My son's Christmas NV update!

[Guest guest]

Well Santa brought NV to our home after me being so nervous to try it months

after our son's pediatrician approved it. I was nervous we wouldn't see

anything and it would get our hopes up for nothing and my husband was very

skeptical. My son has been on fish oils proefa and proepa now for awhile and we

have seen great progress with them but I was afraid to use anything but the fish

oils in addition to his speech therapy.

Dare I say we even have first day updates to report?! I'm holding my breath!

My son opened up this gift on Christmas Eve (I couldn't wait till morning LOL!)

and I know I was the only one excited about it. I started with just one scoop

of NV on Christmas Eve mixed into cooked but not hot chocolate pudding which I

read was OK. My son doesn't drink much of anything. The next morning, Christmas

morning, in his stocking he had a lollipop shaped like a Christmas tree with

frosting on it. All I said is " That looks good " and he smiled at me and said

without any hesitation " Mom, would you like to try some? " I still have to

collect my teeth from the living-room floor I was so shocked! A clear SEVEN

word sentence?! Christmas day he kept wanting to help me with everything where

he never had interest before and he didn't drop anything like he normally does.

He wanted me play Rudolph over and over and even though he still wants to listen

to it, he is now trying to sing the words even when the song isn't on!!!! I

can't wait until his teacher and therapist see him next week as we did not tell

them we were going to start NV. Fish oils helped but he's just trying to talk

or sing all the time now! We couldn't wait for him to talk, and last night I

found myself saying " shhhhh, it's quiet time. " I NEVER thought I'd be saying

those words.

I have two questions. If he's doing well on just one scoop do I have to even

raise it to two? Can I wait till he no longer is seeing any progress on one

scoop to raise it? I only bought one canister from http://www.speech411.com

because I didn't know if it would work and that is where I buy fish oils from.

That site tells me to order from http://www.pursuitofresearch.org once I try it.

I want to do this right now since we will order again. I called the number on

the pursuit of research site but they could not answer this question so I wanted

to ask here.

You all are such amazing parents, I try to read all of the posts even though I

don't read them every day, and am just so impressed by the strength and energy

you all put forth to help your children succeed. I also want to thank the

author of the book the late talker for being here to answer questions. May God

continue to bless every one of you and your children this new year of 2011!!

Kate

[Guest guest]

Congrats on the change in your son so soon!! That's wonderful news. My 2 yr

old son (also with apraxia) is also doing great on NV and we've been

thrilled.

I can't speak professionally about doses, but my son's recommended dose is 1

scoop, but when we tried to start him at that, it seemed that his body

wasn't ready to handle it so we reduced down to 1/2 scoop which he's been on

since September. Since his speech has dramatically improved on just 1/2

scoop, I haven't increased his dose to the max, but I'm " saving " that option

for any speech plateaus that might come up in the future. That way, he has

some room to go up, but for now, we just don't need it since we're so

thrilled with his progress on 1/2 scoop.

Hope this helps.

On Wed, Dec 29, 2010 at 10:20 PM, mykitkate <mykitkate@...> wrote:

>

>

> Well Santa brought NV to our home after me being so nervous to try it

> months after our son's pediatrician approved it. I was nervous we wouldn't

> see anything and it would get our hopes up for nothing and my husband was

> very skeptical. My son has been on fish oils proefa and proepa now for

> awhile and we have seen great progress with them but I was afraid to use

> anything but the fish oils in addition to his speech therapy.

>

> Dare I say we even have first day updates to report?! I'm holding my

> breath! My son opened up this gift on Christmas Eve (I couldn't wait till

> morning LOL!) and I know I was the only one excited about it. I started with

> just one scoop of NV on Christmas Eve mixed into cooked but not hot

> chocolate pudding which I read was OK. My son doesn't drink much of

> anything. The next morning, Christmas morning, in his stocking he had a

> lollipop shaped like a Christmas tree with frosting on it. All I said is

> " That looks good " and he smiled at me and said without any hesitation " Mom,

> would you like to try some? " I still have to collect my teeth from the

> living-room floor I was so shocked! A clear SEVEN word sentence?! Christmas

> day he kept wanting to help me with everything where he never had interest

> before and he didn't drop anything like he normally does. He wanted me play

> Rudolph over and over and even though he still wants to listen to it, he is

> now trying to sing the words even when the song isn't on!!!! I can't wait

> until his teacher and therapist see him next week as we did not tell them we

> were going to start NV. Fish oils helped but he's just trying to talk or

> sing all the time now! We couldn't wait for him to talk, and last night I

> found myself saying " shhhhh, it's quiet time. " I NEVER thought I'd be saying

> those words.

>

> I have two questions. If he's doing well on just one scoop do I have to

> even raise it to two? Can I wait till he no longer is seeing any progress on

> one scoop to raise it? I only bought one canister from

> http://www.speech411.com because I didn't know if it would work and that

> is where I buy fish oils from. That site tells me to order from

> http://www.pursuitofresearch.org once I try it. I want to do this right

> now since we will order again. I called the number on the pursuit of

> research site but they could not answer this question so I wanted to ask

> here.

