Re: Child seems very very normal but is not verbal

[Guest guest]

Welcome to the group! I'm not clear on a few things. You don't say your

child's age but as the parent you appear to believe your child is in the normal

range in social and receptive areas. You are concerned that people are using

the word " autism " so much yet you put your child on an exploratory autism

regimen for some reason? Why?

GFCF is not something I would recommend to try just because a child is a late

talker. If your child is sensitive or allergic to gluten or casein then yes.

Milk and dairy are important aspects to a child's diet and if removed they must

be replaced appropriately or you can end up with much more severe issues than

late talking to your child's bones which is permanent. This unfounded craze in

pulling children off milk unnecessarily is linked to a rise in children that are

short stature with weak brittle bones and a tendency to obesity. I have the

literature on this if you are interested.

Step one however for a late talker is not trying different diets and supplements

-it is getting a diagnosis from at least one private SLP, and if a

neurodevelopmental communication impairment such as apraxia or autism is

suspected -getting an evaluation from a neuromedical doctor as well to confirm

or rule out " soft signs " such as hypotonia, motor planning deficits in the body

and sensory issues. If able to I would seek at least one private OT evaluation

as well. You want to have a definitive diagnosis because then you can get your

child appropriate therapy and placement. What state or country are you from?

From your writing it sounds like English is a second language for you? (I'm so

jealous- the only way I can write in another language is with an online

translation page like Babelfish or something!)

Have you read a book I co authored with a neurodevelopmental pediatrician Dr.

Marilyn Agin called The Late Talker? If not that may be a great start point too

and you can read some of it online for free at Google books, or see if your

library carries it. If you get it from Amazon however don't think it's more

than around ten bucks? there is a wealth of step by step information about

" what to do if your child isn't talking yet " so everything from therapies, to

frustrations, to advocacy including sample letters etc.

You don't say what vitamins but one needs to be careful of just supplementing

-the purest way to get nutrients are from food. What is of concern is that you

mention dimethylglycine or DMG. I have a few archives below you may want to

check into.

Have you heard about fish oils/the essential fatty acids?

http://www.facebook.com/topic.php?uid=115029735601 & topic=7401

Have you heard about NV -essential amino acids and nutrients from whole food?

http://www.pursuitofresearch.com

http://www.pursuitofresearch.org (right now still more info here as we are

still transferring info)

Essential nutrients are just that -essential to the body but the body can't

produce them so needs to consume them. DMG is a derivative of the amino acid

glycine which is in NV. If you provide the body with what it needs in essential

nutrients it can produce what else it needs. My son had a HORRIBLE reaction for

example to when I tried to supplement him with glutathione years ago. He lost

his remarkable memory for a bit. But that's the difference between supplements

and food -you need to know that the body can digest and utilize what you

supplement and you also risk side effects more when not from food. For example

when I gave my son NV which naturally raised his glutathione -he's had the most

remarkable surges ever -with no side effects at all. Think of the difference

between supplementing a baby with 240 mg of potassium vs giving them a banana to

eat which contains the same amount. Which one would one have less of a concern

about? The banana of course because the nutrients are balanced when in whole

food.

Below is part of what you may be facing by keeping your child on DMG which from

what I read one shouldn't even use longer than 28 days

http://www.webmd.com/vitamins-supplements/ingredientmono-859-DIMETHYLGLYCINE.asp\

x?activeIngredientId=859 & activeIngredientName=DIMETHYLGLYCINE

As I say to the parents who are doing the (what I consider crazy) long term anti

viral treatment -the treatment you are using for the relatively minor impairment

you are looking to help may create far greater issues with internal

organs...just like the pull your child off milk -short, brittle bones, obese

trend. Nutrition is a science -there are too many theories about autism, and

it's best for you to continue to use the common sense you have. My opinion is

STOP all the supps you are using -explore fish oils and NV (one at a time) with

a reputable pediatrician and/or neurologist -and make sure you secure the right

therapy. If your child ends up requiring other supplements and or needs

medication as well then of course. But don't just test these things out because

again limitations or supplementation -anything that falls outside of food, and

any drugs, can have a side effect -and I don't mean just being hyper or running

around laughing too much! For example:

From Dr. Kleiner's book Power Eating

(about DMG) " ...and what most people don't realize is that

supplements containing DMG may cause chromosome damage in cells "

Re: DMG ???

