Re: Fish oil ....is this common?

[Guest guest]

We use the liquid proefa and my two year olds' clothes smell fishy too but

mostly his PJs since we give him fish oils in the morning when his PJs are

still on.

On Nov 24, 2010 2:43 PM, " morgaine108 " <morgaine108@...> wrote:

My 2.9 year old gets two capsules ProEFA a day. I have noticed since we

switched to higher dosage (was previously giving 1/2 tsp of the children's

liquid just once a day) that his clothes smell like somewhat rancid fish oil

when they come out of the wash. I know when he takes it it does not smell so

fishy like that. I am guessing he is sweating it out of his pores and it

soaks into the clothes and maybe I am just noticing it more after it's run

through the dryer and has been heated up. I do notice the smell on his

breath a little but he as a whole doesn't usually smell that way. Anyone

else have this experience? Is this pretty normal?

[Guest guest]

I notice my dishwasher smelling fishy since I put it in his cups with

juice. I would put a scoop of oxiclean in with his clothes in the wash.. it

gets the worst smells out... there are some other responses in the archives

with a tide product to get fish stains out.

On Wed, Nov 24, 2010 at 12:31 PM, morgaine108 <morgaine108@...> wrote:

>

>

> My 2.9 year old gets two capsules ProEFA a day. I have noticed since we

> switched to higher dosage (was previously giving 1/2 tsp of the children's

> liquid just once a day) that his clothes smell like somewhat rancid fish oil

> when they come out of the wash. I know when he takes it it does not smell so

> fishy like that. I am guessing he is sweating it out of his pores and it

> soaks into the clothes and maybe I am just noticing it more after it's run

> through the dryer and has been heated up. I do notice the smell on his

> breath a little but he as a whole doesn't usually smell that way. Anyone

> else have this experience? Is this pretty normal?

>

>

>

[Guest guest]

Hi Malinda -I probably don't stress this often enough for all new people to see

it but with fish oil you want to serve with:

1. Disposable plastics

2. Metal silverware

3. Ceramic type dishes

Don't use reusable plastic as the oil will bind to the plastic. Think spaghetti

sauce and rubbermaid and how the container will turn orange -that's because the

oil binds to the plastic. When you wash the sippy cups and other reusable

plastic you are not going to remove all the oil..and thus the horrid fish oil

steam.

You'll have to throw those dishes and cups away and start fresh.

As far as smelly kids -not one case once investigated here linked to the oils

being digested. Remember we are dealing with toddlers and fish oil. If they

wipe their mouth on their hand and then on their clothing -it will take around 3

washes to come out. Always blot your child's mouth with a paper towel once they

get their fish oils to make sure you remove as much oil as possible from going

anywhere but in their body -not hair, clothing and God forbid furniture!!!

Here's why so far not one child will smell of fish from this group. It's a very

rare condition and if a child has it- goes a bit deeper than just not being able

to digest fish properly.

[ ] Re: smelling something fishy?

So far to date not one child has been found to have the following condition

which is VERY VERY rare -and the issue wouldn't just be fish oil. I pretty much

guarantee if your child smells of fish...he's got some on his lips that he is

wiping on the back of his hand.. and from there -only goodness knows where! But

takes 3 times at least to get fish oil out of fabric and if he wipes it on your

couch - not much you can do. And yes hair would be one area they would wipe it.

Thing to do, serve fish oil, have a paper towel handy and right after fish oils

go into the mouth -blot the lips right away with the paper towel. Give them

something to drink and blot again -you will be shocked how much fish oil is not

only sticks to the outside of their lips -but just inside as well....I mean it

is oil

Below are two archives that answer more about the rare condition -again doubt

highly it's this - just messy kids. Buy lots of lemon and wash those clothes

over and over and going ahead use the paper towel method. I probably should

share this more often -sorry!

Re: Smelling fishy

Kris if you are smelling fish when your child sweats, make sure it's him and not

his clothes. Once fish oil gets into the clothes -you have to wash a few times

in hot water to get it (and the smell) out all the way. Someone once posted

which soap was best. I know my brother is a captain and a maritime attorney, and

on the ships they use lemon to clean away any fish smells off the ships.

