Re: Anyone from St. Louis area? Questions..

[Guest guest]

Hi,

   We live about 50 miles west of St. Louis and can share our experience. 

First Steps is the states early intervention program, providing services for

birth to 3.  I found it very hard to qualify for speech services as they

evaluate your child in all areas.  So if no other issues than speech, child's

speech must be functioning at less than half their age to qualify.  (i.e. with

my son at 16mo.  he had no motor, physical issues, but was not making any

sounds.  Did not qualify, as they compared to 8mo. old)  There is a free

clinic for children with speech and language disorders called the

ish Rite Clinic. They will provide services for ages 2-6, and evaluation

is speech based only.  We just started with them last month, but am encouraged

with staff so far.  Most therapy providers will tell you they will  not submit

to insurance, but can provide statements for you to try to obtain

reimbursment.   (this was my experience with

both private and hospital based therapy programs).  Not aware of any preschool

that specializes in treating speech, but in our school district, the public

school will be responsible for providing services at age 3, and if enrolled in

preschool full time, they will visit that preschool.  Have used a couple

private SLP's while waiting for son to qualify with clinic, can pass

along names if you would like.  Feel free to email me.

Angel

From: Tina Wawzysko <t_wawzysko@...>

Subject: [ ] Anyone from St. Louis area? Questions..

Date: Monday, March 22, 2010, 10:18 PM

 

Hi, I was wanting to see if there is anyone on here from the St. Louis area? It

is possible that we might be moving there (we currently live in Kansas). I am

just wanting to see how things run there in regards to our kids who need speech

therapy. I have two boys, one with apraxia and is in preschool thru the school

district here and one with suspected apraxia who is 2 1/2. If anyone can help

me out on these questions I have, I would really appreciate it!

 

1.  Is there a state early intervention program for kids under the age of 3?

2.  Is there a preschool program for kids who qualify? Have your kids with

Apraxia or speech delays qualified for these programs? And what is your

experience with school speech therapists? How often is the preschool and for

hour many hours a day? If my son is in school thru the school district here,

would he just be transfered into one there or would he have to get evaulated

again?

3.  Are there other speech related preschools?

4.  Where are the best places to go for speech therapy and any SLP's you would

recommend? What is the typical cost for a therapy session and is financial aid

typically available?

5.  Is there any state laws that help in regards to insurance coverage for

speech therapy?

 

I would really appreciate any helpful information that you have! I am not

wanting to move and change everything that is working so well right now but we

may have too.

Hope to hear from someone soon and thanks so much!!

Tina

 

From: sandy lehmann <mommie2chris@ .ca>

Subject: [childrensapraxiane t] Re: so frustrated! Nutriveda... need help!

@groups. com

Date: Monday, March 22, 2010, 1:01 PM

 

also frustrated here. but am making some progress in getting NV into my son.  I

have now, very very slowly been swapping hot chocolate mix for the NV.  i

started really slow, only adding a small amount in hot(warm)chocolate.  For the

last 2 days i've been putting only 1 tsp hot choc. mix in the cup with hot

water, add lots of milk so it's warm, then added the nutriveda.  I was having

problems because it didn't mix very well. Well, yesterday i went to Ikea and

they sell these mini drink mixers.  they are probably for mixing drinks with

alcohol, but works amazing with the nutriveda and it only cost 9 dollars!  He

seems fine with the drink now, comparing that to not drinking it at all

before.  I am still having trouble getting him to drink water during the day. 

My son seems to be part camel, so doesn't like to drink anything. That's where

my frustration is coming in now.  Tried talking to him about it, tried

rewarding him for drinking

water......nothing.  I haven't been noticing any difference from just doing the

fish oils to doing the NV.  I'm getting depressed about it.  Teachers have

noticed nothing either (i never told them about it)

So, long story. just start with regular chocolate milk with a teaspoon or less

and SLOWLY build from there.

hth

sandy

[Guest guest]

Hi Tina!

I can't answer all the questions as I never lived there but do have some support

sources to share that probably can, Also since so many links below -the group

you'll also want to join (not sure how active it is) would be

speakgroup :

SPEAK, St. Louis Parent Extension for Apraxic Kids

Contact: Rhonda Banford

St. Louis Metro Area (MO and IL)

E-Mail: Rhonda Banford, M.A.T., SLP-CCC , Barbara Varner or Tricia Morin

Meets: visit online group for meeting info

Web Site: SPEAK: Information about the St. Louis Metropolitan area

speech-language disorders support group and local area resources.