Found this in the archives from last year (there are two messages here as I

posted the one on top of the other) Another name for DMG is pangamic acid so

you can search under that as well. And yes others report what you did if you

check the archives. I never tried this- never used it.

~~~~~~~~~~~~~~~~~two archives

One more thing -after finding this from the book Sports Nutrition:

Vitamins and Trace Elements:

" An area of concern for the DMG supporter is that large doses may be

hazardous to humans. DMG has been shown to be converted to

nitrosarcosine, a weak carcinogen, in the stomach of mice.

Nitrosatable sompounds can cause cancer in humans. Any benefit of

DMG should deter it's use because of the possibility of it's

mutagenesis effect. More research is needed with regard to DMG and

physical performance "

http://books.google.com/books?id=9qzYWMRyDf4C & pg=PA213 & lpg=PA213 & dq=the+dmg+supp\

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orter+is+that+large+doses+may+be & source=web & ots=n8RHhpoGO3 & sig=pQqiMsUiCReULxl7g\

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KRgy1UxfgY

I searched under nitrosarsoine and DMG and found this informative

paper. So not sure what to believe on DMG! (More rat studies?)

http://www.medsafe.govt.nz/regulatory/CompMed/PIL/IJEACCM/1/Dimethylglycine.pdf

=====

[Guest guest]

As a parent of a child recovering from autism, I say dry your tears. Even if the

diagnosis is accurate, recovery from autism is possible.

The combination of excessive milk intake and speech deficits will often get a

child a label of on the autism spectrum.

I agree with regarding the GFCF diet. I use digestive enzymes and allow my

child to eat a normal diet.

Likewise using certain supplements such as glutathione to directly increase

glutathione levels can be disasterous for some children.

While I would not recommend some of the supplements of the Autism Research

Institute (ARI), they do have an exceptional checklist for evaluating where a

child is on the autism spectrum. As you use interventions such as nutrivedia,

fish oils, etc., you can complete the following checklist and submit it to ARI

to evaluate your child's progress.

http://www.autism.com/ind_atec_survey.asp

If you have any questions, feel free to contact me offlist.

> I want to know if my kids seem normal to any one. i have been crying since a

doctor just told me he has autism.i am sure this might be a misdignosis or

something like that becuase he didnot make any test or anything.My kid does

evrything other kids do except talking.

>

> Why do they use the word austism so often. These days its become so common

that for every thing i see people calling. How does normal behavoir of a human

being considered a disorder.

>

[Guest guest]

Babies don't just not talk because they're spoiled! Its sad that no one was

concerned about him not talking till he was 3yo? Please find a good SLP and a

new Pediatric Neurologist. Where do you live??

>

> Child seems very very normal but is not verbal. Peditrician and a child

nerologist seemed not concerned when they saw his around until 3 years.

>

> I think i soilled him by not making him be indeendent by himslf and giving him

what he wants without talking.

>

> All other things like point to things that he want. he lets me know what he

wanted by putting or hans near want he wants.

>

>

[Guest guest]

Wow, my 99th% height 11 yo daughter would be shocked to know she's going to end

up short in stature by not drinking milk. No brittle bones either. It's called

a calcium supplement. The real point is when you make radical changes in diet

it's good to run it through a nutritionist who has experience and will balance

them out nutritionally.

As for the original person asking about her child, well definitely you want to

talk with the doctors more. Sometimes when we have only one child (or the child

in question is our oldest) we don't have a lot of perspective to compare him to

other kids to know what is normal. I got used to normal for MY child, which

wasn't the same as normal for most others'. When I took him on a playground and

the 18 month olds were talking while my 2 year old was grunting and pointing,

then it became obvious he wasn't normal. It has nothing to do with brains but

is a motor control problem. You want a speech evaluation and a neuropsych

evaluation. He may benefit from an OT (occupational therapy) evaluation as

well. And I don't mean to butt in or read into things, but if you have any

issues communicating with the doctors, you might take along a friend to help.

As a parent with an older child, I can assure you you'd rather have the labels

now and be able to do something about it, than to wait, pretend it isn't that

way, and have it become a big problem later.

[Guest guest]

I'm guessing you were referring to me? I grew up on GFCF and it saved my life

because I was a celiac baby who spent much of my infancy in the hospital and

almost died before they figured out why I was so sick and so skinny. Celiac

wasn't well known then and I was told what I had was " rare " I can tell you that

as an adult I still HATE GFCF from my memories of school lunches, birthday

parties, family dinners with friends etc where I was not allowed to eat like

other kids. I would be furious to have found out my parents put me on that diet

and for no reason because I can give you a zillion reasons why -but I know in my