>

> You all are such amazing parents, I try to read all of the posts even

> though I don't read them every day, and am just so impressed by the strength

> and energy you all put forth to help your children succeed. I also want to

> thank the author of the book the late talker for being here to answer

> questions. May God continue to bless every one of you and your children this

> new year of 2011!! Kate

>

>

>

--

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M I C H E L L E W A L DO I N T E R I O R S

stylish + inviting contemporary spaces

w. http://www.michellewaldointeriors.com

e. michelle@...

p. 215-500-9070

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

[Guest guest]

That is an amazing testimony! Thanks so much for sharing it! Personally, I'd

wait to up his dosage since you're seeing great results already. Just try to get

him to drink more. That will be very important to keeping the toxins going OUT

of his body easily. Please keep sharing with the group what you're seeing...

it's very encouraging! :-)

Romesa

The NV Sheriff

From: mykitkate@...

Date: Thu, 30 Dec 2010 03:20:45 +0000

Subject: [ ] My son's Christmas NV update!

Well Santa brought NV to our home after me being so nervous to try it months

after our son's pediatrician approved it. I was nervous we wouldn't see anything

and it would get our hopes up for nothing and my husband was very skeptical. My

son has been on fish oils proefa and proepa now for awhile and we have seen

great progress with them but I was afraid to use anything but the fish oils in

addition to his speech therapy.

Dare I say we even have first day updates to report?! I'm holding my breath! My

son opened up this gift on Christmas Eve (I couldn't wait till morning LOL!) and

I know I was the only one excited about it. I started with just one scoop of NV

on Christmas Eve mixed into cooked but not hot chocolate pudding which I read

was OK. My son doesn't drink much of anything. The next morning, Christmas

morning, in his stocking he had a lollipop shaped like a Christmas tree with

frosting on it. All I said is " That looks good " and he smiled at me and said

without any hesitation " Mom, would you like to try some? " I still have to

collect my teeth from the living-room floor I was so shocked! A clear SEVEN word

sentence?! Christmas day he kept wanting to help me with everything where he

never had interest before and he didn't drop anything like he normally does. He

wanted me play Rudolph over and over and even though he still wants to listen to

it, he is now trying to sing the words even when the song isn't on!!!! I can't

wait until his teacher and therapist see him next week as we did not tell them

we were going to start NV. Fish oils helped but he's just trying to talk or sing

all the time now! We couldn't wait for him to talk, and last night I found

myself saying " shhhhh, it's quiet time. " I NEVER thought I'd be saying those

words.

I have two questions. If he's doing well on just one scoop do I have to even

raise it to two? Can I wait till he no longer is seeing any progress on one

scoop to raise it? I only bought one canister from http://www.speech411.com

because I didn't know if it would work and that is where I buy fish oils from.

That site tells me to order from http://www.pursuitofresearch.org once I try it.

I want to do this right now since we will order again. I called the number on

the pursuit of research site but they could not answer this question so I wanted

to ask here.

You all are such amazing parents, I try to read all of the posts even though I

don't read them every day, and am just so impressed by the strength and energy

you all put forth to help your children succeed. I also want to thank the author

of the book the late talker for being here to answer questions. May God continue

to bless every one of you and your children this new year of 2011!! Kate

[Guest guest]

I just joined this group tonight and have been reading some of these messages.

I am very confused what fish oils and " NV " are in regards to children that are

late to talk? Can someone please explain this to me as a new (and confused)

member? My son is 28 months old and I have only heard about speech therapy and

early intervention. I just had a speech and hearing evaluation done and my son

is qualified for speech therapy. My husband doesn't want my son to get speech

therapy because he feels if my son has time he will just talk and that putting

him in therapy will put labels and stress on him and make him an " oddball " . I

can't even sleep I am so sick over all of this. I know that no matter what I do

I won't be doing the right thing for someone I care about. I want to do what is

best for my son, but I don't want to go against my husband. Is my husband the

only one against therapy?!! I would love to hear my son say anything! Thank

you for taking the time to read this and God bless.

>

> Well Santa brought NV to our home after me being so nervous to try it months

after our son's pediatrician approved it. I was nervous we wouldn't see

anything and it would get our hopes up for nothing and my husband was very

skeptical. My son has been on fish oils proefa and proepa now for awhile and we

have seen great progress with them but I was afraid to use anything but the fish

oils in addition to his speech therapy.

>

> Dare I say we even have first day updates to report?! I'm holding my breath!

My son opened up this gift on Christmas Eve (I couldn't wait till morning LOL!)

and I know I was the only one excited about it. I started with just one scoop

of NV on Christmas Eve mixed into cooked but not hot chocolate pudding which I

read was OK. My son doesn't drink much of anything. The next morning, Christmas

morning, in his stocking he had a lollipop shaped like a Christmas tree with

frosting on it. All I said is " That looks good " and he smiled at me and said

without any hesitation " Mom, would you like to try some? " I still have to

collect my teeth from the living-room floor I was so shocked! A clear SEVEN

word sentence?! Christmas day he kept wanting to help me with everything where

he never had interest before and he didn't drop anything like he normally does.

