Apraxic son might now have a dairy allergy.

[Guest guest]

--there have been lots of posts on this list about biomed. it can make a

HUGE difference for kids with metabolic and neurological problems. They always

go hand in hand in spite of what mainstream medicine has been taught. Doctors

are limited by their training and their guidelines--but more and more of them

are gettign additional training to respond to this increase in metabolic and

neurological problems because they understand the gut/brain connection. It is

so obvious it is an outcry that mainstream medicine has taken so long to even

consider this and it is still not pursuing anything that does not come from the

Big Pharma with billions of $ profit tags on it. It's a sad reality but

doctors---with few exceptions-- only dispense drugs--even the Harvard medical

students were rebelling against the influence the Pharmaceutical Industry has on

their curricula--last year in Spring I believe and it is just coming out more

and more that if there is no

" miracle drug " to " cure " it--the disease must not exist and it must be just in

the patient's head---oh, but there are drugs for that I'm afraid--- obvious

metabolic problems like Fibromalgia are being treated with pain killers and

antidepressants--to just mask some of the symptoms--in reality the body

continues to deteriorate--you just don't feel it as much.

Anyway, neuroscience and microbiology research is bringing this gut/brain

connection out all the time--this is no longer just speculation--there is a lot

of research backing up these treatments and many doctors are embracing

them--just not a mainstream practice so mainstream doctors rarely help. The fact

that these kids do well on fish oil and Nutriiveda is proof that their

neurological and metabolic/immune functioning are linked. You need to work with

doctors who understand this and treat their patients according to their

individual needs--by eliminating what does NOT belong in their bodies and

supplementing with what is missing. Vital brain nutrients are often missing in

these kids and supplementation can mean the difference between day and night.

The fact that your child had more than the usual spit ups and later developed

skin problems and other s---is a clear indicator that there are metabolic

problems. His neurological functioning --speech and physical motor are also

compromised---all this points to clear biomed interventions as the best course

of action. But I have to warn you that it is really up to the parents to do

their homework and become educated about their kid's issues and how biomedical

approaches/diet/supplements and possible detoxification can help. Never trust

any doctor to know it all--no one does---always choose the safest most efficient

path---and learn as much as you can before doing anything that may have

consequences---you only want to take calculated risks---and even biomed trained

doctors do not always do the safest thing unfortunately--detoxification in

particular should never be done without understanding exactly what you are

trying to do and choosing the absolute safest

ways to do it--after intensive research--not just taking the doctor's or the

marketer's word for it.

You ahve to be able to follow and assess your child's progress and know enough

about the supplements to know what is normal as the brain gains new fucntions or

the body adjusts to what it never had before and what is indicative of an

intolerance and warrants stopping the treatment or reducing dosage or adding

soemthing else yet to amke it work better. We've dealt with all of these and

after 3 years of biomed I can tell you that we have come from severly apraxic

with neurological soft signs--to moderate to mild apraxic and all her sensory

issues, upper trunk hypotonia, plus autoimmune skin issues have also improved

considerably--she is now mainstreamed in kindergarten, we just got back from

skiing and she's doing great in all respects--speech and language still needs

more work--but now we know we're on the right track. At 3.5 before biomed she

could not say mama and had less than a handful of words which were not

pronounced consistently the same way--she

tantrumed and had major compliance problems--we thought she was destined to be

in a special ed class and we wondered if she would ever speak. Have you heard

of that book Children with Starving Brains?---google it or go to Amazon .com and

take a look. There are also many other resources on this list and others.

There's a lot of hope for our neurologically and immune damaged kids--but it's

up to us to learn and find the right medical professionals to work with.

Good luck.

Elena

________________________________

From: <sarahhurm@...>

Sent: Tue, February 23, 2010 9:13:50 PM

Subject: [ ] Apraxic son might now have a dairy allergy.

After almost a year of trying to find out what is happening with my 3 year old,

now our speech therapist is deciding that he has apraxia, not autism like the

school board assumed. She has also mentioned that he might have limb apraxia

since he will not learn sign language. Our OT therapist disagrees though and

insists on mild sensory issues. So confusing..

Now we are realizing that he might have an allergy because his nose is always

running and he has always had bad skin problems - redness on the back of his

knees and small red itchy bumps and dry patches on his back and stomach. Our

pediatrician always said that it was just dry skin and she gave him a

prescription for lipocream every year. We have to treat it everyday or he gets

so itchy that it drives him crazy.

Our therapist said that the body craves what it should not have - he is obsessed

with string cheese and cheese cubes and cries for it all day..

We remember him spitting up so much as a baby and asking our pediatrician if he

should be on soy - she told us that we should not change formulas unless he was

starting to loose weight.

We have an appointment with a doctor in a few weeks that both therapists

recommend. I cannot believe that this is just being realized now at age 3! How

can we even think about taking away milk, cheese, ice cream, mac and cheese,

pizza - all of his favorite things. And he has a brother and sister who live on

yogurt and cheese and mac and cheese.

Has anyone else had to deal with this? Any advice would be helpful.

