Re: Homepathic remedies for Apraxia

[Guest guest]

Yes, We've used several homeopathic remedies-----but not major/constitutional

ones--only remedies to help with certain metabolic or less severe neurological

things things like focus, energy level, night sweats, digestion, dry

skin/eczema, improved detoxification etc.  we are using these homeopathic

remedies in addition to other biomed approaches  diet/suplements and therapy. 

They've all helpped her tremedously.  I've personally used homeopathy for health

issues that i'd been told required surgery and am glad to say the problem is

about 70% improved and I later learned that I shoudl ahve continued the

treatment.  I'll probably start again soon.  I definately think homeopathy has a

lot of potential--but as with everything else--everyone is different and not all

will be helpped by the exact same things/remedies in this case.

My daughter has now gone from severly apraxic--virtually non-verbal at 3.5 when

3 local apraxia experts-published no less--declared they couldn't help her

becuase she was so non-complient and unwilling to pay attention and follow adult

directed activities-----to a  very verbal, smart and witty little girl who is

now in mainstream first grade, learing to read and write, has made friends and

enjoys telling and leraning about jokes---and is pretty normal except for her

speech which is still dificult to understand when she is initiating the

conversation, explaining things--when the context is not known. bLong words or

cetain sound combinations are still difficult--but improving all the time. And

otherwise for the well rehearsed short 4-5  word sentences--she does fine--her

teacher keeps asking me why does she need so much therapy still because she

understands her fine and so does everyone else. Well--that tells you how much

time that teacher with 30 kids

gives my daughter--becuase she is still apraxic--but moderately so---still

groping, stuttering soemtimes as she plans out her sentences and ideas--but she

can communicate just about anything now and compared to how she was before the

B12 shots and the carnatine added to the Fish oils----she's light years better. 

We're still tweaking the supplement protocol, just recently added something to

improve her attention and it seems to be working well--she's more focused --pine

bark extract---we added back COQ10-Ubiquinol which we had taken out but it was

in a different form and this seems to help more--we're doing sublingual B12

now--but I still say the shots were better---so it's an ongoing

process--homeopathy can certainly be part of it--but I do not think it can fully

resolve the problem--just help it along with everything else. These kids have

systemic metabolic problems at the root of their neurological ones--and

homeopathy can certainly help with that--but it will not magically make it all

go away--it takes time, but there's a lot of hope--there's a lot that

appropriate nutrition and supplements can do for their little brains which in

spite of what mainstream medicine would have us believe--do NOT exist in a

vacuum.  I'd say if you're even considering homeopathy

and you're on this list which is more open to nutrition/supplements

ideas--you're on the right track--keep researching and asking questions.

Hope this helps.

Elena

From: <marymejia@...>

Subject: [ ] Homepathic remedies for Apraxia

Date: Tuesday, February 15, 2011, 9:39 PM

Hi All,

Just wanted to know if anyone has used a homeopathic approach for their

children, and what they noticed.

Thanks!

------------------------------------

[Guest guest]

We are using homeopathy for my extremely apraxia son that also has asd symptoms.

Our main gain so far have been with other issues ie... Constipation, eye

contact, energy,

But with this new remedy we gave him a month ago we have finally started seeing

progress with his speech.

Before he seemed to have no clue where to start when saying a word ( he is non

verbal) the more he tried to say any word the worse it became.

Now he tries more often, words(real understandable words) come out , a couple a

day, and he has started prompting his own mouth to get from one sound to the

next.

All of this has happened in the past month on this new remedy.

He still cant say any words on command but he is making more complex sounds.

We gave him a redose of the remedy today, and praying for more words and

awareness of his lips.

Hope this helps

Sharon

Sent from my iPad

On Feb 15, 2011, at 9:39 PM, " " <marymejia@...> wrote:

> Hi All,

>

> Just wanted to know if anyone has used a homeopathic approach for their

children, and what they noticed.

>

> Thanks!

>

>

[Guest guest]

Elena,

Thanks for your story. We also use homeopathy and I love hearing and seeing the

non verbal kids talking. My son 4.2 is also non verbal however now we are

focusing on apraxia that a year ago we were still being told it was autism.

Such huge steps have been made and now apraxia is our main issue.

Off topic did carnitine show a lot of improvement in the speech?

[Guest guest]

Hello,

Sorry to sound ignorant and stupid but what is the difference between

homeopathic remedies vs bio-med ? I know nothing about homeopatic at this point

but very much interested as I have a 6 year old daughter who has severe Apraxia.

