Re: Stopping NV and is cure possible?

January 16, 2011

>

> I just got another update from from our group and she gave me permission

to share it here:

>

> UPDATE a few months later: So Jack had his 3 year early childhood services

evaluation last month. I had taken him completely off of NV for 4 weeks prior

to the evaluation to see if there were any regressions. The good news is that

there were none! The bad news is that the ST that evaluated him at the school

said he tested at or above his age level for all speech related tests. The

school said they will not provide him ANY early childhood services. I know he

is doing GREAT but I still think he will benefit from Speech therapy. I am at a

loss right now. Jack has been diagnosed with Apraxia. How can they determine

he doesn't need services in a 2 hour evaluation (and they said he wasn't very

cooperative which is likely because they wouldn't let me stay in the room with

him?) They told me I could have him re-evaluated in 3-6 months if I thought it

was necessary. A little more about Jack...He is now saying up to 9-10 word

sentences with little or no omitions at all! He is doing great in swimming

lessons and makes the most hilarious facial expressions! He has no noticeable

hypotonia at all anymore either!

>

> (you can read her entire story and others like it here

http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-shift-\

in-treatment-of-speech-impairments/ about her son Jack)

>

> is a research scientist so a very savvy parent, and her son Jack had a

definitive diagnosis of a multifaceted communication impairment by a team of

professionals who all diagnosed him with apraxia, hypotonia etc less than a year

ago...the first time she took Jack off NV even just for days after his dramatic

surges on NV he had slight regressions in speech -but more extreme regressions

in behavior...and now months after that -even after FOUR WEEKS- zero regressions

and her son is no longer qualifying for any services at all.

>

> I've seen this happen with my own now 14 year old son Tanner over the past

year as many of you have read his updates...I guess the best word is

normalization -but actually above normal I'd say from what I'm seeing. And I

had just shared that even with Tanner missing fish oils for days -no regression

at all either which is remarkable as up to 13 years old prior to NV if he missed

a DAY or his dosage was reduced at all in one day his speech became what we call

" bumpy "

>

> So the question is....you have your child on NV for 6 months to a year and

your child no longer seems to need it. There were dramatic surges to start, but

now it seems it's no longer needed. and I continue with it because in my

case I feel whatever it provided on a nutritional level clearly was missing

prior, and even if it just helps a bit more -I give it to him for the same

reasons I give him fish oils and never want him to stop taking them for life

-they contain essential fats, while NV contains the essential amino acids and

nutrients and it's all easily digestible.

>

> Maybe we as a group can compare those of our children that had surges and then

stopped the NV to those of us that had surges and then continue over the next

year to see if there is a difference? We already know that there are areas NV

appears to help with that most of us don't even think about at first such as

growth (especially height!) and academics.

>

> Just one other quick update on Tanner....he had to do a report in school that

compared two things. On his own he decided that he wanted to compare fish oil

to NV. I was expecting him to downplay the fish oils to the NV because he can't

remember all the fish oils did for him when he was preschool age. But no, in

the report he speaks about both of them highly...and speaks about how NV wasn't

invented yet when he was little and that if it wasn't for fish oils he wouldn't

have had anything to help him speak for ten years outside of speech therapy. He

then says to me after he reads the report " Mom I don't want to write this but

from my heart I appreciate the fish oils because where would I be today if I

wasn't able to speak for the past ten years? Where would I be? " He then says

" I don't want to write that because it's from my heart and it's personal " So I

said " Can I share it with my group Tanner? " And he said " I am telling you

because I know you are going to share it but that's OK because it can help other

kids "

>

> What's so funny to me is that I don't have to remind him to take NV -he takes

it twice a day on his own -but fish oils I have to remind him to take. But now

I know he does appreciate them too. If anyone doesn't know how this whole thing

with NV started which is because of Tanner as well (almost as much as Tanner was

one of the first children with apraxia on fish oils if you read The LCP Solution

and The Late Talker and know how I then got on rooftops and screamed about it)

You can read this

http://pursuitofresearch.org/the-history-why-nutriiveda-for-therapeutic-use-for-\

autism-apraxia-etc/

>

> So many things to be thankful for- therapists, doctors and teachers

included...and for Tanner -fish oils and NV have been out of the tons of

therapies we did that were alternative and in most cases expensive with mild

improvements- the two cheapest and easiest things that created the most profound

results.

>

> So the question is...is it possible to stop one or both -and even if you

can...should you? And...if you don't stop do you get better results over time

than if you do or is it more just a health reason?

