Guest guest Posted December 9, 2010 Report Share Posted December 9, 2010 I don't post often here, but occasionally. Today I have a big favor to ask. My son is 6 3/4 and has apraxia from a microdeletion syndrome, Magenis Syndrome. (www.PRISMS.org) There are only about 800 known cases world-wide, so research into what helps these kids is not much. A local newspaper is offering a $10,000 holiday gift to whatever charity organization gets the most votes, and the SMS Research Alliance could be a finalist, with your help might even win. Two moms formed the Research Foundation this year (http://www.strengthforsydney.org/smith-magenis-research-foundat/), and all money goes to research. All you have to do is go to this link to register: http://www.thedailyfairfield.com/user/register and this link to vote, once you are logged in. (http://www.thedailyfairfield.com/SantasWishList). They require only your name, zip code and email, and you can vote once a day. In fact they encourage you to vote every day. It's two stage voting and we will hopefully make the cutoff to be in the top 10 organizations by Dec 11. Any votes you can give us would be wonderful. Thanks for 'listening' and thanks for your support. And I wish everyone a happy, healthy holiday season. Gretchen, mother of 6 3/4, apraxia, hypotonia, sensory dysfunction, develomental delay, sleep disorder due to SMS Quote Link to comment Share on other sites More sharing options...
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