He wanted me play Rudolph over and over and even though he still wants to listen

to it, he is now trying to sing the words even when the song isn't on!!!! I

can't wait until his teacher and therapist see him next week as we did not tell

them we were going to start NV. Fish oils helped but he's just trying to talk

or sing all the time now! We couldn't wait for him to talk, and last night I

found myself saying " shhhhh, it's quiet time. " I NEVER thought I'd be saying

those words.

>

> I have two questions. If he's doing well on just one scoop do I have to even

raise it to two? Can I wait till he no longer is seeing any progress on one

scoop to raise it? I only bought one canister from http://www.speech411.com

because I didn't know if it would work and that is where I buy fish oils from.

That site tells me to order from http://www.pursuitofresearch.org once I try it.

I want to do this right now since we will order again. I called the number on

the pursuit of research site but they could not answer this question so I wanted

to ask here.

>

> You all are such amazing parents, I try to read all of the posts even though I

don't read them every day, and am just so impressed by the strength and energy

you all put forth to help your children succeed. I also want to thank the

author of the book the late talker for being here to answer questions. May God

continue to bless every one of you and your children this new year of 2011!!

Kate

>

[Guest guest]

Has your child been diagnosed with apraxia? Does he speak at all?

It can be hard at first to accept therapy, but if your son isn't where he should

be, and therapy can help him, then I feel you are doing him a disservice by not

providing him with the therapy. Speech therapy is play at this age, it can't

hurt him. If he starts to talk and catches up with his peers, then great, you

can stop the therapy. But if you wait, he may talk on his own like your husband

thinks, or he may fall further and further behind.

We must accept and love our children for who they are and for how God designed

them. Would he withhold medical treatment because he might be labeled as having

a disease? or not allow him a walker if he had trouble walking? Probably not. To

me, this is the same thing.

My daughter is 30 months and has been in physical and occupational therapy since

she was 11 months old. I did not expect to spend half our days in therapy, but

we do, and she is stronger and better because of it. She probably would not be

walking without her wonderful therapists. And without speech therapy and fish

oils, I don't think she'd have any words or be communicating much.

Try and convince your husband that speech therapy is worth it. If he qualified,

that means that he is behind. Good luck.

> >

> > Well Santa brought NV to our home after me being so nervous to try it months

after our son's pediatrician approved it. I was nervous we wouldn't see

anything and it would get our hopes up for nothing and my husband was very

skeptical. My son has been on fish oils proefa and proepa now for awhile and we

have seen great progress with them but I was afraid to use anything but the fish

oils in addition to his speech therapy.

> >

> > Dare I say we even have first day updates to report?! I'm holding my

breath! My son opened up this gift on Christmas Eve (I couldn't wait till

morning LOL!) and I know I was the only one excited about it. I started with

just one scoop of NV on Christmas Eve mixed into cooked but not hot chocolate

pudding which I read was OK. My son doesn't drink much of anything. The next

morning, Christmas morning, in his stocking he had a lollipop shaped like a

Christmas tree with frosting on it. All I said is " That looks good " and he

smiled at me and said without any hesitation " Mom, would you like to try some? "

I still have to collect my teeth from the living-room floor I was so shocked! A

clear SEVEN word sentence?! Christmas day he kept wanting to help me with

everything where he never had interest before and he didn't drop anything like

he normally does. He wanted me play Rudolph over and over and even though he

still wants to listen to it, he is now trying to sing the words even when the

song isn't on!!!! I can't wait until his teacher and therapist see him next

week as we did not tell them we were going to start NV. Fish oils helped but

he's just trying to talk or sing all the time now! We couldn't wait for him to

talk, and last night I found myself saying " shhhhh, it's quiet time. " I NEVER

thought I'd be saying those words.

> >

> > I have two questions. If he's doing well on just one scoop do I have to

even raise it to two? Can I wait till he no longer is seeing any progress on

one scoop to raise it? I only bought one canister from

http://www.speech411.com because I didn't know if it would work and that is

where I buy fish oils from. That site tells me to order from

http://www.pursuitofresearch.org once I try it. I want to do this right now

since we will order again. I called the number on the pursuit of research site

but they could not answer this question so I wanted to ask here.

> >

> > You all are such amazing parents, I try to read all of the posts even though

I don't read them every day, and am just so impressed by the strength and energy

you all put forth to help your children succeed. I also want to thank the

author of the book the late talker for being here to answer questions. May God

continue to bless every one of you and your children this new year of 2011!!

Kate

> >

>

[Guest guest]

I started my son in early intervention at 30 months. I wish I would've done

it earlier. A speech therapist will come to your house until he turns 3,

which is so nice. Ours was GREAT and gave me so much information on how to

help my son. Take advantage of that. (Let's be honest, they aren't going to

teach your son to talk in 45 minutes each week--they will give you the tools

and resources and support to know how to work with your son on a daily

basis.) Fabulous resource. Take advantage of it.

He may just start talking. Hopefully he does. But if he doesn't and you

start now, you will be that much more ahead!

