> > > > opinion, but I was hoping to get advice on which one to go for? And

> > > > the big question, how do I get him to take it? He doesn't like

> > > > yogurt or pudding, or even ice cream. He will eat gerber oatmeal

> > > > though. I am thinking if I get it, the chances of him taking it are

> > > > slim to non. I don't think he will take it mixed into anything.

> > > > Also, do any of you give omegas to your children? If so, which brand

> > > > do you use?

> > > >

> > > > thank you so much!!!

> > > >

> > > >

> > >

> > >

> > >

[Guest guest]

No one would expect a typical 2yo to speak clear! The milestones of an 18mo

expect them to be saying anywhere between 5-20 words. So at 2yo he's still

within that range. Apraxia is a Neurological condition that should be diagnosed

by a medical doctor: a Ped Neurologist or a Developmental Pediatrician. No one

even mentioned the word Apraxia when my 12yo had his speech therapy, it was a

simple speech delay that was corrected with about a year of therapy. My 9yo had

many issues going on as a newborn even before Apraxia was suspected at 1yo. You

should take 's advice and look at the book she co-wrote, The Late Talker. A

speech therapist evaluation would tell you if he's within the range of a late

talker or a very typical developing 2yo little boy.

http://www.childdevelopmentinfo.com/development/language_development.shtml

The sound development expected of typical babies is p,b,m along with some

others. Yours says many " b " words so he's typical in that area. It would include

Initial " B " words that you described.

Heres another chart given to me by just one of our many SLP's that have come

thru my house in the past 12 years with three kids who had speech therapy and

one severe Apraxia daughter diagnosed, finally at 4years old.

The chart also gives an idea of when the " T " sound is expected in typical

development of kids.

http://isd742.org/ecassessment/assets/speechsounddevelopmentchart.pdf

Maureen

>

> Thank you so much everyone for your replies, I really appreciated the advice

you have all given me. The reason why I think he has apraxia is because his

speech is not clear. He can say approx 17 or so words but most of those words

are not clear. For example, he says chee for cheese, ess for yes, eye for hi,

dee for tv, waa for water, beh for bed. When I ask him to say bottle, he will

say the word without the " T " sound. Most other words that he says doesn't sound

anywhere near where the average person could guess what he is saying. The words

he says very well for his age are bear and bye. 99% of the day he will talk in

baby talk. He only said 3 words today on his own but he will say a word when I

ask him to.

>

>

[Guest guest]

Ok, you gave me hope because this is weighing heavy on me. When I said he

doesn't talk clear, I mean clear as in how a toddler his age would talk. Most

words he says are not even close to the actual word. I could only figure out

what he is saying based on his actions. I talked to a speech therapist online

and she was the one that suggested he could have apraxia. Actually she said it

could be dyspraxia which she said is basically the same as apraxia. This was

through a website that people volunteer their time to answer questions for free

in various professions so this is what started it all and how I ended up on this

group.

She also said he should be saying 300 words at 24 months. I still have to wonder

if she was trying to sell her services because she said she would give me a

telephone conference and I remember her fees were high but I like to give the

benefit of the doubt. She didn't diagnose him, she just said it sounds like he

has dyspraxia. Plus, he had a traumatic delivery and I read that can cause

apraxia. The more I researched, the more I thought she might be right. I pulled

up videos on youtube with children that have apraxia and it just seems like he

really does have it.

> >

> > Thank you so much everyone for your replies, I really appreciated the advice

you have all given me. The reason why I think he has apraxia is because his

speech is not clear. He can say approx 17 or so words but most of those words

are not clear. For example, he says chee for cheese, ess for yes, eye for hi,

dee for tv, waa for water, beh for bed. When I ask him to say bottle, he will

say the word without the " T " sound. Most other words that he says doesn't sound

anywhere near where the average person could guess what he is saying. The words

he says very well for his age are bear and bye. 99% of the day he will talk in

baby talk. He only said 3 words today on his own but he will say a word when I

ask him to.

> >

> >

>

[Guest guest]

One idea for mixing NV. My son has a very hard time eating as well & we have to

give him many supplements to that he can maintain his weight. He has a feeding

tube, but luckily we haven't had to use it on over a year, anyway.....I mix a

scoop of chocolate NV with chocolate pediasure (he can use every extra calorie

possible). I use a bamix mixer so there are no clumps & it tastes like a

chocolate malty milkshake. It is sometimes a struggle for him to get down, but

he usually will take one scoop a day. Hope that helps, good luck.

________________________________

From: papercandles123 <snowbnny@...>

Sent: Sun, December 26, 2010 11:05:29 AM

Subject: [ ] Re: Nutriiveda questions and other questions

Hi, thank you for the reply. He's a very picky eater. He eats mashed potatoes

w/butter and cheese, He loves pasta with cheese and tomato sauce, and he eats

gerber oatmeal. He actually eats the oatmeal cold. That's litterally what he

eats every day. He will eat sliced banana pieces and he loves the canned slices

of pears in heavy syrup. He likes wendy's chicken nuggets cut up, he will eat 2

or 3 nuggets. Oh, and he will eart small pieces of hot dog and also those turkey

short cuts in a package (very small pieces other wise he will chew it then spit

it out) But that's about it. He won't drink juice, won't eat yogurt, not even

ice cream. I actually got him to finally try an ice pop and amazingly he liked

it. I always said I would never give junk food to my child and now I find myself

doing the opposite just to try to get him to eat a variety of foods. Thank you

so much for the link, I will check it out!

> > >

> > > > Hi

> > > >

> > > > I am new to this group. My son just turned 2 and I have a strong

> > > > feeling he has apraxia. I plan on taking him to a speech evaluation

> > > > hopefully soon. He is also an extremely picky eater. He only drinks

> > > > water, no juice nothing else and his food choices are very limited.

> > > > His eating seems to be slightly improving though, but he has a long

> > > > way to go I think.

> > > >

> > > > I am trying to get him to take fish oil, but they are all flavored

> > > > and he won't take it. I really want to try nutriiveda because of

> > > > what I read about it. (I just literally found out about it today)The

> > > > problem is, I read it isn't very good tasting, is this true? Which

> > > > of the flavors would you recommend? I know it's all personal

> > > > opinion, but I was hoping to get advice on which one to go for? And

> > > > the big question, how do I get him to take it? He doesn't like

> > > > yogurt or pudding, or even ice cream. He will eat gerber oatmeal

> > > > though. I am thinking if I get it, the chances of him taking it are

> > > > slim to non. I don't think he will take it mixed into anything.

> > > > Also, do any of you give omegas to your children? If so, which brand

> > > > do you use?

> > > >

> > > > thank you so much!!!

> > > >

> > > >

> > >

> > >

> > >

[Guest guest]

The 300 words might be a little high but he should be saying more, you could

look at any of the charts yourself by googling speech milestones. 300 might be

on the very high end of 2yo and closer to 3yo?? Where do you live? there has to

be some form of early intervention to get an actual person coming to see him

without you describing him on the phone and having someone trying to get your

money?? Dyspraxia is some words, Apraxia is no words at all...thats the way its

been described in the past. Please get 's book and make some phone calls to

your health department or school district, there are some places where the

school district handles Birth-3 although in most states in the US, its the

County Health Dept. Are you in the US??

Was this woman you talked to on the phone a medical doctor? than she should not

be diagnosing your son on the phone!!

> > >

> > > Thank you so much everyone for your replies, I really appreciated the

advice you have all given me. The reason why I think he has apraxia is because

his speech is not clear. He can say approx 17 or so words but most of those

words are not clear. For example, he says chee for cheese, ess for yes, eye for

hi, dee for tv, waa for water, beh for bed. When I ask him to say bottle, he

will say the word without the " T " sound. Most other words that he says doesn't

sound anywhere near where the average person could guess what he is saying. The

words he says very well for his age are bear and bye. 99% of the day he will

talk in baby talk. He only said 3 words today on his own but he will say a word

when I ask him to.