No words and sometimes learn a word and the next day, only to lose it. Imitation

is very difficult. It often comes out totally different from the word. For

example, for a week, she could say " on " pretty clearly, but after a week, she

can no longer say the word.

She is on the autism spectrum, is doing Bio-med with Dr Traver. We are on

Carnaware or Carnisone, Fish Oil for a long time with no improvements. We will

be exploring B12 shots soon. I don't know anything about B12 either. Is this

primarily used to help with speech ? Does it help children with apraxia ?

Please share your experiences on what has helped with speech. I'm open to try

anything.

Thanks so much!

[Guest guest]

Bio-med could be supplements, chelation, IVIG,  antivirals, antibacterial

therapies, Lyme therapy, HBOC, and other DAN therapies.

 

With respect to Homeopathy there is conventional and sequential. This is a good

definition I found- Homeopathy,  uses your body's own healing abilities to cure

you of the cause for your ailments. It uses specific homeopathic remedies

selected for your specific circumstances. These remedies then trigger the body

to go about healing itself. Your remedies are chosen by your practitioner after

a consultation to determine a complete picture of you and your ailment.

 

Just wondering if you tried NV ? If you have any questions on it please feel

free to e-mail me at td23@...

 

Demi

From: k888yut <k888yut@...>

Subject: [ ] Re: Homepathic remedies for Apraxia

Date: Wednesday, February 16, 2011, 1:44 PM

 

Hello,

Sorry to sound ignorant and stupid but what is the difference between

homeopathic remedies vs bio-med ? I know nothing about homeopatic at this point

but very much interested as I have a 6 year old daughter who has severe Apraxia.

No words and sometimes learn a word and the next day, only to lose it. Imitation

is very difficult. It often comes out totally different from the word. For

example, for a week, she could say " on " pretty clearly, but after a week, she

can no longer say the word.

She is on the autism spectrum, is doing Bio-med with Dr Traver. We are on

Carnaware or Carnisone, Fish Oil for a long time with no improvements. We will

be exploring B12 shots soon. I don't know anything about B12 either. Is this

primarily used to help with speech ? Does it help children with apraxia ?

Please share your experiences on what has helped with speech. I'm open to try

anything.

Thanks so much!

[Guest guest]

Hi there,

No reason to feel ignorant--we're all ignorant until we learn--but it is

importnat to want to learn. I have to run so i will try to be brief now---but

read my other post for more info on our story and what helped my non-verbal

child.  We did a combo of biomed mostly with some sporadic homeopathic

remedies--but nothing constitutional--only isolated remedies for specific

things. Google homeopathy and learn about it--it is an amzing way to heal and

keep the body strong and healthy. I fully believe in it--but as all medical

approaches it has its strengths and weaknesses.  And you can do both homeopathy

and biomed--which is more supplemnt/diet based--but most homeopaths will work

with diet and supplements as well. once you are out of the maisntream dogmas

there is a lot mre fredonm to treat each patient according to their needs and

what applies to their particular situation.

Bioemd is actually closer to aminstream medicien in the sense that it uses more

specific tests and --blood urine--poop--saliva soemtimes to decide whiah

supplements and dietary approaches to go with. homeopaty cna use them too but

msot of the time considers they ar ento needed as they ahve a differnet system

of assessing the health status of an individual. our prediatricain has both

homeopathic and biomed--DAN training. We're very fortunate, she's a very good

and flexible doctor--but that being said--parents need to elarn and be in

control of the treatment protocol as there are soem things that can actually do

more harm then good even with natural remedies.

Detox is more specifically what i am referrign to-and that is advanced

biomed--it apples to homeopathy as well--and while it can help detocx--i do nto

think homeopathy can fully do the job since it works by empowering the body to

self heal--and for heavy metls for example there are no means for the body to

detox once the metlas ar ein brain and other organ tissues---outside chelating

agents are needed and that is really advanced--but be warned that if you hear

the word " detox " coming from your doctor--to read all you can and do not jsut

buy the fact that these are gentle--plant based herbal chelators--let's try

them.

Other than the detox topic--which is the msot controversial --the rest are all

still trial and error but there is less that cna go wrong--if it does you modify

the dose--reeasses the need for that supplement--maybe run another test or

repeat the same one etc.