It seems like generally the mom is the one doing all the research and so a

lot of the times, the dad doesn't really have the information needed to make

the right decision. I think the most important thing is to help him NOW so

when he is in school, they are less likely to pull him out of class as much.

(They have been pulling my niece out since kindergarten, she is now in the

5th grade and thinks she is dumb--she was never diagnosed with apraxia, but

seeing my son, I know that is what she had/has. She is very bright, it is

just the reading and speech that trips her up)

The fish oils are essential omegas. I look at it as brain food. I notice a

big difference in my son when I am giving them to him and when I am not.

Not only with his speech and attempts, but physically. His hair and skin

were always dry, now his hair shines and his skin is smooth. You can order

the Nordic Naturals off of the Cherab website:

http://www.cherab.org/information/dietaryeffects/efabasics.html

http://www.shop-in-service.com/proefa.htm

I give my son 2 ProEFA and 1 ProEPA capsules. I poke them with a pin and

squirt them in a shot glass of lime-aid or lemonade. He drinks it with no

problems. (I use the shot glass because it is glass and the fish oils do

not clean out of plastic well and make your dishwasher stink!) You'll find

in the archives a lot of creative ways parents get the oils in their

children.

I started my son on Nutriiveda in July for 3 months. Didn't see the miracle

others were having, so stopped for 6 weeks. I started up about 3 weeks ago

and have seen some minor changes...still waiting for that surge! I brought

the list of ingredients to his doctor and he approved it. He said it was

basically a multi vitamin and to just be careful he doesn't eat a ton of

protein with it. Again, read the archives on the webpage about it. There

is a ton of information. (I decided to try again because of all of the

positive results others are having on it)

I'd start the fish oils immediately and do your research on NV and start

that a few weeks later, you don't want to start them at the same time so you

can tell what is helping. FYI, each time I started NV with my son, he was

VERY emotional the first week. It tapers off when his body adjusts to it.

I know it affects kids differently.

Another thing that was very helpful for us was the Signing Time videos. You

can check them out at your library. It really helps ease your child's

frustration in communicating and I think it helps as a trigger for the brain

too, which is very helpful with apraxia.

I was up all night reading and bawling too 6 months ago. I was hoping he

would just start talking, but he hasn't. I don't feel that anxiety anymore.

I know the road may be a long one, but with consistent work and practice,

he will continue to improve! Also, I know I am doing everything I can to

help him.

Continue to do your research. Information is power and you will know what

the right decisions are for your family.

Malinda

On Sun, Jan 2, 2011 at 11:52 PM, <quartzqueenie@...> wrote:

>

>

> I just joined this group tonight and have been reading some of these

> messages. I am very confused what fish oils and " NV " are in regards to

> children that are late to talk? Can someone please explain this to me as a

> new (and confused) member? My son is 28 months old and I have only heard

> about speech therapy and early intervention. I just had a speech and hearing

> evaluation done and my son is qualified for speech therapy. My husband

> doesn't want my son to get speech therapy because he feels if my son has

> time he will just talk and that putting him in therapy will put labels and

> stress on him and make him an " oddball " . I can't even sleep I am so sick

> over all of this. I know that no matter what I do I won't be doing the right

> thing for someone I care about. I want to do what is best for my son, but I

> don't want to go against my husband. Is my husband the only one against

> therapy?!! I would love to hear my son say anything! Thank you for taking

> the time to read this and God bless.

>

>

> >

> > Well Santa brought NV to our home after me being so nervous to try it

> months after our son's pediatrician approved it. I was nervous we wouldn't

> see anything and it would get our hopes up for nothing and my husband was

> very skeptical. My son has been on fish oils proefa and proepa now for

> awhile and we have seen great progress with them but I was afraid to use

> anything but the fish oils in addition to his speech therapy.

> >

> > Dare I say we even have first day updates to report?! I'm holding my

> breath! My son opened up this gift on Christmas Eve (I couldn't wait till

> morning LOL!) and I know I was the only one excited about it. I started with

> just one scoop of NV on Christmas Eve mixed into cooked but not hot

> chocolate pudding which I read was OK. My son doesn't drink much of

> anything. The next morning, Christmas morning, in his stocking he had a

> lollipop shaped like a Christmas tree with frosting on it. All I said is

> " That looks good " and he smiled at me and said without any hesitation " Mom,

> would you like to try some? " I still have to collect my teeth from the

> living-room floor I was so shocked! A clear SEVEN word sentence?! Christmas

> day he kept wanting to help me with everything where he never had interest

> before and he didn't drop anything like he normally does. He wanted me play

> Rudolph over and over and even though he still wants to listen to it, he is

> now trying to sing the words even when the song isn't on!!!! I can't wait

> until his teacher and therapist see him next week as we did not tell them we

> were going to start NV. Fish oils helped but he's just trying to talk or

> sing all the time now! We couldn't wait for him to talk, and last night I

> found myself saying " shhhhh, it's quiet time. " I NEVER thought I'd be saying

> those words.