>

> One year...I can't believe I'd be asking this in one year ever!!!! PS -if any

of you has a question for she's still a member so ask and I'm sure she'll

answer here -I wanted to share her update in the context of the 'is there neuro

repair going on' which and I as parents both believe so (and not so far

fetched as you can read here

http://pursuitofresearch.org/2010/11/22/neurogenesis-does-mother-nature-know-bes\

t/ as just one article)

>

> Best to all!

>

> =====

>

January 16, 2011

Hello ,

Thank you for all you do. It is wonderful hearing all the wonderful updates

from you and other parents.

I have tried reading all I can on Nutriiveda but am still not confident that

I know how to proceed. My child is neither on NV or fish oils, and was

wondering if it makes any difference which one we start with.

Thank you again,

Marie

On Sun, Jan 16, 2011 at 8:43 AM, kiddietalk <kiddietalk@...> wrote:

>

> I just got another update from from our group and she gave me

> permission to share it here:

>

> UPDATE a few months later: So Jack had his 3 year early childhood services

> evaluation last month. I had taken him completely off of NV for 4 weeks

> prior to the evaluation to see if there were any regressions. The good news

> is that there were none! The bad news is that the ST that evaluated him at

> the school said he tested at or above his age level for all speech related

> tests. The school said they will not provide him ANY early childhood

> services. I know he is doing GREAT but I still think he will benefit from

> Speech therapy. I am at a loss right now. Jack has been diagnosed with

> Apraxia. How can they determine he doesn't need services in a 2 hour

> evaluation (and they said he wasn't very cooperative which is likely because

> they wouldn't let me stay in the room with him?) They told me I could have

> him re-evaluated in 3-6 months if I thought it was necessary. A little more

> about Jack...He is now saying up to 9-10 word sentences with little or no

> omitions at all! He is doing great in swimming lessons and makes the most

> hilarious facial expressions! He has no noticeable hypotonia at all anymore

> either!

>

> (you can read her entire story and others like it here

>

http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-shift-\

in-treatment-of-speech-impairments/ about her son Jack)

>

> is a research scientist so a very savvy parent, and her son Jack had

> a definitive diagnosis of a multifaceted communication impairment by a team

> of professionals who all diagnosed him with apraxia, hypotonia etc less than

> a year ago...the first time she took Jack off NV even just for days after

> his dramatic surges on NV he had slight regressions in speech -but more

> extreme regressions in behavior...and now months after that -even after FOUR

> WEEKS- zero regressions and her son is no longer qualifying for any services

> at all.

>

> I've seen this happen with my own now 14 year old son Tanner over the past

> year as many of you have read his updates...I guess the best word is

> normalization -but actually above normal I'd say from what I'm seeing. And I

> had just shared that even with Tanner missing fish oils for days -no

> regression at all either which is remarkable as up to 13 years old prior to

> NV if he missed a DAY or his dosage was reduced at all in one day his speech

> became what we call " bumpy "

>

> So the question is....you have your child on NV for 6 months to a year and

> your child no longer seems to need it. There were dramatic surges to start,

> but now it seems it's no longer needed. and I continue with it because

> in my case I feel whatever it provided on a nutritional level clearly was

> missing prior, and even if it just helps a bit more -I give it to him for

> the same reasons I give him fish oils and never want him to stop taking them

> for life -they contain essential fats, while NV contains the essential amino

> acids and nutrients and it's all easily digestible.

>

> Maybe we as a group can compare those of our children that had surges and

> then stopped the NV to those of us that had surges and then continue over

> the next year to see if there is a difference? We already know that there

> are areas NV appears to help with that most of us don't even think about at

> first such as growth (especially height!) and academics.

>

> Just one other quick update on Tanner....he had to do a report in school

> that compared two things. On his own he decided that he wanted to compare

> fish oil to NV. I was expecting him to downplay the fish oils to the NV

> because he can't remember all the fish oils did for him when he was

> preschool age. But no, in the report he speaks about both of them

> highly...and speaks about how NV wasn't invented yet when he was little and

> that if it wasn't for fish oils he wouldn't have had anything to help him

> speak for ten years outside of speech therapy. He then says to me after he

> reads the report " Mom I don't want to write this but from my heart I

> appreciate the fish oils because where would I be today if I wasn't able to

> speak for the past ten years? Where would I be? " He then says " I don't want

> to write that because it's from my heart and it's personal " So I said " Can I

> share it with my group Tanner? " And he said " I am telling you because I know

> you are going to share it but that's OK because it can help other kids "

>

> What's so funny to me is that I don't have to remind him to take NV -he

> takes it twice a day on his own -but fish oils I have to remind him to take.