I know it's hard to get the oil out of clothes because Tanner once wiped his

mouth with the back of his hand -and then wiped his hand on his shorts. I was

the only one who could still smell the fish after I washed the shorts like 3

times! I finally got the smell out. Now whenever I give Tanner oil (if he

doesn't swallow the capsules) he has a napkin to wipe his mouth -and knows not

to use his clothes.

If you are sure it's him -and is coming out when he sweats, this is rare. I

would talk to his pediatrician about being tested for TRIMETHYLAMINURIA

http://www.icondata.com/health/pedbase/files/TRIMETHY.HTM

http://www.jhu.edu/~jhumag/496web/derzebra.html If I were you I wouldn't want to

take any chances with this one!

And Toni -for fishy, onion, garlic breath which happens after eating at times.

Most kids don't brush enough -or for the full 2 minutes they should. If you are

noticing fish breath (neither of my two boys had this problem either) make sure

after giving your son fish oil your son brushes his teeth -and tongue too if he

can stand it. (good oral motor stimulation anyway) Actually speaking of oral

motor stimulation -in our home we all use a sonicare elite toothbrush which is

timed for 2 minutes -and it really works well to get the mouth clean.

http://www.sonicare.com/

http://www.sonicare.com/elite/clinical.asp

=====

[Guest guest]

Hi ,

I politely beg to differ on this one. My son and I both sweat out the fish oils,

most notably in the summer. There were occasional fish oil spills for my

son...., but the real problem was the sweating. I finally had to throw out

several clothing items, it got so bad, and cut way down on the dose. It was

worse with some brands than others. I could never figure out completely a

pattern. We are both on Carlson's now and the last year has been pretty much

fish-smell free (Yea!), but our doses are lower than before, and I am much more

compulsive about washing off my sweaty little boy right away. It's possible that

it is related to rancid fish oil, but I haven't figured out how to verify that.

We do not fit the criteria for TRIMETHYLAMINURIA. My son has a microdeletion and

it's probable that his metabolism is not quite normal, but that doesn't explain

why I sweat fish oil. My three typical daughters were always on a lower dose of

fish oil and never had the problem.

Gretchen, mother of 6 1/2, apraxia due to microdeletion, now with nonstop

talking, understandable much of the time

>

> Hi Malinda -I probably don't stress this often enough for all new people to

see it but with fish oil you want to serve with:

>

> 1. Disposable plastics

> 2. Metal silverware

> 3. Ceramic type dishes

>

> Don't use reusable plastic as the oil will bind to the plastic. Think

spaghetti sauce and rubbermaid and how the container will turn orange -that's

because the oil binds to the plastic. When you wash the sippy cups and other

reusable plastic you are not going to remove all the oil..and thus the horrid

fish oil steam.

>

> You'll have to throw those dishes and cups away and start fresh.

>

> As far as smelly kids -not one case once investigated here linked to the oils

being digested. Remember we are dealing with toddlers and fish oil. If they

wipe their mouth on their hand and then on their clothing -it will take around 3

washes to come out. Always blot your child's mouth with a paper towel once they

get their fish oils to make sure you remove as much oil as possible from going

anywhere but in their body -not hair, clothing and God forbid furniture!!!

>

> Here's why so far not one child will smell of fish from this group. It's a

very rare condition and if a child has it- goes a bit deeper than just not being

able to digest fish properly.

>

> [ ] Re: smelling something fishy?

>

> So far to date not one child has been found to have the following condition

which is VERY VERY rare -and the issue wouldn't just be fish oil. I pretty much

guarantee if your child smells of fish...he's got some on his lips that he is

wiping on the back of his hand.. and from there -only goodness knows where! But

takes 3 times at least to get fish oil out of fabric and if he wipes it on your

couch - not much you can do. And yes hair would be one area they would wipe it.

>

> Thing to do, serve fish oil, have a paper towel handy and right after fish

oils go into the mouth -blot the lips right away with the paper towel. Give them

something to drink and blot again -you will be shocked how much fish oil is not

only sticks to the outside of their lips -but just inside as well....I mean it

is oil

>

> Below are two archives that answer more about the rare condition -again doubt

highly it's this - just messy kids. Buy lots of lemon and wash those clothes

over and over and going ahead use the paper towel method. I probably should

share this more often -sorry!