case it was for a very good reason -and yes for those kids that need to be on

special diets- OF COURSE!!! But do it under supervision and make sure the child

is getting the necessary nutrients. That is why I said if one must remove milk

it must be " replaced appropriately " Here is the entire paragraph:

" GFCF is not something I would recommend to try just because a child is a late

talker. If your child is sensitive or allergic to gluten or casein then yes.

Milk and dairy are important aspects to a child's diet and if removed they must

be replaced appropriately or you can end up with much more severe issues than

late talking to your child's bones which is permanent. This unfounded craze in

pulling children off milk unnecessarily is linked to a rise in children that are

short stature with weak brittle bones and a tendency to obesity. I have the

literature on this if you are interested. "

I too am very healthy and while not tall not short either- I'm just saying that

if one doesn't NEED to put their child on this sort of diet they shouldn't do it

just because someone had a theory. Below are some of the links since I'm

letting all know that lack of dairy is being linked to a rise in children that

are short stature with weak brittle bones and what shocked them was the obesity

aspect. In addition it was stated that much of the children pulled off milk did

not need to be.

Re: Milk Sensitivity?

I agree if a child is allergic to milk you have to find alternatives.

There are some that just 'try' to pull children off of milk not realizing that

we have a rise in a new problem this is creating. Below is some current

information on how withholding milk in a growing child without providing

alternative nutrition (which of course I know you would -but just saying for

most) puts the child at risk of growing with weak brittle bones, being short

stature, and obesity. Below is an archive:

" Yet it is possible to attain optimal health without dairy foods.

Price discovered groups using no dairy foods that had complete

resistance to dental decay and chronic disease; their diets

invariably included other rich sources of animal fats, calcium and

other minerals. The soft ends of long bones were commonly chewed, and

the shafts and other bones were used in soups. "

http://www.realmilk.com/healthbenefits.html

" Rice milk and almond milk are less similar to cow's milk than soy or

hemp milk. If rice or almond is a favourite, be sure to not rely on

them for important nutrients like protein or calcium (unless

fortified). No plant milks are suitable for use as infant formula. "

http://vegetarian-issues.suite101.com/article.cfm/nondairy_milk_nutrition

" Dr. Blaylock, a neurosurgeon, with a nutrition practice who is affiliated with

the Weston Price Foundation, writes about this in his books. "

Weston Price started the campaign for " real milk " which is raw

milk.

http://www.realmilk.com/

http://www.youtube.com/watch?v=uHcyAH0rOPE & feature=related

http://www.raw-milk-facts.com/

great pro/con article

http://www.salon.com/mwt/feature/2007/01/19/raw_milk/

Even if you don't or can't use raw milk (it's not legal all over) I'd

switch to organic milk -but please don't just pull your growing

children off milk yet. Best thing to do is listen to all sides and do

the research before making a decision.

Below is an archive on how rare milk allergies actually are as well

as some of the research on the rising group of brittle boned

overweight short kids due to parents eliminating milk. Just say no.

Also as Weston Price Foundation points out -the problem may not be

milk or cow's milk -but how it's processed today:

" Approximately 2% of the pediatric

population is affected by cow's milk allergy. Moreover, the condition

tends to be outgrown by 5 years of age. In contrast to cow's milk

allergy, which occurs primarily in infancy and young childhood,

lactose intolerance (symptoms) seldom occurs prior to preadolescence. "

http://www.nationaldairycouncil.org/NationalDairyCouncil/Health/Digest/dcd77-3Pa\

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ge1.htm

Pediatric Dermatology

Volume 24 Issue 1 Page 1-6, January/February 2007

Unnecessary Milk Elimination Diets in Children with Atopic Dermatitis

Children were followed up at 1, 3, 6, and 12 months. Of the 206

patients...Four patients on the milk-free diet (8.9%), accounting for

2.2% of all patients, were found to be allergic. confirming that this

measure is being applied excessively.

http://www.blackwell-synergy.com/doi/abs/10.1111/j.1525-1470.2007.00323.x

CM allergy alone affects. 1% to 3% [3],

http://www.springerlink.com/content/m8k11mtl7x266804/

Children who avoid drinking cow milk have low dietary calcium intakes

and poor bone health1,2,3

Conclusions: In growing children, long-term avoidance of cow milk is

associated with small stature and poor bone health. This is a major

concern that warrants further study.

The high proportion of overweight and obese children in the present

study was an unexpected finding, particularly because many of the

children had been breast-fed for prolonged periods (44). Because we

did not measure energy balance in our study, we cannot say whether

the high adiposity of these children was due to excessive energy

intakes or to inadequate energy expenditure. It could be that the

milk avoiders were drinking more high-energy substitute fluids, such