> > >

> > >

> >

>

[Guest guest]

My youngest son has apraxia and had feeding issues. He choked on food and thin

liquids. We thickened his liquids and did feeding therapy with two SLPs. The

thing that finally resolved it completely was integrating his rooting reflex by

brushing in his mouth with his head midline and biting/chewing apricots with his

back teeth while we helped kee p his head midline. We learned about it through

an OT that specialized in feeding and reflex integration.

The other thing that also helped a lot with feeding/textures and speech/motor

skills for us was a D.O. who is really good at cranial manipulations combined

with CST (upledger.com). He also had difficult birth and those two things help

with restrictions in the head/body.

Both the nutriiveda and the Nordic naturals have worked well - especially the

Nutriiveda. My children drink the chocolate mixed with water and they just don't

get anything or do anything until it's done (plus they know ith gets thicker the

longer they leave it). I have given a half a cookie when done and at times we

have given a quater that they put in a bank to save for a toy, etc. My friend's

son does vanilla in milk with hersheys lite syrup and her son begs for it. He

will also do chocolate spread on a PB & J.

Both my boys have apraxia and I have found the labels and getting as much

information on things like MRIs has been the least helpful because it caused me

so much stress that I couldn't help but give off to them in my interactions, I'm

sure. The things I really had a feeling would help, did. The things I dreaded

didn't seem to help much. Go with what you have a feeling about and enjoy your

child. Sometimes I feel like I wasted so much of his childhood chasing

information and trying to make him typical instead of trusting his path and just

helping him. - not to assume that you are doing that, just remembering what it

was like for me when he was that age. I'm sure if all this information had

been around when I was a kid, I would be very different- more anxious. I had

feeding issues, speech issues, was a W sitter (they called that flexable). I was

left to play with friends and in the woods all day - Basically given the grace

if childhood thank goodness. After MANY difficult years in school with nothing

extra but elementary school speech therapy I later gained some confidence and

went on to do well in later college years and have a useful brain.

Hope you find a way to get the Nutriiveda down and sorry to have rambled. That

is just where I am right now, but maybe the gift of Nutriiveda the last 9 months

gives me the luxury of thinking I didn't need to stress so much.

> > >

> > > Hi

> > >

> > > I am new to this group. My son just turned 2 and I have a strong feeling

he has apraxia. I plan on taking him to a speech evaluation hopefully soon. He

is also an extremely picky eater. He only drinks water, no juice nothing else

and his food choices are very limited. His eating seems to be slightly improving

though, but he has a long way to go I think.

> > >

> > > I am trying to get him to take fish oil, but they are all flavored and he

won't take it. I really want to try nutriiveda because of what I read about it.

(I just literally found out about it today)The problem is, I read it isn't very

good tasting, is this true? Which of the flavors would you recommend? I know

it's all personal opinion, but I was hoping to get advice on which one to go

for? And the big question, how do I get him to take it? He doesn't like yogurt

or pudding, or even ice cream. He will eat gerber oatmeal though. I am thinking

if I get it, the chances of him taking it are slim to non. I don't think he will

take it mixed into anything. Also, do any of you give omegas to your children?

If so, which brand do you use?

> > >

> > > thank you so much!!!

> > >

> >

>

[Guest guest]

Based on his dietary choices, it sounds like he is having difficulty chewing his

foods. In what city/state are u? So find an SLP in your area who specializes in

evaluating kids who have oral motor and eating challenges. Or come to my clinic

and we can eval and then do therapy via computer/video. Let me know.

Warmest wishes,

Barbara A , M.S.,CCC-SLP

CEO,

Help Me Speak, LLC

www.helpmespeak.com

2500 Wallington Way

Suite 103

Marriottsville, MD 21104

410-442-9791

Ask me about NutriiVeda!

On Dec 26, 2010, at 2:05 PM, " papercandles123 " <snowbnny@...> wrote:

> Hi, thank you for the reply. He's a very picky eater. He eats mashed potatoes

w/butter and cheese, He loves pasta with cheese and tomato sauce, and he eats

gerber oatmeal. He actually eats the oatmeal cold. That's litterally what he

eats every day. He will eat sliced banana pieces and he loves the canned slices

of pears in heavy syrup. He likes wendy's chicken nuggets cut up, he will eat 2

or 3 nuggets. Oh, and he will eart small pieces of hot dog and also those turkey

short cuts in a package (very small pieces other wise he will chew it then spit

it out) But that's about it. He won't drink juice, won't eat yogurt, not even

ice cream. I actually got him to finally try an ice pop and amazingly he liked

it. I always said I would never give junk food to my child and now I find myself

doing the opposite just to try to get him to eat a variety of foods. Thank you

so much for the link, I will check it out!

>

>

> > > >

> > > > > Hi

> > > > >

> > > > > I am new to this group. My son just turned 2 and I have a strong

> > > > > feeling he has apraxia. I plan on taking him to a speech evaluation

> > > > > hopefully soon. He is also an extremely picky eater. He only drinks

> > > > > water, no juice nothing else and his food choices are very limited.

> > > > > His eating seems to be slightly improving though, but he has a long

> > > > > way to go I think.

> > > > >

> > > > > I am trying to get him to take fish oil, but they are all flavored

> > > > > and he won't take it. I really want to try nutriiveda because of

> > > > > what I read about it. (I just literally found out about it today)The

> > > > > problem is, I read it isn't very good tasting, is this true? Which

> > > > > of the flavors would you recommend? I know it's all personal

> > > > > opinion, but I was hoping to get advice on which one to go for? And

> > > > > the big question, how do I get him to take it? He doesn't like

> > > > > yogurt or pudding, or even ice cream. He will eat gerber oatmeal

> > > > > though. I am thinking if I get it, the chances of him taking it are

> > > > > slim to non. I don't think he will take it mixed into anything.

> > > > > Also, do any of you give omegas to your children? If so, which brand

> > > > > do you use?

> > > > >

> > > > > thank you so much!!!

> > > > >

> > > > >

> > > >

> > > >

> > > >

[Guest guest]

Without the therapist actually meeting with and assessing your child directly

and individually (and making sure she is actually a qualified SLP) I would not

put too much stock in this speculation. A lot of kids have delays and trouble

with language but that does not necessarily mean apraxia. I would contact early

intervention (you can just google early intervention along with the name of your

state or the department of human services along with your state and it should

lead you to how to contact them....or ask your doctor). They will do an

evaluation. But even then still know that there might not be exact answers

right away. It took a couple months of an SLP working directly with my son

before the word apraxia was even mentioned even though I had my suspicions long

before they said it. This disorder is pretty complicated and even the SLPs

often misdiagnose/over diagnose so just be careful.

________________________________

From: papercandles123 <snowbnny@...>

Sent: Sun, December 26, 2010 7:43:36 PM

Subject: [ ] Re: Nutriiveda questions and other questions

Ok, you gave me hope because this is weighing heavy on me. When I said he

doesn't talk clear, I mean clear as in how a toddler his age would talk. Most

words he says are not even close to the actual word. I could only figure out

what he is saying based on his actions. I talked to a speech therapist online

and she was the one that suggested he could have apraxia. Actually she said it

could be dyspraxia which she said is basically the same as apraxia. This was

through a website that people volunteer their time to answer questions for free

in various professions so this is what started it all and how I ended up on this

group.

She also said he should be saying 300 words at 24 months. I still have to wonder

if she was trying to sell her services because she said she would give me a

telephone conference and I remember her fees were high but I like to give the

benefit of the doubt. She didn't diagnose him, she just said it sounds like he

has dyspraxia. Plus, he had a traumatic delivery and I read that can cause

apraxia. The more I researched, the more I thought she might be right. I pulled

up videos on youtube with children that have apraxia and it just seems like he

really does have it.

[Guest guest]

My red flag is going up for this " helpful and free " service that so nicely

offered after the " free " evaluation an expensive evaluation after suspecting

apraxia based on your (email?) description of your 2 year old. First of all

it's difficult if not impossible to have a definitive diagnosis of a 2 year old

without a thorough (need I say in person) evaluation by at least an SLP and a

neuroMD exam as well by a pediatric neurologist or developmental pediatrician.