Online Group Discussion: Speak at

speakgroup

Support Contacts*:

Contact: Pam

Platte City, Missouri

E-Mail: pjent1@...

SPEAK (St. Louis Parent Extension for Apraxic Kids) is a support group for

families located in the St. Louis Metro area who are dealing with

speech-language disorders.

Contact:Rhonda Banford, M.A.T., SLP-CCC , Barbara Varner or Tricia Morin

Meeting Times: to be announced at online discussion group

Online Discussion Group: SPEAK at

SPEAK Area Resource List for Illinois and Missouri:

Below is a compilation of professionals and resources that parents from the

SPEAK group found to be helpful for their child.

Professionals | Sources for Funding | Sources for Information

PROFESSIONALS:

Speech Therapy:

*

Banford, Rhonda J., M.A.T., CCC-SLP

2207 Stoneridge Terrace Court, Chesterfield, MO 63017

(636) 532-5350

Email: rjb.slp@...

Website: www.gotospeech.com

Experienced in working with children who have Childhood Apraxia of Speech,

expressive language disorders, or articulation/phonology concerns. Summer camp

program available for unintelligible preschoolers.

*

Center for Hearing & Speech

9526 Manchester Road, St. Louis, MO 63119

(314) 968-4710

Email: slhs@...

Contact person: Rita Tintera

* Fitzpatrick, , M.A., CCC-SLP

Prodigy Rehab, L.L.C.

Office: (636) 685-6891

Fax: (636) 685-6892

Email: prodigyrehabllc@...

Specializes in Apraxia.

Training: Kaufman approach, Sara Rosenfeld-'s " Talk Tools " , Picture

Exchange Communication System (PECS), PROMPT

Company has experienced occupational and speech therapists

* Henkhaus, Jen M.A., CCC-SLP

City Speech, Inc.

4144 Lindell Blvd., Suite 207, Saint Louis, MO 63108

Office (314) 704-5727

Fax (314) 289-7545

Cell (314) 609-0949

Email: Jen@...

http://www.cityspeech.com

* Mee, Beth, M.S., CCC-SLP

Cardinal Glennon Children's Hospital

(314) 577-5669

http://www.cardinalglennon.com/Pages/default.aspx

* Moog Center for Deaf Education

12300 S. Forty Drive, St. Louis, MO 63131

(314) 692-7172

This is both an Oral School for the deaf and an education center that

teaches " teachers " how to work and teach oral communication to deaf kids. They

have local, national, and international students attend the school and the

teacher training.

http://www.moogcenter.org/

* Pankey, Bernadette, M.S., CCC-SLP

(314) 729-0167

* ish Rite Clinic for Childhood Language Disorders of STL, Inc.

3633 Lindell Blvd, St Louis, MO 63108

(800) 358-5656

Services children under the age of 6 years old who are Missouri residents.

Evaluation and therapy are FREE!

http://www.srclinic.org

* Shriners Hospital for Children

Neurologists and speech therapists on staff and they are FREE

http://www.shrinershq.org

* s, , M.S., CCC-SLP

(618) 580-3561

* St Louis University Speech and Hearing Clinic

(314) 977-3365

Hoffman, M.A., CCC-SLP runs a summer camp (info below)

Marty Brennan, M.A., CCC-SLP works on literacy-based language disorders in

terms of specialties for school-aged children.

http://www.slu.edu/x12349.xml

Occupational Therapy:

* Eckels, Barbara, OTR/L, Certified in Sensory Integration

St 's Hospital, Belleville, IL

(618) 234-2120 x1235

http://www.steliz.org

* Roth, , M.S., OTR/C

Pediatric Therapeutic Licensed Consultants (PEDS TLC)

156 Gore Ave, St. Louis, MO 63119

(314) 962-3916

Office in West County, west of I270 & Manchester,

2228 Mason Lane

(314)-374-7086

Neurologists:

* Dr Altman, MD Neurologist

St 's Hospital

(314) 569-6515

* Dr Deuel, Ruthmaryl, MD - Neurologist.