> >

> > I have two questions. If he's doing well on just one scoop do I have to

> even raise it to two? Can I wait till he no longer is seeing any progress on

> one scoop to raise it? I only bought one canister from

> http://www.speech411.com because I didn't know if it would work and that

> is where I buy fish oils from. That site tells me to order from

> http://www.pursuitofresearch.org once I try it. I want to do this right

> now since we will order again. I called the number on the pursuit of

> research site but they could not answer this question so I wanted to ask

> here.

> >

> > You all are such amazing parents, I try to read all of the posts even

> though I don't read them every day, and am just so impressed by the strength

> and energy you all put forth to help your children succeed. I also want to

> thank the author of the book the late talker for being here to answer

> questions. May God continue to bless every one of you and your children this

> new year of 2011!! Kate

> >

>

>

>

[Guest guest]

I can completely understand what you are going through. The unknown is

overwhelming and scary and then on top of that having a spouse that is not

supportive of what you think needs to be done. Stop, take a deep breath...It

will get better. My husband, whom is a wonderful husband and father was the

same in the beginning. He now freely admits that he was afraid and in denial

and is now so happy that I stood my ground and did all the research I did and

got our son the help he needs. So that being said I would just encourage you to

move forward with speech therapy if he qualified. It is not going to hurt him!

They make it fun by incorporating play with the therapy! My son was 2 when he

started early intervention speech therapy. He aged out at 3 and still goes to

private speech therapy 2 times a week. He is now 4! I just tell him " Today we

are going to go play with Ms. Lyndsey " ( his speech therapist) He enjoys

going! My son was diagnosed with apraxia of speech. I too heard from so many

well meaning family and friends...oh he will talk... Just give him time! Boys

talk later than girls! Thanks to speech therapy those words are now coming. I

would also encourage you to read the book The Late Talker. It provides a wealth

of information and is a great resource. We have all been where you are now.

You are not alone! Best of luck and my prayers are with you!

> >

> > Well Santa brought NV to our home after me being so nervous to try it months

after our son's pediatrician approved it. I was nervous we wouldn't see

anything and it would get our hopes up for nothing and my husband was very

skeptical. My son has been on fish oils proefa and proepa now for awhile and we

have seen great progress with them but I was afraid to use anything but the fish

oils in addition to his speech therapy.

> >

> > Dare I say we even have first day updates to report?! I'm holding my

breath! My son opened up this gift on Christmas Eve (I couldn't wait till

morning LOL!) and I know I was the only one excited about it. I started with

just one scoop of NV on Christmas Eve mixed into cooked but not hot chocolate

pudding which I read was OK. My son doesn't drink much of anything. The next

morning, Christmas morning, in his stocking he had a lollipop shaped like a

Christmas tree with frosting on it. All I said is " That looks good " and he

smiled at me and said without any hesitation " Mom, would you like to try some? "

I still have to collect my teeth from the living-room floor I was so shocked! A

clear SEVEN word sentence?! Christmas day he kept wanting to help me with

everything where he never had interest before and he didn't drop anything like

he normally does. He wanted me play Rudolph over and over and even though he

still wants to listen to it, he is now trying to sing the words even when the

song isn't on!!!! I can't wait until his teacher and therapist see him next

week as we did not tell them we were going to start NV. Fish oils helped but

he's just trying to talk or sing all the time now! We couldn't wait for him to

talk, and last night I found myself saying " shhhhh, it's quiet time. " I NEVER

thought I'd be saying those words.

> >

> > I have two questions. If he's doing well on just one scoop do I have to

even raise it to two? Can I wait till he no longer is seeing any progress on

one scoop to raise it? I only bought one canister from

http://www.speech411.com because I didn't know if it would work and that is

where I buy fish oils from. That site tells me to order from

http://www.pursuitofresearch.org once I try it. I want to do this right now

since we will order again. I called the number on the pursuit of research site

but they could not answer this question so I wanted to ask here.

> >

> > You all are such amazing parents, I try to read all of the posts even though

I don't read them every day, and am just so impressed by the strength and energy

you all put forth to help your children succeed. I also want to thank the

author of the book the late talker for being here to answer questions. May God

continue to bless every one of you and your children this new year of 2011!!

Kate

> >

>

[Guest guest]

First of all -huge hugs to you. I'll never forget when Tanner was little and it

seemed like it was taking so long for him to progress and his one therapist

told me to keep a journal (haha -why I started this group?) because you

can look back over the months to see how far your child has come. Yes it's

typically the moms who get that feeling that something isn't quite right first.

I do have suggestions for you below from an archive as yes this is pretty

common. The oddball statement however can work both ways. If you take a wait

and see approach and it ends up that your child has an impairment of speech it's

not his fault but the later therapies are started the longer he will be

different in regards to his ability to communicate verbally. During preschool

years the majority of the world will not look at your child as an oddball but

as a " late talker " The " what's wrong with him? " stage from the friendly public

if there is one to go through happens after 3 typically which is the ironic

truth for those that take the wait and see approach -it's a no win situation if

you look at it from the outside. If a child is just a late talker what's the

harm in a few sessions of speech therapy which to a child is going to look like

play anyway? And do I need to point out the downside of waiting if there is an

impairment? No. And good for you that you are out searching how to help your

child. Again more below on how to deal with your husband- and I'll point out the

positive in his views too.