as fruit juice or carbonated drinks. Short stature and obesity have

been reported in children who consume excessive amount of fruit juice

(45), although not always (46). Alternatively, the milk avoiders in

the present study may have been less physically active than the

control subjects. Low activity would have affected bone growth

adversely because intermittent weight-bearing exercise is a

critically important stimulus to osteogenesis in prepubertal children

(47–50). Another possible mechanism contributing to the high

adiposity we observed in the milk avoiders was that their high body

weights were linked to their low calcium intakes. Recent studies

suggest that low dietary calcium intakes can stimulate lipogenesis

and inhibit lipolysis simultaneously, resulting in the accumulation

of body fat (51–54).

In summary, our study of young male and female prepubertal children

with a long history of avoiding cow-milk consumption has identified

major problems in bone health (eg, small bones, low aBMD and

volumetric BMAD, and a high prevalence of bone fractures) that many

health professionals and members of the general public appear to be

unaware of. Short stature and high adiposity were other health

concerns. Ideally, a full dietary assessment of children who avoid

milk consumption seems warranted to help identify possible

nutritional deficiencies or excesses. Future studies of bone health

in larger populations of children who avoid the consumption of cow

milk are desirable to confirm our findings and to determine whether

the problems associated with this dietary pattern resolve as the

children grow (4). In the interim it seems prudent to advise parents

of all children who do not drink cow milk that they should seek

professional nutritional advice to help optimize their children's

bone health.

Key Words: Dietary calcium • bone density • milk avoidance •

children • obesity • fractures • cow milk allergy • New Zealand

http://www.ajcn.org/cgi/content/full/76/3/675

Multiple Bone Fractures in an 8-Year-Old Child with Cow's Milk

Allergy and Inappropriate Calcium Supplementation

Giovanna Montia, Valentina Libanorea, Letizia Marinaroa, o

Lalab, o Minieroa, Francesco Savinoa

aFood Allergy Service, Department of Pediatric and Adolescence

Science, and

bDivision of Pediatric Endocrinology, Regina Margherita Children's

Hospital, Turin, Italy

Abstract

The case of an 8-year-old boy with severe bone mass reduction and 4

fractures as a result of an unsupervised diet established to treat

cow's milk allergy is presented. Endocrine, genetic and orthopedic

pathologies were excluded. While vitamin D intake had always been

appropriate, his calcium intake had been inadequate for many years.

This clinical report suggests that both vitamin D and calcium

supplementation are necessary when a cow's milk protein-free diet is

prescribed, even when a hypo- or non-allergenic formula is provided.

Copyright © 2007 S. Karger AG, Basel

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Re: Dairy Allergy Question

Hi Barbara,

That's really a tough question because while many in our group may have kids

that are lactose intolerant, being allergic to the actual milk protein for an

older child is pretty rare. I am friends with a well known TV radio personality

Tim Byrd who like your daughter is allergic to the actual protein of the milk-

and he is extremely careful, asking questions at restaurants and not consuming

anything without reading labels.

But you may want to keep in mind that it's still possible that she can outgrow

this severe allergy -I found a blog that documents just that possibility!

Monday, May 17, 2010

Possible good news - accidental milk with no reactions:)

We were at the airport and I bought my kids some organic protein bars and orange

juice to help tide them over until I could find them something more substantial.

It's always harder finding allergy friendly foods when you're both in a hurry

and in a new place with tons of people. Because of that, I was thrilled when I

found these bars. One of them said, " Dairy-free " on the front and the other one

said, " Wheat free. " I grabbed both and quickly read over the back to make sure

that they both were safe (meaning " dairy-free " ). My oldest son took the " Wheat

free " one by accident, though I thought both were safe. After eating half of

it, he said, " Mom, this is too good to be dairy-free. Are you sure it doesn't

have any milk? " This is not what I wanted to hear just minutes prior to

boarding the airplane. I grabbed the wrapper, just in case, and re-read the

ingredients. What I thought said, " almond butter " actually said, " almond,

butter... " I wasn't entirely sure what to do. I knew that the doctor had given

us clearance to test baked milk, but the last time we had tried the smallest

amount, my son broke out all over in a rash that itched for weeks. I decided to

keep the Benadryl handy (why did I forget my epi-pen???) and watch him closely

on the plane, as he had only had a few bites.

Amazingly, he had NO REACTION!!!! This is my son who has been anaphylactic to

milk his entire life (he's almost 13). This is the boy who breaks out in hives

and is sent to the hospital by simply eating a roll that had real butter

accidentally brushed on top or a handful of the wrong popcorn. This is the mom

who yells out loud at a potluck dinner, " Don't use that spoon in my chili! " for

