Dawn Falley's Update on (14) and Lily (10)

[Guest guest]

Hi, Yes it was me on the phone, I was very impressed with those words he

was able to spell!

Just wanted everyone to know that my son is going on 4 months now off

his seizure meds. Thank you NV!!

Also, the other day my daughter Lilymarie was coloring and I asked her whats her

favorite color and she just came out with " burple " Totally new word for her!

Also tonight she said " Tanta " , we were watching Polar Express and also something

happened to the DVD and the picture stopped so I said " Oh its stuck " and she

said " It Stu " She's on a little bit of a roll this week.Can't wait to hear what

else she has to say! Have a GREAT HOLIDAY SEASON TO ALL!

Dawn Falley 631-447-0615

>

> Just wanted to share a quick update on Tanner who continues to amaze us.

One..and maybe this is something some wouldn't think is a big deal -but Tanner

now enjoys watching Jon Steward and Colbert- Dakota and I used to watch

the shows and when we laughed Tanner used to say " it's not even funny " The

humor used to be over his head. The conversations we have now- it's just

amazing. He looks up current news himself and discusses it with me.

>

> So this one I know all can relate to. Today I was on the phone with one of

the parents from this group (Dawn was it you or was it you Ginny??? and BTW both

of these mom have amazing updates too!!) and Tanner gets into the car and hands

me his spelling test with a perfect score. But this was the thing -I never

studied with him -had no idea he was going to have a test...and some of these

words I would have spelled wrong!

>

> bask

> articulate

> anguish

> aloof

> abashed

> defect

> finesse

> flaunt

> forthright

> genial

> instill

> ostracize

> premonition

> pseudonym

> purge

> rehabilitate

> repercussion

> resolute

> retentive

> scapegoat

>

> ha -I spelled two of them wrong just typing them here!

>

> Tanner was always incredible at spelling -but I used to have to study with

him. He now does all his work himself, and pretty much it's been like that

since he's been on NV which is now just over one year...YAY NV!!! BTW the new

site is just about done -please add your input -we love constructive criticism!

http://pursuitofresearch.com

>

> =====

>

[Guest guest]

Hi,

I just want to add information I found out with my apraxia children. I

switched from chocolate milk to BOOST chocolate milk, more vitamins and

protein and I switch from fruit punch to drinking TANG more vitamin C.....

Hope this helpsIn a message dated 3/29/2011 3:09:58 P.M. Eastern Daylight Time,

dawn.falley4@... writes:

Hi All,

I haven't been on here for a bit but wanted to update on & Lily's

neuro appt. last week. Both my children are on NV. Both kids are

diagnosed with PDD NOS, apraxia, seizure disorders, and global delays.

also has Agenesis Of Corpus Callosum (Congenital Disorder)

My son is now off his seizure meds since Sept. 2010 & he is doing great &

now only has to be seen yearly by the neuro. Also his OT has noted an

increase in his hand strength and also he actually jumped in place getting both

feet off the ground about 4 inches!! This is a huge accomplishment for him

since he has been trying for years to do this!! He has been on 4 scoops of

NV since Feb. 2010. He's had tremendous growth in weight and height which

he needed both. He's grown at least 3 inches. I'm only 5 foot 1 but he's

now 5 foot 2 and grew taller than me! He's 85 pounds now and last winter

he was 72 and 4 foot 9, so this is the most growth he's ever had in this

time period. His abilities have been tested to increase since being on NV in

cognitive and communication.

My daughter is also doing great, she will be starting to lower her seizure

meds in August. Teachers have noted an increase in cognitive skills that

is continuing since being on NV since Feb. 2010. She has been tested as

well for the cognitive and communication and also has had increases in both

since being on NV. She has gained 7 pounds and also grew 3 inches. She is

now 4 foot 6 and weighs 63 pounds.

For both my children as they are older progress prior to NV was painfully

slow. Their growth was low percentile for both. So outside of the

seizures there are so many areas of improvement that it's hard to put them all

here. My husband and I are thrilled and I pray they never stop making NV. I

don't know what we would do!!

I wanted to tell you about a child in the parent group that I am in that

had medication resistant seizures prior to NV, and was unable to walk prior

to NV. When she started on NV about 5 months ago she started walking

within ONE week at 4 years old! While before NV she was medication resistant

and had seizures often, once on NV she immediately went for 5 weeks without a

seizure, had 1 small seizure, and has since been seizure free for 14 weeks

straight which is amazing!!

My children's neurologist in NY is now very impressed as so far NV seems

to be working for all of us that have tried it in my local support group.

There are 6 of us and so far 3 people using it and one parent after checking

NV out with 3 medical doctors including her child's endocrinologist where

all approved it she's started it too last night.

My neurologist is also so impressed that in addition to progress in all

the other areas my children's growth is now getting closer to the line of

normal. Again my children are 10 and 14, so all of this is so exciting. I

don't know if I should share this but said a new word last night. I

was in the kitchen and said " oh that sucks " and I don't know why I said it-

but all of a sudden in the other room I hear my 14 year old say as clear

as day " sucks " I have to watch what I say now!!

My husband and I struggle to afford NV as we are not in the best situation

but I have found that our food bills including for any snack foods has

been lowered but I honestly don't know how I even afford to keep both my

children on this at 4 scoops a day -but we make sure it's paid for every single

month. We wish we could even order more for us. Also the NV company has a

rewards program for customers so we get money back to pay for products.

