Guest guest Posted June 23, 2004 Report Share Posted June 23, 2004 >Neither showed anything yet teachers, a neuropsych, and my husband and I have seen classic absence seizures< When autism emerged and maybe even before Tristan would have those same type of absence seizures you are talking about. Dr. Karnik ordered an MRI and it showed nothing. Some of his self abusive episodes seem to be seizure like too but he says much of the time EEG won't catch seizures even if the child is having them periodically. This is another reason I would like to learn more about seizures related to the gut. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 avoiding sugar and having a clean liver and bowel. seems to work for me On Sun, Jan 10, 2010 at 2:00 PM, dbankester <dbankester@...> wrote: > > > Hi again, > > Sorry to post twice in one day, but was wondering if there is anyone > willing to share success stories about how they are managing absence > epilepsy as a grown up. Possible therapies and even suspected reasons. Sorry > if the seems like a strange question. > > My daughter is so close to finally being seizure free after almost 8 years > of nightmarish problems and now 2 1/2 years of " healing " on the MAD and > ketogenic diets, using whole foods and coconut oil. We must wean off the > diet in May, and so I am researching again. She also is not burning much for > ketones these days either. The change in her quality of life the past 2 > years has been incredible, but not without tweaking and searching as well. > She is probably only losing about 2 - minutes to short abnormal bursts a > day, compared to hours being lost in the past. I am grateful. I just feel > like we have come so far, and are so close. I do not want to stop now, nor > do I want to lose ground. > > Thanks, > Dorene > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2010 Report Share Posted March 4, 2010 Hi Beth,  This is Demi, my daughter has absence seizures and they were categorized by her eyes kind of flickering for about 4 seconds or so. She would stop what she was doing and do this and then start up what she was doing again. We had an EEG and it confirmed absence seizures. I don't know if your child has them but I can tell you this is how it manifested in my daughter. She intially did it once a day and then it became a couple of times per day and by the time she had the EEG she sometimes would also open and close her hands during an episode. They can usually last from 3 to 15 seconds.  My daughter's are now controlled with meds.  Demi  From: LAE <bethausa424@...> Subject: RE: [ ] New ,... Echolalia and NV Date: Thursday, March 4, 2010, 1:46 PM  Kathy, We have the same case with our son (only child). He’s 6yrs old and spontaneous language/speech is one of the most difficult goal we are trying to achieve with him. He has some but really very limited for a 6yrs old. Wonder also if NV would help in that area. Also, how did you decide to get him tested with seizure? We haven’t checked him yet as his pediatrician and developmental pediatrician did not recommend for us to do it but I’m really curious to know if he’s having seizures. He would blink his eyes at times for couple seconds and would be out of the world for a split seconds until we call his attention and he would be good as nothing happened. Is this a sign that he might be experiencing seizure for a split seconds across the day? TIA! Beth Quote Link to comment Share on other sites More sharing options...
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