fear of cross-contamination (quieting the entire room, much to my

embarrassment...but that's another story:)) This is also the mom that cried

when he went to scout camp for fear of a leader not getting there in time if he

had a reaction (I " grilled " the EMT the night before he left.) I'm not sure how

much " butter " he actually had, however, I feel excited at the thought that just

maybe he can once again qualify for the baked milk challenge. Even more

exciting is the possibility that perhaps when he goes off to college, he won't

have to struggle quite so hard in regards to his food allergy. Of course we'll

roll with the punches, but the possibility of him outgrowing his allergy is a

beautiful thought:)

http://milkallergycompanion.blogspot.com/

(she has a website too http://milkallergycompanion.com )

I hope for your daughter's sake that this is something she can still outgrow. I

could be wrong but other than that don't think it ever will be easy as the mom

above who clearly has 2 websites for this issue, clearly is a bit of an expert

in the area, has a 13 year old that for years has history of anaphylactic when

exposed to milk protein -and even she has a " whoops " moment as she speaks of

above. Has your child at risk for anaphylactic shock as well? If so I highly

recommend some sort of medic ID bracelet if you don't already have one. You can

get a prettier medic ID bracelet like (just a quick example)

http://www.petitebaublesboutique.com

And since US scored dead last in the world for health

carehttp://www.reuters.com/article/idUSTRE65M0SU20100623 Here is some

information from Australia on milk allergies:

Cow's milk is a common cause of food allergy in infants. In Australia and New

Zealand around 2 per cent (1 in 50) babies are allergic to cow's milk and dairy

products. Although most children out grow cow's milk allergy by the age of 4

years, persistent cow's milk allergy may sometimes occur. However, ongoing

symptoms in adults are very rare.

Allergic reactions can occur within minutes or up to several days after having

cow's milk or other dairy products

If your child has milk allergy, these symptoms may occur:

1. within minutes or up to one hour after having a small amount of cow's

milk.

Symptoms may include hives (urticaria), eczema, face swelling, vomiting,

diarrhoea, noisy breathing or wheeze. Severe allergic reactions (anaphylaxis)

may cause floppiness in babies.

2. several hours after having moderate amounts of cow's milk.

Symptoms can include vomiting and diarrhoea and sometimes blotchy rashes

or worsening eczema.

3. after a day or up to several days after having normal amounts of cow's

milk.

Symptoms can include eczema, vomiting, diarrhoea or asthma.

Reliable diagnosis is important

In people with immediate (within minutes or up to 1 hour) allergic reactions to

milk, diagnosis is usually obvious. This can be confirmed by your doctor using

allergy tests (skin prick tests or blood allergen specific IgE [RAST] tests).

There is no place in the diagnosis of milk allergy for unproven tests such as

Vega, kinesiology, Alcat or allergy elimination tests.

When symptoms occur several hours or days after having milk, diagnosis of cow's

milk allergy is usually not as obvious and allergy tests are often not useful in

these cases. Confirmation of the diagnosis usually requires a referral to a

medical specialist (Allergist/Clinical Immunologist).

Treatment involves avoidance of dairy products

Treatment of cow's milk allergy involves elimination of cow's milk and its

products from the diet and substitution with an appropriate formula in babies.

However, avoiding dairy products in children is not easy. Most children allergic

to cow's milk will be allergic to goat's milk, so products made from goat's milk

are not only inadequate substitutes, but usually trigger similar symptoms. It is

therefore important to read all labels of prepared foods and avoid any food

which contains cow's or goat's milk, cheese, butter, ghee, butter milk cream,

cream fraiche, milk powder, whey, casein, caseinate and margarines which contain

milk products.

Dietary restrictions should be supervised

It is important to note that elimination and reintroduction of cow's milk and

dairy products should only be undertaken with advice from a medical specialist,

particularly in cases with severe symptoms. Elimination of cow's milk entirely

from the diet is usually difficult and needs to be done in consultation with a

specialist dietitian. If long term exclusion is required, patients require an

alternative source of calcium and protein, and advice from a dietitian should be

sought. This applies to the affected child, and to their mother if dietary

exclusion during breast feeding is required. After confirming cow's milk

allergy, your doctor will usually recommend replacing dairy products with

alternative formulae, which may include:

1. Soy protein formula

Around 50 to 80 per cent of children with cow's milk allergy can tolerate

soy based formulae. However, in children allergic to soy as well, it is not a

suitable substitute.

2. Extensively hydrolyzed formula (EHF)

This is cow's milk based formula that has been treated with enzymes to

break down most of the proteins that cause symptoms in infants who are allergic

to cow's milk (brands inlcude Alfare and Pepti-Junior). These are usually

supplements of first choice in milk allergic children. However, since some