If anyone would like to speak with me about my experience with my children

who had seizures for years & their progress with NV, please feel free to

contact me anytime.

Dawn Falley

631-447-0615

daffy4 @optonline.net (no space)

------------------------------------

[Guest guest]

FANTASTIC !!!!! Thanks for sharing and congrats ! I am so happy for you and your

family.

..

Demi

From: Dawn Falley <dawn.falley4@...>

Subject: [ ] Dawn Falley's Update on (14) and Lily

(10)

Date: Tuesday, March 29, 2011, 1:58 PM

Hi All,

I haven't been on here for a bit but wanted to update on & Lily's neuro

appt. last week. Both my children are on NV. Both kids are diagnosed with PDD

NOS, apraxia, seizure disorders, and global delays. also has Agenesis Of

Corpus Callosum (Congenital Disorder)

My son is now off his seizure meds since Sept. 2010 & he is doing great & now

only has to be seen yearly by the neuro. Also his OT has noted an increase in

his hand strength and also he actually jumped in place getting both feet off the

ground about 4 inches!! This is a huge accomplishment for him since he has been

trying for years to do this!! He has been on 4 scoops of NV since Feb. 2010.

He's had tremendous growth in weight and height which he needed both. He's grown

at least 3 inches. I'm only 5 foot 1 but he's now 5 foot 2 and grew taller than

me! He's 85 pounds now and last winter he was 72 and 4 foot 9, so this is the

most growth he's ever had in this time period. His abilities have been tested to

increase since being on NV in cognitive and communication.

My daughter is also doing great, she will be starting to lower her seizure meds

in August. Teachers have noted an increase in cognitive skills that is

continuing since being on NV since Feb. 2010. She has been tested as well for

the cognitive and communication and also has had increases in both since being

on NV. She has gained 7 pounds and also grew 3 inches. She is now 4 foot 6 and

weighs 63 pounds.

For both my children as they are older progress prior to NV was painfully slow.

Their growth was low percentile for both. So outside of the seizures there are

so many areas of improvement that it's hard to put them all here. My husband and

I are thrilled and I pray they never stop making NV. I don't know what we would

do!!

I wanted to tell you about a child in the parent group that I am in that had

medication resistant seizures prior to NV, and was unable to walk prior to NV.

When she started on NV about 5 months ago she started walking within ONE week at

4 years old! While before NV she was medication resistant and had seizures

often, once on NV she immediately went for 5 weeks without a seizure, had 1

small seizure, and has since been seizure free for 14 weeks straight which is

amazing!!

My children's neurologist in NY is now very impressed as so far NV seems to be

working for all of us that have tried it in my local support group. There are 6

of us and so far 3 people using it and one parent after checking NV out with 3

medical doctors including her child's endocrinologist where all approved it

she's started it too last night.

My neurologist is also so impressed that in addition to progress in all the

other areas my children's growth is now getting closer to the line of normal.

Again my children are 10 and 14, so all of this is so exciting. I don't know if

I should share this but said a new word last night. I was in the kitchen

and said " oh that sucks " and I don't know why I said it- but all of a sudden in

the other room I hear my 14 year old say as clear as day " sucks " I have to watch

what I say now!!

My husband and I struggle to afford NV as we are not in the best situation but I

have found that our food bills including for any snack foods has been lowered

but I honestly don't know how I even afford to keep both my children on this at

4 scoops a day -but we make sure it's paid for every single month. We wish we

could even order more for us. Also the NV company has a rewards program for

customers so we get money back to pay for products.

If anyone would like to speak with me about my experience with my children who

had seizures for years & their progress with NV, please feel free to contact me

anytime.

Dawn Falley

631-447-0615

daffy4 @optonline.net (no space)

[Guest guest]

Please let me know Dawn when you start the online support group. My husband

works with someone who's son has seizures and my husband who was a bigger

skeptic than me about NV (and that's hard to be LOL!) is so amazed how my 6 year

old just started talking on this from day one which happened to be Christmas!

And now in kindergarten he's reading books and I'm even wondering if his

abilities are beyond even what is expected of him as his reading level now is.

Also Dawn congratulations, I always love reading your updates and you truly are

double blessed! Kate

>

> Dawn's updates really are so amazing to follow because when she first told her

neurologist about it -he barely listened to her after approving it -just wrote

it down on her children's files. And here it is a year later and both of her

children have made so much progress in so many areas and now this same

neurologist is asking for more information about NV as he's very impressed. And

finally what appears to be an answer through food- so perhaps expanding the

limited choices of drugs or surgery..some chocolate or vanilla NV, which is just

food!! (for those that want to check ingredients

http://pursuitofresearch.org/products/nutriiveda/nutriiveda-ingredients/ )

>

> I'm highly encouraging Dawn to start an online support group for those with

seizures to share with others. She's in NY and the fact that NV is having a 100

percent success rate so far with all the children on it -and not just little

ones but older children- teens, including those that were medication resistant,

is just remarkable. I know I keep saying this but clearly the answer has to lie

in the essential nutrients -because it's not just what we eat but what we

digest. Somehow NV must be getting one or more nutrients that were previously

missing to the body where it's needed. If anyone reading this has a child prone

to seizures -please contact Dawn Falley - all her info is below. Dawn's

original updates about her 14 year old son and her 10 year old daughter

Lily are here

http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-shift-\

in-treatment-of-seizures

>

> Dawn I again am SO happy for you and your family!!! Hugs to both your kids!!!

>

> =====

>