Since you ar ein the care of a biomed physician--plkease understand that they

are NOT gods--just liek their mainstream counterparts--while they are more

enlightened they ar eprone to the same marketing influences as their mainstream

counterparts and you need to fully understnad the protocol--join other lists of

parents treatign their kids with biomed and learn from them--ther eis a wealth

of parental info and guidence out there--doctors alone cannot do it--no matter

what their training--we need to be good observers and to understand that it is

up to us to find flexible medicla professionals to help guide us--but not impose

their rigid protocols-on our children because they may not be what our

particular child needs--adn it may not be as safe as the doctor tells us it is.

never blindly trust--always read and make informed decisions. Biomed/Homeopathy

both are holistic approaches and hold a lot of promise to help heal our kids and

read the body of what

does NOT belong there-- and this includes----toxins of all kinds, heavy metals

especially since they have become oh so pervasive, other toxic chemicals and

even foods that are inapropriately digested and become toxic for us, as well as

opportunistic infections--viruses, bacteria, parasites--all of these play a role

in our overall health but also our immune /meatbolic/ endocrine/neurologicla

health--these are all connected---and then these holistic approaches provide

what is missing via diet and supplements and homeopathic remedies can be part of

this as well.  Most homeopaths do acknowledge the role of probiotics for example

and fish oils etc--but they work more with their established remedies and

empowering the body from within--rather than directly providing the missing

nutrients--but that can also be part of the protocol, it's just not their main

focus.

Hope this helps.

Elena

From: k888yut <k888yut@...>

Subject: [ ] Re: Homepathic remedies for Apraxia

Date: Wednesday, February 16, 2011, 1:44 PM

Hello,

Sorry to sound ignorant and stupid but what is the difference between

homeopathic remedies vs bio-med ? I know nothing about homeopatic at this point

but very much interested as I have a 6 year old daughter who has severe Apraxia.

No words and sometimes learn a word and the next day, only to lose it. Imitation

is very difficult. It often comes out totally different from the word. For

example, for a week, she could say " on " pretty clearly, but after a week, she

can no longer say the word.

She is on the autism spectrum, is doing Bio-med with Dr Traver. We are on

Carnaware or Carnisone, Fish Oil for a long time with no improvements. We will

be exploring B12 shots soon. I don't know anything about B12 either. Is this

primarily used to help with speech ? Does it help children with apraxia ?

Please share your experiences on what has helped with speech. I'm open to try

anything.

Thanks so much!

------------------------------------

[Guest guest]

Just wanted thanks to everyone that responded. My sons are verbal but near only

70% intellegable. I thought turning to homeopathic remedies may be good. I will

keep you posted. Wish us luck!

Sent on the TELUS Mobility network with BlackBerry

Re: [ ] Re: Homepathic remedies for Apraxia

Bio-med could be supplements, chelation, IVIG,  antivirals, antibacterial

therapies, Lyme therapy, HBOC, and other DAN therapies.

 

With respect to Homeopathy there is conventional and sequential. This is a good

definition I found- Homeopathy,  uses your body's own healing abilities to cure

you of the cause for your ailments. It uses specific homeopathic remedies

selected for your specific circumstances. These remedies then trigger the body

to go about healing itself. Your remedies are chosen by your practitioner after

a consultation to determine a complete picture of you and your ailment.

 

Just wondering if you tried NV ? If you have any questions on it please feel

free to e-mail me at td23@...

 

Demi

[Guest guest]

*>> Since you ar ein the care of a biomed physician--plkease understand that

they are NOT gods--just liek their mainstream counterparts--while they are

more enlightened they ar eprone to the same marketing influences as their

mainstream counterparts and you need to fully understnad the protocol--join

other lists of parents treatign their kids with biomed and learn from

them--ther eis a wealth of parental info and guidence out there--doctors

alone cannot do it--no matter what their training--we need to be good

observers and to understand that it is up to us to find flexible medicla

professionals to help guide us*

I couldn't agree more! With our DAN, I still recommend and re-tweak all his

recommendations after they're made and then I still add components to it. I

find biomed very customized " medicine " . I research and research and

research and then research some more. I have a more vested interest in

healing my children (I have 2 children on the spectrum) than our DAN does.

The difference between autistic children and children who are NT and have

only apraxia is that in children on the spectrum have atypical immune

systems and they differences in their immune systems manifests so

differently in different individuals.