In many cases the child will be diagnosed even in person as " suspected " apraxic

and appropriate therapies would be recommended just in case. And apraxia is so

diverse in presentation and severity that there are few signs- but for sure one

of them would NOT be that a child can't say 300 words by 2. The most common

sign would be " did he ever say a word once and never again? " Apraxia is the

inability to perform on command- so they may do or say something when not

thinking about it -say while on a swing (during a multisensory activity is

typical) but not be able to repeat it. Apraxic children on fish oils or NV no

longer fit this classic sign either however -but that doesn't mean they are not

apraxic. This is why you need professionals that are knowledgeable about

apraxia. Video or phone consults are great and I'm not knocking them for

supplemental.

Have you read The Late Talker book yet? It's a book I co authored with a

neurodevelopmental pediatrician that covers the basics of when your child isn't

talking yet.

I want to know the name of this service so I can check it out myself. Please do

share either here or private lisa@...

Here is a " late talker handout " which covers basics

Typically seen in first 18-24 months

· Uses mostly words to communicate · Begins to use two word combinations (more

cookie etc) · By 24 months has more than 50 words, or word approximations

Cause for concern in first 18-24 months

· Relies on gestures to communicate · Limited vocabulary (speaks less than 50

words)

· Does not use any two word combinations · Limited consonant production · Mostly

unintelligible speech · Regresses in language development: Stops talking,

repeats phrases inappropriately

Typically seen in first 24-36 months

· Engages in short dialogues · Expresses emotions · Begins using language in

imaginative ways · Begins providing descriptive details when speaking · Begins

to use articles and word endings (a, the, ing,) uses plurals (cats)

Cause for concern in first 24-36 months

· Words limited to single syllable and no final consonants · Few or no multiword

utterances · Does not demand a response from a listener · Asks no questions ·

Speech difficult to understand · Tantrums when frustrated · Echoing of speech

without communicative intent

http://www.cherab.org/information/latetalkerhandout.html

Some new member archive pages from our facebook group

http://www.facebook.com/topic.php?uid=115029735601 & topic=7329

http://www.facebook.com/topic.php?uid=115029735601 & topic=13085

And here is a recent archive that covers the surges in a child that didn't have

as dramatic a surge as most on NV as well as more information for new members

that may help you too. For more info on NV please visit

http://www.pursuitofresearch.org and let me know if you have any questions. I

HIGHLY recommend NV as well as fish oils in addition to a thorough evaluation by

an SLP and neuroMD as well as appropriate therapies. And PS -even if your child

happens to be apraxic- we have kids like my son Tanner that were diagnosed

severe profound at 3 -only able to say sounds like " mmmm " or a " word " like " ma "

at almost 3 -and today at 14 mainstreamed and a good student, playing varsity

basketball and communicating verbally almost just like anyone else -apraxia is

no longer obvious -and with appropriate early interventions (or just therapies

in general for older kids) there is great hope for all. And yes -I highly put

both fish oils and now NV as a MUST DO list for probably anyone reading this for

their child.

