Re: Re: Update on Caleb after 1 month on NV

[Guest guest]

Hi

Sorry for the slow reply. Your email was very much appreciated.

We will be seeing a paed soon for Caleb - husband now on board which is

great! Just want to make sure we give him a thorough evaluation so that we

can be armed with all the information that we need to help him.

He's doing well. I sat and wrote a list of the words/approximations that he

can say and I was actually really surprised and pleased. I think that I

spend so much time with him that I find the improvements hard to see. We are

working hard on his clairty of speech but he is saying much more and is far

easier to understand than a month ago. He's also started to be really,

really funny and imaginative which is great to see.

To answer your questions - he is regular, the NV did give him very loose

bowels for a while, but that has settled down. Everyone has commented on

how much he has grown in a really short amount of time so that is great and

I think the NV had a big part to play in that. We have tried splitting the

dose, but he goes to pre-school 2 days per week and starts at 8 and on those

days it is hard to split the does and get out of the house so that we aren't

late! I'm going to do it 5 days per week though so that should give me a

sense if it's working. He's great at drinking water so I don't think that's

too much of a problem. He weighs 15kg so 33lbs so I will watch how he

changes with splitting the dose before increasing it.

I love reading all the positive stories on this group and it has provided me

with a wealth of information and for that I am really, really grateful!

, all the hard work you put in for these kids is remarkable, and we are

all very lucky to have you fighting for our children!

Thanks

Mawgan

On 19 November 2010 01:37, kiddietalk <kiddietalk@...> wrote:

>

>

> Hi Mawgan!

>

> It's more common for some reason in our group for the moms to be a bit more

> aggressive in seeking evaluations for our " late talking " children while our

> husbands feel we should just give them some time. If the mom and dad work

> well together the two opinions can actually work very well because then

> there is a balance. So good that the two of you are talking it out. I don't

> know exactly what you can say to him to make him agree with you about taking

> Caleb to see the pediatrician- but one thing I used to say to relatives that

> thought I was being overly paranoid was " I'm sure you are right but I want

> to do this just in case- so I never have to look back and say " if only " and

> typically that worked for me. Perhaps some of the dads here can provide

> greater insight?

>

> And for you...please try not to compare your baby to others who don't have

> any delays in speech. If you can try for one day, one hour even to not be

> able to say anything you would go wild with frustration. I mean imagine not

> even being able to express important thoughts! And in addition many of our

> children are affected in a multifaceted ways- so even more to deal with.

> What I can assure you is that the way your child is today compared with

> others his age is not necessarily any indication of future success. That's

> why they have classic fairy tales like The Ugly Duckling

> http://ivyjoy.com/fables/duckling.html Most important one important lesson

> learned in between the lines of this story is that the duckling should be

> protected from those that would misjudge him harshly to protect his delicate

> self esteem. In HS your son may be the golden child and the table turns. I

> mean...hey you know the Radcliffe story -you're from the UK!

>

> And besides, it's my opinion that those of us that have our children on

> fish oils and NV will have an incredible edge in academics, growth, and

> cognitive function over the rest. I know you've read this -but for those

> that haven't http://pursuitofresearch.org/science.html

>

> As far as NV, fish oils, surges

>

> The fish oils as they are fat soluble I believe it's fine to give them once

> a day -many of us do and while in some cases children do need to have more

> than one dosage a day (especially in regards to ADHD and school days) the NV

> it's highly recommended to split into two servings as it's water soluble.

>

> Is Caleb regular or constipated? Is he well hydrated

> http://pursuitofresearch.org/faq.html#serve And just to point out -the

> recommended amount of liquid is not just for those on NV...it's the amount

> of liquid that is recommended for humans in general

>

> Also while I don't typically go by weight -one of the parents with a 23

> month old that weighed 40 pounds (Google says that 18.14 kg) also only

> noticed more subtle improvements at one scoop, and based on the weight I

> told her to check with her child's pediatrician about raising the dosage up

> to two scoops (split into one scoop twice a day) and Beth sent me

>

> " I doubled the dose today. After his first scoop, he started spouting out

> phrases and words out of nowhere. Like after each bite at lunch, he would

> say, " Mmmmmm good stuff! " HE said a lot more too. I had his hair cut today

> and the stylist said she could understand what he was saying. I wonder if

> there is a correlation. I don't know how quickly NV kicks in to know. I

> guess this would be a surge for sure. "

>

> (Beth is a friend of Ginny's from this group who has 3 autistic son and a

> husband with TBI on NV. Beth isn't a member here but if you would like to

> speak with her let me know and I can introduce you via email offlist)

>

> So...not knowing Caleb's weight unless he's a larger child like Beth's I'd

> stick to the one scoop and just try splitting that into 2 dosages a day. Are

> you using a level or heaping scoop? For sure you could split one heaping vs

> level scoop in half.

>

> We've read many times that sometimes it's just a wee difference of a half

> scoop more that we see the more dramatic vs milder improvements- and of

> course look for 'all' of these areas at once!

> http://pursuitofresearch.org/pursuit.html

>

> =====

>