------------------------------------

[Guest guest]

That definitely sounds like a dairy allergy. My son was covered in eczema at a

few weeks old and once we got him on the right formula, his skin cleared right

up. He now has tons of allergies/sensitivities and depending on what he eats he

may get watery eyes, runny nose, rashes/eczema, hives, diarrhea, malabsorbtion,

constipation, etc...It can take up to a few weeks to get the dairy completely

out of his system, but will be very worth it. There are tons of other options

out there for cheese and milk.

I just want to add that my daughter is 2 yrs older than my son and I also didn't

know she had allergies because hers affect her behaviorally, but put her on the

same diet as my son and within 2 wks she went from about 15 words to almost a

full vocabulary. There have been times when she has gotten some dairy and her

speech actually becomes slurred! Good luck, I hope you get some answers.

>

> After almost a year of trying to find out what is happening with my 3 year

old, now our speech therapist is deciding that he has apraxia, not autism like

the school board assumed. She has also mentioned that he might have limb

apraxia since he will not learn sign language. Our OT therapist disagrees

though and insists on mild sensory issues. So confusing..

>

> Now we are realizing that he might have an allergy because his nose is always

running and he has always had bad skin problems - redness on the back of his

knees and small red itchy bumps and dry patches on his back and stomach. Our

pediatrician always said that it was just dry skin and she gave him a

prescription for lipocream every year. We have to treat it everyday or he gets

so itchy that it drives him crazy.

> Our therapist said that the body craves what it should not have - he is

obsessed with string cheese and cheese cubes and cries for it all day..

> We remember him spitting up so much as a baby and asking our pediatrician if

he should be on soy - she told us that we should not change formulas unless he

was starting to loose weight.

>

> We have an appointment with a doctor in a few weeks that both therapists

recommend. I cannot believe that this is just being realized now at age 3! How

can we even think about taking away milk, cheese, ice cream, mac and cheese,

pizza - all of his favorite things. And he has a brother and sister who live on

yogurt and cheese and mac and cheese.

>

> Has anyone else had to deal with this? Any advice would be helpful.

>

[Guest guest]

Your therapist said that the body craves what it doesn't need? I would have

told her " Speak for your own sickly body " Boy if she were right ... Wouldn't

that mean that the human race is doomed???

I just want to jump in yet again with another gentle reminder 'if' your child

isn't allergic to milk- which should be tested for by a doctor (and so glad

you'll be seeing one for this)...and you pull your child off of milk -you put

your child at risk for weak brittle bones, short stature, and obesity..here's

just one article http://www.ajcn.org/cgi/content/full/76/3/675 I have much

more on this if you need more info such as how you can replace the milk by

having your child suck on bones etc (no really -but you can also cook them in

soups first)

" Yet it is possible to attain optimal health without dairy foods. Price

discovered groups using no dairy foods that had complete resistance to dental

decay and chronic disease; their diets invariably included other rich sources of

animal fats, calcium and other minerals. The soft ends of long bones were

commonly chewed, and the shafts and other bones were used in soups. "

http://www.realmilk.com/healthbenefits.html

Some do have to avoid milk due to true allergy and I do hope your child isn't

one of them -but I have a question for you....is your child on fish oil because

the dry patches and skin rashes- that's a number one sign of lack of the

essential fatty acids. (fish oils)

And constant runny nose -not sure where you live but if you are in a cold

area...my nose always does that when I am cold which is why I moved to Florida

(just kidding -I only moved here to be close to Mickey Mouse) But anyway here's

787 other reasons why a constant runny nose

http://www.wrongdiagnosis.com/symptoms/runny_nose/causes.htm

Best of luck and if you don't have your child on the fish oils read

http://www.facebook.com/topic.php?uid=115029735601 & topic=7401 and ask your ped

if you can use the fish oils -try that before the radical and possibly

unnecessary and keep it simple if you can!

=====

[Guest guest]

I would suggest to look into gluten as well. Those two are the most common

allergies that effect someone neurologically. Good Luck!!

[Guest guest]

I saw your post on group for apraxia. My name is Beth Ann ShanksMSCCC/SLP.

I am a Speech Pathologist and I have 37 years experience with apraxia. My office

is in Bordentown, Exit 7A on Turnpike. My website is www.speechacademyllc.com to

learn more about my practice. I am also forming a Parent Support Group, 2nd

Wednesday of every month at 7pm. Lots of great info and collaborating

professionals.

To respond to your outreach, I would like to share info on one of my

collaborating professionals. Dr. Parkes, a Chiropractor by profession, who has a

new system of helping individuals become allergy free with a computerized

analysis and 2 second lase light treatments that relieve the body of the stress

factors to identified allergies. My husband, a life long allergy sufferer has

had amazing results. This is drug free, no shots, no guessing. Check out his

website at www.BioVedaOfYardley.com. Best of luck and keep in touch! Beth Ann

Shanks

________________________________

From: " dsolo47448@... " <dsolo47448@...>

Sent: Sun, February 28, 2010 4:58:59 PM

Subject: [ ] Apraxic son might now have a dairy allergy.

 

I would suggest to look into gluten as well. Those two are the most common

allergies that effect someone neurologically. Good Luck!!