Happy Holidays!

~~~~~~~~~~~~~start of archives

Hi all-

A 4 day holiday weekend.... that included a break in all activities, school, and

even my Son's Speech therapy, has caused me to have extra time to go through a

huge pile of old " Mini DV Tapes " from our camcorder- to simply label what was on

each of them. The pile of " non labelled tapes was really bothering me.... it

was nice to finally take the time to label what was on them!

I found the old tape, where I recoreded my son BEFORE NV last Feb..... I also

saw the numerous videos of him that I recorded of him in the next few weeks. My

Son was 35 months old when he started NV.... he is now 44 months old. I tried to

take time to post these videos on You Tube.... but was not able to have

success... the tapes were stored... but not forgotten!

I wanted to discuss some of my feelings/observations after seeing these videos

as follows:

1. My Son has a diagnosis of moderate to severe Apraxia.... (I feel that he

leans more toward the Severe end).. When we started NV, I think that I expected

a MIRACLE.... and it did not occur....I was too emotional with worry over my

son's condition to even notice the small changes that occurred within 2 weeks

after NV! Looking at all of these videos with a CLEARER MIND made me see that

there WERE CLEAR DIFFERENCES! My parents even noticed the differences when

watching the videos! My son seemed much more focused after the second week of

NV. He also went through the typical " hyper stage " that some of our kids do--

but not in a bad way..... he simply was babbling more.... and trying harder to

use " word approximations " ... which was good! (He barely made any sounds at all

prior to NV.....to even get him to TRY to verbalize a " word approximation " was

very hard back then). The increase in babbling was a GOOD thing.... think about

it..... he had delays.... and he HAD to go through the babbling stage before

attempting to master actual words. The NV helped him with this... and more and

more " word approximations " started to emerge in the next few months!

2. Last year, I was so consumed with worry- my son had clear delays... he was in

EI--- he soon would be turning age 3....(which to me, meant that he would be

transitioning from EI to a Special Needs Pre K).... all of my energy was taken

up with worry about how my son did not speak.... and how I had to FIND A WAY to

FIGHT the " Special Needs PK School who did NOT believe in 1:1 pull out ST.... I

was too distraught to SEE the changes in my own child! I feel that I had " high

hopes " that he would have an increase in speech abilities (meaning ,to me, the

use of WORDS).... which he did not during the start of NV.... As mentioned in

#1.... the NV assisted with the babbling... which assisted in the development of

" word approximations " and so on....

3. After looking at all of the old videos... and comparing them to even 1 week,

1 month after NV.... all the way up to the present..... it is CLEAR that

SOMETHING DID CHANGE.... FOR THE BETTER! I CAN recall feeling really upset

inside in the past.... because some of the moms who took the time to post

" before and after videos of their children on NV " seemed to have kids who

" seemed to have better Speech abilities than my Son on their BEFORE NV

Videos " ... I was happy for them....(their kid's progress AFTER NV was very

obvious)! I also, felt sad when I compared my son to these other kids.... when

I compared him to them, he seemed to be even more behind in speech to me.... I

can recall feeling quite depressed about this.

4. Months later..... with a clearer mind..... (more time to internally ACCEPT my

Son's Speech Delays- and deal with them from a point of strength)... and also

due to the fact that I DID obtain 1:1 pull out ST at the PK level in my

State.... (Thanks again - for empowering me to achieve this).... I CAN now

see differences.. and will describe them as follows... (Again, We just looked

at a bunch of old videos of our Son.... the differences were CLEAR to us... and

also to our Family Members who watched these with us)....

5). BEFORE NV

- all Baby videos of Tyler show hardly any babbling other than MUM MUM MUM... he

WAS able to create some pretty powerful Raspberries though!

- older videos show clear Sensory Issues starting at age 5 months old.... Ty was

screaming every time he was placed on grass in bare feet, He also had huge

sensory issues at bath time..(it took awhile to get him used to the sensation of

being in water). there were feeding issues (gagging on certain textures) that

continue to this day as well.

SHORTLY BEFORE START OF NV... (age 2 forward).... I seemed to ALWAYS be trying

to get

Tyler to point out his body parts on old videos.... He REALLY could point to his

nose, his mouth, etc.... he just never did it on a video.... I sounded so

pathetic on these videos... I kept asking him to show me his nose.... I kept

asking him to talk to me.... and he appeared to have a blank look on his face as

I did this. He would smile from time to time.... but he also always seemed to

have a " BLANK " expression on his face... and his mouth used to hang open....

His eyes often, had no sparkle.... (my dad used to tell me that he thought

Tyler was autistic during these days).... Tyler always TRIED to be social with

others.... he also loved to hug others.... and he DID know where his nose and

mouth, etc were.... he had " no words " .... but his smiles and hand/arm " gestures "

made up for this. If I asked him " how big are you " ... he would raise his arms

up in the air with a huge grin and say OOO eee (so big). Looking back, it almost

seems like Tyler did not like " being put on the spot " to " talk " ..... in these

old videos..... Tyler was a smart little kid... he started ST with EI at age 20

months.... he used to smile, and place his fingers in his ears when the

therapist tried to work with him. He KNEW that " this speech stuff " was HARD!

- I have a video of Tyler the day before we started NV..... we were going

through home-made " Flash Cards " together (laminated pictures of family members,

favorite toys and pets).... He was very distracted.. and became upset

quickly... He continued to have a " blank expression " .

AFTER NV....

The blank look on his face was gone by the second month after NV.... his FOCUS

improved.... which caused his attention span during his ST sessions to

improve... Speech abilities transitioned from babbling to more word

approximations. the increase in his attention span helped him to get more out of

his ST Sessions! He was able to follow directions better-- and he was more

willing to TRY! We have always loved a " Fun Class for kids " called

Kindermusik.... these classes are offered in most states- and they are awesome!

Prior to NV, Tyler spent his Kindermusik class times trying to crawl toward to

exit door.... NOW- he is engaged, follows directions... and LOVES IT! His

" Words " have increased to the point where he can put together 3 word

sentences..... such as " MUH OWE ON " (My show on)... He started to have an

increased interest in singing this past July for the first time..... If I " sing

simple songs slowly " .... he can follow me! This is the child who seemed to have

zero interest in simple Nursery Rhymes at age 2 and age 3! He will be age 4 in

March.... and, starting about 2 months ago, he is " catching up " to learning all

of those Nursery Rhymes! (He can't sing them like " typical kids do " ).... BUT HE

IS SINGING! It is beautiful!

Have to include this.... Ty's version of " Twinkle Twinkle Little Star " ....

EE OHL EE OHL EE- EE ARE... (Twinkle, twinkle little star)

OW AYE WUH OO OW OO ARE. ( how I wondor what you are).. W's are hard- he has

learned to put his hand over his mouth to " make the windy sound " when he

attempts " W's "

U-PAH uh uh WHHH-ole oh AYE! (S sounds are also hard)..

He can spell his name to ther tune of the song " Bingo " now as well... He says

T- AYE - luh - E- R-uh. He can count out objects up to 6.... he can identify

colors... he DANCES! He is drawing the letter " T " correctly-- and often does it

all over my walls in crayon! (I do not like this- but he is so cute.... I ask

" who did this " .... he proudly, responds " ME " .

We are very busy with all of his therapies... and also have a very advanced

older daughter who is a firecracker.... (involved in dancing and acting

classes.. and is doing an amazing job at it at only age 5.8 yrs old)- she talked

early, knew her ABCs early... EVERYTHING she did and still does is EARLY. It is

a CHALLENGE to balance our lives/schedules to meet the needs of these 2

children! We never " pushed " " potty training with Tyler " .... yet, he

essentially, figured it all out on his own by simply trying to copy his older

sister!

In conclusion, I feel that Tyler has come very far in a short time.... and I

BELIEVE that NV has assisted him to do this. We also are giving him the NN Fish

Oils... he takes 2 Pro EFA, and one Pro EPA per day.... (These are huge gel

caps--- I pierce them with a pin- and squirt them into his mouth). HE LOVES

THEM!

PLEASE-- to any of you who doubt NV-- DO NOT GIVE UP if it does not seem to

create " instant miracles " .... MOST people do see immediate changes.... and some

do not... (I fell into this category in my son's case), but if you had the

patience to read my detailed descriptions of how my son was " Prior to NV " ... you

can see that he had SIGNIFICANT Speech Delays! I feel that the NV assisted my

Son to " go through the normal process of achieving developmental milestones that

he was not able to achieve " ...... and CHILDREN MUST go through these milestones,

as part of their development! YES- we all want our children to SPEAK at an age

appropriate level...... when we have kids affected by Apraxia- this DOES NOT

OCCUR! I feel confidant that NV assisted my son to " catch up " .... Yes- his

Speech remains delayed.... but he improves every week! My child is a SMART

kid--- now that he is more focused, and more confidant-- he WANTS to try to talk

MORE! He learned and memorized the entire song " BINGO " during a short drive in

the car (when his older sister, who interrupts him was not present)!

He also has a diagnosis of Hypotonia.... and wore DAFOs (Orthotic Braces) from

age 20 months on to assist with ankle pronation. His braces have been cut down

in size! He can RUN, he can climb!

NV IS HELPING HIM!

[ ] Re: Hello All - My 22 month old has been given an

Apraxia Dx