> But now I know he does appreciate them too. If anyone doesn't know how this

> whole thing with NV started which is because of Tanner as well (almost as

> much as Tanner was one of the first children with apraxia on fish oils if

> you read The LCP Solution and The Late Talker and know how I then got on

> rooftops and screamed about it) You can read this

>

http://pursuitofresearch.org/the-history-why-nutriiveda-for-therapeutic-use-for-\

autism-apraxia-etc/

>

> So many things to be thankful for- therapists, doctors and teachers

> included...and for Tanner -fish oils and NV have been out of the tons of

> therapies we did that were alternative and in most cases expensive with mild

> improvements- the two cheapest and easiest things that created the most

> profound results.

>

> So the question is...is it possible to stop one or both -and even if you

> can...should you? And...if you don't stop do you get better results over

> time than if you do or is it more just a health reason?

>

> One year...I can't believe I'd be asking this in one year ever!!!! PS -if

> any of you has a question for she's still a member so ask and I'm sure

> she'll answer here -I wanted to share her update in the context of the 'is

> there neuro repair going on' which and I as parents both believe so

> (and not so far fetched as you can read here

>

http://pursuitofresearch.org/2010/11/22/neurogenesis-does-mother-nature-know-bes\

t/ as just one article)

>

> Best to all!

>

> =====

>

January 16, 2011

Hi !

I don't believe it matters which you start first as I know parents that started

first with NV or first with fish oils and then a month or so later added the

other. I know people that started with both but I don't recommend that because

it's best to see what is doing what. I have a page on the fish oils here

http://pursuitofresearch.org/2010/12/01/therapeutic-use-of-fish-oil-for-apraxia-\

autism-and-other-communication-impairments/

Whatever you wish to start with is fine. You can run both by your child's

doctor and see if he or she suggests one over the other to start with. From a

nutritional standpoint both contains essential nutrients and essential nutrients

can't be produced by the body so need to be consumed and are missing or appear

to be difficult to digest and utilize from our diets alone. So in other words

no matter what we all need all of the essential nutrients. But good news again

is that it doesn't appear to matter which you start with -as in the words of my

son Tanner...I respect both, and from me as a parent, I highly recommend both

are tried.

Best to you and all that is in store once you start Please do share!!!

=====

January 17, 2011

Hi, I just joined the group. I have a 6 year old boy who has a mild form of

epilespy and developmental delays, most notably in expressive language

development but his fine and gross motor areas are issues for him as well. His

pre-K assessment involved a ton of psychological/developmental/intelligence type

tests that showed his overall development to be about a year and half delayed.

Word formation and his ability to interact verbally is very delayed. He also has

attention issues and has sensory issues, mainly hyposensitivity and low muscle

tone. He takes a small dose of a sedative drug called clobazam for seizure

control. We read on the pursuit of research site about seizures being helped by

NV so we have chosen to start with that, but it does not mention if the children

with speech problems and seizures are on both fish oils and NV? My questions

to share with his doctor: Is it OK for my son to take both NV and fish oil?

Dosage for NV - one scoop twice a day is this about right? He is 60 lbs and

otherwise healthy with a pretty good diet. When can we expect to see beneficial

results: I was thinking about 3 months or so? We are NOT telling his teacher or

therapist about this supplementation - we'd like to see if they note any

differences without the foreknowledge. Thank you all.

>

> >

> > I just got another update from from our group and she gave me

> > permission to share it here:

> >

> > UPDATE a few months later: So Jack had his 3 year early childhood services

> > evaluation last month. I had taken him completely off of NV for 4 weeks

> > prior to the evaluation to see if there were any regressions. The good news

> > is that there were none! The bad news is that the ST that evaluated him at

> > the school said he tested at or above his age level for all speech related

> > tests. The school said they will not provide him ANY early childhood

> > services. I know he is doing GREAT but I still think he will benefit from

> > Speech therapy. I am at a loss right now. Jack has been diagnosed with

> > Apraxia. How can they determine he doesn't need services in a 2 hour

> > evaluation (and they said he wasn't very cooperative which is likely because

> > they wouldn't let me stay in the room with him?) They told me I could have

> > him re-evaluated in 3-6 months if I thought it was necessary. A little more

> > about Jack...He is now saying up to 9-10 word sentences with little or no

> > omitions at all! He is doing great in swimming lessons and makes the most

> > hilarious facial expressions! He has no noticeable hypotonia at all anymore

> > either!