children will still react to this formula, sometimes an amino acid based formula

is advised. Extensively hydrolyzed formula is different to partially hydrolyzed

formula and the latter is not suitable for treatment of milk allergic children.

3. Amino acid based formula

This formula is necessary in around 10 per cent of children with cow's

milk allergy (brands include Neocate, Elecare). This formula will be tolerated

by almost all children with soy or cow's milk allergies.

Some formulae are unsuitable for children with cow's milk allergy

Children allergic to cow's milk are usually allergic to a number of proteins

present in dairy products. Since similar proteins are present in other animal

milks such as goat milk and horse milk, these products can also trigger allergic

reactions, and should be avoided. So-called " A2 milk " (from specially bred cows)

is claimed to have a number of health promoting properties, but is also

unsuitable for cow's milk allergic children. Partially enzyme treated cow's milk

formula such as Nan-HA may be used to help prevent infants from developing

allergies but they are not suitable to be used as treatment for cow's milk

allergic children.

There may be other food allergies, as well as milk

Cow's milk allergy may occur together with other food allergies such as egg,

soy, peanut or other nuts. This is referred to as multiple food allergy.

Confirmation of this usually requires a referral to a medical specialist

(Allergist / Clinical Immunologist).

Cow's milk (dairy) allergy usually resolves

Around 80 per cent of babies will grow out of their allergy by the age of 4

years. Assessment of this likelihood and reintroduction of dairy products should

be done in association with a medical specialist. Depending on the history and

severity of the original reactions, this may require further allergy testing and

deliberate food challenge, which is usually performed in a hospital setting.

Not all reactions to milk are due to allergy

Lactose intolerance is caused by the lack of the enzyme lactase, which helps to

digest the milk sugar lactose. The symptoms are diarrhoea, vomiting, stomach

pain and gas, which are similar to some of the symptoms of milk allergy. This

condition is uncomfortable but not dangerous, and does not cause rashes or

anaphylaxis. Small amounts of cow's milk are usually tolerated, and yogurts and

hard cheeses are usually tolerated better than milk, as they contain less or

easier to digest lactose than cow's milk. Skin or blood allergy tests are

negative, but if necessary the diagnosis can be confirmed by a breath hydrogen

test. Treatment may involve reducing or avoiding consumption of dairy products

containing lactose and substituting these with a lactose free formula or milk.

Milk and mucus

Respiratory allergy (such as asthma and allergic rhinitis/hay fever) is normally

triggered by what we inhale, rather than what we eat. Some people complain that

they have a short-lived sensation of thick mucus in the throat after drinking

milk. This feeling poses no risk and is not an allergic reaction. Indeed in very

young infants, runny noses are most commonly due to infection. If you wish to

avoid it, however, you should still ensure a nutritionally adequate intake of

calcium by selecting suitable substitutes. Consult your doctor or a dietitian if

unsure.

Further information

1. Allergy prevention in children www.allergy.org.au/content/view/182/127/

2. Milk, mucus and cough www.allergy.org.au/content/view/142/144/

© ASCIA 2010

The Australasian Society of Clinical Immunology and Allergy (ASCIA) is the peak

professional body of Clinical Immunologists and Allergists in Australia and New

Zealand.

Website: www.allergy.org.au

Email: education@... This e-mail address is being protected from spam

bots, you need JavaScript enabled to view it

Postal address: PO Box 450 Balgowlah NSW Australia 2093

Disclaimer

This document has been developed and peer reviewed by ASCIA members and is based

on expert opinion and the available published literature at the time of review.

Information contained in this document is not intended to replace medical advice

and any questions regarding a medical diagnosis or treatment should be directed

to a medical practitioner. The development of this document is not funded by any

commercial sources and is not influenced by commercial organisations.

Content last updated January 2010

http://www.allergy.org.au/aer/infobulletins/milk_allergy.htm

I'm sure as you are working with doctors you are making sure she is getting all

the nutrients needed that would have come from the milk protein as the casein is

80 percent of the protein and the whey is 20 percent (containing all the

essential amino acids which we now are aware are so critical across the board

for our children) I have shared numerous times from recent research, if milk

elimination is not done correctly it's documented it causes weak brittle bones,

short stature, and obesity. Pretty much all experts agree milk allergies are

over or self diagnosed and children are being pulled off milk to try to fix a

special needs issue.

But as in your daughter's case, while a milk protein allergy may be rare...it's

serious. I'd start with the links above and see if you can find support through

http://milkallergycompanion.com

Best to you and your daughter!

Re: Gluten and Dairy problems showing apraxic symptoms???