Brett you can read some of The Late Talker book online for free at Google books

-go check it out and see if your child to you fits any of the description of

apraxia. If you agree with the therapist that suspects it -then you should make

an appointment with either a pediatric neurologist or developmental pediatrician

to confirm or rule out those soft signs- and the more knowledgeable ones who see

children with apraxia, autism and other disorders will be able to let you know

if your child is presenting as normal in all other areas. Even from your first

email I'm kind of getting the impression your child may just have a simple delay

and that's awesome. Goodness knows some of our kids have to be in that 75%!!!!

You'd think we'd end up with more typical " late talkers " here -but I believe

what happens is that most of them read some of the other messages and are blown

away to say anything. At least that is what a few have written to me. This group

is for any type of delay in speech from developmental to impairment and for any

reason. The goal is to provide you with the tools you need to best advocate for

what would be the appropriate services for now to provide your child with the

best possible prognosis. I'd say once you get a neuroMD exam if he finds your

child falls into the normal range in other areas than of course continue the

SLP, but the fish oils or NV ( http://pursuitofresearch.org/science.html which I

highly recommend if your child does have an impairment vs a simple delay) may or

may not help stimulate the speech any faster.

Typically for whatever reason it is us, the moms that get that " feeling " Ask her

how she feels now about your child. Does she think it's a simple delay or does

she agree it's apraxia? I believe that all of us as parents can tune into that

internal sixth sense if we are open to it- and seems you two are as parents.

Awesome!!

=====

[Guest guest]

Thank you so much for all the advice you provided. I really appreciate it! I

plan to pick up your book sometime this weekend. I will email you the website

address where I found the speech therapist.

I still have some of the email communication and I made a mistake, she said he

should know 250 words (it wasn't 300) and he should be combining them. I

apologize for the mistake. I will put some of the email messages I had with her

in this post.

Below are some of the email communication I had with her. It's not the whole

thing, I am just putting the ones where she thought it was dysprexia. The

original message I sent her was about how my son says a few words and majority

aren't clear. (clear as in how a toddler would speak at his age.) Basically the

description I put in this group.

- This is her message:

Well-we can say for sure that he is quite language delayed. A child his age

should have over 250 words and be combining them. At 23 months, with such poor

expressive language skills, he is going to get really frustrated if he isn't

already. So get some speech therapy that focuses on the following areas:

1. developing an alternative communicative method while he is learning to speak

to help with frustration and to provide a bridge to verbal communication.

2. work on motor speech through a program called the Kaufmann PRaxis Treatment

Program. It sounds like your son might have dyspraxia which is why the words he

does say are not really intelligible. This program addresses that.

You can always do a home therapy program with my supervision if you can't get

good services. Just let me know, and I will arrange a way to train you either on

the phone.

- Here is what I wrote:

Thank you, I appreciate your feedback. I looked up dyspraxia and it doesn't seem

to fit him. He does say a couple clear words. I read that children with this

disorder have trouble learning basic movements and their associated patterns,

like lifting a cup to drink or opening a book. He never had problems in that

area.

-This is her message:

There are different kinds of dyspraxia. Oral, Verbal, etc. Since you mentioned

in your original email that most of his words are unclear, that's what I was

thinking. Here is a good test for verbal dyspraxia: Can he repeat back whatever

you ask him to say clearly? Any word that you tell him. Will he repeat it back

to you?

..... Anyway, after speaking to her I did more research and I pulled up videos of

children that have apraxia on youtube. The more I thought about it the more I

thought she might be right. But I know that apraxia can't be diagnosed until the

age of 3 and at the time I messaged her, he was just turning 23 months.

>

> My red flag is going up for this " helpful and free " service that so nicely

offered after the " free " evaluation an expensive evaluation after suspecting

apraxia based on your (email?) description of your 2 year old. First of all

it's difficult if not impossible to have a definitive diagnosis of a 2 year old

without a thorough (need I say in person) evaluation by at least an SLP and a

neuroMD exam as well by a pediatric neurologist or developmental pediatrician.

In many cases the child will be diagnosed even in person as " suspected " apraxic

and appropriate therapies would be recommended just in case. And apraxia is so

diverse in presentation and severity that there are few signs- but for sure one

of them would NOT be that a child can't say 300 words by 2. The most common

sign would be " did he ever say a word once and never again? " Apraxia is the

inability to perform on command- so they may do or say something when not

thinking about it -say while on a swing (during a multisensory activity is

typical) but not be able to repeat it. Apraxic children on fish oils or NV no

longer fit this classic sign either however -but that doesn't mean they are not

apraxic. This is why you need professionals that are knowledgeable about

apraxia. Video or phone consults are great and I'm not knocking them for

supplemental.

>

> Have you read The Late Talker book yet? It's a book I co authored with a

neurodevelopmental pediatrician that covers the basics of when your child isn't

talking yet.

>

> I want to know the name of this service so I can check it out myself. Please

do share either here or private lisa@...

>

> Here is a " late talker handout " which covers basics

> Typically seen in first 18-24 months

> · Uses mostly words to communicate · Begins to use two word combinations (more

cookie etc) · By 24 months has more than 50 words, or word approximations

>

> Cause for concern in first 18-24 months

> · Relies on gestures to communicate · Limited vocabulary (speaks less than 50

words)

> · Does not use any two word combinations · Limited consonant production ·

Mostly unintelligible speech · Regresses in language development: Stops talking,

repeats phrases inappropriately

>

> Typically seen in first 24-36 months

> · Engages in short dialogues · Expresses emotions · Begins using language in

imaginative ways · Begins providing descriptive details when speaking · Begins

to use articles and word endings (a, the, ing,) uses plurals (cats)

>

> Cause for concern in first 24-36 months

> · Words limited to single syllable and no final consonants · Few or no

multiword utterances · Does not demand a response from a listener · Asks no

questions · Speech difficult to understand · Tantrums when frustrated · Echoing

of speech without communicative intent

> http://www.cherab.org/information/latetalkerhandout.html

>

> Some new member archive pages from our facebook group

>

> http://www.facebook.com/topic.php?uid=115029735601 & topic=7329

>

> http://www.facebook.com/topic.php?uid=115029735601 & topic=13085

>

> And here is a recent archive that covers the surges in a child that didn't

have as dramatic a surge as most on NV as well as more information for new

members that may help you too. For more info on NV please visit

http://www.pursuitofresearch.org and let me know if you have any questions. I

HIGHLY recommend NV as well as fish oils in addition to a thorough evaluation by

an SLP and neuroMD as well as appropriate therapies. And PS -even if your child

happens to be apraxic- we have kids like my son Tanner that were diagnosed

severe profound at 3 -only able to say sounds like " mmmm " or a " word " like " ma "

at almost 3 -and today at 14 mainstreamed and a good student, playing varsity

basketball and communicating verbally almost just like anyone else -apraxia is

no longer obvious -and with appropriate early interventions (or just therapies

in general for older kids) there is great hope for all. And yes -I highly put

both fish oils and now NV as a MUST DO list for probably anyone reading this for

their child.

>

> Happy Holidays!

>

> ~~~~~~~~~~~~~start of archives

>

> Hi all-

> A 4 day holiday weekend.... that included a break in all activities, school,

and

> even my Son's Speech therapy, has caused me to have extra time to go through a

> huge pile of old " Mini DV Tapes " from our camcorder- to simply label what was

on

> each of them. The pile of " non labelled tapes was really bothering me.... it

> was nice to finally take the time to label what was on them!

>

> I found the old tape, where I recoreded my son BEFORE NV last Feb..... I also

> saw the numerous videos of him that I recorded of him in the next few weeks.

My

> Son was 35 months old when he started NV.... he is now 44 months old. I tried

to

> take time to post these videos on You Tube.... but was not able to have

> success... the tapes were stored... but not forgotten!

>

> I wanted to discuss some of my feelings/observations after seeing these videos

> as follows:

>

> 1. My Son has a diagnosis of moderate to severe Apraxia.... (I feel that he

> leans more toward the Severe end).. When we started NV, I think that I

expected

> a MIRACLE.... and it did not occur....I was too emotional with worry over my

> son's condition to even notice the small changes that occurred within 2 weeks

> after NV! Looking at all of these videos with a CLEARER MIND made me see that

> there WERE CLEAR DIFFERENCES! My parents even noticed the differences when

> watching the videos! My son seemed much more focused after the second week of

> NV. He also went through the typical " hyper stage " that some of our kids do--

> but not in a bad way..... he simply was babbling more.... and trying harder to

> use " word approximations " ... which was good! (He barely made any sounds at all

> prior to NV.....to even get him to TRY to verbalize a " word approximation " was