In addition to the subject of husbands not always on board to start, the

subject of being overwhelmed and frustrated is not a stranger to this group.

Have you read The Late Talker book? There are some chapters in there on

frustration that address both those of the child and the parents. The fact you

say " I would love to hear my son say anything! " and your son is 28 months old is

very telling that there may be an issue. Does your child say any sounds or

words consistently at all? Has he ever said a sound once and not again?

And even when you get a diagnosis, if you do, it's not easy either. We all feel

alone when we hear " your child has... " from the doctor. After the initial shock

-it's because most of us look around us and don't know anyone else going through

what we or our child is. The Internet is amazing and changes all of that for us.

Today we all have each other to share with, cry or laugh with, learn from, teach

or support, even if our child has a rare disorder. Today there are many parents

in this group who can relate to what you are going though. In fact there are

some MDs who now view gastrointestinal abnormalities as part of the autistic

spectrum. (and some that don't) At least today with a click of the mouse we can

read and understand both sides. I can't imagine what it was like for parents

before -even though I was there, as a baby.

My mom felt alone after I was born. I was born with celiac disease which almost

killed me, like GERD another gastrointestinal condition. Back then the MDs

didn't know that I was born with celiac disease even though my brother was born

with celiac two years before me. Back then celiac was considered " rare " -now

it's known celiac disease does run in families. More than once after I was born

I was rushed to the hospital malnourished from severe vomiting. Fortunately for

my mom, her sister has her PhD in nursing and knew right away that I probably

had celiac disease just like my older brother -which is what I was later

also diagnosed with. My mom was told that if she had one more child born with

celiac disease that she would go into the Guinness Book of World Records -celiac

was considered that rare. Celiac disease was not rare -just like apraxia, people

just didn't know the symptoms so some children were misdiagnosed -and because

various treatments weren't known either -some died. I could show you pictures

of me where even though I was on a special diet that saved me -I looked like one

of those starving UNICEF children during my sick times. I was very sick -in and

out of the hospital. Imagine the guilt of some parents who were blamed for

starving their baby to death back then. So yes I was the oddball child. My mom

said people used to look at her like she was a mean parent in keeping me (this

rail thin child) from eating so many different foods. But I didn't starve to

death and I grew up to look good enough that I did some modeling and was a

lifeguard and fitness instructor during college years. So call me an oddball-

because to me " normal " is an insult because normal means you are only average

and anyone above average is an oddball

Try not to feel so bad about what you are going through -or your child. We all

have amazing abilities to heal. I have two children that were both considered

special needs -one from birth trauma -one after fevers at 11 months old -and

both doing really great today after years of therapy.

http://www.cherab.org/information/familiesrelate/workandfamily.html

I can tell you as a child who grew up after being described as " sickly " as an

infant that I'm a very happy person today, don't have horrible memories of my

childhood (other than one time in the hospital) -and have always been described

as happy go lucky -and rarely am I ever sick today. I was told as sick as I was

back then -I rarely cried -today I only cry watching Kodak commercials - or

movies like Steel Magnolias. Dakota and Tanner are both very happy boys too. I

did cry when Dakota and Tanner were diagnosed however -and more than once after

as I learned to deal with it.

It's true our children can acquire many labels outside of " late talker " which

can at first overwhelm us, however the good news is that once you educate

yourself you will be better equipped at learning how to best help your child.

As far as fish oils and NV- most here are a bit more down the road than you.

Once you have a diagnosis and therapy we have found that essential fatty and

amino acids and nutrients appear to help stimulate speech and other progress.

It's not that strange really as it's just about good nutrition and much

information on fish oils here

http://pursuitofresearch.org/2010/12/01/therapeutic-use-of-fish-oil-for-apraxia-\

autism-and-other-communication-impairments/ and about NV

http://pursuitofresearch.com/the-history-why-nutriiveda-for-therapeutic-use-for-\

autism-apraxia-etc/ The best first step is diagnosis and to get your child into

appropriate therapy if needed and then talk with your child's doctor about fish

oils and or NV.

Here's an archive on dealing with husbands that may not see eye to eye with you

on your child's late talking:

Hi Dani,

About husband issues with your 26 month old...What I want to say is

hard to explain and being that I'm writing it-and not talking right

to you- I hope it comes out right and you can understand.

What we see as denial in our husbands can sometimes be positive as

long as both parents-mom and dad work together (if possible-of course

single parents don't have to worry about these types of issues!) For

example, when wrote that beautiful post the other day about

overcoming hardship and despair with the support of her husband at

her side keep in mind that she wrote that about 13 years after she

was in the same situation as you. I know and her wonderful

family, and just because " at some point " husbands are there as

support systems for you as well in the way you want them to be

doesn't mean that they are not there all along.

Stress in the marriage is not uncommon when there is a child with a

disability of any sort. I mean even if you leave a child alone with

your husband to run to the store and you come back to find an ice

pack on your child's head there may be a bit of craziness between the

two of you until communication has a chance to help the understanding

part get it's job done. With the balance of the two parents-it

appears that children are able get the best of both worlds-they get

the fatherly push -and the motherly nurturing-and then the fatherly

nurturing and the motherly push.

