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Re: Frustrated - 4 year old not yet diagnosed

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Have you read 's bk, The Late Talker? Read Ch 2 & 3, esp pg. 36-37. Does

your son seem to fit those criteria?

I don't know any SLPs in Canada. In my private practice, we perform many

evaluations for clients who come to us from out of state. We are located in

land (East Coast/mid atlantic). We are trained in PROMPT, Beckman,

structured Talk Tools hierarchies, much more. Visit www.helpmespeak.com for more

info.

Let me know how we can help.

Warmest wishes,

Barbara A , M.S., CCC-SLP

Executive Director, Help Me Speak, LLC

410-442-9791

[ ] Frustrated - 4 year old not yet diagnosed

Hello everyone, I am very frustrated at trying to get an accurate diagnosis for

my 4 year old non-verbal son. We currently reside in Alberta Canada. He was

labelled at 18 months as being Globally Delayed, meaning delayed in all areas.

There has also been an ongoing query of Autism and his last SLP mentioned she

thought he showed signs of Verbal Apraxia. His SLP at his Early Ed school isn't

even all that familiar with Apraxia nor could she give me a name of a

recommended SLP that could assess him. The developmental pediatrician that

assessed him at 18 months states it should be an SLP that makes a diagnosis of

Apraxia or Dysarthia. I too find here, the SLPs are not on board with an Oral

Motor type of program..so very frustrating! I am looking for advice as to how

do you know if its Apraxia/Dysarthia? He is also significantly cognitively

delayed so doesn't understand simple requests. He babbles but no words, he

usually has an open mouth stance, drools and cannot blow bubbles (but does blow

a recorder) or form lips to make kissing. Anyones help/input is appreciated.

Thanks

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Hi

I am not sure how much help I can be to you other than to say that I sympathise

with what you are experiencing. I have a 7 year old with Autism and Verbal

Apraxia and it is a hard road. Trying to get help for the apraxia is almost

impossible for us here in our part of Australia. There is just not the knowledge

about it and the school only want to help him with the autism related

communication difficulties. It is very frustrating.

We have found so far that we are our son's best speech coaches and try to help

him during his daily living routines as he just doesn't really have the stamina

for full-length speech consultations. We have been getting a private speech

therapist with 'some' apraxia experience to visit him once a week at school and

that is helping but I think with apraxia we are in for a long journey.

You may also wish to consider augmentative communication devices at some point

for your child to reduce their frustration levels. That definitely helps! We

began with PECS and now use a combination of Makaton signing, a whiteboard and

an i-pod touch (upon which we have the proloquo2go application on). All of these

make a big difference to our son's ability to communicate, however, nothing is

perfect.

I wish you well on your journey and hope that you can find some suitable

assistance in your part of the world. Please know that there are lots of others

going through similar struggles for their children. Stay strong!

Cairns, Australia

>

> Hello everyone, I am very frustrated at trying to get an accurate diagnosis

for my 4 year old non-verbal son. We currently reside in Alberta Canada. He

was labelled at 18 months as being Globally Delayed, meaning delayed in all

areas. There has also been an ongoing query of Autism and his last SLP

mentioned she thought he showed signs of Verbal Apraxia. His SLP at his Early

Ed school isn't even all that familiar with Apraxia nor could she give me a name

of a recommended SLP that could assess him. The developmental pediatrician that

assessed him at 18 months states it should be an SLP that makes a diagnosis of

Apraxia or Dysarthia. I too find here, the SLPs are not on board with an Oral

Motor type of program..so very frustrating! I am looking for advice as to how

do you know if its Apraxia/Dysarthia? He is also significantly cognitively

delayed so doesn't understand simple requests. He babbles but no words, he

usually has an open mouth stance, drools and cannot blow bubbles (but does blow

a recorder) or form lips to make kissing. Anyones help/input is appreciated.

>

> Thanks

>

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Hi,

I don't know where abouts you are in alberta, but you can try finding SLPs by

area on the website for canadian professional speech and language. www.caslpa.ca

you can find an slp by area and it also tells you their specialties.   Just

for alberta alone, there are 10 pages of professionals.  I'm in ontario, and

our doctor just agreed

with the slp that he had severe apraxia and was able to include it in his report

for us.

hth

sandy

________________________________

From: luv4reidster <luv4reidster@...>

Sent: Tue, March 23, 2010 4:14:13 PM

Subject: [ ] Frustrated - 4 year old not yet diagnosed

 

Hello everyone, I am very frustrated at trying to get an accurate diagnosis for

my 4 year old non-verbal son. We currently reside in Alberta Canada. He was

labelled at 18 months as being Globally Delayed, meaning delayed in all areas.

There has also been an ongoing query of Autism and his last SLP mentioned she

thought he showed signs of Verbal Apraxia. His SLP at his Early Ed school isn't

even all that familiar with Apraxia nor could she give me a name of a

recommended SLP that could assess him. The developmental pediatrician that

assessed him at 18 months states it should be an SLP that makes a diagnosis of

Apraxia or Dysarthia. I too find here, the SLPs are not on board with an Oral

Motor type of program..so very frustrating! I am looking for advice as to how do

you know if its Apraxia/Dysarthia? He is also significantly cognitively delayed

so doesn't understand simple requests. He babbles but no words, he usually has

an open mouth stance, drools and

cannot blow bubbles (but does blow a recorder) or form lips to make kissing.

Anyones help/input is appreciated.

Thanks

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Thanks for the info Sandy. It looks like something FINALLY might be happening in

this regard. I got ahold of someone at a hospital here very familiar with

apraxia and other oral motor dsyfunctions and is willing to help his school SLP

do the assessment!..hopefully I get some answers soon. Thanks!

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