But Lois keep in mind some of what I'm saying is still the kid in me that grew

up on the diet. Of course there are more options today and goodness knows a

child today on a special diet isn't going to be standing out like I did back

then. But I'm just saying if you don't need it which the original poster didn't

know -she's just being encouraged to try it -kind of like the new McRib sandwich

or something. I'm just saying if you want to try things there are other first

options and want to point out the side from the views of a child who grew up on

this diet and hated it. Yes I am thankful for it -but would I be if I knew I

didn't need it? NO.

(insert smile here) And... isn't below your update once on nutriiveda from

about a week ago???

I mean my point is if we don't have to go this route...if we are just going to

try things...if not tested to need GFCF- why not just try nutriiveda? I mean 2

and a half years GFCF (which I know your children needed) vs just a few months

on nutriiveda -even if it wasn't so easy and cool to drink a protein shake a

day- clearly for results we can see the " winner "

" Lois Kalmick Trip's Mom " <lkalmick@...>

lkalmick@...

Hi Everyone,

I am now ready to report on my daughter's progress with Nutriiveda. My

darling E. has severe apraxia (all 3 forms) with SPD and hypotonia. At three

she was " Profound " with no ability to imitate, speak, chew etc. (the

diagnoses we received were frightening). We have been very aggressive in

every way possible with her treatment over the years -- thousands of hours

of behavioral, OT, speech (with an Apraxia specialist - 4 hours a week). She

is in a Gen Ed Kinder class with a full time behaviorist. Full DAN!

protocol -- more than 60 Hyperbaric treatments, GF/CF/No Soy for two years.

She has improved significantly over the years and is now a happy girl most

of the time -- but her communication delays and related social awkwardness

continue to vex her and us.

As a side note, finding CHERUB and reading " The Late Talker " was a Godsend.

For the first time I knew exactly what was going on with my beautiful

daughter. I've literally bought more than 20 copies to give to every doctor,

therapist and teacher that works with her.

Last January we started on 2 scoops a day of Nutriiveda. For the first few

weeks it was a bit hit and miss getting the dosage in. Then, in early

February, she got an ear infection (she is prone to ear problems) and was on

and off antibiotics for a few weeks. Finally, in early March, we got a

system going to get the 2 scoops a day in her, which she has had for over 6

weeks now.

The first change I noted was a couple of weeks in, E. was open to trying new

foods. She wanted to eat strawberries. If I cooked them in egg, she'd eat

cauliflower and broccoli. If you knew her food history you'd know how HUGE

this is -- she never ate anything solid until 4 years old, and then just

very easily to chew stuff like pasta -- nothing with any texture to speak of

(and yes, total terrible history of GI issues, especially constipation).

Last night she ate regular cauliflower. Her entire diet has improved

wonderfully -- she is nearly eating everything her triplet (she's a triplet

and identical twin -- 2 months preemie, born at 3 pounds) sisters eat now.

And she's pooped nearly every day for a week! Woo hoo!

Next was the drawing -- she's had so much trouble with her motor systems

that she never drew, never did playdough -- she started drawing like mad.

Going through tons of white board markers and loads of paper. Animals,

people, lessons from school [me] " what's that? " , [E.], " the wind. "

Okay, but about speech. My SLP is BLOWN AWAY, as are we. HUGE HUGE gains

over the last month. Like nothing we've ever seen. She is making spontaneous

comments. We can understand virtually everything she says (from less than

half a couple of months ago). E. is trying to tell me what happened at

school. Most recently, with a little prodding on my part, we sat for nearly

two hours while I asked her questions about things she liked and she asked

me back the questions. Her eye contact was laser beam good the whole time.

It's important to note that this conversation happened AFTER we spent time

in the pool -- so her sensory stuff was better under control and she could

access her language.

" I'll drink it later. " (avoiding fish oil juice). " She do not understand "

(about a rather clueless nanny). " The Little Mermaid " , " The Cow Book " ,

" Chicken Nuggets " , " the computer " , (etc.) answers to " favorites " questions

-- she also mentioned all of them in the middle of the night last night when

she got up to go to the bathroom -- she wanted to start the discussion about

favorites again. (Funny how E. has always been partial to Ariel too --

sleeps with that doll every night for past 4 years).

Honestly, E. still has a long road ahead -- when you go 6.5 years without

being able to communicate with the world, you have a lot of catching up to

do. But, we are more hopeful than ever that she will make it all the way.

E. is really smart -- though most people look at her and don't think so.

She memorizes everything (she knows every state capitol) I think in part

because she can access memorized information easier.

I really recommend the Nutriiveda. I am having a blast getting to " know " my

daughter better. There's something in this stuff that's working. I'll post

again later. Thanks!