> >

> > (you can read her entire story and others like it here

> >

http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-shift-\

in-treatment-of-speech-impairments/ about her son Jack)

> >

> > is a research scientist so a very savvy parent, and her son Jack had

> > a definitive diagnosis of a multifaceted communication impairment by a team

> > of professionals who all diagnosed him with apraxia, hypotonia etc less than

> > a year ago...the first time she took Jack off NV even just for days after

> > his dramatic surges on NV he had slight regressions in speech -but more

> > extreme regressions in behavior...and now months after that -even after FOUR

> > WEEKS- zero regressions and her son is no longer qualifying for any services

> > at all.

> >

> > I've seen this happen with my own now 14 year old son Tanner over the past

> > year as many of you have read his updates...I guess the best word is

> > normalization -but actually above normal I'd say from what I'm seeing. And I

> > had just shared that even with Tanner missing fish oils for days -no

> > regression at all either which is remarkable as up to 13 years old prior to

> > NV if he missed a DAY or his dosage was reduced at all in one day his speech

> > became what we call " bumpy "

> >

> > So the question is....you have your child on NV for 6 months to a year and

> > your child no longer seems to need it. There were dramatic surges to start,

> > but now it seems it's no longer needed. and I continue with it because

> > in my case I feel whatever it provided on a nutritional level clearly was

> > missing prior, and even if it just helps a bit more -I give it to him for

> > the same reasons I give him fish oils and never want him to stop taking them

> > for life -they contain essential fats, while NV contains the essential amino

> > acids and nutrients and it's all easily digestible.

> >

> > Maybe we as a group can compare those of our children that had surges and

> > then stopped the NV to those of us that had surges and then continue over

> > the next year to see if there is a difference? We already know that there

> > are areas NV appears to help with that most of us don't even think about at

> > first such as growth (especially height!) and academics.

> >

> > Just one other quick update on Tanner....he had to do a report in school

> > that compared two things. On his own he decided that he wanted to compare

> > fish oil to NV. I was expecting him to downplay the fish oils to the NV

> > because he can't remember all the fish oils did for him when he was

> > preschool age. But no, in the report he speaks about both of them

> > highly...and speaks about how NV wasn't invented yet when he was little and

> > that if it wasn't for fish oils he wouldn't have had anything to help him

> > speak for ten years outside of speech therapy. He then says to me after he

> > reads the report " Mom I don't want to write this but from my heart I

> > appreciate the fish oils because where would I be today if I wasn't able to

> > speak for the past ten years? Where would I be? " He then says " I don't want

> > to write that because it's from my heart and it's personal " So I said " Can I

> > share it with my group Tanner? " And he said " I am telling you because I know

> > you are going to share it but that's OK because it can help other kids "

> >

> > What's so funny to me is that I don't have to remind him to take NV -he

> > takes it twice a day on his own -but fish oils I have to remind him to take.

> > But now I know he does appreciate them too. If anyone doesn't know how this

> > whole thing with NV started which is because of Tanner as well (almost as

> > much as Tanner was one of the first children with apraxia on fish oils if

> > you read The LCP Solution and The Late Talker and know how I then got on

> > rooftops and screamed about it) You can read this

> >

http://pursuitofresearch.org/the-history-why-nutriiveda-for-therapeutic-use-for-\

autism-apraxia-etc/

> >

> > So many things to be thankful for- therapists, doctors and teachers

> > included...and for Tanner -fish oils and NV have been out of the tons of

> > therapies we did that were alternative and in most cases expensive with mild

> > improvements- the two cheapest and easiest things that created the most

> > profound results.

> >

> > So the question is...is it possible to stop one or both -and even if you

> > can...should you? And...if you don't stop do you get better results over

> > time than if you do or is it more just a health reason?

> >

> > One year...I can't believe I'd be asking this in one year ever!!!! PS -if

> > any of you has a question for she's still a member so ask and I'm sure

> > she'll answer here -I wanted to share her update in the context of the 'is

> > there neuro repair going on' which and I as parents both believe so

> > (and not so far fetched as you can read here

> >

http://pursuitofresearch.org/2010/11/22/neurogenesis-does-mother-nature-know-bes\

t/ as just one article)

> >

> > Best to all!

> >

> > =====

> >

January 18, 2011

My son just started NV at Christmas and we could not be more blessed with the

improvements. Last night he tried to read the menu(!) He was pointing to the

letters and getting them right and nobody tried to get him to do that he just

did it on his own! He no longer is mixing up his words like before and others

now understand him much of the time. I just got a private email from an SLP

from this group who offered to speak to my son's SLP because I must have

mentioned my son's therapist does not know what to make of this. Can you stop

NV with no regression? How are these improvements so quick possible? Thank you

Kate