> very hard back then). The increase in babbling was a GOOD thing.... think

about

> it..... he had delays.... and he HAD to go through the babbling stage before

> attempting to master actual words. The NV helped him with this... and more and

> more " word approximations " started to emerge in the next few months!

>

> 2. Last year, I was so consumed with worry- my son had clear delays... he was

in

> EI--- he soon would be turning age 3....(which to me, meant that he would be

> transitioning from EI to a Special Needs Pre K).... all of my energy was taken

> up with worry about how my son did not speak.... and how I had to FIND A WAY

to

> FIGHT the " Special Needs PK School who did NOT believe in 1:1 pull out ST....

I

> was too distraught to SEE the changes in my own child! I feel that I had " high

> hopes " that he would have an increase in speech abilities (meaning ,to me, the

> use of WORDS).... which he did not during the start of NV.... As mentioned in

> #1.... the NV assisted with the babbling... which assisted in the development

of

> " word approximations " and so on....

>

> 3. After looking at all of the old videos... and comparing them to even 1

week,

> 1 month after NV.... all the way up to the present..... it is CLEAR that

> SOMETHING DID CHANGE.... FOR THE BETTER! I CAN recall feeling really upset

> inside in the past.... because some of the moms who took the time to post

> " before and after videos of their children on NV " seemed to have kids who

> " seemed to have better Speech abilities than my Son on their BEFORE NV

> Videos " ... I was happy for them....(their kid's progress AFTER NV was very

> obvious)! I also, felt sad when I compared my son to these other kids.... when

> I compared him to them, he seemed to be even more behind in speech to me.... I

> can recall feeling quite depressed about this.

>

> 4. Months later..... with a clearer mind..... (more time to internally ACCEPT

my

> Son's Speech Delays- and deal with them from a point of strength)... and also

> due to the fact that I DID obtain 1:1 pull out ST at the PK level in my

> State.... (Thanks again - for empowering me to achieve this).... I CAN now

> see differences.. and will describe them as follows... (Again, We just looked

> at a bunch of old videos of our Son.... the differences were CLEAR to us...

and

> also to our Family Members who watched these with us)....

>

> 5). BEFORE NV

> - all Baby videos of Tyler show hardly any babbling other than MUM MUM MUM...

he

> WAS able to create some pretty powerful Raspberries though!

> - older videos show clear Sensory Issues starting at age 5 months old.... Ty

was

> screaming every time he was placed on grass in bare feet, He also had huge

> sensory issues at bath time..(it took awhile to get him used to the sensation

of

> being in water). there were feeding issues (gagging on certain textures) that

> continue to this day as well.

>

> SHORTLY BEFORE START OF NV... (age 2 forward).... I seemed to ALWAYS be trying

> to get

> Tyler to point out his body parts on old videos.... He REALLY could point to

his

> nose, his mouth, etc.... he just never did it on a video.... I sounded so

> pathetic on these videos... I kept asking him to show me his nose.... I kept

> asking him to talk to me.... and he appeared to have a blank look on his face

as

> I did this. He would smile from time to time.... but he also always seemed to

> have a " BLANK " expression on his face... and his mouth used to hang open....

> His eyes often, had no sparkle.... (my dad used to tell me that he thought

> Tyler was autistic during these days).... Tyler always TRIED to be social with

> others.... he also loved to hug others.... and he DID know where his nose and

> mouth, etc were.... he had " no words " .... but his smiles and hand/arm

" gestures "

> made up for this. If I asked him " how big are you " ... he would raise his arms

> up in the air with a huge grin and say OOO eee (so big). Looking back, it

almost

> seems like Tyler did not like " being put on the spot " to " talk " ..... in these

> old videos..... Tyler was a smart little kid... he started ST with EI at age

20

> months.... he used to smile, and place his fingers in his ears when the

> therapist tried to work with him. He KNEW that " this speech stuff " was HARD!

>

> - I have a video of Tyler the day before we started NV..... we were going

> through home-made " Flash Cards " together (laminated pictures of family

members,

> favorite toys and pets).... He was very distracted.. and became upset

> quickly... He continued to have a " blank expression " .

>

> AFTER NV....

> The blank look on his face was gone by the second month after NV.... his FOCUS

> improved.... which caused his attention span during his ST sessions to

> improve... Speech abilities transitioned from babbling to more word

> approximations. the increase in his attention span helped him to get more out

of

> his ST Sessions! He was able to follow directions better-- and he was more

> willing to TRY! We have always loved a " Fun Class for kids " called

> Kindermusik.... these classes are offered in most states- and they are

awesome!

> Prior to NV, Tyler spent his Kindermusik class times trying to crawl toward to

> exit door.... NOW- he is engaged, follows directions... and LOVES IT! His

> " Words " have increased to the point where he can put together 3 word

> sentences..... such as " MUH OWE ON " (My show on)... He started to have an

> increased interest in singing this past July for the first time..... If I

" sing

> simple songs slowly " .... he can follow me! This is the child who seemed to

have

> zero interest in simple Nursery Rhymes at age 2 and age 3! He will be age 4 in

> March.... and, starting about 2 months ago, he is " catching up " to learning

all

> of those Nursery Rhymes! (He can't sing them like " typical kids do " ).... BUT

HE

> IS SINGING! It is beautiful!

>

> Have to include this.... Ty's version of " Twinkle Twinkle Little Star " ....

> EE OHL EE OHL EE- EE ARE... (Twinkle, twinkle little star)

> OW AYE WUH OO OW OO ARE. ( how I wondor what you are).. W's are hard- he has

> learned to put his hand over his mouth to " make the windy sound " when he

> attempts " W's "

> U-PAH uh uh WHHH-ole oh AYE! (S sounds are also hard)..

>

> He can spell his name to ther tune of the song " Bingo " now as well... He says

> T- AYE - luh - E- R-uh. He can count out objects up to 6.... he can identify

> colors... he DANCES! He is drawing the letter " T " correctly-- and often does

it

> all over my walls in crayon! (I do not like this- but he is so cute.... I ask

> " who did this " .... he proudly, responds " ME " .

>

> We are very busy with all of his therapies... and also have a very advanced

> older daughter who is a firecracker.... (involved in dancing and acting

> classes.. and is doing an amazing job at it at only age 5.8 yrs old)- she

talked

> early, knew her ABCs early... EVERYTHING she did and still does is EARLY. It

is

> a CHALLENGE to balance our lives/schedules to meet the needs of these 2

> children! We never " pushed " " potty training with Tyler " .... yet, he

> essentially, figured it all out on his own by simply trying to copy his older

> sister!

>

> In conclusion, I feel that Tyler has come very far in a short time.... and I

> BELIEVE that NV has assisted him to do this. We also are giving him the NN

Fish

> Oils... he takes 2 Pro EFA, and one Pro EPA per day.... (These are huge gel

> caps--- I pierce them with a pin- and squirt them into his mouth). HE LOVES

> THEM!

>

> PLEASE-- to any of you who doubt NV-- DO NOT GIVE UP if it does not seem to

> create " instant miracles " .... MOST people do see immediate changes.... and

some

> do not... (I fell into this category in my son's case), but if you had the

> patience to read my detailed descriptions of how my son was " Prior to NV " ...

you

> can see that he had SIGNIFICANT Speech Delays! I feel that the NV assisted my

> Son to " go through the normal process of achieving developmental milestones

that

> he was not able to achieve " ...... and CHILDREN MUST go through these

milestones,

> as part of their development! YES- we all want our children to SPEAK at an age

> appropriate level...... when we have kids affected by Apraxia- this DOES NOT

> OCCUR! I feel confidant that NV assisted my son to " catch up " .... Yes- his

> Speech remains delayed.... but he improves every week! My child is a SMART

> kid--- now that he is more focused, and more confidant-- he WANTS to try to

talk

> MORE! He learned and memorized the entire song " BINGO " during a short drive in

> the car (when his older sister, who interrupts him was not present)!

>

> He also has a diagnosis of Hypotonia.... and wore DAFOs (Orthotic Braces) from

> age 20 months on to assist with ankle pronation. His braces have been cut down

> in size! He can RUN, he can climb!

> NV IS HELPING HIM!

>

>

>

>

>

>

>

>

> [ ] Re: Hello All - My 22 month old has been given

an

> Apraxia Dx

>

>

>

>

> Brett you can read some of The Late Talker book online for free at Google

books

> -go check it out and see if your child to you fits any of the description of

> apraxia. If you agree with the therapist that suspects it -then you should

make

> an appointment with either a pediatric neurologist or developmental

pediatrician

> to confirm or rule out those soft signs- and the more knowledgeable ones who

see

> children with apraxia, autism and other disorders will be able to let you know

> if your child is presenting as normal in all other areas. Even from your first

> email I'm kind of getting the impression your child may just have a simple

delay

> and that's awesome. Goodness knows some of our kids have to be in that 75%!!!!

> You'd think we'd end up with more typical " late talkers " here -but I believe

> what happens is that most of them read some of the other messages and are

blown

> away to say anything. At least that is what a few have written to me. This

group

> is for any type of delay in speech from developmental to impairment and for

any

> reason. The goal is to provide you with the tools you need to best advocate

for

> what would be the appropriate services for now to provide your child with the

> best possible prognosis. I'd say once you get a neuroMD exam if he finds your

> child falls into the normal range in other areas than of course continue the

> SLP, but the fish oils or NV ( http://pursuitofresearch.org/science.html which

I