~~~~~~~~~~~~~~~

WAYS TO INCLUDE CALCIUM IN THE DIET

1. Encourage your child to drink milk

-You can make milk the only mealtime beverage except for water.

-Do not insist, " You have to drink your milk " , or use bribes. These tactics give

children a clear message that they

should not like milk.

-Most children go through a stage when they do not drink milk. For many it is

when they first are weaned from the

nipple. Do not panic and put your child back on the bottle. Just wait. She will

start to drink milk again.

-Remember, when children are pressured to eat or drink, they usually react by

eating less.

2. Use other calcium-rich foods.

-See other side for examples

3. Use calcium supplement for children who do not get enough dietary calcium

You can give calcium supplements to your child, but it may be easier to

substitute foods high in calcium. There are different types of

calcium supplements. The body absorbs some better than others. Supplements may

be tablets, wafers, or chewables. Supplements in the

form of calcium lactate or calcium carbonate are reasonably well absorbed. Avoid

calcium phosphate. It may interfere with iron absorption.

Also, avoid bonemeal and dolomite, they might contain lead and other trace

elements that are not good for your child.

The dosage varies. If you need to give your child several tablets, spread them

throughout the day so your child's body can absorb the

calcium better.

Calcium supplements come with or without vitamin D. Which one you should use

depends on whether your child is getting enough vitamin

D from other sources. (The recommended daily allowance for vitamin D is 400 IU

per day.)

Calcium-supplemented orange juice gives a lot of calcium. However, it does not

give vitamin D, nor does it give the protein that milk does.

Adapted from Ellyn Satter, R.D., author of Child of Mine: Feeding with Love and

Good Sense, Bull Publishing, Palo Alto, CA.

http://www.childrens-clinic.com/PDFs/CalciumContainingFoods.pdf

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