St Louis University Hospital

(314) 577-6082

Coined the term " epileptiform aphasia "

* Dr Kwon, , MD - Neurologist

* Dr Mantovanni, MD Neurologist

Developmental Pediatricians:

* Dr Ultmann, , MD - Developmental Pediatrician

Knight of Columbus Developmental Center

Cardinal Glennon Children's Hospital

1465 South Grand Blvd, Saint Louis, MO 63104

(314) 577-5609

Organizations:

* The Belle Center

(314) 962-1037

An Inclusive Approach to Education Supporting Children with

Disablilites and their Families http://www.bellecenter.com

* Touchpoint for Autism

St. Louis Offices: 1101 Olivette Executive Pkwy.St. Louis, MO 63132

314.432.6200 314.385.5373 info@...

For information on being accepted to one of TouchPoint’s services:

admissions@... http://www.touchpointautism.org

Diagnosis and treatment for Pervasive Developmental Disorders

* St Louis Regional Center for the Developmentally Disabled

211 N. Lindberg Blvd.

Creve Coeur, MO 63141

(314) 340-6500, (314) 877-0000

State agency under Dept. of Mental Health. Assists individuals to

obtain services in evaluation-diagnosis-counseling and vocational. First step

program.

SOURCES FOR FUNDING:

* Special Care Needs Bureau

(314) 877-2850

Pays for part of therapy based on income

* Missouri Dept of Mental Health, Division of Mental Retardation and

Developmental Disabilities

PO Box 687, Jefferson City, MO 65102.

* St Louis Variety Club

(314) 453-0453

Covers cost of communication boards

* DSCC (Department of Specialized Care for Children)

(618) 583-2220 http://www.uic.edu/hsc/dscc

Case management and funding for Illinois residents

* Missouri Assistive Technology for Kids

(816) 737-5193 or (816) 647-8557 ask for Marty

Pediatric therapy department: (314) 895-6167 X- 25 ask for Sandy

provides testing to see what sort of assistive devices would best help

your child

They also provide some funding.

* Easter Seals

(618) 462-7325

http://www.easterseals.com

* Delta Gamma

(314) 776-1300

* Extended Care Health Option (formerly PFPWD)

(for military members)

(888) 588-6302, Option 1 for case manager

http://www.tricare.mil/tricaresmart

* KidCare, Health Insurance for Illinois Children

800-323-GROW http://www.allkids.com

* United Healthcare Children's Foundation

http://www.uhccf.org/

* Cover The Uninsured http://covertheuninsured.org/the_issue

=====

[Guest guest]

Hi - I am not from St. Louis. I live in Southern IL, but my son is a

patient of Dr. Twymann. She is a dev. ped at Cardinal Glennon in St.

Louis. She is an amazing doctor and her staff is great. The SLP she

works with is always available by phone to answer any questions. She

does have an 8 month waiting list and you will have to have a referral

to see her. We drive almost 3 hours one way to see her.

We saw another doctor at St. Louis Children's Hospital first and she

misdiagnosed my son with autism. Her name is Dr. Garriga. I have met

other parents that have not been happy with her either.

Thought that might help. Sorry I don't have any answers for the rest of

your questions.

Gillian

Tina Wawzysko wrote:

>

>

> Hi, I was wanting to see if there is anyone on here from the St. Louis

> area? It is possible that we might be moving there (we currently live

> in Kansas). I am just wanting to see how things run there in regards

> to our kids who need speech therapy. I have two boys, one with apraxia

> and is in preschool thru the school district here and one with

> suspected apraxia who is 2 1/2. If anyone can help me out on these

> questions I have, I would really appreciate it!

>

> 1. Is there a state early intervention program for kids under the age

> of 3?

> 2. Is there a preschool program for kids who qualify? Have your kids

> with Apraxia or speech delays qualified for these programs? And what

> is your experience with school speech therapists? How often is the

> preschool and for hour many hours a day? If my son is in school thru

> the school district here, would he just be transfered into one there

> or would he have to get evaulated again?

> 3. Are there other speech related preschools?

> 4. Where are the best places to go for speech therapy and any SLP's

> you would recommend? What is the typical cost for a therapy session

> and is financial aid typically available?

> 5. Is there any state laws that help in regards to insurance coverage

> for speech therapy?

>

> I would really appreciate any helpful information that you have! I am

> not wanting to move and change everything that is working so well

> right now but we may have too.

> Hope to hear from someone soon and thanks so much!!

> Tina

>

>

> From: sandy lehmann <mommie2chris@...

> <mailto:mommie2chris%40.ca>>

> Subject: [ ] Re: so frustrated! Nutriveda... need help!