[Guest guest]

I agree as well (of course) of not assuming anyone is a God. Some doctors

however have earned the right to have more respect than others, and it's good to

be able to have a medical partner to discuss with. I just read a fascinating

article about the future of computers such as Jeopardy's working as

physician assistants

http://www.computerworld.com/s/article/9209899/IBM_s__could_usher_in_new_e\

ra_of_medicine?taxonomyId=12

When I saw , who actually many now working with now refer to as " Dr.

" I thought about writing a new blog about computers like that

understand abstract intricacies of language, and how this technology may be able

to help those today with communication impairments such as autism who don't

understand abstract language. I do plan on writing a blog on this later.

I myself find it amazing that speech therapy can teach functional language, but

does not teach abstract thought and humor...and while some may not have tried it

-NV does increase greatly abstract thought and humor which is why I listed it

http://pursuitofresearch.org/pursuit-of-research/ as one of the positive changes

we note typically in the first month (I'd say that is not the one to three day

surge -but it starts in a few weeks once on NV)

No matter how much research any of us do, and no matter how knowledgeable any

doctor alternative or traditional is about autism and apraxia and all the other

conditions that fit into the rise of multifaceted communication impairments we

are still in the dark as to the definitive cause. I know there are some still

that believe it's vaccines, but while they may contribute just like junk food

and other toxins, it doesn't explain the cluster areas where we have higher

numbers. All I know is as a parent if you hear about a " treatment " and even if

you have to refinance your house (which is something parent's used to do easily

before the housing crash) parents did it. I've read the kookiest things here

over the years and all of it was under the advice of someone- some type of

professional. You get advice your choice is to research it yourself and stick

with the same professional and talk with him or her about your findings, get a

second or even more opinions from other professionals, or both.

I don't however agree that there is such a thing as " only apraxia " as most that

have a child with apraxia today have a child that has a multifaceted syndrome

including in most cases one or more other neurologically based dysfunction in

muscle weakness or hypotonia, sensory dysfunction, motor planning deficits in

the body, constipation and other gut issues. I also do not agree that the

difference between autism and those without autism have a definitive compromised

immune system -otherwise known as the viral theory of autism.

First of all even if autism was viral based which is a possibility and I write

about those theories here

http://pursuitofresearch.org/2010/11/29/autism-antivirals-drugs-or-food/ don't

assume that the children with apraxia didn't catch the same bug and just show

different end results. Not all that had polio went blind! And speaking of polio

as well, the story of Dr. Salk is one of the reasons I myself respect those

traditional medical research doctors

http://www.pbs.org/wgbh/aso/databank/entries/dm52sa.html Clearly a doctor to

respect, that's an understatement!

And it's not just medicine that's become too money fed vs goodness fed- look at

the food industry -look at energy drinks and the rise in strokes in children

from age 5! Why isn't the CDC study that found the almost 50% increase in

children aged 5 and up to young adults aged 44 years old all over the media?

http://pursuitofresearch.org/2011/02/11/should-we-blame-soda-or-energy-drinks-fo\

r-the-sudden-rise-of-strokes-in-children/ In the past ten years there was a

rise and energy drinks came in to this country in 1997 and research shows even

one can changes the blood and makes it " sticky " putting the consumer at a higher

risk of heart attack and stroke.

But back to apraxia and autism, if they were words...the way to distinguish them

would be to write them both with a brush and use water colors- because there are

no clear lines! Now " severe autism " or what I call real autism or the classic

autism from 50 years ago- that's different. But the rise in diabetes,

Alzheimer's, cardiovascular disease may all sound different than autism,

apraxia, ADHD etc. -but perhaps it's all tied to metabolic dysfunction as

research is finding. We need to look at the whole picture instead of not being

able to see the forest through the trees!

And another thing is accuracy of diagnosis. How do you know your child is

autistic today and not apraxic? You do want to know if a child has either or

both due to therapy as ABA is not appropriate and can even be detrimental for

apraxia. I have now heard from 2 autism experts -one in NY and one in Florida

that 40 to 50% of the patients they see that have an autism diagnosis are

misdiagnosed and instead have apraxia. So don't put any child so deep into a

box that you cut them off from treatments that may be working for others just

like him or her...but with a different diagnosis. Because depending upon where

you live and what professionals you take the exact same child to- you may get

multiple diagnosis -and if you only stick with one professional...you only stick

with one therapist -and your child remains nonverbal year after year as we read

about here time and time again -you should immediately seek other opinions.

All we have right now for our children are opinions and theories -not facts yet.

And that's OK because it's better to know that then to assume there are facts

when there are still other possibilities.

Dr. what do you think?!!

=====