>

> Re: Smelling fishy

>

> Kris if you are smelling fish when your child sweats, make sure it's him and

not his clothes. Once fish oil gets into the clothes -you have to wash a few

times in hot water to get it (and the smell) out all the way. Someone once

posted which soap was best. I know my brother is a captain and a maritime

attorney, and on the ships they use lemon to clean away any fish smells off the

ships.

>

> I know it's hard to get the oil out of clothes because Tanner once wiped his

mouth with the back of his hand -and then wiped his hand on his shorts. I was

the only one who could still smell the fish after I washed the shorts like 3

times! I finally got the smell out. Now whenever I give Tanner oil (if he

doesn't swallow the capsules) he has a napkin to wipe his mouth -and knows not

to use his clothes.

>

> If you are sure it's him -and is coming out when he sweats, this is rare. I

would talk to his pediatrician about being tested for TRIMETHYLAMINURIA

> http://www.icondata.com/health/pedbase/files/TRIMETHY.HTM

> http://www.jhu.edu/~jhumag/496web/derzebra.html If I were you I wouldn't want

to take any chances with this one!

>

> And Toni -for fishy, onion, garlic breath which happens after eating at times.

Most kids don't brush enough -or for the full 2 minutes they should. If you are

noticing fish breath (neither of my two boys had this problem either) make sure

after giving your son fish oil your son brushes his teeth -and tongue too if he

can stand it. (good oral motor stimulation anyway) Actually speaking of oral

motor stimulation -in our home we all use a sonicare elite toothbrush which is

timed for 2 minutes -and it really works well to get the mouth clean.

http://www.sonicare.com/

> http://www.sonicare.com/elite/clinical.asp

>

> =====

>

[Guest guest]

Gretchen have you had your urine or your son's urine tested for trimethylamine?

It's my understanding that is the only way to test for trimethylaminuria: The

Fish Malodor Syndrome. From my understanding the reason for the smell in the

sweat is because the body in people affected with this condition don't have or

don't have enough of some enzyme needed to break down the trimethylamine. There

are many of us on high dosages of fish oils in this group, and if you check

cardiovascular or psychiatric patients -research amounts are very high as well.

It's one thing if it's the child-as yes that can be fish oils getting to outside

the body by mistake. But if you are sure you are sweating out fish oils that's

something you wouldn't be able to say you do or don't have this condition by

symptoms as the symptom is that you excrete a fish oil smell when you sweat (as

well as it can be on your breath, urine) No harm in getting a blood test just

to rule it out. What I did discover in the following article is that not only

is this a metabolic disorder but that it varies -so you can have more mild

cases.

When you say the last year has been odor free -you have had the NV for your son

since January (so about a year!!) - have you taken it too? It supports the

metabolic system and perhaps (just perhaps) can/IS? help/ing your body to break

down the trimethylamine due to all the essential nutrients from whole foods?

If anyone can get to the bottom of this I know you can!! I have not done full

research into this because again I had thought it's so rare -but according to

this journal article it's not so much rare as unknown. In other words some may

be affected and not realize they suffer from this. And I believe it's best to

know so you know what foods are best to consume and which are best to avoid. I

read one other article (more of a blog -so not a credible source and no

references to opinions) that linked high dosage fish oils to the fish oil smell

in sweat...and wonder if that author too should have her urine tested for this

disorder. I read many with this disorder are NOT properly diagnosed as even

most doctors are not fully aware of this " rare " disorder.

http://dmd.aspetjournals.org/content/29/4/517.full

But testing the urine -that is from what I understand the only way to confirm or

rule out.

" Diagnosis

The first step is to contact your own GP who may then refer you for a urine

test. This test will help to determine if you have Trimethylaminuria.

Diagnosis is also possible through gene sequencing (done via a blood test).

Our experience is that many GPs have never heard of this condition and therefore

it may help to provide your GP with this website address prior to your

attendance.

A quick look around the forums will reveal that it has taken many people years

before they were diagnosed. Hopefully this will begin to change with increased

media exposure. "

http://www.tmau.org.uk/index.php?option=com_content & view=article & id=44 & Itemid=61

(lots more at this link about the gene involved etc.)

Hey they thought apraxia " rare " at one point. We know rare just means either

few have it or few know how to diagnose it! Paging Dr. House!

=====