>

> <mailto: %40>

> Date: Monday, March 22, 2010, 1:01 PM

>

>

>

> also frustrated here. but am making some progress in getting NV into

> my son. I have now, very very slowly been swapping hot chocolate mix

> for the NV. i started really slow, only adding a small amount in

> hot(warm)chocolate. For the last 2 days i've been putting only 1 tsp

> hot choc. mix in the cup with hot water, add lots of milk so it's

> warm, then added the nutriveda. I was having problems because it

> didn't mix very well. Well, yesterday i went to Ikea and they sell

> these mini drink mixers. they are probably for mixing drinks with

> alcohol, but works amazing with the nutriveda and it only cost 9

> dollars! He seems fine with the drink now, comparing that to not

> drinking it at all before. I am still having trouble getting him to

> drink water during the day. My son seems to be part camel, so doesn't

> like to drink anything. That's where my frustration is coming in now.

> Tried talking to him about it, tried rewarding him for drinking

> water......nothing. I haven't been noticing any difference from just

> doing the fish oils to doing the NV. I'm getting depressed about it.

> Teachers have noticed nothing either (i never told them about it)

>

> So, long story. just start with regular chocolate milk with a teaspoon

> or less and SLOWLY build from there.

> hth

> sandy

>

>

[Guest guest]

Thanks so much for the wonderful resources!!! This helps so much!!!

From: kiddietalk <kiddietalk@...>

Subject: [ ] Re: Anyone from St. Louis area? Questions..

Date: Monday, March 22, 2010, 7:56 PM

 

Hi Tina!

I can't answer all the questions as I never lived there but do have some support

sources to share that probably can, Also since so many links below -the group

you'll also want to join (not sure how active it is) would be http://health.

groups.. com/group/ speakgroup :

SPEAK, St. Louis Parent Extension for Apraxic Kids

Contact: Rhonda Banford

St. Louis Metro Area (MO and IL)

E-Mail: Rhonda Banford, M.A.T., SLP-CCC , Barbara Varner or Tricia Morin

Meets: visit online group for meeting info

Web Site: SPEAK: Information about the St. Louis Metropolitan area

speech-language disorders support group and local area resources.

Online Group Discussion: Speak at http://health. groups..

com/group/ speakgroup

Support Contacts*:

Contact: Pam

Platte City, Missouri

E-Mail: pjent1@.... com

SPEAK (St. Louis Parent Extension for Apraxic Kids) is a support group for

families located in the St. Louis Metro area who are dealing with

speech-language disorders.

Contact:Rhonda Banford, M.A.T., SLP-CCC , Barbara Varner or Tricia Morin

Meeting Times: to be announced at online discussion group

Online Discussion Group: SPEAK at

SPEAK Area Resource List for Illinois and Missouri:

Below is a compilation of professionals and resources that parents from the

SPEAK group found to be helpful for their child.

Professionals | Sources for Funding | Sources for Information

PROFESSIONALS:

Speech Therapy:

*

Banford, Rhonda J., M.A.T., CCC-SLP

2207 Stoneridge Terrace Court, Chesterfield, MO 63017

(636) 532-5350

Email: rjb.slpcharter (DOT) net

Website: www.gotospeech. com

Experienced in working with children who have Childhood Apraxia of Speech,

expressive language disorders, or articulation/ phonology concerns. Summer camp

program available for unintelligible preschoolers.

*

Center for Hearing & Speech

9526 Manchester Road, St. Louis, MO 63119

(314) 968-4710

Email: slhsmindspring (DOT) com

Contact person: Rita Tintera

* Fitzpatrick, , M.A., CCC-SLP

Prodigy Rehab, L.L.C.

Office: (636) 685-6891

Fax: (636) 685-6892

Email: prodigyrehabllc

Specializes in Apraxia.

Training: Kaufman approach, Sara Rosenfeld-' s " Talk Tools " , Picture

Exchange Communication System (PECS), PROMPT

Company has experienced occupational and speech therapists

* Henkhaus, Jen M.A., CCC-SLP

City Speech, Inc.