Parenting isn't always easy-especially when we find out about

something that affects our precious and helpless children's life -we

as parents feel responsible to pick them up, brush them off and fix

what's wrong. We want to say " Mommy's (Daddy's) here sweetheart " and

make " it " all better. But even before that we first need to be ready

to hear, believe and accept that there is something -no matter how

minor or great- " wrong " .

Your husband walked in to find you hugging your baby and crying. The

word " wrong " is not welcomed in the best possible situations, but it

helps if it comes from the professionals instead of us. Let him be

the one to " kick them out of the house " like he says. Or walk out of

the neurologist's office to find another opinion-and then another.

Not accepting right away a negative diagnosis is not a bad thing as

you will find out. I even found some links about this below you may

read..

And...After all-hypothetically he could be right. So why not " make

sure " and double and triple check and give it some time. Doesn't

mean the therapy can't start -just means that he doesn't have

to " accept it " yet. Not being ready to accept right away also

doesn't mean that he's not going to love and accept your child for

who they are and no matter where they end up. Lots of this I know.

You are not going to believe why-my husband was in denial too-but so

was I!!! When I was taking Tanner to therapy and worried about him

on one hand-in the back of my mind-I too believed that he would " just

start talking. " You know everyone has their age they accept. May be

three-may be five.

I understand there may be issues with outside of speech. I

understand that too. Your child is still young- I can tell you from

personal experience that even delays that are a combination of

physical and developmental challenges can be overcome-I know this

from my first born son Dakota-my miracle child. There is always

hope, which is the message that was trying to say. I hope I

said it OK. But if not-here are some links (and snips) that may help!

http://www.kidsource.com/NICHCY/parenting.disab.all.4.2.html

" If you have recently learned that your child is developmentally

delayed or has a disability (which may or may not be completely

defined), this message may be for you. It is written from the

personal perspective of a parent who has shared this experience and

all that goes with it.

When parents learn about any difficulty or problem in their child's

development, this information comes as a tremendous blow. The day my

child was diagnosed as having a disability, I was devastated -- and

so confused that I recall little else about those first days other

than the heartbreak. Another parent described this event as a " black

sack " being pulled down over her head, blocking her ability to hear,

see, and think in normal ways. Another parent described the trauma

as " having a knife stuck " in her heart. Perhaps these descriptions

seem a bit dramatic, yet it has been my experience that they may not

sufficiently describe the many emotions that flood parents' minds and

hearts when they receive any bad news about their child.

Many things can be done to help yourself through this period of

trauma. That is what this paper is all about. In order to talk about

some of the good things that can happen to alleviate the anxiety, let

us first take a look at some of the reactions that occur...

Common Reactions

On learning that their child may have a disability, most parents

react in ways that have been shared by all parents before them who

have also been faced with this disappointment and with this enormous

challenge. One of the first reactions is that of denial -- " This

cannot be happening to me, to my child, to our family. " Denial

rapidly merges with anger, which may be directed toward the medical

personnel who were involved in providing the information about the

child's problem. Anger can also color communication between husband

and wife or with grandparents or significant others in the family.

Early on, it seems that the anger is so intense that it touches

almost anyone, because it is triggered by the feelings of grief and

inexplicable loss that one does not know how to explain or deal

with... "

http://www.kidsource.com/NICHCY/parenting.disab.all.4.2.html

http://www.indiana.edu/~hperf558/periodic.html

" Time-bound models of grief and mourning

These have been developed by a number of people (Bowlby, 1980; Engel,

1961; Kubler- Ross, 1969; Lindeman, 1944), but a representative model

(Clubb, 1991) describes a linear and temporal sequence of:

*impact

-shock, anxiety and disorganisation.

-Is short lived.

*denial

-protest.

-Is a defence mechanism.

*grief

-anger, guilt, despair, sadness, blame.

*reorganisation

-focussing attention outwards.

*closure

-acceptance.

The central and important concept in this model is that

of " acceptance " , which is implicit in a healthy adjustment, the

corollary being that failure to " accept " is maladaptive, pathological

and requires intervention...

Discussion

There is an emerging body of literature which is questioning the

concept of denial as maladaptive, and is providing some alternative

interpretations. (1993) challenges the traditional view, and

suggests that " ...denial buffers the individual against what is

sometimes a bleak reality " . He cautions health professionals against

asking their clients to be " unrealistically realistic " , distinguishes

between acceptance and adaptation, and states that successful

adaptation is not dependent upon acceptance.