> highly recommend if your child does have an impairment vs a simple delay) may

or

> may not help stimulate the speech any faster.

>

> Typically for whatever reason it is us, the moms that get that " feeling " Ask

her

> how she feels now about your child. Does she think it's a simple delay or does

> she agree it's apraxia? I believe that all of us as parents can tune into that

> internal sixth sense if we are open to it- and seems you two are as parents.

> Awesome!!

>

> =====

>

[Guest guest]

Hi,

I have been following your posts re your child. I wanted to let you know that

there is also a good site to check out for general developmental milestones

related to speech and langauge and add some additional info you might find

useful. The site is written by Caroline Bowen, SLP. You can find it at

http://members.tripod.com/caroline_bowen/caroline.html

This is a great site and contains a wealth of information regarding different

diagnoses including apraxia of speech, phonological disorders/delays and

dysarthria. There is also information regarding how intelligible a child should

be at certain ages. There is also a lot of information regarding milestones

related to langauge development. You definately want to have a qualified SLP

assess your child to differentially diagnose him. While it is the age of

technology and many consultions and assessments can be offered via skype and the

internet, an assessment is best done in person as an evaluuation should be

comprehensive and there are many things that cannot be assessed via this method

of communication. A child does not have to be 3 for a diagnosis to be made. A

well seasoned therapist with a lot of experience will be able to make a

diagnosis if there are enough overt symptoms and if not they should make note

within their report and indicate that there are signs/symptoms of the indicating

the possibility of the disorder.

Finally, I think you mentioned your child is 23-months old which makes him

eligible for Early Intervention IF he qualifies. In my state, EI is overseen by

the Dept of Public Health and they determined the criteria for eligibility which

inclues a 30% delay in an area of development. Unfortunately, the Michigan is

one of two tests used and it does NOT assess speech separately from expressive

language. In fact, these are two separate skills. Unfortunately, when you

talley up points from an assessment, you may end up having a child who does not

meet the criteria set forth by a different state for different reasons (i.e.,

says words but the clarity is an issue, etc.). In my state, a SLP CAN pick up a

child on " clinical judgement " but only 1X. Again, a real issue. What if you

have a young child with AOS???? Bottom line...know the criteria for EI re your

state. Also, request a SLP do the assessment. The professionals from EI are

WONDERFUL and well trained in their discipline. They also collaborate and

consider themselves generalists and provide different services outside their own

discipline however you want to specify that a SLP do the assessment as this is

the person who has the training in this area-especially if you are questioning

apraxia of speech. You may want to check into your insurance as well. Often

times, depending on your insurance, your child has access to outpatient

rehabilitation services even though they may qualify for EI. You may find that

he does qualify (which it certainly sounds as he if he would) but there will be

a wait list to have a SLP...

Well...I do hope this helps....

Sincerely,

Jill Livermore, SLP

> >

> > My red flag is going up for this " helpful and free " service that so nicely

offered after the " free " evaluation an expensive evaluation after suspecting

apraxia based on your (email?) description of your 2 year old. First of all

it's difficult if not impossible to have a definitive diagnosis of a 2 year old

without a thorough (need I say in person) evaluation by at least an SLP and a

neuroMD exam as well by a pediatric neurologist or developmental pediatrician.

In many cases the child will be diagnosed even in person as " suspected " apraxic

and appropriate therapies would be recommended just in case. And apraxia is so

diverse in presentation and severity that there are few signs- but for sure one

of them would NOT be that a child can't say 300 words by 2. The most common

sign would be " did he ever say a word once and never again? " Apraxia is the

inability to perform on command- so they may do or say something when not

thinking about it -say while on a swing (during a multisensory activity is

typical) but not be able to repeat it. Apraxic children on fish oils or NV no

longer fit this classic sign either however -but that doesn't mean they are not

apraxic. This is why you need professionals that are knowledgeable about

apraxia. Video or phone consults are great and I'm not knocking them for

supplemental.

> >

> > Have you read The Late Talker book yet? It's a book I co authored with a

neurodevelopmental pediatrician that covers the basics of when your child isn't

talking yet.

> >

> > I want to know the name of this service so I can check it out myself.

Please do share either here or private lisa@

> >

> > Here is a " late talker handout " which covers basics

> > Typically seen in first 18-24 months

> > · Uses mostly words to communicate · Begins to use two word combinations

(more cookie etc) · By 24 months has more than 50 words, or word approximations

> >

> > Cause for concern in first 18-24 months

> > · Relies on gestures to communicate · Limited vocabulary (speaks less than

50 words)

> > · Does not use any two word combinations · Limited consonant production ·

Mostly unintelligible speech · Regresses in language development: Stops talking,

repeats phrases inappropriately

> >

> > Typically seen in first 24-36 months

> > · Engages in short dialogues · Expresses emotions · Begins using language in

imaginative ways · Begins providing descriptive details when speaking · Begins

to use articles and word endings (a, the, ing,) uses plurals (cats)

> >

> > Cause for concern in first 24-36 months

> > · Words limited to single syllable and no final consonants · Few or no

multiword utterances · Does not demand a response from a listener · Asks no

questions · Speech difficult to understand · Tantrums when frustrated · Echoing

of speech without communicative intent

> > http://www.cherab.org/information/latetalkerhandout.html

> >

> > Some new member archive pages from our facebook group

> >

> > http://www.facebook.com/topic.php?uid=115029735601 & topic=7329

> >

> > http://www.facebook.com/topic.php?uid=115029735601 & topic=13085

> >

> > And here is a recent archive that covers the surges in a child that didn't

have as dramatic a surge as most on NV as well as more information for new

members that may help you too. For more info on NV please visit

http://www.pursuitofresearch.org and let me know if you have any questions. I

HIGHLY recommend NV as well as fish oils in addition to a thorough evaluation by

an SLP and neuroMD as well as appropriate therapies. And PS -even if your child

happens to be apraxic- we have kids like my son Tanner that were diagnosed

severe profound at 3 -only able to say sounds like " mmmm " or a " word " like " ma "

at almost 3 -and today at 14 mainstreamed and a good student, playing varsity

basketball and communicating verbally almost just like anyone else -apraxia is

no longer obvious -and with appropriate early interventions (or just therapies

in general for older kids) there is great hope for all. And yes -I highly put

both fish oils and now NV as a MUST DO list for probably anyone reading this for

their child.

> >

> > Happy Holidays!

> >

> > ~~~~~~~~~~~~~start of archives

> >

> > Hi all-

> > A 4 day holiday weekend.... that included a break in all activities, school,

and

> > even my Son's Speech therapy, has caused me to have extra time to go through

a

> > huge pile of old " Mini DV Tapes " from our camcorder- to simply label what

was on

> > each of them. The pile of " non labelled tapes was really bothering me.... it

> > was nice to finally take the time to label what was on them!

> >

> > I found the old tape, where I recoreded my son BEFORE NV last Feb..... I

also

> > saw the numerous videos of him that I recorded of him in the next few weeks.

My

> > Son was 35 months old when he started NV.... he is now 44 months old. I

tried to

> > take time to post these videos on You Tube.... but was not able to have

> > success... the tapes were stored... but not forgotten!

> >

> > I wanted to discuss some of my feelings/observations after seeing these

videos

> > as follows:

> >

> > 1. My Son has a diagnosis of moderate to severe Apraxia.... (I feel that he

> > leans more toward the Severe end).. When we started NV, I think that I

expected

> > a MIRACLE.... and it did not occur....I was too emotional with worry over my

> > son's condition to even notice the small changes that occurred within 2

weeks

> > after NV! Looking at all of these videos with a CLEARER MIND made me see

that

> > there WERE CLEAR DIFFERENCES! My parents even noticed the differences when

> > watching the videos! My son seemed much more focused after the second week

of

> > NV. He also went through the typical " hyper stage " that some of our kids

do--

> > but not in a bad way..... he simply was babbling more.... and trying harder

to

> > use " word approximations " ... which was good! (He barely made any sounds at

all

> > prior to NV.....to even get him to TRY to verbalize a " word approximation "

was

> > very hard back then). The increase in babbling was a GOOD thing.... think

about

> > it..... he had delays.... and he HAD to go through the babbling stage before

> > attempting to master actual words. The NV helped him with this... and more

and

> > more " word approximations " started to emerge in the next few months!

> >

> > 2. Last year, I was so consumed with worry- my son had clear delays... he

was in

> > EI--- he soon would be turning age 3....(which to me, meant that he would be

> > transitioning from EI to a Special Needs Pre K).... all of my energy was

taken

> > up with worry about how my son did not speak.... and how I had to FIND A WAY

to

> > FIGHT the " Special Needs PK School who did NOT believe in 1:1 pull out

ST.... I

> > was too distraught to SEE the changes in my own child! I feel that I had

" high

> > hopes " that he would have an increase in speech abilities (meaning ,to me,