4144 Lindell Blvd., Suite 207, Saint Louis, MO 63108

Office (314) 704-5727

Fax (314) 289-7545

Cell (314) 609-0949

Email: Jencityspeech (DOT) com

http://www.cityspee ch.com

* Mee, Beth, M.S., CCC-SLP

Cardinal Glennon Children's Hospital

(314) 577-5669

http://www.cardinal glennon.com/ Pages/default. aspx

* Moog Center for Deaf Education

12300 S. Forty Drive, St. Louis, MO 63131

(314) 692-7172

This is both an Oral School for the deaf and an education center that teaches

" teachers " how to work and teach oral communication to deaf kids. They have

local, national, and international students attend the school and the teacher

training.

http://www.moogcent er.org/

* Pankey, Bernadette, M.S., CCC-SLP

(314) 729-0167

* ish Rite Clinic for Childhood Language Disorders of STL, Inc.

3633 Lindell Blvd, St Louis, MO 63108

(800) 358-5656

Services children under the age of 6 years old who are Missouri residents.

Evaluation and therapy are FREE!

http://www.srclinic .org

* Shriners Hospital for Children

Neurologists and speech therapists on staff and they are FREE

http://www.shriners hq.org

* s, , M.S., CCC-SLP

(618) 580-3561

* St Louis University Speech and Hearing Clinic

(314) 977-3365

Hoffman, M.A., CCC-SLP runs a summer camp (info below)

Marty Brennan, M.A., CCC-SLP works on literacy-based language disorders in terms

of specialties for school-aged children.

http://www.slu. edu/x12349. xml

Occupational Therapy:

* Eckels, Barbara, OTR/L, Certified in Sensory Integration

St 's Hospital, Belleville, IL

(618) 234-2120 x1235

http://www.steliz. org

* Roth, , M.S., OTR/C

Pediatric Therapeutic Licensed Consultants (PEDS TLC)

156 Gore Ave, St. Louis, MO 63119

(314) 962-3916

Office in West County, west of I270 & Manchester,

2228 Mason Lane

(314)-374-7086

Neurologists:

* Dr Altman, MD Neurologist

St 's Hospital

(314) 569-6515

* Dr Deuel, Ruthmaryl, MD - Neurologist.

St Louis University Hospital

(314) 577-6082

Coined the term " epileptiform aphasia "

* Dr Kwon, , MD - Neurologist

* Dr Mantovanni, MD Neurologist

Developmental Pediatricians:

* Dr Ultmann, , MD - Developmental Pediatrician

Knight of Columbus Developmental Center

Cardinal Glennon Children's Hospital

1465 South Grand Blvd, Saint Louis, MO 63104

(314) 577-5609

Organizations:

* The Belle Center

(314) 962-1037

An Inclusive Approach to Education Supporting Children with Disablilites and

their Families http://www.bellecen ter.com

* Touchpoint for Autism

St. Louis Offices: 1101 Olivette Executive Pkwy.St. Louis, MO 63132 314.432.6200

314.385.5373 info@touchpointauti sm.org

For information on being accepted to one of TouchPoint’s services:

admissions@touchpoi ntautism. org http://www.touchpoi ntautism. org

Diagnosis and treatment for Pervasive Developmental Disorders

* St Louis Regional Center for the Developmentally Disabled

211 N. Lindberg Blvd.

Creve Coeur, MO 63141

(314) 340-6500, (314) 877-0000

State agency under Dept. of Mental Health. Assists individuals to obtain

services in evaluation-diagnosi s-counseling and vocational. First step program.

SOURCES FOR FUNDING:

* Special Care Needs Bureau

(314) 877-2850

Pays for part of therapy based on income

* Missouri Dept of Mental Health, Division of Mental Retardation and

Developmental Disabilities

PO Box 687, Jefferson City, MO 65102.

* St Louis Variety Club

(314) 453-0453

Covers cost of communication boards

* DSCC (Department of Specialized Care for Children)

(618) 583-2220 http://www.uic. edu/hsc/dscc

Case management and funding for Illinois residents

* Missouri Assistive Technology for Kids

(816) 737-5193 or (816) 647-8557 ask for Marty

Pediatric therapy department: (314) 895-6167 X- 25 ask for Sandy

provides testing to see what sort of assistive devices would best help your

child

They also provide some funding.

* Easter Seals

(618) 462-7325

http://www.easterse als.com

* Delta Gamma

(314) 776-1300

* Extended Care Health Option (formerly PFPWD)

(for military members)

(888) 588-6302, Option 1 for case manager

http://www.tricare. mil/tricaresmart

* KidCare, Health Insurance for Illinois Children

800-323-GROW http://www.allkids. com

* United Healthcare Children's Foundation

http://www.uhccf. org/

* Cover The Uninsured http://covertheunin sured.org/ the_issue

=====