(1989) has contributed a large body of work which relates to

peoples' ability to benefit from tragedy. She questions the long-held

assumption that accurate perceptions of reality are a critical

component of mental health and challenges the established wisdom. Her

research indicates that normal human thought and perception is marked

by positive, self-enhancing illusions about the self, the world and

the future. These she calls " positive illusions " , and believes they

are instrumental in enabling people to overcome adversity in their

lives. Brown (1993) raises the question of these positive illusions

being merely defence mechanisms in disguise, but draws a distinction

based upon defence mechanisms being unconscious and involving

distortions of reality, whereas positive illusions are a cognitive

reinterpretation which are subject to control and revision and, as

such do not involve major distortions of reality, but rather involve

variations in how reality is interpreted or represented. They are

seen as strategies which enable people to feel better and function

more effectively. Counsins (1989) says that an optimistic outlook

does not necessarily equate with a denial of reality. He provides an

interpretation which is based upon an understanding of reality, but a

refusal to accept the implications which this reality suggests... "

http://www.indiana.edu/~hperf558/periodic.html

And if all this doesn't help I do hope that the following you can pull some

advice from. But either way please know that here you are not alone. I can

assure you that at one time or another probably 100% in this group that are

parents relate to what you were feeling when you wrote your email! So first off

want to offer up a number you can call anytime and any day you feel you need to

talk to someone live for support in confidence. And don't feel your problem is

too big or small to call -just call if you need or want to talk.

" Call With any Problem, Anytime

1-800-448-3000 (TDD 1-800-448-1833)

Open 24 hours a day, everyday

The Girls and Boys Town National Hotline is a 24-hour crisis,

resource and referral line. Accredited by the American Association

of Suicidology, our Hotline is staffed by trained counselors who can

respond to your questions every day of the week, 365 days a year.

Over the past decade, more than 5 million callers have found help at

the end of the line.

http://www.girlsandboystown.org/hotline/index.asp

=====

[Guest guest]

To QuartzQueenie:

I understand what your husband is saying, but if your child enters school unable

to talk, the labels he receives from the other children will have a much greater

impact on his self-image than taking him for therapy will now. He will view

therapy at his age as a time to play and learn (which is what he's doing

whenever he plays). and his self-esteem will grow when he starts accomplishing

things (saying sounds/words he couldn't before).

My son is 15 months old and i can tell he wants to talk and is frustrated that

he can't make the sounds he wants to make. I'm sure your son at 28 months is

going thru (or has already gone thru) this frustration too. hopefully he hasn't

given up.

Please, please, PLEASE start the therapy. states these days don't provide help

that's not necessary - everyone is hurting for money. if they say he needs it,

he NEEDS it.

as for fish oil therapy and NV, i am new to this group too. fish oil is

believed to provide the body with what's necessary to help neuronal development.

I'm not sure how NV is supposed to work, but i'll be talking to my doctor about

it for my son at his next visit to see what he says.

pick up the book " The Late Talker " by M. Algin, L. Geng, and M. Nicholl.

another good one is " The Parents Guide to Speech and Language Problems " by D.

Feit. both will help you greatly understand what's going on and how to help

your son. Ask your husband to read them too.

Best of luck and God Bless your little one!!

-Rima

> > >

> > > Well Santa brought NV to our home after me being so nervous to try it

months after our son's pediatrician approved it. I was nervous we wouldn't see

anything and it would get our hopes up for nothing and my husband was very

skeptical. My son has been on fish oils proefa and proepa now for awhile and we

have seen great progress with them but I was afraid to use anything but the fish

oils in addition to his speech therapy.

> > >

> > > Dare I say we even have first day updates to report?! I'm holding my

breath! My son opened up this gift on Christmas Eve (I couldn't wait till

morning LOL!) and I know I was the only one excited about it. I started with

just one scoop of NV on Christmas Eve mixed into cooked but not hot chocolate

pudding which I read was OK. My son doesn't drink much of anything. The next

morning, Christmas morning, in his stocking he had a lollipop shaped like a

Christmas tree with frosting on it. All I said is " That looks good " and he

smiled at me and said without any hesitation " Mom, would you like to try some? "

I still have to collect my teeth from the living-room floor I was so shocked! A

clear SEVEN word sentence?! Christmas day he kept wanting to help me with

everything where he never had interest before and he didn't drop anything like

he normally does. He wanted me play Rudolph over and over and even though he

still wants to listen to it, he is now trying to sing the words even when the

song isn't on!!!! I can't wait until his teacher and therapist see him next

week as we did not tell them we were going to start NV. Fish oils helped but

he's just trying to talk or sing all the time now! We couldn't wait for him to

talk, and last night I found myself saying " shhhhh, it's quiet time. " I NEVER

thought I'd be saying those words.

> > >

> > > I have two questions. If he's doing well on just one scoop do I have to

even raise it to two? Can I wait till he no longer is seeing any progress on

one scoop to raise it? I only bought one canister from

http://www.speech411.com because I didn't know if it would work and that is

where I buy fish oils from. That site tells me to order from

http://www.pursuitofresearch.org once I try it. I want to do this right now

since we will order again. I called the number on the pursuit of research site

but they could not answer this question so I wanted to ask here.

> > >

> > > You all are such amazing parents, I try to read all of the posts even

though I don't read them every day, and am just so impressed by the strength and

energy you all put forth to help your children succeed. I also want to thank

the author of the book the late talker for being here to answer questions. May

God continue to bless every one of you and your children this new year of 2011!!

Kate

> > >

> >

>