the

> > use of WORDS).... which he did not during the start of NV.... As mentioned

in

> > #1.... the NV assisted with the babbling... which assisted in the

development of

> > " word approximations " and so on....

> >

> > 3. After looking at all of the old videos... and comparing them to even 1

week,

> > 1 month after NV.... all the way up to the present..... it is CLEAR that

> > SOMETHING DID CHANGE.... FOR THE BETTER! I CAN recall feeling really upset

> > inside in the past.... because some of the moms who took the time to post

> > " before and after videos of their children on NV " seemed to have kids who

> > " seemed to have better Speech abilities than my Son on their BEFORE NV

> > Videos " ... I was happy for them....(their kid's progress AFTER NV was very

> > obvious)! I also, felt sad when I compared my son to these other kids....

when

> > I compared him to them, he seemed to be even more behind in speech to me....

I

> > can recall feeling quite depressed about this.

> >

> > 4. Months later..... with a clearer mind..... (more time to internally

ACCEPT my

> > Son's Speech Delays- and deal with them from a point of strength)... and

also

> > due to the fact that I DID obtain 1:1 pull out ST at the PK level in my

> > State.... (Thanks again - for empowering me to achieve this).... I CAN

now

> > see differences.. and will describe them as follows... (Again, We just

looked

> > at a bunch of old videos of our Son.... the differences were CLEAR to us...

and

> > also to our Family Members who watched these with us)....

> >

> > 5). BEFORE NV

> > - all Baby videos of Tyler show hardly any babbling other than MUM MUM

MUM... he

> > WAS able to create some pretty powerful Raspberries though!

> > - older videos show clear Sensory Issues starting at age 5 months old.... Ty

was

> > screaming every time he was placed on grass in bare feet, He also had huge

> > sensory issues at bath time..(it took awhile to get him used to the

sensation of

> > being in water). there were feeding issues (gagging on certain textures)

that

> > continue to this day as well.

> >

> > SHORTLY BEFORE START OF NV... (age 2 forward).... I seemed to ALWAYS be

trying

> > to get

> > Tyler to point out his body parts on old videos.... He REALLY could point to

his

> > nose, his mouth, etc.... he just never did it on a video.... I sounded so

> > pathetic on these videos... I kept asking him to show me his nose.... I kept

> > asking him to talk to me.... and he appeared to have a blank look on his

face as

> > I did this. He would smile from time to time.... but he also always seemed

to

> > have a " BLANK " expression on his face... and his mouth used to hang open....

> > His eyes often, had no sparkle.... (my dad used to tell me that he thought

> > Tyler was autistic during these days).... Tyler always TRIED to be social

with

> > others.... he also loved to hug others.... and he DID know where his nose

and

> > mouth, etc were.... he had " no words " .... but his smiles and hand/arm

" gestures "

> > made up for this. If I asked him " how big are you " ... he would raise his

arms

> > up in the air with a huge grin and say OOO eee (so big). Looking back, it

almost

> > seems like Tyler did not like " being put on the spot " to " talk " ..... in

these

> > old videos..... Tyler was a smart little kid... he started ST with EI at age

20

> > months.... he used to smile, and place his fingers in his ears when the

> > therapist tried to work with him. He KNEW that " this speech stuff " was HARD!

> >

> > - I have a video of Tyler the day before we started NV..... we were going

> > through home-made " Flash Cards " together (laminated pictures of family

members,

> > favorite toys and pets).... He was very distracted.. and became upset

> > quickly... He continued to have a " blank expression " .

> >

> > AFTER NV....

> > The blank look on his face was gone by the second month after NV.... his

FOCUS

> > improved.... which caused his attention span during his ST sessions to

> > improve... Speech abilities transitioned from babbling to more word

> > approximations. the increase in his attention span helped him to get more

out of

> > his ST Sessions! He was able to follow directions better-- and he was more

> > willing to TRY! We have always loved a " Fun Class for kids " called

> > Kindermusik.... these classes are offered in most states- and they are

awesome!

> > Prior to NV, Tyler spent his Kindermusik class times trying to crawl toward

to

> > exit door.... NOW- he is engaged, follows directions... and LOVES IT! His

> > " Words " have increased to the point where he can put together 3 word

> > sentences..... such as " MUH OWE ON " (My show on)... He started to have an

> > increased interest in singing this past July for the first time..... If I

" sing

> > simple songs slowly " .... he can follow me! This is the child who seemed to

have

> > zero interest in simple Nursery Rhymes at age 2 and age 3! He will be age 4

in

> > March.... and, starting about 2 months ago, he is " catching up " to learning

all

> > of those Nursery Rhymes! (He can't sing them like " typical kids do " ).... BUT

HE

> > IS SINGING! It is beautiful!

> >

> > Have to include this.... Ty's version of " Twinkle Twinkle Little Star " ....

> > EE OHL EE OHL EE- EE ARE... (Twinkle, twinkle little star)

> > OW AYE WUH OO OW OO ARE. ( how I wondor what you are).. W's are hard- he has

> > learned to put his hand over his mouth to " make the windy sound " when he

> > attempts " W's "

> > U-PAH uh uh WHHH-ole oh AYE! (S sounds are also hard)..

> >

> > He can spell his name to ther tune of the song " Bingo " now as well... He

says

> > T- AYE - luh - E- R-uh. He can count out objects up to 6.... he can identify

> > colors... he DANCES! He is drawing the letter " T " correctly-- and often does

it

> > all over my walls in crayon! (I do not like this- but he is so cute.... I

ask

> > " who did this " .... he proudly, responds " ME " .

> >

> > We are very busy with all of his therapies... and also have a very advanced

> > older daughter who is a firecracker.... (involved in dancing and acting

> > classes.. and is doing an amazing job at it at only age 5.8 yrs old)- she

talked

> > early, knew her ABCs early... EVERYTHING she did and still does is EARLY. It

is

> > a CHALLENGE to balance our lives/schedules to meet the needs of these 2

> > children! We never " pushed " " potty training with Tyler " .... yet, he

> > essentially, figured it all out on his own by simply trying to copy his

older

> > sister!

> >

> > In conclusion, I feel that Tyler has come very far in a short time.... and I

> > BELIEVE that NV has assisted him to do this. We also are giving him the NN

Fish

> > Oils... he takes 2 Pro EFA, and one Pro EPA per day.... (These are huge gel

> > caps--- I pierce them with a pin- and squirt them into his mouth). HE LOVES

> > THEM!

> >

> > PLEASE-- to any of you who doubt NV-- DO NOT GIVE UP if it does not seem to

> > create " instant miracles " .... MOST people do see immediate changes.... and

some

> > do not... (I fell into this category in my son's case), but if you had the

> > patience to read my detailed descriptions of how my son was " Prior to NV " ...

you

> > can see that he had SIGNIFICANT Speech Delays! I feel that the NV assisted

my

> > Son to " go through the normal process of achieving developmental milestones

that

> > he was not able to achieve " ...... and CHILDREN MUST go through these

milestones,

> > as part of their development! YES- we all want our children to SPEAK at an

age

> > appropriate level...... when we have kids affected by Apraxia- this DOES NOT

> > OCCUR! I feel confidant that NV assisted my son to " catch up " .... Yes- his

> > Speech remains delayed.... but he improves every week! My child is a SMART

> > kid--- now that he is more focused, and more confidant-- he WANTS to try to

talk

> > MORE! He learned and memorized the entire song " BINGO " during a short drive

in

> > the car (when his older sister, who interrupts him was not present)!

> >

> > He also has a diagnosis of Hypotonia.... and wore DAFOs (Orthotic Braces)

from

> > age 20 months on to assist with ankle pronation. His braces have been cut

down

> > in size! He can RUN, he can climb!

> > NV IS HELPING HIM!

> >

> >

> >

> >

> >

> >

> >

> >

> > [ ] Re: Hello All - My 22 month old has been

given an

> > Apraxia Dx

> >

> >

> >

> >

> > Brett you can read some of The Late Talker book online for free at Google

books

> > -go check it out and see if your child to you fits any of the description of

> > apraxia. If you agree with the therapist that suspects it -then you should

make

> > an appointment with either a pediatric neurologist or developmental

pediatrician

> > to confirm or rule out those soft signs- and the more knowledgeable ones who

see

> > children with apraxia, autism and other disorders will be able to let you

know

> > if your child is presenting as normal in all other areas. Even from your

first

> > email I'm kind of getting the impression your child may just have a simple

delay

> > and that's awesome. Goodness knows some of our kids have to be in that

75%!!!!

> > You'd think we'd end up with more typical " late talkers " here -but I believe

> > what happens is that most of them read some of the other messages and are

blown

> > away to say anything. At least that is what a few have written to me. This

group

> > is for any type of delay in speech from developmental to impairment and for

any

> > reason. The goal is to provide you with the tools you need to best advocate

for

> > what would be the appropriate services for now to provide your child with

the

> > best possible prognosis. I'd say once you get a neuroMD exam if he finds

your

> > child falls into the normal range in other areas than of course continue the

> > SLP, but the fish oils or NV ( http://pursuitofresearch.org/science.html

which I

> > highly recommend if your child does have an impairment vs a simple delay)

may or

> > may not help stimulate the speech any faster.

> >

> > Typically for whatever reason it is us, the moms that get that " feeling " Ask

her

> > how she feels now about your child. Does she think it's a simple delay or

does

> > she agree it's apraxia? I believe that all of us as parents can tune into

that

> > internal sixth sense if we are open to it- and seems you two are as parents.

> > Awesome!!

> >

> > =====

> >